What Psoriasis Association does

The Psoriasis Association is a UK national charity founded in 1968 and headquartered at Dick Coles House, Northampton (registered CIO 1180666 in England and Wales; SC049563 in Scotland). It serves people affected by psoriasis and psoriatic arthritis — patients, families, carers, and healthcare professionals — delivering information, advice, peer support, and research funding. The organization is led by Chair of Trustees Nick Evans (since May 2015) and Research Manager Melinda Spencer, with a team of 1–10 employees.

Its core service portfolio comprises a confidential multi-channel helpline (phone 01604 251 620, email, WhatsApp 07387 716 439), an online community forum segmented into Psoriasis Experiences, Talk About Treatments, Psoriatic Arthritis, and General Chat, and a comprehensive library of leaflets and information sheets. Distribution channels include a website, the Psoteen sub-brand (psoteen.org.uk) for teenagers and young adults, a YouTube content library, an annual Conference (2026 theme: 'Challenges, Opportunities and Solutions'), and the annual Psoriasis Awareness Week (2025: 29 October – 4 November). The Association also operates a 'Your Stories' user-generated content platform and runs a research funding programme that has awarded approximately £5.8 million in grants since foundation.

The Association is funded through voluntary donations, fundraising activities, and membership fees (a recurring subscription model). All beneficiary-facing services are provided free of charge. Strategic partnerships include Connect Immune Research (joined June 2026), the British Association of Dermatologists (BADBIR registry), Breakthrough T1D UK, the Scottish Medicines Consortium, and the All-Party Parliamentary Group on Skin. The charity holds the PIF TICK certification, is registered with the Fundraising Regulator, and has been certified by NHS England's The Information Standard since 2017.

Name

Psoriasis Association

Legal name

The Psoriasis Association

Website

https://psoriasis-association.org.uk

Company type

Private

Founded year

1968

Operating status

Operating

Headcount range

1–10 employees

Short description

The Psoriasis Association is a UK national charity founded in 1968 that provides information, helpline support, peer community forums, and research funding for people affected by psoriasis and psoriatic arthritis, serving patients, families, carers, and healthcare professionals.

Ownership category

akta.pro rank

Product category

Patient Advocacy & Health Charity Services

NAICS

Individual and Family Services (6241)

SIC

Services-Membership Organizations (8600), Services-Health Services (8000)

akta.pro primary industry

Psoriasis & Eczema Specialty Care (HLAKACAL)

akta.pro secondary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

Keywords

• Psoriasis patient support
• Psoriatic arthritis information
• Health charity services
• Patient advocacy organization
• Medical research funding

Headquarters

HQ city

Northampton

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Fundraising: The Psoriasis Association relies on public donations and fundraising activities to fund its operations and research grants. The organization runs fundraising campaigns and receives support from individuals, including those who raise funds on behalf of the Association.
2. Membership Fees: The organization offers membership programs for individuals affected by psoriasis, providing them with access to information, support, forums, and other membership benefits.

Go-to-market motion2 records

Distribution channels5 records

Marketing channels8 records

Core offering

The Psoriasis Association provides free information, advice and support to people affected by psoriasis and psoriatic arthritis through a confidential multi-channel helpline (phone, email, WhatsApp), online community forums, comprehensive leaflets and information sheets, the Your Stories real-life experiences platform, the dedicated Psoteen website for young people, an annual awareness campaign, an annual conference, and a programme of research funding.

Product overview

The Psoriasis Association is the UK's leading national charity offering a suite of support services for people affected by psoriasis and psoriatic arthritis. Its core offerings include a confidential helpline service (telephone, email, and WhatsApp), online community forums, comprehensive information materials and leaflets, and the dedicated Psoteen website for young people. The organization also promotes and funds psoriasis research, runs annual Psoriasis Awareness Week campaigns, publishes real-life patient stories, and hosts an annual conference. These services work together to provide information, advice, support, and community connection to patients, families, carers, and healthcare professionals.

Differentiator

Problem solved

Functional benefit

Brands

• Psoteen: A website specifically for teenagers and young adults with psoriasis, available at psoteen.org.uk

Products and services

• Confidential Helpline Service Confidential helpline service providing information about all aspects of psoriasis and psoriatic arthritis, offering a friendly voice and a listening ear via phone (01604 251 620), email ([email protected]) and WhatsApp (07387 716 439), operating 9am-5pm Monday to Thursday and 9am-4:30pm Friday. Free to anyone affected by psoriasis.
• Online Community Forums Community forums for sharing experiences of living with psoriasis, including dedicated sections for Psoriasis Experiences, Talk About Treatments, Psoriatic Arthritis, and General Chat. Free to register and participate.
• Information Materials and Leaflets Comprehensive range of leaflets and information sheets covering psoriasis types, treatments, living with psoriasis, children and psoriasis, and video resources. Produced under the Information Standard / PIF TICK certification for accuracy and evidence-based content.
• Psoteen Website Sub-brand website specifically designed for teenagers and young adults with psoriasis, providing age-appropriate information and support.
• Your Stories Platform Online platform where people with psoriasis or psoriatic arthritis share their real-life stories to help others realise they are not alone.
• Research Programme Promotes and funds research into the causes, nature and care of psoriasis, publishes and disseminates research results, and facilitates participation in clinical trials for people affected by psoriasis.
• Individual Membership Programme Annual membership programme for individuals affected by psoriasis, providing access to exclusive content, the work of the charity, and connection with other members of the psoriasis community.

Quantifiable outcome

• 15,000+ helpline conversations held in the past 12 years
• +2 more outcomes

Segments4 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered core and minor.

• Connect Immune ResearchcoreStrategic or Co-development Partner · 29 June 2026The Psoriasis Association joined the Connect Immune Research partnership in June 2026 - an innovative cross-disciplinary initiative established in 2018 focused on advancing autoimmune research. The partnership brings multiple charities together to better understand common biological/physiological processes underlying autoimmune conditions. As a new member, the Psoriasis Association brings expertise to the partnership, supporting the vision of a connected research community that advances understanding and treatments for people living with autoimmune conditions.
• Breakthrough T1D UK (formerly JDRF)coreStrategic or Co-development PartnerAs part of the Connect Immune Research partnership, the Psoriasis Association collaborates with Breakthrough T1D UK (formerly Juvenile Diabetes Research Foundation) to advance autoimmune research through shared expertise and knowledge.
• British Association of DermatologistscoreStrategic or Co-development PartnerThe Psoriasis Association works closely with the British Association of Dermatologists on initiatives including the BADBIR (British Association of Dermatologists Biologics and Immunomodulators Register) registry and various treatment guidance documents.
• Scottish Medicines Consortium (SMC)minorGTM or Marketing PartnerThe Psoriasis Association engages with the Scottish Medicines Consortium to participate in meetings and advocate for access to treatments for Scottish patients.
• All-Party Parliamentary Group on SkinminorStrategic or Co-development PartnerThe Psoriasis Association maintains advisory committee representation to the All-Party Parliamentary Group on Skin to advocate for policy changes benefiting people with psoriasis.

Scale indicators4 records

Recent moves5 records

Expansion highlights5 records

Direct peers

• International Federation of Psoriasis Associations (IFPA): Global federation of psoriasis patient associations, of which the Psoriasis Association is a member. Directly comparable mission, member-association model, and disease-specific focus.
• National Eczema Society: UK charity providing information, support, and research funding for people affected by eczema. Highly comparable disease-specific patient organization structure, membership model, and helpline/community service model.
• Allergy UK: UK charity providing information, support, and helpline services for people with allergic and immunological conditions. Similar disease-focused patient organization, helpline model, and UK charity structure.
• British Skin Foundation: UK charity funding research into all forms of skin disease, including psoriasis. Overlaps directly on dermatology research funding, awareness, and patient information mission.

Regional players

• National Psoriasis Foundation (USA): The US national psoriasis patient organization providing research funding, advocacy, and patient education. Closest international peer — same disease focus and patient-charity model, but US-only geography.
• Psoriasis Ireland / other national psoriasis associations: National psoriasis patient associations in other countries (e.g., Psoriasis Ireland, Deutsche Psoriasis Bund). Same disease-specific patient organization mission, comparable service mix (helpline, information, research advocacy), but serving different geographies.

Broad incumbents

• Versus Arthritis: Major UK charity focused on arthritis and musculoskeletal conditions, including psoriatic arthritis. Comparable UK patient-charity model, large-scale fundraising, and research funding — but a broader condition mandate.
• British Association of Dermatologists: UK professional body for dermatologists that runs the BADBIR biologics register and treatment guidance the Psoriasis Association supports. Comparable UK dermatology ecosystem role, though HCP-led rather than patient-led.
• Cancer Research UK: Large UK health charity combining research funding, public information, and policy advocacy. Comparable as a UK health charity with donations, research grants, and awareness campaigns, but at vastly larger scale and broader disease focus.
• Mind: Major UK mental health charity operating a helpline, information services, and campaigning model. Comparable UK charity structure and supporter engagement model, though different condition focus.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/playlist?list=PL_31SSYRtIkqQL6QQjjCJr1d1VGT_sfLt
• Xx.com/PsoriasisUK
• Facebookfacebook.com/PsoriasisUK
• LinkedInlinkedin.com/company/psoriasis-uk

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Psoriasis Association