Observatorio del Cáncer

What Observatorio del Cáncer does

Observatorio del Cáncer (legally Fundación Observatorio del Cáncer) is a Chilean private non-profit foundation headquartered in Santiago that operates as the country's primary independent cancer observatory. The organization combines four integrated functions: (1) research and data generation through patient registries and national surveys — including the first public national registry of patients awaiting breast reconstruction surgery, the #YoSoyTriple census for triple-negative breast cancer (n=303 patients as of September 2024), and a national chemotherapy experience survey covering all 16 Chilean regions; (2) scientific journalism and content production through Revista ROC magazine and three podcast series (Estadio Cero, Conversaciones Impostergables, No Te Prospongas); (3) policy advocacy, including direct engagement with the Chilean Congress, Ministry of Health, Ministry of Women, and WHO/PAHO; and (4) educational campaigns such as #ATRÉVETE (prostate cancer), Reconstrucción Mamaria, and Usa Filtro (skin cancer).

Its core technology comprises patient registry and self-registration platforms (built on Typeform), a Wix-hosted content platform, podcast distribution via Spotify and YouTube, and event-based community infrastructure. The underlying technology is conventional web/content tooling rather than proprietary AI or analytical systems.

The foundation serves a hybrid customer base: cancer patients and survivors (primary), the general public, healthcare professionals and policymakers, plus institutional B2B clients including corporate employers (Pfizer, BUPA Santiago, Clínica MEDS), municipal governments (Lo Barnechea, Gobierno Regional de Antofagasta), and educational institutions. The revenue model combines free public-good delivery (registries, publications, podcasts, patient guides such as Bitácora para Sanar) with fee-based consulting services delivered through a four-stage process (Diagnosis, Design, Implementation, Monitoring) to enterprises, municipalities, and schools. With only 5 employees and no disclosed revenue, the organization operates as a lean advocacy and research entity, funded implicitly through donations, grants, and consulting fees.

Name

Observatorio del Cáncer

Legal name

Fundación Observatorio del Cáncer

Website

https://observatoriodelcancer.cl

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

Observatorio del Cáncer is a Chilean non-profit foundation operating as the country's primary independent cancer observatory, combining patient registries, scientific journalism (Revista ROC), podcasts, and policy advocacy to address cancer care gaps across Chile's 16 regions.

Ownership category

akta.pro rank

Product category

Cancer Research and Advocacy

NAICS

Other Similar Organizations (except Business, Professional, Labor, and Political Organizations) (813990)

SIC

Services-Health Services (8000), Services-Social Services (8300)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industry

Health Promotion & Public Health Education (Community Workshops) (EDAAAFAG)

Keywords

• Cancer research
• Patient registries
• Public health advocacy
• Cancer education
• Scientific journalism

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D

Distribution channels5 records

Marketing channels10 records

Core offering

Observatorio del Cáncer is a Chilean non-profit foundation that generates cancer-related research, analysis, and educational resources for Chile. It operates public patient registries (including the first national registry of patients awaiting breast reconstruction and the #YoSoyTriple census for triple-negative breast cancer), publishes the Revista ROC scientific and social journalism magazine, produces three podcast series on cancer prevention and patient stories, and runs educational campaigns across multiple cancer types. It also delivers consulting services to enterprises, municipalities, and educational institutions and engages in cancer policy advocacy with government bodies including Chile's Ministry of Health and Congress.

Product overview

Observatorio del Cáncer is a Chilean cancer foundation operating primarily as a digital information and advocacy platform rather than a traditional SaaS product. The core offering consists of a comprehensive web portal providing educational content about 16 cancer types, supplemented by the Revista ROC scientific journalism magazine, multiple podcast series (Estadio Cero, Conversaciones Impostergables, No Te Prospongas), and clinical trials information resources. The organization also offers consultancy services for enterprises, municipalities, and educational institutions. Notable sub-initiatives include the breast reconstruction patient registry (#YoSoyTriple census for triple-negative breast cancer), the Bitácora Para Sanar therapeutic journal for patients, and the #ATRÉVETE prostate cancer prevention campaign. The organization functions as a non-profit information and advocacy hub rather than a technology product company.

Differentiator

Problem solved

Functional benefit

Brands

• Revista ROC: Oncology science and social journalism magazine produced by the organization, featuring special editions on prostate cancer, breast cancer, and cervical cancer.
• Estadio Cero
• No Te Prospongas
• Conversaciones Impostergables
• Premio Karla Moraga
• Premio Karla Moraga
• Premio Karla Moraga

Products and services

• Revista ROC Scientific and social journalism magazine published in regular editions and special reports covering multiple cancer types including breast, cervical, and prostate cancer in Chile, targeted at patients, healthcare professionals, and the general public.
• Podcast Series (Estadio Cero, Conversaciones Impostergables, No Te Prospongas) Three podcast series distributed via Spotify and YouTube addressing cancer prevention, early diagnosis, prostate health (No Te Prospongas), breast cancer conversations (Conversaciones Impostergables), and expert perspectives and patient stories (Estadio Cero).
• Todo sobre Cáncer Comprehensive information portal covering 16 types of cancer with epidemiological data, risk factors, treatment options, and prevention information, designed for cancer patients and the general public in Chile.
• Estudios Clínicos Educational resource explaining clinical trials, their importance, safety protocols, participation criteria, and patient rights, designed for cancer patients and the general public considering clinical trial participation in Chile.
• Consultoría Specialized consulting services for enterprises, municipalities, and educational institutions covering cancer prevention program design, strategic campaigns, and evidence-based health initiatives, delivered through a four-stage process of Diagnosis, Design, Implementation, and Monitoring.
• Bitácora Para Sanar A therapeutic life journal/diary for cancer patients created in collaboration with psycho-oncologists, containing motivational content, nutrition tips, mindfulness exercises, and medical treatment organization sheets.

Quantifiable outcome

• 31,498 estimated cancer deaths per year in Chile (GLOBOCAN 2024)
• +7 more outcomes

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature5 records

Partnerships

21 partnerships are on record, tiered core and minor.

• Pacto Global Chile - Mesa de SaludcoreStrategic or Co-development Partner · 1 July 2025Observatorio del Cáncer participates in the Health Mesa of Pacto Global Chile during the second half of 2025, contributing to advance concrete commitments aligned with Sustainable Development Goals, particularly SDG 3: Health and Well-being. The organization works with the private sector to develop joint solutions for cancer prevention and early detection in workplace settings.
• Municipalidad de Lo BarnecheaminorStrategic or Co-development Partner · 22 October 2024Signed a collaboration agreement to analyze and dimension the reality of cancer in the commune. The initiative involved Mayor Cristóbal Lira and representatives from the Contigo Red Mujer program to gather local cancer data and develop evidence-based health strategies for the municipality.
• Clínica BUPA SantiagocoreStrategic or Co-development PartnerCo-led the #ATRÉVETE prostate cancer prevention campaign, motivating men over 40 to undergo preventive examinations. Clínica BUPA-Santiago contributed medical expertise and facilities to support community outreach and screening activities.
• Colegio de Químicos Farmacéuticos y Bioquímicos de ChilecoreStrategic or Co-development PartnerStrategic co-leader of the #ATRÉVETE prostate cancer prevention campaign, contributing professional pharmaceutical and biochemical expertise to support preventive health outreach and screening promotion.
• Corporación Nacional del Cáncer de PróstatacoreStrategic or Co-development PartnerStrategic co-leader of the #ATRÉVETE prostate cancer prevention campaign, providing specialized knowledge in prostate cancer advocacy and patient support.
• Sifup (Sindicato de Futbolistas Profesionales de Chile)minorStrategic or Co-development PartnerPartner in the #ATRÉVETE prostate cancer prevention campaign, leveraging sports community reach to promote male health awareness and preventive examination among professional soccer players and affiliated members.
• ANFP (Asociación Nacional de Fútbol Profesional de Chile)minorStrategic or Co-development PartnerPartner in the #ATRÉVETE prostate cancer prevention campaign, utilizing the national football association's platform and community influence to raise awareness about prostate cancer prevention among male audiences.
• Marta PrietominorStrategic or Co-development PartnerRecognized expert contributor to the #YoSoyTriple census initiative for triple-negative breast cancer patients, providing essential experience and expertise that strengthened the data collection and analysis work.
• Centro de Investigación del Cáncer James LindcoreStrategic or Co-development PartnerCollaborative partner supporting the presentation and distribution of 'Bitácora para Sanar' (oncological life diary) in the Biobío Region. The center contributed research expertise and facilitated venue access at Universidad San Sebastián for the regional launch event.
• WHO/PAHO (World Health Organization / Pan American Health Organization)coreStrategic or Co-development PartnerBáltica Cabieses, recipient of the Premio Karla Moraga 2025, was a leader at the WHO/PAHO Collaborating Centre. The organization maintains connections with WHO/PAHO through its network of public health experts and participates in international cancer policy frameworks aligned with WHO guidance.
• Triple Negativa, Siempre Positiva (Patient Advocacy Group)minorStrategic or Co-development PartnerPatient advocacy group for triple-negative breast cancer that partnered with the organization to raise awareness about the disease, promote the #YoSoyTriple census, and advocate for access to advanced therapies in the public health system.
• Ministerio de Salud de ChilecoreStrategic or Co-development PartnerEngages with Chile's Ministry of Health for policy advocacy and data sharing. The organization participated in the presentation of the National Cancer Plan updates (2022-2027 and 2023-2028 for children and adolescents) and advocates for improved cancer care policies.
• Ministerio de la Mujer y la Equidad de Género de ChilecoreStrategic or Co-development PartnerMet with Minister Antonia Orellana to present breast reconstruction gap data from the First National Registry of Patients Awaiting Reconstruction, advocating for policy changes to guarantee equitable access to reconstruction surgery for all breast cancer survivors.
• Senadora Paulina NúñezminorStrategic or Co-development PartnerParliamentary ally who presented a Senate agreement project to establish defined timelines for breast reconstruction surgery access, working alongside the organization to advance legislative action on cancer care equity.
• Senado de Chile (Congressional Engagement)coreStrategic or Co-development PartnerConducted interviews with senators and deputies during Prostate Cancer Awareness Month to discuss early detection, access gaps, territorial disparities, and public policy challenges, generating cross-party political consensus on cancer as a public health priority.
• Hospital Regional de AntofagastaminorStrategic or Co-development PartnerPartner in the Regional Forum on Lung Cancer in Antofagasta. Dr. Antonio Zapata, director of the hospital, contributed regional health data analysis and outlined ongoing screening project plans through imaging studies for early diagnosis in the northern region.
• Centro Oncológico del NorteminorStrategic or Co-development PartnerPartner in the Regional Forum on Lung Cancer in Antofagasta. Dr. Jessica Cañarte, head of Palliative Care at the center, contributed expertise on the need for comprehensive patient care, noting that 90% of lung cancer diagnoses occur at advanced stages.
• Centro de Investigación Clínica Bradford HillminorStrategic or Co-development PartnerPartner in the Regional Forum on Lung Cancer. Dr. Carlos Rojas, executive director, shared advances in new research and targeted treatments for lung cancer patients in the northern region, emphasizing personalized medicine approaches.
• Clínica MEDScoreStrategic or Co-development PartnerPartner in the #Atrévete prostate cancer prevention campaign and contributor to the #ATRÉVETE initiative in Antofagasta. Clínica MEDS provided medical professionals for community screening activities and expert contributions to the podcast and prostate cancer special editions.
• PfizerminorStrategic or Co-development PartnerCorporate partner in the #Atrévete campaign in Antofagasta, supporting prostate cancer prevention activities and early detection promotion in the northern region alongside governmental and medical institutional partners.
• Gobierno Regional de AntofagastaminorStrategic or Co-development PartnerRegional government partner in the #Atrévete Antofagasta campaign, providing governmental support and funding for prostate cancer prevention activities and early detection screening in the Antofagasta region.

Recent moves6 records

Expansion highlights5 records

Emerging players

• Susan G. Komen: Disease-specific (breast cancer) nonprofit combining patient registries, education, advocacy, and community events. Comparable niche focus to Observatorio's breast reconstruction and #YoSoyTriple work.
• Lung Cancer Research Foundation: Disease-specific cancer nonprofit funding research and awareness; relevant peer for Observatorio's Antofagasta lung cancer regional forum and disparities work.

Direct peers

• Corporación Nacional del Cáncer de Próstata: Chilean nonprofit dedicated to prostate cancer advocacy and patient support; co-leads the #ATRÉVETE campaign with Observatorio, making it a direct programmatic peer.
• Liga Chilena contra el Cáncer: Chile's longest-standing cancer-focused nonprofit, providing patient support, education, and prevention campaigns. Most directly comparable peer given identical mission space and Chilean geography.
• Triple Negativa, Siempre Positiva: Chilean patient advocacy group for triple-negative breast cancer partnered with Observatorio on the #YoSoyTriple census. Direct mission peer in the same disease niche and country.

Broad incumbents

• Cancer Research UK: Largest independent cancer research and awareness charity globally, operating registries, campaigns, and policy advocacy — comparable integrated mission across research, education, and influence.
• Macmillan Cancer Support: Major UK cancer charity providing patient information, policy advocacy, and support services; comparable integration of education, research dissemination, and community-facing resources.
• American Cancer Society: Global benchmark for cancer-focused nonprofits combining research funding, patient support, education, and policy advocacy. Comparable model at vastly larger scale.
• Fundación Arturo López Pérez (FALP): Largest Chilean oncology institution combining clinical care, research, and patient education. Comparable as a broader incumbent operating across the same cancer ecosystem with significantly greater resources.

Regional players

• Centro de Investigación del Cáncer James Lind: Chilean cancer research center partnering on the Bitácora para Sanar distribution in Biobío Region; comparable in research and community-facing output within Chile's regional oncology ecosystem.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@observatoriodelcancer
• Facebookfacebook.com/observatoriodelcancer
• LinkedInlinkedin.com/company/observatorio-del-c%C3%A1ncer
• Instagraminstagram.com/observatoriodelcancer

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Observatorio del Cáncer