What PostCovid NL does

PostCovid NL (Stichting PostCovid NL) is a Dutch non-profit patient organization founded in 2022 and headquartered in Amersfoort, Utrecht. It serves as the primary patient body for people with post-covid (long covid) in the Netherlands, addressing an estimated addressable population of 450,000 people of which 90,000 experience severe symptoms such as fatigue, cognitive issues, overstimulation, and Post-Exertional Malaise (PEM). Its mission has broadened to cover the wider Post-Acute Infection Syndrome (PAIS) category.

The organization's product surface consists of three digital properties: the main website postcovidnl.nl (information hub and integrated online community forum), the companion peer-matching platform ontmoetlotgenoten.nl for PAIS patients, and the online forum "Online Gesprekken" where patients exchange recovery and symptom-management experiences. There is no proprietary technology stack described; the platform is a content and community site built on a Drupal-based theme referencing the Longfonds design system. Strategic partnerships anchor the organization to three Dutch academic expertise centers (Erasmus MC, Amsterdam UMC, Maastricht UMC+), and it maintains formal relationships with the Gezondheidsraad, the Ministerie van Volksgezondheid, Welzijn en Sport (VWS), the patient group Long Covid Nederland, and political actors such as GroenLinks-PvdA MP Julian Bushoff.

Revenue is donation-only under ANBI (Algemeen Nut Beogende Instelling) tax-favored status, with no products or services sold. The organization is staffed by 21 paid professionals on the Longfonds CAO, supported by an unpaid volunteer board. Its go-to-market is community-led: awareness and engagement are driven by the website, LinkedIn, Facebook, X, Instagram, newsletter, and direct advocacy with policymakers and healthcare institutions. Susanne E. Baars (MSc, MA) was appointed Director in March 2026, formalizing executive leadership for an organization now expanding into multi-year programmatic funding following the June 2026 parliamentary amendment for €6M in PAIS and C-support funding.

Name

PostCovid NL

Legal name

Stichting PostCovid NL

Website

https://postcovidnl.nl

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

PostCovid NL (Stichting PostCovid NL) is a Dutch non-profit patient organization, founded in 2022 and based in Amersfoort, that provides peer support, information, and policy advocacy for an estimated 450,000 people with post-covid (and the broader PAIS population) in the Netherlands via its website, forum, and peer-matching platform.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Other Individual and Family Services (624190)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Patient Feedback, Surveys, Reputation & Experience Measurement (VoC) (HLACAEAH)

Keywords

• Patient advocacy services
• Peer support networks
• Post-covid information
• Healthcare patient organization
• Community support platform

Headquarters

HQ city

Amersfoort

HQ country

Netherlands

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D

Revenue model

1. Donations: PostCovid NL relies on donations from the public. As an ANBI (Algemeen Nut Beogende Instelling) recognized charity, donations are tax-deductible for donors in the Netherlands and the organization is exempt from gift and inheritance tax.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels7 records

Core offering

PostCovid NL is the Dutch national patient organization for people with long-term symptoms after a coronavirus infection (Post-Covid / PAIS). It provides free information, peer support through an online forum and a peer-matching platform, advocacy to policymakers and healthcare institutions, and participation in research and expertise-center collaborations.

Product overview

PostCovid NL operates as a patient organization website offering a unified platform for information, peer support, and community engagement. The core website serves as the primary portal, while the companion site 'Ontmoet Lotgenoten' provides specialized peer-matching services for PAIS patients. The integrated forum enables community discussions on post-covid topics. Together, these properties form a comprehensive support ecosystem for approximately 450,000 people with post-covid in the Netherlands.

Differentiator

Problem solved

Functional benefit

Products and services

• PostCovid NL Website

Segments2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Nine partnerships are on record, tiered core and minor.

• Julian Bushoff (GroenLinks-PvdA)coreStrategic or Co-development Partner · 1 June 2026Julian Bushoff, together with other Tweede Kamer members, filed an amendment proposing €3 million for C-support and €3 million for a chain-wide approach to post-infectious conditions including post-covid. PostCovid NL advocated for this support through joint letters with Long Covid Nederland.
• Erasmus MCcoreStrategic or Co-development PartnerErasmus MC hosts a post-covid expertise center. A minister visit to this center was documented, highlighting the center's role in post-covid research and care.
• Amsterdam UMCcoreStrategic or Co-development PartnerAmsterdam UMC hosts a post-covid expertise center and, from February 2025, the first expertise center for children with post-covid. Arjan Dokman and Jasper Poldervaart shared their treatment experiences at this center.
• Maastricht UMC+coreStrategic or Co-development PartnerMaastricht UMC+ hosts one of the first post-covid expertise centers in the Netherlands as part of the national network.
• Long Covid NederlandcoreStrategic or Co-development PartnerPostCovid NL and Long Covid Nederland sent joint letters to the Tweede Kamer advocating for preservation of expertise centers, multi-year funding for care and research, and implementation of a broad PAIS approach.
• Ministerie van Volksgezondheid, Welzijn en Sport (VWS)coreStrategic or Co-development PartnerThe Ministry of Health, Welfare and Sport oversees post-covid policy. Minister Sophie Hermans received the parliamentary amendment 'oordeel Kamer' and committed to sending a letter about PAIS before summer 2026.
• Inner Wheel BarchemminorGTM or Marketing PartnerLocal Inner Wheel chapter donated to PostCovid NL, demonstrating community support for the organization's mission.
• Gezondheidsraad (Health Council of the Netherlands)coreStrategic or Co-development PartnerPatient organizations, including PostCovid NL, presented their case to the Gezondheidsraad for better approaches to Long Covid and PAIS. The Council published advice on post-covid and other post-infectious conditions that the organization responded to.
• Koningin Máxima (Queen Máxima)coreGTM or Marketing PartnerQueen Máxima visited the post-covid expertise center in Rotterdam in February 2025, bringing royal attention to the condition and the work of expertise centers.

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• ME/CVS Vereniging: Dutch patient organization for ME/CFS, a condition that overlaps heavily with PAIS. Directly comparable as a national patient advocacy group focused on a post-infectious condition, sharing potential member base and policy goals with PostCovid NL.
• Body Politic: US-based patient-led long-covid support and advocacy organization with active online community. Directly comparable as a national patient advocacy body built around peer support, lived-experience research, and policy influence.
• Long Covid Europe: European federation of long-covid patient organizations. Directly comparable as a pan-national patient advocacy coalition in the same long-covid space, providing a structural counterpart PostCovid NL could affiliate with to extend reach beyond the Netherlands.
• Long Covid Nederland: Dutch patient organization focused on long covid that co-authored parliamentary letters with PostCovid NL. Directly comparable as a national patient advocacy body serving the same Dutch long-covid community with overlapping peer-support and policy mandates.
• Solve ME/CFS Initiative: US non-profit advocating for ME/CFS — a condition that overlaps with PAIS and post-covid. Comparable as a patient-organization peer that combines peer support, research funding, and federal policy advocacy in a post-infectious disease space.
• Long Covid Support (UK): UK charity providing peer support, information, and advocacy for people with long covid. Directly comparable as a national patient organization delivering the same suite of services (peer support, info, policy advocacy) in a neighboring market.
• World ME Alliance: International coalition of ME/CFS patient organizations. Directly comparable to PostCovid NL's PAIS-framing strategy as a multi-country patient advocacy network operating in an overlapping post-infectious disease category.
• Long Covid Kids (UK): UK-based patient organization for children with long covid — directly relevant given PostCovid NL's partner Amsterdam UMC just launched the first Dutch pediatric post-covid expertise center. Strong functional overlap in mission and constituency.

Broad incumbents

• Longfonds: Dutch lung health foundation whose CAO sets PostCovid NL staff compensation and whose branding theme is used on the PostCovid NL site. A broad incumbent in respiratory/chronic lung conditions that operates as the larger umbrella under which PostCovid NL's post-covid niche sits.

Emerging players

• Patient-Led Research Fund: Patient-led long-covid research collective that emerged from Body Politic. Comparable as a complementary player combining patient advocacy with primary research output, which PostCovid NL's UMC partnerships are positioned to emulate.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/PostCovidNL
• Facebookfacebook.com/PostCovidNL
• LinkedInlinkedin.com/company/postcovid-nl
• Instagraminstagram.com/postcovidnl

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about PostCovid NL