Unga Reumatiker
Unga Reumatiker is a Swedish nonprofit founded in 1994 serving approximately 1,300 children, youth, and young adults (0-30) with rheumatic disease through camps, peer support, advocacy, research funding, and digital patient tools across five national regions.
- Company typePrivate
- Founded1994
- HeadquartersStockholm, Sweden
- Headcount11–50
- GTM typeB2C
- OfferingServices
What Unga Reumatiker does
Unga Reumatiker is a Swedish nonprofit organization founded in 1994 that serves children, adolescents, and young adults aged 0-30 diagnosed with rheumatic disease. Headquartered in Stockholm and operating across five regional associations (Region Norr, Region Mitt, Region Öst, Region Väst, Region Syd), the organization delivers its mission through a portfolio of community, advocacy, and research programs serving approximately 1,300 members nationally. Its core offerings include age-segmented camp programs (Barnläger for ages 7-13, Ungdomsläger for ages 14-19, and Unga vuxna rekreationsläger for ages 20-32), peer support through the Stödkompisar mentorship program, trained Patientrepresentanter for healthcare representation, and the Discord-based online community. Digital tools include Drömfångaren (a patient aspiration tool), VR-doktorn (a virtual reality solution for patient preparation in healthcare encounters), Stark Reumatiker (a movement campaign and digital race platform), and the Reumakunskap knowledge resource.
The organization operates on a multi-stream nonprofit revenue model combining membership fees (250 SEK individual / 350-400 SEK household annually, bundled through parent organization Reumatikerförbundet), donations (including a dedicated 90-konto research fund, Unga Reumatikers forskningsfond, which distributed a record 2.5 million SEK to 17 research projects in 2020), government grants, foundation funding, corporate gifts, and small camp participation fees. Go-to-market is community-led and event-driven, with growth dependent on membership acquisition through Reumatikerförbundet's enrollment flow, member referrals, regional recruitment campaigns, and major events including the annual Riksstämma and Almedalsveckan policy advocacy. The organization pursues strategic partnerships with Karolinska Institutet for digital health education, Region Norrbotten for the Spetspatienter self-care project, MediPrep for age-appropriate medical content, and Stolt Funkis coalition for LGBTQ+ disability advocacy, while operating internationally through the Nordic Rheumatic Youth Camp collaboration.
Unga Reumatiker firmographics
Firmographics- Name
- Unga Reumatiker
- Legal name
- Riksorganisationen Unga Reumatiker
- Website
- https://ungareumatiker.se
- Company type
- Private
- Founded year
- 1994
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- Unga Reumatiker is a Swedish nonprofit founded in 1994 serving approximately 1,300 children, youth, and young adults (0-30) with rheumatic disease through camps, peer support, advocacy, research funding, and digital patient tools across five national regions.
- Ownership category
- akta.pro rank
Unga Reumatiker industry classification
Industry- Product category
- Patient Advocacy Nonprofit
- NAICS
- Voluntary Health Organizations (813212), Other Individual and Family Services (624190), Child and Youth Services (62411)
- SIC
- Services-Social Services (8300), Services-Membership Organizations (8600)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
- akta.pro secondary industries
- Rare Disease & Special Needs Support Organizations (BPAGACAM), Disability Services & Independent Living Support (BPAGACAG)
Keywords
Where Unga Reumatiker is headquartered
LocationHeadquarters
- HQ city
- Stockholm
- HQ country
- Sweden
- HQ region
- Europe
Offices1 record
Markets served
Unga Reumatiker business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Membership fees: Annual membership fees through Reumatikerförbundet. Members join through Reumatikerförbundet and automatically become Unga Reumatiker members when aged 0-30. Individual membership 250 SEK/year, household membership 350 SEK/year (2 people) or 400 SEK/year (3+ people).
- Research Fund donations: Unga Reumatikers forskningsfond collects donations from companies, associations, and private individuals to fund clinical research on rheumatic diseases in children, adolescents and young adults. Distribution managed in collaboration with Reumatikerförbundet's research allocation. PlusGiro 90 17 04-7, Swish 123 901 70 47.
- Operating donations and grants: Donations for general operations (verksamhet) from private individuals and companies. Government grants and foundation funding. BankGiro 5969-2640, Swish 123 451 34 79. Corporate donations over 5,000 SEK receive thank-you letter, over 50,000 SEK receive impact reporting.
- Camp participation fees: Camps have participant fees (350 SEK per person for children's camps) including travel, accommodation, meals and activities. Free for members, some activities have small fees (100 SEK for spa activity).
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Subscription | Annual | Individual annual membership |
| Subscription | Annual | Household annual membership (2 people) |
| Subscription | Annual | Household annual membership (3+ people) |
| Unit Pricing | One time/ perpetual license | Camp participation fee |
Go-to-market motion2 records
Distribution channels4 records
Marketing channels7 records
Unga Reumatiker product offering
Product offeringCore offering
Unga Reumatiker is a Swedish nonprofit organization that supports children, adolescents, and young adults (ages 0–30) living with rheumatic disease through age-segmented camp programs, peer mentor networks (Stödkompisar), trained patient representatives in healthcare settings, a digital knowledge platform (Reumakunskap), a Discord community, and a research fund (Unga Reumatikers forskningsfond) backing clinical research into pediatric and young-adult rheumatology. Membership is delivered through a dual-membership arrangement with parent organization Reumatikerförbundet, and the organization funds operations through membership fees, donations, grants, and small camp participation fees.
Product overview
Unga Reumatiker is a non-profit organization (ideell organisation) offering a portfolio of support services, community programs, and digital tools for children, teenagers, and young adults with rheumatic diseases. The core offerings include camp programs (Barnläger, Ungdomsläger, Unga vuxna rekreationsläger), peer support systems (Stödkompisar, Patientrepresentanter), and the digital community platform (Discord). The organization operates digital knowledge resources (Reumakunskap) and has developed digital patient tools including Drömfångaren, VR-doktorn, and contributed to MediPrep. The research fund (Unga Reumatikers forskningsfond) supports clinical research, while advocacy programs (Stark Reumatiker, Hederssköldpaddan awards) promote awareness and rights.
Differentiator
Problem solved
Functional benefit
Products and services
- Barnläger (Children's Camps) Camp programs for children ages 7-13 with rheumatic disease, accompanied by a parent or guardian. Includes activities, lectures with pediatric rheumatologists, and peer-connection opportunities.
- Ungdomsläger (Youth Camps) Camp programs for members ages 14-19, offering activities and peer support for teenagers with rheumatic disease.
- Unga vuxna rekreationsläger (Young Adult Recreation Camps) Recreation camps for young adults ages 20-32 focusing on wellness, lectures, and community building among young adults with rheumatic disease.
- Stödkompisar (Support Friends) Mentorship program where trained members support other members. Support friends act as mentors, coaches, and inspiration sources, and deliver lectures at schools and workplaces.
- Patientrepresentanter (Patient Representatives) Trained members who represent Unga Reumatiker in healthcare settings, deliver lectures to healthcare personnel, participate in patient councils, and engage in healthcare policy discussions.
- Discord-server (Unga Reumatiker Community) Online community platform for members to connect, chat, and support each other digitally.
- Reumakunskap (Rheumatology Knowledge) Digital knowledge platform with four thematic sections: Vardag (everyday life), Forskning (research), Tips och trix (tips and tricks), and Informationsmaterial (information materials). Contains research summaries, personal portraits, and practical advice for young rheumatics.
- Drömfångaren (Dream Catcher) Digital patient tool designed to inspire children, teenagers and young adults with rheumatic disease to focus on their dreams and future goals.
- VR-doktorn Virtual reality solution designed to improve the encounter between patients and healthcare providers by preparing patients for medical appointments.
- Unga Reumatikers forskningsfond (Research Fund) Research foundation that collects and distributes funds for clinical research related to rheumatic diseases in children, teenagers, and young adults, administered as a 90-account under Svensk Insamlingskontroll supervision.
- Meningen med mig (The Point of Me) Discussion group method for young rheumatics aged 13-19, providing peer support and conversation facilitation.
- Stark Reumatiker Concept and campaign initiative challenging norms about movement and rheumatism, promoting that all forms of movement count and that people with rheumatism can achieve their goals.
- MediPrep (child rheumatism content) Health information website that aggregates and presents medical information in an accessible, age-appropriate format for children and young people, developed in collaboration with Unga Reumatiker for the child rheumatism content section.
Companies that use Unga Reumatiker
Customer profileNamed customers3 records
Segments3 records
Ideal customer profiles3 records
Unga Reumatiker technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration4 records
Feature3 records
Unga Reumatiker partnerships and signals
Strategic signalPartnerships
Six partnerships are on record, tiered core, moderate and minor.
- ReumatikerförbundetcoreParent organization partnership providing dual membership for all members aged 0-30. Joint research fund (Unga Reumatikers forskningsfond) managed in collaboration with Reumatikerförbundet's scientific committee. Shared magazine Reumatikervärlden distributed to all members. Joint advocacy work on healthcare policy, including responses to government consultations. Members receive Reumatikerförbundet benefits including magazine, stipends for rehabilitation, and member discounts.
- Karolinska InstitutetmoderateCollaboration on digital health education where Unga Reumatiker supports recruitment of young patients (18-30 years) as patient partners for a course on digital health and entrepreneurship. Students develop digital solutions based on real patient needs. Patients provide feedback and share how their diagnosis affects daily life. Participants receive 500 SEK gift card.
- Region NorrbottenmoderatePartnership on the Spetspatienter (Expert Patient) project exploring how self-care and digital solutions can improve healthcare for chronic disease patients. Unga Reumatiker participates in panels and seminars at Almedalsveckan through this collaboration.
- MediPrepminorCollaboration on MediPrep health information platform. Unga Reumatiker contributed to the development of content about pediatric rheumatism (barnreumatism). MediPrep provides age-appropriate, accessible medical information for children and youth, based on scientific and clinical evidence.
- Stolt Funkis (Proud Disabled)moderateCoalition of young disability organizations (Unga Hörselskadade, Unga Allergiker, Stolta Magar, Unga Rörelsehindrade, Unga med Synnedsättning, Unga Reumatiker) advocating for LGBTQ+ persons with disabilities. Participated in Stockholm Pride and EuroPride 2018 parades.
- Swedish InsamlingskontrollcoreUnga Reumatikers forskningsfond is a 90-account (90-konto) held by Riksorganisationen Unga Reumatiker, meaning it is controlled by Svensk Insamlingskontroll (Swedish fundraising control). Ensures compliance with Swedish fundraising regulations.
Scale indicators5 records
Recent moves9 records
Expansion highlights6 records
Unga Reumatiker competitors and assessment
Company assessmentDirect peers
- Reumatikerförbundet: Parent Swedish rheumatic disease organization providing the membership pipeline for Unga Reumatiker. Operates as the broader all-ages counterpart covering the same disease area, sharing research funds, advocacy, and publications.
Emerging players
- Stolta Magar: Swedish youth IBD/crohn's/colitis organization and Stolt Funkis coalition member. Highly comparable niche youth health nonprofit with peer support, advocacy, and chronic disease focus.
- Unga Rörelsehindrade: Swedish nonprofit for youth with physical disabilities, part of the Stolt Funkis coalition. Directly comparable as a youth-focused disability organization with similar peer support, advocacy, and Pride engagement model.
- Unga Allergiker: Swedish nonprofit for youth with allergies, also part of the Stolt Funkis coalition. Mirrors Unga Reumatiker's model of age-bounded health nonprofit with peer support, camps, and patient representation.
- Unga Hörselskadade: Swedish nonprofit for youth with hearing impairments, coalition partner with Unga Reumatiker within Stolt Funkis. Highly comparable structure: youth-focused, regional organization, peer support, advocacy for disability rights.
Broad incumbents
- Neuro: Swedish disability and chronic disease organization (formerly Neuroförbundet). Comparable as a national membership organization providing peer support, advocacy, and research funding across neurological and chronic conditions.
- Barncancerfonden: Swedish Childhood Cancer Foundation, a larger and well-established health nonprofit for children with cancer. Comparable as a disease-specific pediatric health nonprofit running a major research fund and family support programs.
- Astma- och Allergiförbundet: Swedish Asthma and Allergy Association, a national health nonprofit serving patients across all ages. Comparable member-driven health nonprofit with research funding, regional structure, and advocacy.
- Hjärtebarnsfonden: Swedish Children's Heart Foundation supporting children and youth with congenital heart disease. Similar disease-specific pediatric health nonprofit model with research funding, family support, and advocacy.
- Riksförbundet för rörelsehindrade barn och ungdomar (RBU): Swedish national association for children and youth with physical disabilities. Comparable peer support, family programs, advocacy, and regional structure serving the same pediatric disability demographic.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks6 records
Key highlights6 records
Customer concentration
Unga Reumatiker social profiles
Digital presenceUnga Reumatiker financial estimates
Financial estimateRevenue estimate
Valuation estimate
Unga Reumatiker leadership team
Management profileNumber of profiles
Profiles4 records
Unga Reumatiker funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Unga Reumatiker M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Unga Reumatiker
What does Unga Reumatiker do?
Unga Reumatiker is a Swedish nonprofit organization that supports children, adolescents, and young adults (ages 0–30) living with rheumatic disease through age-segmented camp programs, peer mentor networks (Stödkompisar), trained patient representatives in healthcare settings, a digital knowledge platform (Reumakunskap), a Discord community, and a research fund (Unga Reumatikers forskningsfond) backing clinical research into pediatric and young-adult rheumatology. Membership is delivered through a dual-membership arrangement with parent organization Reumatikerförbundet, and the organization funds operations through membership fees, donations, grants, and small camp participation fees.
Is Unga Reumatiker a public or private company?
Unga Reumatiker is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Unga Reumatiker founded?
Unga Reumatiker was founded in 1994. It employs 11 to 50 people.
Where is Unga Reumatiker based?
Unga Reumatiker is headquartered in Stockholm, Sweden, in the Europe region.
How does Unga Reumatiker make money?
Four revenue lines are on record. Membership fees are the primary driver. The others are research Fund donations, operating donations and grants and camp participation fees.
Who are Unga Reumatiker's main competitors?
Reumatikerförbundet is listed as a direct peer. Emerging players are Stolta Magar, Unga Rörelsehindrade, Unga Allergiker and Unga Hörselskadade. Broad incumbents are Neuro, Barncancerfonden, Astma- och Allergiförbundet, Hjärtebarnsfonden and Riksförbundet för rörelsehindrade barn och ungdomar (RBU).
Does Unga Reumatiker have an API?
No public API is recorded for Unga Reumatiker.
What industry is Unga Reumatiker in?
Unga Reumatiker's product category is Patient Advocacy Nonprofit. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of BPAGACAM, Rare Disease & Special Needs Support Organizations. Its NAICS code is 813212 and its SIC code is 8300.