Canada's Pediatric Palliative Care Alliance

What Canada's Pediatric Palliative Care Alliance does

Canada's Pediatric Palliative Care Alliance (CPPCA) is a non-profit organization founded in 2023 and headquartered at Roger Neilson Children's Hospice in Ottawa, Canada. Its mission is to coordinate and strengthen the delivery of pediatric palliative care across Canada for seriously ill children and their families. The Alliance operates a bilingual (English/French) digital platform centered on its Resource Hub, launched October 9, 2025, which provides access to over 400 curated, peer-reviewed tools, guides, clinical resources, and education modules. Its core products include the Core Care Pathway for Pediatric Palliative Care (a nationally-informed framework adapted from the UK Together for Short Lives pathway), an interactive national map of specialty pediatric palliative care teams and children's hospices across all 13 provinces and territories, Canadian-adapted guides from Courageous Parents Network, and the Palliative Care and Grief Hub with resources culturally adapted for ten sociolinguistic communities.

The Alliance serves four primary user segments: healthcare professionals (pediatricians, nurses, child life specialists, social workers), family members and caregivers, young people living with serious illness or grief, and partner organizations including pediatric hospices and children's hospitals. A Partners with Lived Experience group of approximately 35 community members informs its work. All resources are provided free of charge via direct digital access, with no pricing tiers or revenue from users. Funding derives from Health Canada federal grants — a $1.2M investment in 2023 and up to $1M in 2024 — and the Alliance is actively advocating for a $10 million federal investment over five years under its 'Short Lives Can't Wait' campaign. Strategic partnerships span Health Canada, Roger Neilson Children's Hospice, Courageous Parents Network, Our Kids' Health, CERAH, Pallium Canada (Project ECHO), and Together for Short Lives (UK).

Name

Canada's Pediatric Palliative Care Alliance

Legal name

Canada's Pediatric Palliative Care Alliance / Alliance des soins palliatifs pédiatriques du Canada

Website

https://pediatricpalliativecare.ca

Company type

Private

Founded year

2023

Operating status

Operating

Headcount range

1–10 employees

Short description

Canada's Pediatric Palliative Care Alliance is a non-profit that coordinates pediatric palliative care across Canada, operating a bilingual Resource Hub with 400+ curated tools and a national map of specialty teams serving healthcare professionals, families, and young people.

Ownership category

akta.pro rank

Product category

Pediatric Palliative Care Services

NAICS

Individual and Family Services (6241)

SIC

Services-Social Services (8300), Services-Health Services (8000)

akta.pro primary industry

Palliative Care, Hospice & Serious Illness Support (BPAGACAK)

akta.pro secondary industries

Pediatric Hospice & Palliative Care (HLADAHAI), Pediatric Hospice & Palliative In-Home Care (HSABAFAE)

Keywords

• Pediatric palliative care
• Palliative care resources
• Healthcare advocacy services
• Family caregiver support
• Grief and bereavement support

Headquarters

HQ city

Ottawa

HQ country

Canada

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Technology or R&D, Operations, Marketing or Sales

Revenue model

1. Government Funding: The Alliance is primarily funded through government grants, notably a $1.2M federal investment from Health Canada in 2023 to develop an online bilingual resource hub. The Alliance is also calling for a $10 million federal investment over five years.

Pricing tiers

Go-to-market motion2 records

Distribution channels2 records

Marketing channels8 records

Core offering

Canada's Pediatric Palliative Care Alliance is a non-profit organization that delivers a bilingual (English/French) online Resource Hub containing more than 400 curated, peer-reviewed pediatric palliative care tools, authored guides, clinical resources, and education modules. The Core Care Pathway for Pediatric Palliative Care serves as the Alliance's foundational framework, guiding families and healthcare professionals through every stage of a child's illness journey from diagnosis through end-of-life and bereavement. Additional offerings include an interactive national map of specialty pediatric palliative care teams and children's hospices, culturally adapted grief resources for diverse communities, and educational programs delivered in partnership with Pallium Canada.

Product overview

Canada's Pediatric Palliative Care Alliance operates a unified digital platform centered on its Bilingual Resource Hub, which provides over 400 curated tools, guides, and education resources for healthcare professionals, families, and organizations. The Core Care Pathway for Pediatric Palliative Care serves as the foundational framework that maps to the Resource Hub's content, enabling users to navigate resources by phase of care. Additional offerings include Authored Guides developed by Canadian PPC specialists, the Alliance X Courageous Parents Network adapted resources, the Palliative Care and Grief Hub with culturally adapted materials, and a National Specialty Team Map. The platform also includes an interactive national directory and upcoming Communities of Practice feature.

Differentiator

Problem solved

Functional benefit

Products and services

• Bilingual Pediatric Palliative Care Resource Hub A bilingual (English/French) online platform providing healthcare professionals, families, and organizations with free access to over 400 curated, peer-reviewed tools, authored guides, clinical resources, and education modules for pediatric palliative care in Canada. Includes free registration to save bundles and access additional features.
• Core Care Pathway for Pediatric Palliative Care A nationally-informed roadmap adapted from the UK Together for Short Lives pathway that guides pediatric palliative care delivery through every stage of a family's journey, from identification of a serious illness through end-of-life care and bereavement. Provides a shared language and consistent standards across Canada.
• Authored Guides Practically-focused guides developed by specialized pediatric palliative care providers across Canada, peer-reviewed for accuracy and usability. Covers key topics including identifying palliative care needs, introducing palliative care, holistic assessments, and end-of-life care.
• Alliance X Courageous Parents Network Guides Adaptations of Courageous Parents Network educational guides, thoughtfully customized for the Canadian pediatric palliative care context and healthcare system, reviewed by Partners with Lived Experience and Canadian healthcare professionals. Covers self-care strategies, clinical trial considerations, and other key themes.
• Palliative Care and Grief Hub A collection of evidence-based resources translated and culturally adapted for ten sociolinguistic communities, developed in partnership with Our Kids' Health to improve accessibility of palliative care and grief support for diverse populations.

Quantifiable outcome

• Over 1,000 visitors accessed the Resource Hub within two weeks of its October 9, 2025 launch
• +2 more outcomes

Named customers4 records

Segments5 records

Ideal customer profiles3 records

Technology focussed Yes

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

AI capability2 records

Feature5 records

Partnerships

Seven partnerships are on record, tiered core and secondary.

• Roger Neilson Children's HospicecoreStrategic or Co-development PartnerRoger Neilson Children's Hospice provides infrastructure and in-kind support that enabled the Alliance's work to get started quickly and efficiently. It hosts the Alliance's headquarters at 399 Smyth Road, Ottawa, ON.
• Courageous Parents Network (CPN)coreStrategic or Co-development PartnerPartnership to adapt CPN's well-loved educational guides for the Canadian context and healthcare system. Guides cover key themes in pediatric palliative care from self-care strategies to clinical trial considerations. Each guide was reviewed by Partners with Lived Experience and Canadian healthcare professionals.
• Our Kids' HealthsecondaryStrategic or Co-development PartnerPartnership to launch the Palliative Care and Grief Hub, a collection of evidence-based resources translated and culturally adapted for ten sociolinguistic communities. Topics were chosen as priorities by families and partners with lived experience.
• Centre for Education on Research and Aging in Health (CERAH)secondaryStrategic or Co-development PartnerPartnership on a Speaker Series session in December 2024 focused on experiences of Indigenous children living with serious illness and their families, beginning a conversation on improving access and enhancing quality care.
• The Sunflower – Palliative Care Podcasts (Two Worlds Cancer Collaboration)secondaryStrategic or Co-development PartnerPartnership to produce a 5-part podcast series in 2025 on advancing equity in pediatric palliative care. Each episode features two guests—clinicians, caregivers, and advocates—offering intersectional perspectives on caring for children from equity-deserving communities.
• Pallium CanadacoreStrategic or Co-development PartnerPartnership to deliver Project ECHO – Pediatric Palliative Care sessions, a proven healthcare education model that empowers community healthcare professionals with evidence-based knowledge and resources for caring for pediatric patients with palliative care needs.
• Together for Short Lives (UK)secondaryStrategic or Co-development PartnerThe Core Care Pathway was adapted from Together for Short Lives' UK Core Care Pathway, then co-designed to capture Canadian context with input from families, clinicians, and experts across Canada.

Scale indicators8 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• International Children's Palliative Care Network (ICPCN): Global network working to improve children's palliative care worldwide. Operates in the same domain as CPPCA but at an international level, making it a broad incumbent peer for cross-jurisdiction learning.
• Roger Neilson Children's Hospice: Children's hospice in Ottawa that hosts CPPCA's headquarters and provides infrastructure and in-kind support. While primarily a direct care provider rather than a national coordinator, it is the parent/host organization for CPPCA.
• Children's Hospice & Palliative Care Coalition: US-based national coalition advocating for children's hospice and palliative care. Comparable as a national advocacy body in the pediatric palliative space, though operating in a different country and healthcare system.
• Canadian Hospice Palliative Care Association (CHPCA): National umbrella body for hospice palliative care in Canada, covering adult and pediatric populations. CPPCA represents a specialized pediatric layer operating within and adjacent to CHPCA's broader advocacy footprint.

Regional players

• Canuck Place Children's Hospice: British Columbia-based children's hospice providing direct pediatric palliative care services in western Canada. Compares as a regional direct-service provider rather than a national coordinator.

Direct peers

• Canadian Network of Palliative Care for Children (CNPCC): Canadian national network of pediatric palliative care professionals that co-awards the Pediatric Award of Excellence with CHPCA and CPPCA. Closest direct national peer serving overlapping professional and clinical stakeholder communities.
• Together for Short Lives: UK-based charity that is the leading voice for children's palliative care in the UK; CPPCA explicitly adapted its Core Care Pathway from Together for Short Lives' UK Core Care Pathway, making them a direct model peer and closest international comparator.
• Courageous Parents Network: US-based non-profit producing educational guides for parents of children with serious illness. CPPCA has a formal Alliance X CPN partnership to adapt their guides for the Canadian context, making them a direct content peer.
• Pallium Canada: Canadian non-profit delivering palliative care education including the Project ECHO Pediatric Palliative Care program in partnership with CPPCA. Overlaps in mission to build palliative care capacity across Canada through education and resources.

Emerging players

• Our Kids' Health: Canadian organization partnering with CPPCA to deliver the Palliative Care and Grief Hub in ten sociolinguistic communities. Overlaps in mission to make pediatric health information accessible to diverse families.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xx.com/PedPallCareCA
• YouTubeyoutube.com/@pediatricpalliativecareca
• Facebookfacebook.com/profile.php
• LinkedInlinkedin.com/company/pediatricpalliativecare
• Instagraminstagram.com/pedpallcareca

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles5 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Canada's Pediatric Palliative Care Alliance