Pediatric Spine Foundation

Name

Pediatric Spine Foundation

Legal name

Pediatric Spine Foundation

Website

https://pediatricspinefoundation.org

Company type

Private

Founded year

2020

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Pediatric Spine Research and Education

NAICS

Voluntary Health Organizations (813212), Child and Youth Services (624110), Educational Support Services (611710), Child and Youth Services (62411)

SIC

Services-Health Services (8000), Services-Educational Services (8200), Services-Social Services (8300)

akta.pro primary industry

Pediatric Specialty Care Centers (e.g., cardiology, oncology, neurology) (HLAFAJAH)

akta.pro secondary industries

Pediatric Rehabilitation & Developmental Therapy Centers (PT/OT/SLP) (HLAFAJAL), Pediatric Physical Therapy & Developmental Rehab (HSADAIAE), Parenting Education for Special Needs & Developmental Differences (EDACALAK)

Keywords

• Pediatric spine research
• Scoliosis registry database
• Early onset scoliosis
• Medical education conferences
• Patient support programs

Headquarters

HQ city

Valley Forge, Pennsylvania

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Others, Technology or R&D, Marketing or Sales

Revenue model

1. Donations: Tax-deductible donations from individuals to support research, education, and family support programs. Donations can be made online, by mail, or by phone.
2. Corporate Sponsorships: Corporate partner opportunities for companies to support the foundation's mission. Documents reference Corporate Sponsor programs.
3. Amazon Smile: The foundation participates in Amazon's charitable giving program where 0.5% of purchases are donated.
4. PSSG Membership Dues: PSSG members are required to pay $500 in annual dues.

Pricing tiers

Go-to-market motion3 records

Distribution channels2 records

Marketing channels6 records

Core offering

The Pediatric Spine Foundation is a nonprofit medical research and education organization that operates the world's largest scoliosis database (the Pediatric Spine Registry) to support clinical research on Early Onset Scoliosis. It hosts the annual ICEOS scientific congress for pediatric spine surgeons, runs the PSSG research collaborative of 200+ international clinicians, and provides Family Travel Grants plus educational resources to families of children with spine disorders.

Product overview

The Pediatric Spine Foundation is a nonprofit medical research and education organization offering a portfolio of programs and resources centered on improving care for children with chest wall and spine disorders, particularly Early Onset Scoliosis. Its core offerings include the Pediatric Spine Registry (the world's largest scoliosis database), the annual ICEOS international congress for clinicians, clinician and family education programs, the Family Travel Grant for financial assistance, peer-reviewed publications, and PSSG membership for research collaboration. The organization does not offer a software product but provides educational resources, research infrastructure, and a provider network to support patients and medical professionals dealing with pediatric spinal deformities.

Differentiator

Problem solved

Functional benefit

Brands

• ICEOS: International Congress on Early Onset Scoliosis and the Growing Spine - the world's leading conference addressing complex spinal disorders in the growing child, with approximately 200 surgeons and allied health professionals from around the world attending annually.

Products and services

• Pediatric Spine Registry Multi-institutional prospective database that securely and reliably tracks patients with Early Onset Scoliosis and serves as a basis for clinical research in complex spinal disorders; used by PSSG member clinicians and researchers worldwide.
• ICEOS Annual Congress Annual CME-accredited International Congress on Early Onset Scoliosis and the Growing Spine that gathers an international faculty and over 200 pediatric surgeons to discuss advances in treatment of severe spinal disorders and the growing spine; includes invited lectures, free papers, debates, case discussions, and non-CME surgical technique forums.
• PSSG Membership Program Paid membership collaborative of 200+ clinicians and researchers from major medical institutions worldwide who study real-world data in pediatric spine disorders, contribute data to the registry, and collaborate on research studies; annual dues of $500 per member.
• Family Travel Grant Program Financial assistance program that supports families through the treatment journey for Early Onset Scoliosis by providing travel support during medical care.
• Peer-Reviewed Publications and Research Summaries Peer-reviewed research published by the Pediatric Spine Study Group, distributed in summary form for clinicians and families to access the latest findings in Early Onset Scoliosis treatment.

Quantifiable outcome

• Over 200 PSSG members internationally collaborating on EOS research
• +2 more outcomes

Named customers6 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature1 record

Partnerships

Five partnerships are on record, tiered minor and core.

• StrykerminorOthersStryker is referenced as a corporate partner with a display advertisement on the PSF website linking to Stryker's spine division page. Nature of partnership appears to be corporate sponsorship or advertising.
• Amazon SmileminorOthersPSF participates in Amazon's charitable giving program where 0.5% of eligible purchases are donated to the foundation at no additional cost to shoppers.
• San Diego Spine FoundationcoreStrategic or Co-development PartnerFounded by Behrooz Akbarnia, MD, who also serves as Chairman of the Board for PSF. The San Diego Spine Foundation shares mission alignment in improving spine care outcomes.
• Children's National Hospital and Inova Health SystemcoreStrategic or Co-development PartnerLaurel Blakemore, MD, founding member of PSF, serves as CEO for Pediatric Specialists of Virginia, a collaboration between these two major health systems.
• PSSG (Pediatric Spine Study Group)coreStrategic or Co-development PartnerPSSG is the research arm of PSF, with over 200 members globally contributing patient data to the registry and collaborating on research studies. Formed in 2019 from merger of Children's Spine Foundation and Growing Spine Foundation study groups.

Scale indicators4 records

Recent moves8 records

Expansion highlights5 records

Broad incumbents

• Pediatric Orthopaedic Society of North America (POSNA): POSNA is the leading North American professional society for pediatric orthopedic surgeons, with overlapping membership to PSF's PSSG. PSF's board includes past POSNA presidents, and the organizations share educational missions, though POSNA spans all pediatric orthopedic conditions.
• Scoliosis Research Society (SRS): The Scoliosis Research Society is the largest international professional society dedicated to scoliosis and spinal deformity research, education, and treatment. It overlaps with PSF on scoliosis research dissemination, surgeon education, and annual scientific meetings, though SRS covers all scoliosis types while PSF focuses on pediatric/EOS.
• American Academy of Orthopaedic Surgeons (AAOS): AAOS is the largest U.S. orthopedic professional association, providing continuing education, guidelines, and research dissemination that overlap with PSF's clinician-education role. Many PSF board members are AAOS-affiliated, and AAOS publishes broader orthopedic research that intersects with pediatric spine topics.

Regional players

• European Paediatric Orthopaedic Society (EPOS): EPOS is the primary European pediatric orthopedic society, hosting educational meetings and research initiatives that parallel PSF's PSSG and ICEOS in scope. Many PSSG international members are EPOS-affiliated, making it a complementary regional peer for cross-Atlantic collaboration and competition.
• British Scoliosis Society (BSS): BSS is the UK-focused multidisciplinary society for scoliosis treatment and research. It provides regional education and clinical guidelines comparable to PSF's clinician-education function but serves a UK catchment, complementing PSF's global PSSG footprint.

Direct peers

• Setting Scoliosis Straight Foundation: Setting Scoliosis Straight is the nonprofit foundation supporting the Harms Study Group, focused on adolescent idiopathic scoliosis research and patient education. It is directly comparable to PSF in operating a multicenter scoliosis research collaborative, family education resources, and surgical outcome publications.
• Harms Study Group: The Harms Study Group is a multicenter research collaborative focused on surgical treatment of adolescent idiopathic scoliosis, producing large registry-based studies analogous to PSF's PSSG. It is the most direct research consortium peer, generating comparable clinical evidence and competing for the same pool of pediatric spine surgeons.
• National Scoliosis Foundation (NSF): The National Scoliosis Foundation is a patient-focused nonprofit providing scoliosis education, screening, and support resources. It mirrors PSF's mission of family/patient education and awareness but operates at a broader scoliosis level rather than specializing in pediatric/EOS.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/childrens-spine-foundation

Revenue estimate

Valuation estimate

Number of profiles

Profiles17 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Pediatric Spine Foundation