National Parkinson Foundation Heartland

What National Parkinson Foundation Heartland does

The Parkinson's Foundation Heartland Chapter is a regional 501(c)(3) nonprofit organization serving people with Parkinson's disease, care partners, family members, and healthcare professionals across four states — Kansas, Nebraska, Iowa, and Missouri. Operating as a chapter of the national Parkinson's Foundation (headquartered in Miami, FL; EIN 13-1866796), the organization delivers free programs including a toll-free helpline (1-800-4PD-INFO), a PD Library of educational publications, online education and webinars, care programs, community grants, a hospital safety guide, and signature fundraising events such as Moving Day walks. Reported cumulative impact includes 46,654 people with PD served, 126,546 publications distributed, and 562 health professionals trained.

The chapter is anchored by two Parkinson's Foundation Centers of Excellence — the Krupp Smith Family Foundation Center of Excellence at the University of Kansas Medical Center and the University of Iowa Hospitals and Clinics — described as the most respected designation in the movement disorders field. The organization does not develop proprietary technology; its technology footprint consists of standard nonprofit operational tooling including a website, donation processing via Convio, social media accounts across six platforms, email newsletters, and a phone helpline.

The business model is donation-funded rather than revenue-generating. Income streams include individual donations and bequests, corporate sponsorships, planned giving and tribute gifts, and revenue from fundraising events such as Moving Day walks. All programmatic services are provided free of charge to patients, families, and healthcare professionals. The chapter has 18 employees and distributes resources through direct chapter operations, two academic medical center partners, virtual/online channels, and a national helpline, with no disclosed revenue figure, funding rounds, or financial ownership structure beyond its parent nonprofit.

Name

National Parkinson Foundation Heartland

Legal name

Parkinson's Foundation Heartland Chapter

Website

https://parkinsonheartland.org

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

The Parkinson's Foundation Heartland Chapter is a 501(c)(3) nonprofit regional chapter serving people with Parkinson's disease, care partners, families, and healthcare professionals across Kansas, Nebraska, Iowa, and Missouri through free educational programs, a helpline, support services, and fundraising events.

Ownership category

akta.pro rank

Product category

Parkinson's Disease Support Services

NAICS

Voluntary Health Organizations (813212)

SIC

Services-Social Services (8300)

akta.pro primary industry

Parkinson’s & Movement-Disorder Personal Care Support (HSABABAJ)

akta.pro secondary industries

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA), Private Foundations (BPAGAKAA)

Keywords

• Parkinson disease support
• Movement disorder care
• Parkinson research funding
• Caregiver support services
• Patient education resources

Headquarters

HQ city

Regional - Kansas, Nebraska, Iowa, Missouri

HQ country

United States

HQ region

North America

Offices3 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: The organization operates as a 501(c)(3) nonprofit organization (EIN: 13-1866796) funded primarily through individual donations, bequests, and charitable contributions from supporters.
2. Corporate Sponsorships: Corporate sponsorship program where companies sponsor events and initiatives supporting Parkinson's research and patient care.
3. Planned Giving and Tribute Gifts: Deferred giving vehicles including planned giving programs and tribute gifts in memory or honor of individuals.
4. Fundraising Events: Revenue generated from fundraising events such as Moving Day walks and other community-driven fundraising initiatives.

Go-to-market motion2 records

Distribution channels4 records

Marketing channels7 records

Core offering

Parkinson's Foundation Heartland Chapter is a 501(c)(3) nonprofit regional chapter that supports people with Parkinson's disease, their care partners, and families across Kansas, Nebraska, Iowa, and Missouri. It delivers free services including a national Helpline, PD Library publications, online education, care programs, community grants, a hospital safety guide, and signature fundraising/awareness events such as Moving Day walks. The chapter also coordinates with two Parkinson's Foundation Centers of Excellence in its territory to advance care and research.

Product overview

The Parkinson's Foundation Heartland Chapter is a non-profit organization providing a unified set of support services for people with Parkinson's disease (PD). The chapter operates as a service organization offering the Helpline for direct support and information, the PD Library for publications, Online Education programs, Care Programs, Community Grants, and Hospital Safety Guides. The chapter also organizes signature events like Moving Day walks and expert briefings. The organization serves Kansas, Nebraska, Iowa, and Missouri, having served 46,654 people with PD, distributed 126,546 publications, and trained 562 health professionals. It hosts two Parkinson's Foundation Centers of Excellence: the Krupp Smith Family Foundation Center of Excellence at the University of Kansas Medical Center and University of Iowa Hospitals and Clinics.

Differentiator

Problem solved

Functional benefit

Products and services

• Helpline
• PD Library
• Online Education
• Care Programs
• Community Grants
• Hospital Safety Guide
• Moving Day

Quantifiable outcome

• 46,654 people with PD served by the chapter
• +2 more outcomes

Named customers2 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Three partnerships are on record, tiered core and minor.

• University of Kansas Medical CentercoreStrategic or Co-development PartnerHome to the Parkinson's Foundation Krupp Smith Family Foundation Center of Excellence, providing comprehensive Parkinson's disease care, research, and professional training as a designated Center of Excellence - the most respected designation in the field of movement disorders.
• University of Iowa Hospitals and ClinicscoreStrategic or Co-development PartnerDesignated as a Parkinson's Foundation Center of Excellence, providing comprehensive Parkinson's disease care and serving as a hub for research and healthcare professional training in the region.
• Corporate SponsorsminorGTM or Marketing PartnerCorporate sponsors support events and initiatives through sponsorship arrangements. Sponsors engage with the organization to support Parkinson's research and patient care while building brand awareness.

Scale indicators5 records

Recent moves5 records

Expansion highlights4 records

Direct peers

• Davis Phinney Foundation: A Parkinson's-focused nonprofit delivering education programs, wellness content, and the Victory Summit events for patients and care partners. Comparable mission and program mix to the Heartland Chapter.
• American Parkinson Disease Association: A national Parkinson's nonprofit operating a network of regional chapters, information & referral services, and research funding — structurally the closest functional peer to Parkinson's Foundation Heartland.
• Brian Grant Foundation: A nonprofit founded by former NBA player Brian Grant focused on empowering people with Parkinson's through exercise, nutrition, and wellness programs. Comparable PD-specific programmatic focus with smaller, regionally-oriented operations.
• PMD Alliance: A nonprofit providing education, resources, and support for people living with Parkinson's and other movement disorders. Comparable patient-education, support-group, and healthcare-professional training model.
• Michael J. Fox Foundation for Parkinson's Research: The largest nonprofit funder of Parkinson's disease research globally, with a parallel mission of advancing research and supporting patients. Highly comparable in disease focus, donor-driven model, and PD community engagement.

Broad incumbents

• Parkinson's Foundation: The national parent organization and largest Parkinson's-disease nonprofit in the U.S., operating the Centers of Excellence network, research programs, and helpline that the Heartland Chapter serves under. Directly comparable as the umbrella entity for PD care, research, and advocacy.

Regional players

• Parkinson Association of the Carolinas: A regional Parkinson's nonprofit serving North and South Carolina with patient support, education, and community programs. Functionally analogous as a multi-state regional PD foundation.
• Northwest Parkinson Foundation: A regional Parkinson's nonprofit serving the Pacific Northwest with similar community-led programming, support groups, and educational events — directly comparable as a non-chapter regional PD foundation.

Others

• National Ataxia Foundation: A nonprofit serving patients with ataxia, a related neurological movement disorder. Comparable in patient-support nonprofit model and disease-specific focus, though addressing a different (though adjacent) condition.

Emerging players

• Muhammad Ali Parkinson Center at Barrow Neurological Institute: An integrated Parkinson's care and research center offering clinical services, education, and community programming. Comparable as a clinical-academic hub serving the PD community through both direct care and outreach.

Market position

Strengths5 records

Weaknesses4 records

Competitive moat3 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/parkinsondotorg
• YouTubeyoutube.com/channel/UCZYwe6WjTuyLWkYjLH_MQPA
• Facebookfacebook.com/parkinsondotorg
• LinkedInlinkedin.com/company/national-parkinson-foundation-heartland
• Instagraminstagram.com/parkinsondotorg
• TikToktiktok.com/@parkinsondotorg

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about National Parkinson Foundation Heartland