Down Syndrome Association of the Valley

Disability advocacy and community support servicesdsav.org

DSAV is a 501(c)(3) nonprofit founded in 2007 serving approximately 375 families of individuals with Down Syndrome in Eastern Ohio and Western Pennsylvania through free membership, the Regional Down Syndrome Center for Success, and an annual Buddy Walk event.

Company typePrivate
Founded2007
HeadquartersBoardman, United States
Headcount1–10
GTM typeB2C
OfferingServices

What Down Syndrome Association of the Valley does

DSAV is a 501(c)(3) nonprofit organization founded in 2007 that serves approximately 375 families of individuals with Down Syndrome across Eastern Ohio and Western Pennsylvania. The organization operates a free membership model open to individuals with Down Syndrome, their families, educators, healthcare professionals, and advocates, and delivers programming spanning infancy through adulthood. Its core offerings include the annual Buddy Walk® (drawing 2,000+ attendees), ICAN Shine Bike Camp, Improvaneer Method (improvisation-based social skills), DSAV Cooks, fitness programs (S.W.I.M., yoga, tennis, pickleball), Play & Connect early-childhood sessions, parent/caregiver support groups, and the DSAV Cares Project. The organization is anchored by the Regional Down Syndrome Center for Success, a 2,500 sq ft facility opened in June 2022 in Boardman, OH, which houses therapeutic play areas, life-skills kitchens, private tutor rooms, therapy and fitness areas, and creative arts spaces. Direct financial-aid programs include Family Grants (up to $500 per individual, $188,000+ awarded since 2009), iPad Grants (112 devices since 2011), post-secondary tuition assistance, and academic scholarships.

DSAV's business model is donation- and event-funded. Revenue streams comprise individual and corporate donations (collected via givebutter.com), event-based fundraising (Designer Purse Bingo at $45/individual and $360/table of 8, Handel's Pint Cards at $6.75 each), corporate sponsorships (Presenting Sponsor at $2,500, Bingo Game Purse Sponsor at $250), merchandise sales through an online storefront, and grants. The organization is an affiliate member of four national Down syndrome bodies — National Down Syndrome Society, National Down Syndrome Congress, Global Down Syndrome Foundation, and Down Syndrome Affiliates in Action — providing reputational anchoring and resource access. Outreach channels combine healthcare professional referrals (pediatricians, obstetricians, genetic counselors), educator outreach, and community word-of-mouth. No technology platform, proprietary software, or AI capabilities are disclosed; operations rely on a 1–10 person staff and a volunteer-supported service model.

Down Syndrome Association of the Valley firmographics

Firmographics

Name: Down Syndrome Association of the Valley
Legal name: Down Syndrome Association of the Valley
Website: https://dsav.org
Company type: Private
Founded year: 2007
Operating status: Operating
Headcount range: 1–10 employees
Short description: DSAV is a 501(c)(3) nonprofit founded in 2007 serving approximately 375 families of individuals with Down Syndrome in Eastern Ohio and Western Pennsylvania through free membership, the Regional Down Syndrome Center for Success, and an annual Buddy Walk event.
Ownership category
akta.pro rank

Down Syndrome Association of the Valley industry classification

Industry

Product category: Disability advocacy and community support services
NAICS: Other Individual and Family Services (624190), Child and Youth Services (624110)
SIC: Services-Social Services (8300), Services-Educational Services (8200)
akta.pro primary industry: Disability Services & Assistive Solutions (Accessibility, Assistive Tech) (BPAGALAM)
akta.pro secondary industries: Disability Services & Independent Living Support (BPAGACAG), Special Education, Disability Support & Inclusive Education Nonprofits (BPAGADAH)

Keywords

Disability advocacy services
Community support programs
Family grant assistance
Disability awareness events
Nonprofit member services

Where Down Syndrome Association of the Valley is headquartered

Location

Headquarters

HQ city: Boardman
HQ country: United States
HQ region: North America

Offices2 records

Markets served

Down Syndrome Association of the Valley business model

Business model

GTM type: B2C
Offering type: Services
Cost components: Personnel, Operations, Marketing or Sales, Others, Infrastructure

Revenue model

Donations and Charitable Contributions: Individual and corporate donations provide the primary funding source for DSAV operations, programs, and grants. The organization accepts donations through givebutter.com platform and emphasizes that donations directly impact individuals with Down Syndrome and their families.
Event-Based Fundraising: Revenue generated from ticketed events including Designer Purse Bingo ($45 individual tickets, $360 table of 8) and Handel's Pint Cards ($6.75 each). These events serve dual purpose of fundraising and community engagement.
Corporate Sponsorships: Corporate sponsorship opportunities at various levels including Presenting Sponsor ($2,500) and Bingo Game Purse Sponsor ($250). Sponsors receive logo display, event recognition, and social media mentions in exchange for financial support.
Merchandise Sales: DSAV operates an online store (dsavstore.itemorder.com) selling merchandise that supports individuals with Down Syndrome and their families, with proceeds contributing to the organization's mission.

Pricing tiers

Model	Billing	Price
Freemium	Free	Free membership for all qualifying members
Unit Pricing	One time/ perpetual license	Designer Purse Bingo individual and table pricing
Unit Pricing	One time/ perpetual license	Handel's Pint Card Fundraiser
Other	One time/ perpetual license	Corporate Sponsorship Tiers
Other	Annual	Family Grants up to $500 per individual

Go-to-market motion2 records

Distribution channels4 records

Marketing channels6 records

Down Syndrome Association of the Valley product offering

Product offering

Core offering

Down Syndrome Association of the Valley (DSAV) is a 501(c)(3) nonprofit organization that provides free membership, programs, grants, and support services to individuals with Down Syndrome and their families in Eastern Ohio and Western Pennsylvania. Core offerings include therapeutic and developmental programs (ICAN Shine Bike Camp, Improvaneer Method, DSAV Cooks, Fitness Programs, Play & Connect), financial assistance (Family Grants up to $500, iPad Grants, post-secondary tuition assistance, academic scholarships), educational resources (Lending Library, New Parent Welcome Baskets), and major fundraising events such as the annual Buddy Walk.

Product overview

Down Syndrome Association of the Valley (DSAV) is a nonprofit organization offering a comprehensive portfolio of programs, grants, and resources rather than a unified technology product. The core offerings include the annual Buddy Walk® event, ICAN Shine Bike Camp, Improvaneer Method, DSAV Cooks, Fitness Programs (S.W.I.M., Yoga, Tennis, Pickleball), and Play & Connect for early childhood development. Financial support programs include Family Grants, iPad Grants, Post-Secondary Tuition Assistance, and Academic Scholarships. The organization provides outreach resources for healthcare professionals and educators, maintains a Lending Library, and runs the DSAV Cares Project for members undergoing medical procedures. Fundraising initiatives include Designer Purse Bingo, Handel's Pint Cards, and an online merchandise store. Most programs are provided at minimal to no cost to members with Down Syndrome, their families, educators, healthcare professionals, and advocates.

Differentiator

Problem solved

Functional benefit

Companies that use Down Syndrome Association of the Valley

Customer profile

Named customers1 record

Segments4 records

Ideal customer profiles4 records

Down Syndrome Association of the Valley technology and API

Technology

Technology focussed No

API detail

Has API: No
API docs
API detail

Core technology

AI maturity

App detail

Down Syndrome Association of the Valley partnerships and signals

Strategic signal

Partnerships

Five partnerships are on record, tiered core and minor.

National Down Syndrome Society (NDSS)coreOthersDSAV is an Affiliate Member of NDSS, providing access to national resources, advocacy efforts, and recognition programs. NDSS is a leading nonprofit organization advocating for the Down syndrome community.
National Down Syndrome CongresscoreOthersDSAV holds affiliate membership, connecting local efforts to national congress initiatives and resources for individuals with Down syndrome and their families.
Global Down Syndrome FoundationcoreOthersDSAV is affiliated with the Global Down Syndrome Foundation, gaining access to medical care, research, and educational resources for the Down syndrome community.
Down Syndrome Affiliates in ActioncoreOthersDSAV participates in this network of Down syndrome organizations, collaborating on shared goals and accessing collective resources and best practices.
Handel's Ice CreamminorGTM or Marketing PartnerHandel's Ice Cream supports DSAV through the Pint Card Fundraising program, selling pint cards ($6.75 each) redeemable at Handel's locations in Mahoning and Trumbull Counties, Ohio.

Scale indicators6 records

Recent moves7 records

Expansion highlights5 records

Down Syndrome Association of the Valley competitors and assessment

Company assessment

Broad incumbents

The Arc: Large national organization advocating for people with intellectual and developmental disabilities (IDD), including Down Syndrome. Represents the broader IDD peer set that DSAV operates within for advocacy and services.
Easterseals: Large national nonprofit providing disability services including for individuals with Down Syndrome. Comparable in mission scope (disability support, family services) though broader than DSAV's Down Syndrome focus.
National Down Syndrome Congress (NDSC): National nonprofit serving individuals with Down Syndrome, their families, and the professionals who work with them. DSAV holds affiliate membership with NDSC, and both organizations share the same beneficiary population and advocacy mission.
National Down Syndrome Society (NDSS): The national umbrella organization for the Down Syndrome community in the U.S. and owner of the Buddy Walk® trademark used by DSAV. DSAV is an affiliate member of NDSS, making it the canonical broad incumbent peer at the national vs. regional level.
Global Down Syndrome Foundation: Major U.S. nonprofit focused on Down Syndrome medical care, research, and education. DSAV is an affiliate, and both organizations share the mission of serving individuals with Down Syndrome — Global is the broader incumbent, DSAV the regional delivery layer.

Direct peers

National Association for Down Syndrome (NADS): Chicago-based Down Syndrome nonprofit providing direct services, support, and education to individuals with Down Syndrome and their families — close functional peer to DSAV's Center-based programming model.
GiGi's Playhouse: National network of Down Syndrome Achievement Centers offering free educational, therapeutic, and developmental programs — directly comparable to DSAV's Regional Down Syndrome Center for Success in mission, free programming model, and Down Syndrome-specific programming.
Down Syndrome Association of Central Ohio: A regional Ohio-based Down Syndrome nonprofit serving a comparable geographic and population profile. Same affiliate-style operating model as DSAV (programming, grants, family support) within the same state — a direct regional peer.
Down Syndrome Diagnosis Network: National nonprofit connecting families with a new Down Syndrome diagnosis to local resources and support — overlapping directly with DSAV's New & Expectant Parents Program and family mentor pathways.
Down Syndrome Affiliates in Action: A network of regional Down Syndrome affiliate organizations — DSAV is a member. This is the most direct functional peer as it represents the same organizational model (regional Down Syndrome affiliate) that DSAV operates within.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

Down Syndrome Association of the Valley financial estimates

Financial estimate

Revenue estimate

Valuation estimate

Down Syndrome Association of the Valley leadership team

Management profile

Number of profiles

Down Syndrome Association of the Valley funding detail

Funding detail

Funding overview

Funding rounds1 record

Investors1 record

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

Down Syndrome Association of the Valley M&A and investment

M&A and investment

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Down Syndrome Association of the Valley

What does Down Syndrome Association of the Valley do?

Is Down Syndrome Association of the Valley a public or private company?

Down Syndrome Association of the Valley is a private company. It is classified as nonprofit foundation owned and is currently operating.

When was Down Syndrome Association of the Valley founded?

Down Syndrome Association of the Valley was founded in 2007. It employs 1 to 10 people.

Where is Down Syndrome Association of the Valley based?

Down Syndrome Association of the Valley is headquartered in Boardman, United States, in the North America region.

How does Down Syndrome Association of the Valley make money?

Four revenue lines are on record. Donations and Charitable Contributions are the primary driver. The others are event-Based Fundraising, corporate Sponsorships and merchandise Sales.

Who are Down Syndrome Association of the Valley's main competitors?

Broad incumbents on record are The Arc, Easterseals, National Down Syndrome Congress (NDSC), National Down Syndrome Society (NDSS) and Global Down Syndrome Foundation. Direct peers are National Association for Down Syndrome (NADS), GiGi's Playhouse, Down Syndrome Association of Central Ohio, Down Syndrome Diagnosis Network and Down Syndrome Affiliates in Action.

Does Down Syndrome Association of the Valley have an API?

No public API is recorded for Down Syndrome Association of the Valley.

What industry is Down Syndrome Association of the Valley in?

Down Syndrome Association of the Valley's product category is Disability advocacy and community support services. Its primary akta.pro industry code is BPAGALAM, Disability Services & Assistive Solutions (Accessibility, Assistive Tech), with a secondary code of BPAGACAG, Disability Services & Independent Living Support. Its NAICS code is 624190 and its SIC code is 8300.