Susan and Charles Berghoff Foundation

Name

Susan and Charles Berghoff Foundation

Legal name

Susan and Charles Berghoff Foundation

Website

https://berghoff-foundation.org

Company type

Private

Founded year

2021

Operating status

Operating

Headcount range

11–50 employees

Ownership category

akta.pro rank

Product category

Nonprofit Health Foundation - Dementia Research, Education, and Caregiver Support

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industries

Health & Medical Research Grantmaking Foundations (BPAGAKAL), Dementia Care Coordination & Care Planning (HSABAEAJ), Community Health & Prevention Program Funding (HLAJALAF), Community Health, Prevention & Health Education (BPAGACAC)

Keywords

• Dementia research funding
• Medical education programs
• Caregiver support services
• Nonprofit health foundation
• Lewy body dementia awareness

Headquarters

HQ city

Morgan Hill

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Research grants and fellowships (Stanford, UCSF, UC Davis, Harvard/BWH), Program delivery (CME/CE training, seminars, caregiver support groups), Content production (documentary film, podcast, blog), Marketing or Sales (community outreach, events, awareness campaigns), Personnel (executive director, board, advisors), Operations (Morgan Hill office, technology, administration)

Revenue model

1. Donations and Grants: The foundation operates as a registered 501c3 nonprofit (EIN: 86-2416258) that funds its operations through grants and donations. The organization receives funding from sponsors, individual donors, and institutional grants to support dementia research, education programs, and caregiver services.

Pricing tiers

Distribution channels6 records

Marketing channels10 records

Core offering

The Susan and Charles Berghoff Foundation is a registered 501c3 nonprofit that fights Lewy body dementia (LBD) through three integrated pillars: (1) research funding via fellowships and grants at leading medical institutions such as Stanford Medicine and UC Davis; (2) education programs including CME/CE training for healthcare professionals, university seminars for nursing students, and caregiver workshops; and (3) community awareness delivered through the documentary film 'Sue's Story,' caregiver support groups, podcasts, and a blog. All programs and resources are provided free of charge, with the foundation's operations funded by grants and donations.

Product overview

Susan and Charles Berghoff Foundation is a nonprofit health organization dedicated to fighting Lewy body dementia through three integrated pillars: Research (funding the Sue Berghoff LBD Research Fellowship at Stanford and supporting UC Davis AggieBrain Initiative), Education (CME/CE training for healthcare professionals, university seminars, and caregiver education workshops), and Community Support (documentary film 'Sue's Story,' caregiver support groups, podcast, and blog). The portfolio centers on the Sue Berghoff LBD Research Fellowship for biomarker research, the documentary film for awareness, and structured educational programs including CME/CE training, university seminars, and caregiver support services.

Differentiator

Problem solved

Functional benefit

Products and services

• Sue Berghoff LBD Research Fellowship Funded research fellowship at Stanford Medicine focused on Lewy body dementia biomarkers and disease understanding, awarded to physician-scientists such as Dr. Carla Abdelnour and Dr. Joseph Winer.
• CME/CE Training Programs on Lewy Body Dementia Accredited continuing education programs for physicians, nurses, care coordinators, and administrators on Lewy body dementia identification, diagnosis, and treatment, delivered in partnership with healthcare systems and medical institutions.
• University Dementia Education Seminars
• Caregiver Education and Support Programs
• Sue's Story: A Journey with Lewy Body Dementia (Documentary Film)

Quantifiable outcome

• Funded Sue Berghoff LBD Research Fellowship at Stanford starting in 2020
• +3 more outcomes

Named customers6 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

19 partnerships are on record, tiered core, major and minor.

• Stanford MedicinecoreStrategic or Co-development PartnerPrimary research partner where the Sue Berghoff LBD Research Fellowship was established in 2020. Foundation funds research under Dr. Kathleen Poston, Chief of Movement Disorders Division and Professor of Neurology. Stanford LBD Research Center of Excellence is co-directed by foundation-supported researchers.
• UC DaviscoreStrategic or Co-development PartnerFunding AI-driven neuropathology research through the AggieBrain Initiative. Researchers Dr. Chen-Nee Chuah (Engineering) and Dr. Brittany Dugger (Medicine) collaborate on deep-learning frameworks for quantifying neurodegenerative diseases.
• Brigham & Women's Hospital / HarvardcoreStrategic or Co-development PartnerFoundation supports dementia research at this Harvard-affiliated teaching hospital, one of the leading medical institutions in the US.
• UCSF Memory & Aging CentercoreStrategic or Co-development PartnerFoundation funds research at UCSF's Memory & Aging Center, supporting their work on dementia and related conditions.
• Kaiser PermanentemajorStrategic or Co-development PartnerMedical experts from Kaiser Permanente collaborated on the documentary film 'Sue's Story'. Foundation works with Kaiser physicians including Dr. Rochelle Woods who diagnosed co-founder Sue Berghoff, and Dr. Elena Call and Dr. Miguel Ruvalcaba who serve on the Medical Advisory Group.
• Santa Clara Family Health PlanmajorStrategic or Co-development PartnerFoundation received grant funding to support scale-up of Lewy Body Dementia education and caregiver services. Collaborative partner for community health initiatives.
• San Jose State University - The Valley Foundation School of NursingmajorStrategic or Co-development PartnerOngoing partnership for dementia education seminars for nursing students. Foundation co-hosts interactive learning sessions on LBD and palliative care with SJSU faculty including Dr. Nancy Dudley.
• De Anza College of NursingmajorStrategic or Co-development PartnerFoundation established the Sue Berghoff Excellence in Nursing Scholarship for students with outstanding academic standing and demonstrated interest in elder care.
• Foothill-DeAnza Community CollegemajorStrategic or Co-development PartnerPartnership for nursing student education on dementia. Foundation participates in All-Student Seminars screening the documentary film and engaging in Q&A sessions.
• CSU-San Marcos - Shiley Haynes Institute for Palliative CaremajorStrategic or Co-development PartnerJoint hosting of CME presentations on Lewy Body Dementias and palliative care for healthcare professionals. Foundation presented at the National Symposium for Palliative Care Education & Research.
• Valley Medical Center CMEmajorStrategic or Co-development PartnerPartnership with Dr. Kathleen Poston at Valley Medical Center for CME programs on LBD education for healthcare providers.
• Santa Clara County Public HealthminorStrategic or Co-development PartnerFoundation provides dementia education to public health nurses in Santa Clara County, with positive feedback on LBD training.
• Gavilan CollegeminorStrategic or Co-development PartnerDementia education presentations for CNA students at this local community college.
• Cabrillo CollegeminorStrategic or Co-development PartnerLewy body dementia education presentation for nursing students with positive feedback from nurse faculty Tim Frank.
• Kaiser Permanente Community HealthminorStrategic or Co-development PartnerCo-sponsored bilingual community workshops on brain health and dementia prevention along with Rotary Club of Morgan Hill.
• Rotary Club of Morgan HillminorStrategic or Co-development PartnerCo-sponsored brain health and dementia prevention workshops in the local community.
• AARP CaliforniaminorStrategic or Co-development PartnerJoint screening of documentary film 'Facing the Wind' about Lewy body dementia caregivers, with veteran journalist David Louie moderating discussion.
• Michael J. Fox FoundationminorStrategic or Co-development PartnerDr. Kathleen Poston serves on Executive Steering Committee for the PPMI (Parkinson's Progression Markers Initiative) sponsored by MJFF. Foundation is connected to MJFF's work on alpha-synuclein biomarkers.
• Lewy Body Dementia Association (LBDA)minorStrategic or Co-development PartnerAngela Taylor, VP of Strategic Partnerships, spoke at UC Davis event. Foundation supports LBDA's mission and shares resources.

Scale indicators3 records

Recent moves8 records

Expansion highlights6 records

Direct peers

• Alzheimer's Drug Discovery Foundation: Focused biomedical research grantmaker for Alzheimer's and related dementias. Comparable as a venture philanthropy-style foundation funding translational dementia research at academic institutions.
• Family Caregiver Alliance: National nonprofit providing caregiver support, education, and resources for family caregivers of people with dementia and other chronic conditions. Highly comparable caregiver support group and education programming.
• Association for Frontotemporal Degeneration (AFTD): Nonprofit dedicated to frontotemporal degeneration, another underdiagnosed dementia. Highly comparable structure — small foundation focused on a specific, underfunded dementia, with research funding, education, and support programs.
• Cure Alzheimer's Fund: Venture-style nonprofit funding Alzheimer's research with a focus on high-impact, targeted grants to leading labs. Comparable operating model as a small, science-driven grantmaking foundation supporting diagnostics and biomarker research.
• Fisher Center for Alzheimer's Research at Rockefeller University: Major Alzheimer's research foundation funding work at a single elite institution (Rockefeller). Comparable model of focusing donor and grant dollars at a top-tier research center to drive discovery.
• Michael J. Fox Foundation for Parkinson's Research: Largest nonprofit funder of Parkinson's disease research and a connected alpha-synuclein disorder (LBD overlaps with Parkinson's pathology). Berghoff Foundation is connected to MJFF via Dr. Kathleen Poston's PPMI Executive Steering Committee role.
• Lewy Body Dementia Association (LBDA): National nonprofit dedicated to outreach, education, and research for Lewy body dementia. Most direct peer — Berghoff Foundation partners with LBDA and shares its LBD-specific mission, but LBDA is the established national voice for the same disease.
• BrightFocus Foundation: Nonprofit that funds research and provides public education on Alzheimer's, macular degeneration, and glaucoma. Comparable as a disease-specific grantmaking foundation providing research funding and educational resources.

Broad incumbents

• American Brain Foundation: National nonprofit funding brain disease research across multiple neurological conditions. Comparable as a funder of neuroscience research and producer of CME-accredited medical education for neurologists.
• Alzheimer's Association: The largest voluntary health organization for Alzheimer's and all dementia, including LBD. Berghoff Foundation targets adjacent space and competes for donor attention, education audiences, and research funding.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks7 records

Key highlights7 records

Customer concentration

• Xx.com/cure4LBD
• Facebookfacebook.com/cureLBD

Revenue estimate

Valuation estimate

Number of profiles

Profiles14 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Susan and Charles Berghoff Foundation