Syöpäjärjestöt

What Syöpäjärjestöt does

Syöpäjärjestöt (Finnish Cancer Organisations) is a federation of cancer-focused non-profit entities headquartered in Helsinki, Finland, comprising Suomen Syöpäyhdistys ry (the central association), Suomen Syöpärekisteri (Finnish Cancer Registry), and Syöpäsäätiö (Cancer Foundation of Finland). The federation operates through 12 regional cancer associations and 6 national patient organizations covering colorectal (Colores), breast (Rintasyöpäyhdistys/Europa Donna Finland), prostate (Propo), pediatric (SYLVA), and general cancer patient populations (Suomen Syöpäpotilaat). The organization employs approximately 100 staff at the central office, engages 4,500 active volunteers, and serves 97,000 members nationwide.

The organization's core service portfolio spans the full cancer continuum: prevention (Fressis youth platform, ilmansyopaa.fi portal, UV and tobacco awareness), early detection (national screening programs for breast, cervical, colorectal, and a lung cancer pilot), patient support (Luoto telephone counseling 0800 19414, online chat with specialized nurses, peer support networks), and research funding (Syöpäsäätiö distributing approximately 7.7 million EUR annually in grants, the largest private cancer research funder in Finland). The Finnish Cancer Registry maintains comprehensive nationwide incidence, mortality, and survival statistics and produces epidemiological reports used in policy and research.

Revenue is generated through a diversified non-profit model: donations (channeled largely through Syöpäsäätiö), STEA government funding (Finnish Institute for Health and Welfare grants for health promotion and advocacy), and membership fees across the regional and national associations. All direct patient services are provided free of charge. The organization's go-to-market is community-led, relying on grassroots engagement through regional chapters, peer support groups, public campaigns (notably the annual Roosa nauha pink ribbon campaign), and policy advocacy including the Parliamentary Cancer Network established in 2023.

Name

Syöpäjärjestöt

Legal name

Suomen Syöpäyhdistys ry

Website

https://syopajarjestot.fi

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

Syöpäjärjestöt is Finland's largest cancer non-profit federation, comprising the Finnish Cancer Society, Cancer Registry, and Cancer Foundation, serving 97,000 members and Finnish cancer patients through 12 regional associations, 6 national patient organizations, free support services, screening programs, and 7.7 million EUR in annual research grants.

Ownership category

akta.pro rank

Product category

Non-profit Cancer Support Services

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211), Other Individual and Family Services (624190), Individual and Family Services (6241), Grantmaking and Giving Services (8132)

SIC

Services-Membership Organizations (8600), Services-Social Services (8300), Services-Health Services (8000), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industries

Health & Medical Research Grantmaking Foundations (BPAGAKAL), Community Health & Prevention Program Funding (HLAJALAF), Public Health Financing, Budgeting & Grants Management (HLAJAMAC)

Keywords

• Cancer prevention services
• Cancer patient support
• Cancer research funding
• Public health advocacy
• Patient organization services

Headquarters

HQ city

Helsinki

HQ country

Finland

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Others, Marketing or Sales

Revenue model

1. Donations and Grants: Primary funding comes from donations to Syöpäsäätiö (Cancer Foundation), individual donations, and organizational grants. The organization distributes approximately 7.7 million euros annually in research grants to cancer researchers.
2. STEA Funding: Government funding through STEA (Finnish Institute for Health and Welfare) for health promotion, tobacco prevention, course activities for cancer patients and families, communications, and advocacy work. As of 2024, total social and health organization state funding was approximately 383 million euros.
3. Membership Fees: Revenue from member organizations and individual memberships across 12 regional cancer associations and 6 national patient organizations, with approximately 97,000 members total.

Go-to-market motion1 record

Distribution channels5 records

Marketing channels5 records

Core offering

Syöpäjärjestöt is a Finnish non-profit federation providing cancer prevention, patient support, and research funding through a nationwide network of 12 regional cancer associations and 6 national patient organizations. The organization distributes approximately 7.7 million euros annually in cancer research grants through Syöpäsäätiö, offers free counseling, peer support, and health information services to cancer patients, families, and the general public, and runs national cancer screening programs.

Product overview

Syöpäjärjestöt (Cancer Organisations) is a federation of cancer-related organizations in Finland, comprising Suomen Syöpäyhdistys (Finnish Cancer Society), Syöpärekisteri (Finnish Cancer Registry), and Syöpäsäätiö (Cancer Foundation). The organization operates through a network of 12 regional cancer associations and 6 national patient organizations (Colores, Rintasyöpäyhdistys, Propo, SYLVA, Suomen Syöpäpotilaat). Its product portfolio includes information portals (kaikkisyovasta.fi, ilmansyopaa.fi), youth-focused health services (Fressis, Fressisedu), patient support services (Luoto telephone support, chat services), national cancer screening programs, and cancer research funding through Syöpäsäätiö.

Differentiator

Problem solved

Functional benefit

Brands

• Syöpärekisteri: Finnish Cancer Registry - maintains cancer registry, conducts epidemiological research, and publishes cancer statistics
• Syöpäsäätiö
• Roosa nauha
• Fressis
• Kaikkisyövästä
• Ilman syöpää

Quantifiable outcome

• 7.7 million euros in annual research grants distributed to cancer researchers
• +2 more outcomes

Named customers2 records

Segments3 records

Ideal customer profiles3 records

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Nine partnerships are on record, tiered core and minor.

• Tarttumattomat sairaudet -järjestöverkosto (Non-communicable Diseases Organization Network)coreStrategic or Co-development PartnerSyöpäjärjestöt is part of a network of five national health organizations including Diabetesliitto, Filha, Hengitysliitto, Sydänliitto, and Syöpäjärjestöt, with Duodecim as expert member. The network collaborates on advocacy for non-communicable disease prevention and health promotion policies.
• Colores - Suomen Suolistosyöpäyhdistys (Finnish Colorectal Cancer Association)coreStrategic or Co-development PartnerNational patient organization for colorectal cancer patients, Lynch syndrome carriers, and their families. Provides peer support, information, and advocates for patients' interests as part of Syöpäjärjestöt.
• Rintasyöpäyhdistys - Europa Donna FinlandcoreStrategic or Co-development PartnerNational breast cancer organization and Finnish branch of Europa Donna. Provides peer support, information, and advocates for breast cancer patients' rights as part of Syöpäjärjestöt.
• Suomen eturauhassyöpäyhdistys PropocoreStrategic or Co-development PartnerNational prostate cancer patient organization providing support, information, and advocacy for prostate cancer patients as part of Syöpäjärjestöt.
• SYLVAcoreStrategic or Co-development PartnerNational organization supporting families of children and young people with cancer. Provides peer support, information, and recreation services as part of Syöpäjärjestöt.
• Suomen SyöpäpotilaatcoreStrategic or Co-development PartnerNational cancer patient organization advocating for all cancer patients' rights and providing support services as part of Syöpäjärjestöt.
• Säteilyturvakeskus (STUK) - Radiation and Nuclear Safety AuthorityminorStrategic or Co-development PartnerCollaboration on UV radiation awareness and skin cancer prevention research. Joint studies on sun protection habits among Finnish youth.
• Ilmatieteen laitos (Finnish Meteorological Institute)minorStrategic or Co-development PartnerCollaboration on UV index forecasting and sun protection awareness. UV index data used in cancer prevention communications.
• THL, FICAN, Suomen Hematologiyhdistys (Finnish Hematology Association)minorStrategic or Co-development PartnerCollaboration on national myeloma report - first comprehensive national report on myeloma treatment and outcomes. Partnership with THL, National Cancer Center Finland, and Finnish Hematology Association's myeloma group.

Scale indicators6 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• Deutsche Krebshilfe (German Cancer Aid): Germany's leading non-governmental funder of cancer research and a major patient support organization. Comparable in scale and structure as a national cancer charity combining research funding with patient services.
• Cancer Council Australia: Australia's leading non-governmental cancer organization, combining research funding, prevention campaigns, and patient support through a federated state/territory structure — closely analogous federation model.
• Cancerfonden (Swedish Cancer Society): Sweden's largest cancer research funder and patient support organization, with a comparable federation model covering prevention, research funding, patient support, and policy advocacy. Closely comparable as a fellow Nordic national cancer society with similar structure and mission.
• Macmillan Cancer Support: UK cancer charity providing practical, emotional, and financial support to cancer patients and families — closely comparable to Syöpäjärjestöt's Luoto helpline, counseling, and peer support services.
• Kræftens Bekæmpelse (Danish Cancer Society): Denmark's largest cancer organization with research funding, patient support, and nationwide regional structure. Highly comparable Nordic national cancer society model.
• Ligue contre le cancer (French League Against Cancer): France's leading cancer charity with 103 departmental committees providing local support, plus research funding and policy advocacy. Directly comparable federation model serving cancer patients nationally.
• Kreftforeningen (Norwegian Cancer Society): Norway's national cancer society operating with a similar federation model, research funding, patient support services, and policy advocacy. Direct Nordic peer with comparable scale and structure.

Broad incumbents

• Cancer Research UK: UK's largest cancer research charity with significantly larger funding scale and international research operations. Comparable mission area (research funding, prevention, patient information) but at a much larger scale and primarily UK-focused.
• American Cancer Society: One of the largest voluntary health organizations in the US, funding cancer research, providing patient support, and running nationwide prevention programs. Comparable broad mission but operating at much larger scale in the US market.
• Canadian Cancer Society: Canada's national cancer charity providing research funding, patient support, and prevention programs. Comparable mission and services but operating at larger national scale across Canada.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/user/Syopajarjestot/videos
• Facebookfacebook.com/135496579694
• Instagraminstagram.com/syopajarjestot/?hl=en
• LinkedInlinkedin.com/company/sy%C3%B6p%C3%A4j%C3%A4rjest%C3%B6t

Revenue estimate

Valuation estimate

Number of profiles

Profiles13 records

Subsidiaries20 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Syöpäjärjestöt