Senter for sjeldne diagnoser
Nasjonalt senter for sjeldne diagnoser, enhet Gaustad is a publicly funded Norwegian national competence center within Oslo University Hospital that collects and disseminates knowledge on more than 100 rare diagnoses to healthcare professionals, patients, and their families.
- Company typePrivate
- Founded-
- HeadquartersOslo, Norway
- Headcount1–10
- GTM typeB2B and B2C
- OfferingServices
What Senter for sjeldne diagnoser does
Senter for sjeldne diagnoser, now formally known as Nasjonalt senter for sjeldne diagnoser, enhet Gaustad (short form: Sjeldensenteret, enhet Gaustad), is a nationwide, interdisciplinary competence center that collects, builds up, and disseminates knowledge about more than 100 rare diagnoses to healthcare professionals, other service providers, patients, and their relatives in Norway. It operates as a designated unit within Oslo University Hospital HF (Oslo universitetssykehus HF), a public health enterprise owned by Helse Sør-Øst RHF, and collaborates formally with the University of Oslo (UiO).
The center's core product portfolio centers on knowledge dissemination rather than clinical service delivery: a diagnosis information library covering all included conditions, scientific publications and research projects, e-learning courses for healthcare professionals, themed information pages, and a podcast called Sjeldenpodden that shares personal stories and current research. It also operates the Ung Face It platform aimed at young people affected by rare diagnoses, maintains a consent-based patient registry (Pasientregister) that supports research and follow-up, and links patients to relevant user associations (Brukerforeninger). Two named editorial leads (Elizabeth Bjurstrøm and Malena Grant-Falch) oversee website content.
The business model is non-commercial: the center is fully funded through Norway's public healthcare system as part of Oslo University Hospital's national and regional services. There is no pricing for patients, no disclosed revenue, no funding rounds, and no private ownership. Distribution is handled through Oslo University Hospital's existing referral infrastructure and the center's own content channels (website, Facebook, podcast, e-learning), with cross-Nordic knowledge exchange supported through the Nordic Hospital University Alliance (NUHA). Headcount is listed at 6 employees, indicating a lean editorial and coordination team rather than a large operational workforce.
Senter for sjeldne diagnoser firmographics
Firmographics- Name
- Senter for sjeldne diagnoser
- Legal name
- Nasjonalt senter for sjeldne diagnoser, enhet Gaustad - Oslo universitetssykehus HF
- Website
- https://sjeldnediagnoser.no
- Company type
- Private
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Nasjonalt senter for sjeldne diagnoser, enhet Gaustad is a publicly funded Norwegian national competence center within Oslo University Hospital that collects and disseminates knowledge on more than 100 rare diagnoses to healthcare professionals, patients, and their families.
- Ownership category
- akta.pro rank
Senter for sjeldne diagnoser industry classification
Industry- Product category
- Rare Disease Healthcare Knowledge Services
- NAICS
- General Medical and Surgical Hospitals (622110), Professional, Scientific, and Technical Services (54)
- SIC
- Services-Health Services (8000), Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Independent Diagnostic Testing Facilities (IDTFs) & Multi-Specialty Diagnostic Centers (HLAFAKAN)
- akta.pro secondary industry
- Clinical Research Support (CRC/CTA) (EDAOAJAO)
Keywords
Where Senter for sjeldne diagnoser is headquartered
LocationHeadquarters
- HQ city
- Oslo
- HQ country
- Norway
- HQ region
- Europe
Offices1 record
Markets served
Senter for sjeldne diagnoser business model
Business model- GTM type
- B2B and B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Technology or R&D, Marketing or Sales, Others
Distribution channels1 record
Marketing channels4 records
Senter for sjeldne diagnoser product offering
Product offeringCore offering
The center is a nationwide, interdisciplinary competence center that collects, builds, and disseminates knowledge about more than 100 rare diagnoses to healthcare personnel, other service providers, patients, and their relatives. It delivers this expertise through diagnosis information resources, courses and events, e-learning courses for healthcare professionals, the Sjeldenpodden podcast, theme pages, the Ung Face It youth platform, a patient registry, and connections to patient associations.
Product overview
Nasjonalt senter for sjeldne diagnoser, enhet Gaustad (Sjeldensenteret) is a nationwide interdisciplinary competence center within Oslo University Hospital that serves as the primary hub for knowledge about rare diagnoses in Norway. The center provides a unified portfolio of services including the Sjeldenpodden podcast, comprehensive diagnosis information, e-learning courses for professionals, thematic pages, and the Ung Face It youth platform. The center also maintains a patient registry and connects patients with relevant user associations. The core offering is expertise dissemination and competence building across more than 100 rare diagnoses for healthcare professionals, service providers, patients, and their families.
Differentiator
Problem solved
Functional benefit
Products and services
- Nasjonalt senter for sjeldne diagnoser, enhet Gaustad (National Competence Center)
Companies that use Senter for sjeldne diagnoser
Customer profileSegments3 records
Ideal customer profiles2 records
Senter for sjeldne diagnoser technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Senter for sjeldne diagnoser partnerships and signals
Strategic signalPartnerships
Two partnerships are on record, tiered moderate and core.
- Nordic Hospital University Alliance (NUHA)moderateOslo University Hospital is a member of NUHA, the Nordic Hospital University Alliance, together with Iceland, Finland, Sweden, and Denmark. This alliance facilitates cross-border collaboration and knowledge sharing among Nordic university hospitals.
- University of Oslo (UiO)coreThe center operates in collaboration with the University of Oslo (UiO), as indicated by the UiO logo on their website and the joint branding.
Scale indicators1 record
Recent moves6 records
Expansion highlights4 records
Senter for sjeldne diagnoser competitors and assessment
Company assessmentMarket position
Strengths4 records
Weaknesses3 records
Competitive moat3 records
Key risks4 records
Key highlights5 records
Customer concentration
Senter for sjeldne diagnoser social profiles
Digital presenceSenter for sjeldne diagnoser financial estimates
Financial estimateRevenue estimate
Valuation estimate
Senter for sjeldne diagnoser leadership team
Management profileNumber of profiles
Profiles2 records
Senter for sjeldne diagnoser funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Senter for sjeldne diagnoser M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Senter for sjeldne diagnoser
What does Senter for sjeldne diagnoser do?
The center is a nationwide, interdisciplinary competence center that collects, builds, and disseminates knowledge about more than 100 rare diagnoses to healthcare personnel, other service providers, patients, and their relatives. It delivers this expertise through diagnosis information resources, courses and events, e-learning courses for healthcare professionals, the Sjeldenpodden podcast, theme pages, the Ung Face It youth platform, a patient registry, and connections to patient associations.
Is Senter for sjeldne diagnoser a public or private company?
Senter for sjeldne diagnoser is a private company. It is classified as state government owned and is currently operating.
When was Senter for sjeldne diagnoser founded?
Senter for sjeldne diagnoser was founded in -1. It employs 1 to 10 people.
Where is Senter for sjeldne diagnoser based?
Senter for sjeldne diagnoser is headquartered in Oslo, Norway, in the Europe region.
Does Senter for sjeldne diagnoser have an API?
No public API is recorded for Senter for sjeldne diagnoser.
What industry is Senter for sjeldne diagnoser in?
Senter for sjeldne diagnoser's product category is Rare Disease Healthcare Knowledge Services. Its primary akta.pro industry code is HLAFAKAN, Independent Diagnostic Testing Facilities (IDTFs) & Multi-Specialty Diagnostic Centers, with a secondary code of EDAOAJAO, Clinical Research Support (CRC/CTA). Its NAICS code is 622110 and its SIC code is 8000.