What Société SLA du Québec does

Société SLA du Québec is a non-profit charitable organization founded in 1983 and headquartered in Mont-Royal (Montréal), Quebec, registered as a Canadian charity (No 119153187 RR0001). It is the only organization in Quebec exclusively dedicated to supporting people affected by Amyotrophic Lateral Sclerosis (ALS) and their families, providing services free of charge across the province. Its core offerings include professional counseling and peer support groups, three financial aid programs (Qualité de vie up to $1,000 per family; Vivre le moment présent, sponsored by the Tenaquip Foundation; Soutien jeunesse at $300 per child under 18), an online resource center, educational webinars, and signature fundraising events (ROULEZ SLA Québec cycling challenge, Marche SLA Québec walk, Unis sur les verts golf tournament). It also operates the Fonds de recherche SLA Québec, which funds ALS research co-allocated with the Canadian ALS Society, and runs an ambassador program centered on patient storytelling and policy advocacy, including a recent 26,000-signature national petition.

Name

Société SLA du Québec

Legal name

Société de la SLA du Québec

Website

https://sla-quebec.ca

Company type

Private

Founded year

1983

Operating status

Operating

Headcount range

11–50 employees

Short description

Founded in 1983, Société SLA du Québec is a Quebec-based non-profit charity that delivers free counseling, financial aid, peer support, and research funding to people affected by ALS and their families across the province.

Ownership category

akta.pro rank

Product category

Non-Profit Healthcare Support Services (ALS Patient and Family Services)

NAICS

Voluntary Health Organizations (813212)

SIC

Services-Social Services (8300)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

Keywords

• ALS support services
• Nonprofit healthcare charity
• Family caregiver support
• ALS research funding
• ALS community advocacy

Headquarters

HQ city

Mont-Royal (Montréal)

HQ country

Canada

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Individual donations (one-time and monthly): SLA Québec raises funds through one-time and monthly individual donations via its website (jedonneenligne.org platform). Donors can give online, by phone (514-725-2653), or by mail using downloadable forms.
2. Memorial and tribute donations: Donations made in memory of a loved one or to celebrate a special occasion (birthday, wedding, etc.).
3. Planned giving and estate donations: Charitable bequests, life insurance gifts, real estate donations, charitable annuity gifts, residual benefit trusts, and endowment funds coordinated with donors' financial, tax, or estate planning.
4. Event-based fundraising: Funds raised through flagship events including ROULEZ SLA Québec (cycling challenge), Marche SLA Québec (walk events), and Unis sur les verts (golf tournament). The ROULEZ SLA challenge has raised over $4.4 million cumulatively.
5. Corporate partnerships and sponsorships: Corporate donations, employee engagement programs, and program/event sponsorship from organizations including Biogen, The Tenaquip Foundation, and others.
6. Merchandise sales (Boutique SLA Québec): Branded merchandise (caps, socks, tuques, bracelets, pins) sold via the online Boutique platform, with proceeds supporting the organization's mission.

Go-to-market motion1 record

Distribution channels6 records

Marketing channels8 records

Core offering

Société SLA du Québec is a Quebec-based nonprofit that provides free, comprehensive support services to people living with ALS (Amyotrophic Lateral Sclerosis) and their families. Its core offerings include professional psychosocial counseling, peer and group support, direct financial assistance programs (Qualité de vie up to $1,000, Vivre le moment présent, Soutien jeunesse $300/child), an online resource center, educational webinars, and a research fund. The organization also runs large-scale awareness campaigns and flagship fundraising events across Quebec.

Product overview

Société SLA du Québec is a non-profit charitable organization founded in 1983 that provides a comprehensive suite of support services for people affected by ALS (Amyotrophic Lateral Sclerosis) in Quebec. The organization does not offer a technology product but rather delivers direct services including professional counseling and peer support, financial assistance programs (Qualité de vie, Vivre le moment présent, Soutien jeunesse), an online resource center, support groups, and educational webinars. The organization also organizes signature fundraising events including the Marche SLA Québec, ROULEZ SLA Québec cycling challenge, and Unis sur les verts golf event. Additionally, the organization runs an ambassador program, operates the Boutique SLA Québec merchandise store, funds ALS research through its research fund, and conducts awareness and advocacy activities centered around ALS Awareness Month in June.

Differentiator

Problem solved

Functional benefit

Products and services

• Professional and Peer Support (Soutien professionnel et par les pairs) Individual counseling from professional staff plus peer support groups and peer connections for people with ALS, caregivers, and the bereaved. Provided free of charge to registered individuals and families in Quebec.
• Financial Aid Programs (Programmes d'aide à la vie quotidienne: Qualité de vie, Vivre le moment présent, Soutien jeunesse) Direct financial assistance programs for ALS-affected families in Quebec: Qualité de vie provides up to $1,000 for essential expenses; Vivre le moment présent funds experiences and shared memories (supported by The Tenaquip Foundation); Soutien jeunesse provides $300 per child under 18 for extracurricular activities.
• Online Resource Center (Centre de ressources en ligne) Online resource center with searchable filters allowing patients, families, and healthcare professionals to find curated ALS-related resources by topic, audience, and format (videos, PDFs, websites, books, webinars).
• Webinars and Workshops (SLA 101, research Q&A) Regular educational webinars and workshops on ALS research updates, disease management, caregiving, and family support, featuring leading researchers and clinicians and provided free of charge.
• ALS Clinics and Treatment Centers Directory (Cliniques et centres de traitement SLA) Directory of multidisciplinary ALS clinics and treatment centers across Quebec, including contact details for neurologists and nurse clinicians.
• Marche SLA Québec Annual family and community walk held across Quebec to raise funds for ALS research and the organization's support services.
• ROULEZ SLA Québec Annual cycling challenge open to all skill levels, with in-person and virtual participation options. Has raised over $4.4 million cumulatively for the ALS cause.
• Unis sur les verts pour vaincre la SLA Annual golf tournament uniting Quebec's golfing community to fundraise for ALS, featuring an online auction.
• ALS Awareness Month (Mois de la sensibilisation à la SLA) Annual June awareness campaign featuring Lou Gehrig Day (June 2), research Q&A sessions, walks, and monument illuminations across Quebec.
• Ambassador Program (Programme d'ambassadeurs) Volunteer ambassador program with ALS patients and family members who share personal experiences to raise public awareness, speak at events, and advocate for the ALS community's needs.
• Boutique SLA Québec Online merchandise store selling branded items (caps, socks, tuques, bracelets, pins) displaying support for the ALS community, with the cornflower (centaurée bleuet) symbol of hope. Proceeds support the organization's mission.
• SLA Québec Research Fund (Fonds de recherche SLA Québec) Research fund supporting ALS research in Quebec through partnerships with the Canadian ALS Society and local research community, including grants and travel scholarships. Co-funds a $125,000 Discovery Grant (2025) named the 'SLA Québec — Dr Jean-Pierre Canuel Fund' awarded to Dr. Janice Robertson at University of Toronto.
• Community Fundraising Campaigns (Créer une collecte de fonds) Self-service community fundraising tools enabling individuals to create their own fundraising pages or add a donation option to their own activities in support of SLA Québec.
• Healthcare Professional Outreach and Community of Practice (Microsoft Teams) Orientation sessions, professional development, client tracking tools (aide-mémoire), Forum des échanges professional meetings, and a Community of Practice on Microsoft Teams (launched September 2023) for healthcare professionals serving ALS patients in CLSC, rehabilitation centers, and CHSLD.

Quantifiable outcome

• ROULEZ SLA Québec has cumulatively raised over $4.4 million for the ALS cause
• +4 more outcomes

Named customers7 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

16 partnerships are on record, tiered core, major and minor.

• CATALIS / Recherche clinique QuébeccoreStrategic or Co-development PartnerSLA Québec partnered with CATALIS and the Government of Quebec to create Recherche clinique Québec — a provincial information and services hub for clinical research. This initiative, powered by CATALIS, provides ALS patients and caregivers with quality information, a personalized support service, and a public clinical trial registry to facilitate access to experimental treatments.
• CAPTURE ALScoreStrategic or Co-development PartnerCAPTURE ALS is a national initiative gathering patients, physicians, and researchers to understand why some people develop ALS and others do not. SLA Québec, in collaboration with SLA Action Canada, provided funding to enable the CHUM clinic in Montreal to participate. The program is also supported by The Neuro, CHUM, and Hôpital de l'Enfant-Jésus.
• Canadian Neuromuscular Disease Registry (CNDR)coreStrategic or Co-development PartnerThe Canadian Neuromuscular Disease Registry is a pan-Canadian registry of patients diagnosed with neuromuscular diseases including ALS. It collects important medical information from patients across the country to improve understanding of neuromuscular diseases and accelerate the development of new therapies. Currently over 4,500 neuromuscular patients are registered.
• Brain Canada FoundationcoreStrategic or Co-development PartnerPartner in research funding. Brain Canada Foundation supports neuroscience research across Canada, including projects related to ALS. Listed as a research partner of SLA Québec.
• Société canadienne de la SLA (ALS Society of Canada)coreStrategic or Co-development PartnerSLA Québec contributes annually to the National ALS Research Program administered by the Canadian ALS Society, which funds peer-reviewed research grants recognized as among the best in the country. SLA Québec also co-funds a $125,000 Discovery Grant (2025) — the 'SLA Québec — Dr Jean-Pierre Canuel Fund' — awarded to Dr. Janice Robertson at University of Toronto. SLA Québec participates in the national advocacy committee.
• The Neuro (Montreal Neurological Institute-Hospital, McGill University)coreStrategic or Co-development PartnerThe Neuro is a key partner in ALS research and clinical care in Quebec. It hosts the ALS Clinic led by neurologists Dr. Angela Genge and Dr. Rami Massie, and participates in CAPTURE ALS. SLA Québec funds research activities at The Neuro and facilitates patient participation in research programs.
• CHUM (Centre hospitalier de l'Université de Montréal)coreStrategic or Co-development PartnerCHUM hosts the ALS and Motor Neuron Disease Clinic directed by Dr. Geneviève Matte. It is a site for CAPTURE ALS research. SLA Québec partners with CHUM to facilitate patient access to clinical trials and research programs.
• Partenaires Neuro (Neuro Partners)majorStrategic or Co-development PartnerPartenaires Neuro is a coalition of neurological disease charities in Quebec whose members include SP Canada (Québec division), Parkinson Québec, Dystrophie Musculaire Canada (Québec division), and Huntington Society of Quebec. SLA Québec participates in this coalition to educate elected representatives about challenges such as home care, housing, and support for caregivers of people with progressive neurological diseases.
• L'APPUIminorOthersA Quebec support organization whose services complement those offered by SLA Québec for families and caregivers.
• KéroulminorOthersA Quebec organization promoting accessible tourism and culture for people with reduced mobility. Listed as a service partner providing complementary support resources.
• TELUS Santé (TELUS Health)minorOthersTELUS Santé provides a monthly $10 discount on the Connected Health Companion service (Compagnon Santé connecté) for families registered with SLA Québec, as a preferred partner discount.
• Location LégaréminorOthersVehicle rental specialist in the Greater Montreal area offering 12%–25% discount on adapted vehicle rentals for families registered with SLA Québec.
• The Tenaquip FoundationmajorOthersThe Tenaquip Foundation supports the 'Vivre le moment présent' (Living in the Moment) financial support initiative, which enables people with ALS and their loved ones to create precious memories through experiences such as shared meals, birthday celebrations, and stays in adapted cottages.
• BiogenmajorOthersBiogen is a biotechnology company and sponsor of SLA Québec's Ambassador Program. The company also developed QALSODY (tofersen), an ALS treatment approved for adults with SOD1 gene variants, and has been involved in ALS research for many years.
• International Alliance of ALS/MND AssociationsmajorStrategic or Co-development PartnerThe International ALS/MND Alliance connects ALS societies from around the world. SLA Québec participates in this global network to share knowledge, best practices, and coordinate international advocacy efforts.
• Tanabe Pharma Canada, Inc.minorOthersListed as a health partner and donor. Tanabe Pharma Canada is a pharmaceutical company operating in Canada.

Scale indicators4 records

Recent moves6 records

Expansion highlights6 records

Emerging players

• Parkinson Québec: Coalition partner in Partenaires Neuro supporting Quebecers with progressive neurological diseases. Similar provincial nonprofit model addressing a related neurodegenerative population with comparable service and advocacy offerings.
• Muscular Dystrophy Canada (Quebec division): Quebec coalition partner addressing neuromuscular diseases with overlapping patient population. Comparable disease-category nonprofit with similar fundraising and advocacy model but broader disease mandate.
• ALS Therapy Development Institute: US-based ALS research nonprofit with a more research-focused mandate. Comparable in disease focus but differentiated by prioritizing drug discovery over direct patient services.
• Huntington Society of Quebec (Société Huntington du Québec): Coalition partner in Partenaires Neuro, focused on Huntington disease in Quebec. Comparable small provincial disease-specific charity with patient/family services and research funding.

Direct peers

• ALS Association (US): Largest ALS-specific nonprofit in the United States providing patient services, advocacy, and research funding. Highly comparable mission and program structure; a key model and international counterpart.
• International Alliance of ALS/MND Associations: Global umbrella of national ALS/MND societies of which SLA Québec is a member. Operates as an alliance of similarly structured disease-specific charities coordinating advocacy and knowledge-sharing.
• ALS Society of Canada (Société canadienne de la SLA): National Canadian ALS charity administering the National ALS Research Program that SLA Québec contributes to annually. Most direct peer given shared mission, overlapping research funding, and co-funded Discovery Grants.

Regional players

• SP Canada (Quebec division) — Multiple Sclerosis Society of Canada: Coalition partner addressing multiple sclerosis in Quebec. Compares as a sibling neurological disease charity with overlapping caregiver and psychosocial support models.
• Cancer Research Society / Société de recherche sur le cancer: Canadian disease-specific nonprofit combining patient-facing research funding and donor engagement. Comparable Canadian charity structure and Quebec presence, though focused on oncology rather than neurology.

Others

• CAPTURE ALS: National Canadian ALS research initiative co-funded by SLA Québec and others. Adjacent research program partner — not a service-delivery peer but a tightly integrated ALS ecosystem participant.

Market position

Strengths4 records

Weaknesses5 records

Competitive moat5 records

Key risks2 records

Key highlights7 records

Customer concentration

• Xx.com/SLA_ALS_Quebec
• YouTubeyoutube.com/@societesladuquebec1394
• Facebookfacebook.com/slaquebec
• LinkedInlinkedin.com/company/sla-als-quebec
• Instagraminstagram.com/sla_als_quebec

Revenue estimate

Valuation estimate

Number of profiles

Profiles21 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Société SLA du Québec