Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA)

What Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA) does

The Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA) is a nonprofit community support organization founded in 1972 by parents of children with spina bifida and/or hydrocephalus and incorporated on June 25, 1981, originally as the Northern Alberta Spina Bifida Association before adopting its current name in 1999. Headquartered at #400, 11010-101 Street in Edmonton, Alberta, SBHANA serves individuals diagnosed with spina bifida and/or hydrocephalus and their families across Northern Alberta and the Northwest Territories, supporting over 250 people and families. Operations are delivered through a small team of 13 paid staff (including a Program Director and Program Assistant) supplemented by an unpaid volunteer board of directors, with the majority of program delivery reliant on volunteer effort.

SBHANA delivers a portfolio of programs rather than technology products. Core offerings include the NoLimits Peer Support Evenings for adults and Youth Peer Support for ages 14-29, the SBHANA Support Fund providing up to $1,000 annually per member, psychological funding assistance, the Dr. Peter Bowen Memorial Scholarship ($1,000) and Kailyn Sneath Memorial Scholarship ($1,000), adapted sports and Try-It Days, Camp Freedom mountain retreat, the annual Walk & Roll 5K BBQ fundraiser, a Holiday Party, and educational webinars including the NoLimits Expert Series. The organization maintains deep institutional ties to the Glenrose Rehabilitation Hospital spina bifida clinic (since 1975) and Stollery Children's Hospital, and coordinates nationally with Hydrocephalus Canada.

The revenue model is diversified across donations (e-transfer, PayPal, CanadaHelps.org, Donate-a-Car Canada, SkipTheDepot bottle recycling, planned giving), annual membership fees of $20 (waived for first-year new parents), and fundraising events with corporate match programs (notably Rogers Birdies for Kids at 50% matching). Additional funding flows from government grants at the municipal (City of Edmonton), provincial (Government of Alberta), and federal (Government of Canada) levels, alongside corporate sponsorships from TELUS Friendly Future Foundation, WestJet, Save-On-Foods, RE/MAX, KMS Tools, and ParticipAction. All direct services to members are provided at no cost.

Name

Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA)

Legal name

Spina Bifida and Hydrocephalus Association of Northern Alberta

Website

https://sbhana.org

Company type

Private

Founded year

1972

Operating status

Operating

Short description

SBHANA is a 50-year-old Edmonton-based nonprofit supporting over 250 individuals and families affected by spina bifida and hydrocephalus across Northern Alberta and the Northwest Territories through peer support groups, financial assistance funds, scholarships, and community events.

Ownership category

akta.pro rank

Product category

Disability Support Services

NAICS

Other Individual and Family Services (624190), Child and Youth Services (624110), Voluntary Health Organizations (813212), Grantmaking and Giving Services (8132)

SIC

Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)

akta.pro industry

PRIMARYBPAGACAG

Disability Services & Independent Living Support

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYBPAGACAC

Community Health, Prevention & Health Education

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYBPAGADAH

Special Education, Disability Support & Inclusive Education Nonprofits

Business & Public Services/Nonprofit, NGO & Social Services/Education & Youth Development Nonprofits

Keywords

• Disability support services
• Spina bifida support
• Hydrocephalus support
• Peer support groups
• Community health nonprofit

Headquarters

HQ city

Edmonton

HQ country

Canada

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations: The organization accepts donations via e-transfer, PayPal, CanadaHelps.org, phone, mail, vehicle donations through Donate-a-Car Canada, and bottle recycling through SkipTheDepot. Tax receipts are issued for donations of $25 or more.
2. Membership Fees: Annual membership fee of $20.00 per year, valid from February 1st to January 31st. First year of membership is free for new parents of children born with spina bifida.
3. Fundraising Events: Annual Walk and Roll 5K BBQ fundraiser, KMS Tools Smokie Sale, and other community fundraising events. Donations matched by Rogers Birdies for Kids program at 50%.
4. Planned Giving: The organization offers planned giving options for donors.

Pricing tiers

Go-to-market motion1 record

Distribution channels2 records

Marketing channels8 records

Core offering

SBHANA is a registered nonprofit charity that delivers advocacy, education, and direct support services to individuals and families affected by spina bifida and hydrocephalus across Northern Alberta and the Northwest Territories. Its core offerings include peer support groups (NoLimits for adults and Youth Peer Support for ages 14-29), financial assistance programs (Support Fund up to $1,000 annually and Psychological Funding), scholarship programs (Dr. Peter Bowen Memorial and Kailyn Sneath Memorial scholarships), adapted sports and Try-It Days, Camp Freedom mountain retreat, holiday parties, educational webinars, advocacy work, and a $20/year membership program.

Product overview

SBHANA operates as a single integrated community support organization offering a portfolio of programs and services for individuals and families affected by spina bifida and hydrocephalus. The core offerings include peer support groups (NoLimits for adults, Youth Peer Support for ages 14-29), financial assistance programs (Support Fund up to $1,000/year, Psychological Funding), scholarship programs (Dr. Peter Bowen Memorial Scholarship and Kailyn Sneath Memorial Scholarship for nursing students), annual fundraising events (Walk & Roll 5K BBQ, Holiday Party), membership program ($20/year), recreational programs (Mountain Retreat, Try-It Days), and educational resources including webinars. The organization primarily serves northern Alberta and the Northwest Territories, supporting over 250 individuals and families.

Differentiator

Problem solved

Functional benefit

Products and services

• NoLimits Peer Support Evenings Monthly peer support evenings for adults living with spina bifida and/or hydrocephalus featuring social activities, educational presentations, and coffee social nights.
• Youth Peer Support (14-29) Peer connection opportunities for youth ages 14-29 with Spina Bifida and/or Hydrocephalus through in-person and online events promoting socialization and belonging.
• SBHANA Support Fund Financial assistance program offering up to $1,000 annually to individuals with spina bifida and/or hydrocephalus for medical expenses, educational needs, assistive devices, and other related challenges.
• SBHANA Scholarship Program (Dr. Peter Bowen Memorial and Kailyn Sneath Memorial) Annual $1,000 scholarships awarded to students with spina bifida and/or hydrocephalus accepted at a northern Alberta, NWT, or Red Deer post-secondary institution (Dr. Peter Bowen Memorial), and to nursing students in publicly funded Alberta post-secondary programs demonstrating volunteer involvement with disability organizations (Kailyn Sneath Memorial).
• Psychological Funding Funding program providing financial assistance for psychological services to individuals with spina bifida and/or hydrocephalus and their families.
• Walk & Roll 5K BBQ Fundraiser Annual 5K run/walk/roll event at Borden Park in Edmonton featuring BBQ lunch, games, crafts, face painting, and activities for families to raise funds for SBHANA programs.
• SBHANA Membership Annual membership program at $20 per year (valid February 1 to January 31) providing access to Support Fund, Christmas party, NoLimits adult group, new parent gift bag, events, monthly e-news, and SBHANA community programs. First year of membership is free for new parents of children born with spina bifida.
• Annual Christmas Party Annual holiday party held at community halls where children can meet Santa, get faces painted, and participate in crafts and dancing, with activities for adults as well.
• SBHANA Mountain Retreat Mountain retreat program providing recreational opportunities for individuals with spina bifida and hydrocephalus and their families.
• Member Education Fund Fund providing SBHANA members opportunities to further education and understanding of spina bifida and hydrocephalus through attendance at national or international conferences, with preference given to SBHAC conferences.
• Webinars and Educational Sessions Educational presentations and webinars including the NoLimits Expert Series and Gateway Employment Program providing information on topics relevant to spina bifida and hydrocephalus community members.

Named customers1 record

Segments1 record

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

15 partnerships are on record, tiered core and minor.

• Rogers Birdies for KidscoreGTM or Marketing Partner · 1 January 2024Rogers Birdies for Kids presented by AltaLink provides 50% matching for donations made to SBHANA through the Walk & Roll event, significantly amplifying the impact of each contribution.
• Government of AlbertacoreGTM or Marketing PartnerGovernment of Alberta provides funding and support as a core sponsor of SBHANA programs and services.
• Government of CanadacoreGTM or Marketing PartnerGovernment of Canada provides federal funding and support as a core sponsor of SBHANA programs and services.
• City of EdmontoncoreGTM or Marketing PartnerCity of Edmonton provides municipal funding and support as a core sponsor of SBHANA programs and community events.
• KMS ToolsminorGTM or Marketing PartnerKMS Tools hosts an annual smokie sale fundraiser, with donations matched by Rogers Birdies for Kids at 50%.
• Mobility Equipment ServicesminorOthersFeatured resource partner providing repairs, maintenance, and modifications on mobility equipment including walkers, scooters, and wheelchairs with mobile service.
• Glenrose Rehabilitation HospitalcoreStrategic or Co-development PartnerHistorical partnership since 1975 with the spina bifida clinic at Glenrose Hospital for monthly support meetings and collaborative care.
• Stollery Children's HospitalcoreStrategic or Co-development PartnerStollery Children's Hospital provides neurosurgery and specialized pediatric care for individuals with spina bifida and hydrocephalus. SBHANA connects families with hospital resources and medical teams.
• ParticipActionminorOthersSponsor/donor supporting SBHANA community events and programs.
• WestJetminorOthersCorporate sponsor supporting SBHANA through donations and community investment.
• Save-On-FoodsminorOthersCorporate sponsor supporting SBHANA through donations and community investment.
• The Old Spaghetti FactoryminorOthersCorporate sponsor supporting SBHANA through donations and community events.
• RE/MAXminorOthersCorporate sponsor supporting SBHANA through donations and community programs.
• 211 AlbertaminorOthers211 Alberta is an essential service that helps Albertans find the right resource or service, available 24/7 by phone, text and chat. Featured as a community resource.
• Hydrocephalus CanadacoreStrategic or Co-development PartnerHydrocephalus Canada provides educational documents and resources on bladder function, neurological issues, equipment, and learning for individuals with spina bifida. Also administers the Dr. E. Bruce Hendrick National Scholarship.

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Hydrocephalus Canada: National voluntary health organization serving individuals with hydrocephalus (and often spina bifida). Directly comparable as a mission-aligned, condition-specific nonprofit and an active resource partner of SBHANA that administers the Dr. E. Bruce Hendrick National Scholarship.
• Spina Bifida Association of Canada: National umbrella organization for spina bifida and hydrocephalus across Canada. Closely comparable mission and beneficiary population, and a relevant peer for funding collaboration and advocacy alignment.

Regional players

• Spina Bifida Association of Manitoba: Provincial peer serving the same condition-specific population in Manitoba. Directly analogous in scope, programs (peer support, scholarships, family support), and regional nonprofit structure, with board-level crossover referenced in SBHANA's leadership.
• Cerebral Palsy Alberta: Provincial disability nonprofit in Alberta offering peer support, family services, and adapted programming. Comparable as a regional, condition-anchored disability nonprofit competing for similar Alberta-based government grants, corporate sponsors, and donor dollars.
• Easter Seals Alberta: Alberta-based disability services nonprofit providing programs, camp experiences, and financial assistance for children and adults with disabilities. Comparable as a regional peer competing for the same government, corporate, and volunteer pools in Alberta.

Broad incumbents

• March of Dimes Canada: National Canadian nonprofit serving people with disabilities broadly, including acquired and congenital disabilities. Comparable as a community-services nonprofit in the same disability-services sector, though with a broader mandate than SBHANA's condition-specific focus.

Emerging players

• Kids Brain Health Network: Canadian research and family-support network focused on neurodevelopmental disabilities including spina bifida. Comparable as a stakeholder in the same condition space with overlapping family support and education objectives.

Others

• Alberta Disability Workers Association: Provincial association representing disability service providers in Alberta. Adjacent peer addressing the broader Alberta disability-services ecosystem in which SBHANA operates and competes for funding.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/SBHANA1
• Facebookfacebook.com/sbhana01
• LinkedInlinkedin.com/company/sbhana/about
• Instagraminstagram.com/spinabifida125/?hl=en

Revenue estimate

Valuation estimate

Number of profiles

Profiles17 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA)