What Fibroid Foundation does

The Fibroid Foundation is an independent 501(c)(3) nonprofit patient advocacy organization headquartered in Rockville, Maryland, founded in 2013 by Sateria Venable following her own experience with multiple fibroid surgeries. The organization serves women affected by uterine fibroids — a population the Foundation estimates at roughly 26 million diagnosed women in the United States, with up to 80% of women developing fibroids by age 50 — through four integrated functions: patient education (the Fibroids U platform covering detection, treatment, menopause, and shared decision-making), community support (global volunteer-led chapters, peer networks, and the Ambassador Chapter Program), clinical research collaboration (COEQUaL Study with Mayo Clinic, University of Mississippi Medical Center, and University of Florida; Compare-UF Registry; PCORI Engagement Award), and legislative advocacy (workplace menstrual health, the Stephanie Tubbs Jones Fibroid Research and Education Act, and White House engagement on women's health research).

The Foundation does not develop proprietary technology products; its "products" are programmatic — the annual Fibroid Summit, the #askHER Workplace Reset program, the Option Grid patient decision aid, the Heavy Menstrual Bleeding Hub (with editorial independence from sponsor Always/P&G), National Menstrual Health Awareness Month campaigns, and a forthcoming Provider Portal for clinicians. Its technology footprint consists of a WordPress-based website, integrations with Google Analytics, Mailchimp, PayPal, and Square for donations and event registration, and social media platforms for community engagement.

Revenue is generated through individual donations (via Zeffy), corporate sponsorships from a portfolio that includes Always (Procter & Gamble) at a flagship tier plus Hologic, Medtronic, Bayer, Myovant Sciences, and Omnia Education, merchandise sales through Fourthwall, and grants such as the PCORI Engagement Award. All patient-facing services are offered free of charge, including the Workplace Reset program.

Name

Fibroid Foundation

Legal name

The Fibroid Foundation

Website

https://fibroidfoundation.org

Company type

Private

Founded year

2013

Operating status

Operating

Headcount range

1–10 employees

Short description

The Fibroid Foundation is a 501(c)(3) nonprofit founded in 2013 that provides education, community chapters, clinical research collaboration, and advocacy for women affected by uterine fibroids in the United States and globally.

Ownership category

akta.pro rank

Headquarters

HQ city

Rockville

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Marketing or Sales, Operations, Technology or R&D, Infrastructure, Others

Revenue model

1. Donations: Individual donations from supporters via platforms like Zeffy
2. Corporate Partnerships: Sponsorships and partnerships with healthcare companies including Always, Hologic, Medtronic, Bayer, and Myovant Sciences
3. Merchandise Sales: Online shop selling merchandise through fourthwall.com

Go-to-market motion1 record

Distribution channels5 records

Marketing channels7 records

Core offering

The Fibroid Foundation is a 501(c)(3) nonprofit patient advocacy organization that provides uterine fibroid education, peer community support, clinical research collaboration, and legislative advocacy for women affected by fibroids. Its core offerings include the Fibroids U education platform, community chapters worldwide, the annual Fibroid Summit, and research programs such as the COEQUaL Study. Services are delivered free to patients and funded through donations, corporate sponsorships, and merchandise sales.

Product overview

The Fibroid Foundation operates as a nonprofit patient advocacy organization offering a unified platform of education, research, and community support services centered on uterine fibroid awareness and management. The core offerings include the Fibroids U Education Platform providing comprehensive fibroid information, the COEQUaL Study research initiative, the annual Fibroid Summit conference, the #askHER Workplace Reset program for workplace menstrual health support, the Ambassador Chapter Program for community building, and the upcoming Provider Portal for clinician engagement. Additional services include the Compare-UF Registry research participation and the Option Grid patient decision aid. The organization also maintains advocacy efforts including the Heavy Menstrual Bleeding Hub developed in partnership with Always, and annual National Menstrual Health Awareness Month campaigns. The organization does not operate as a traditional technology product company.

Differentiator

Problem solved

Functional benefit

Brands

• Fibroid Summit: Annual educational forum hosting patients and clinicians for dialogue on fibroid research and treatment.
• #askHER Workplace Reset
• COEQUaL Study

Products and services

• Fibroids U Education Platform Comprehensive educational resource providing information on fibroids 101, detection methods, treatment options, menopause, and shared decision-making to help women understand and manage their fibroid diagnosis.
• COEQUaL Study National Institutes of Health research collaboration with Mayo Clinic, the Fibroid Foundation, University of Mississippi Medical Center, and University of Florida focused on health disparities in uterine leiomyoma (fibroids), inviting patients to share their stories via focus groups.
• #askHER Workplace Reset
• Ambassador Chapter Program Community engagement program allowing individuals to become Fibroid Foundation Ambassadors to bring comprehensive fibroid education and advocacy to local communities through chapter leadership.
• Fibroid Summit Annual educational forum hosting patients and clinicians to dialogue on fibroid research, featuring expert presenters and presentations on treatment options, research findings, and patient-centered care.
• Compare-UF Registry Nationwide research study helping women and healthcare providers understand effects of different fibroid treatment options including symptom relief, fertility, and need for additional treatment, with Sateria Venable serving on the Steering Committee.
• Option Grid Patient Decision Aid Patient decision aid summarizing pros and cons of various uterine fibroid treatments, developed with Fibroid Foundation contribution to ensure content is comprehensive, clear, and relatable for patients.
• Heavy Menstrual Bleeding Hub Educational resource hub on heavy menstrual bleeding, developed in partnership with Always, providing information on what heavy menstrual bleeding is, its connection to fibroids, and guidance on talking to healthcare providers.

Quantifiable outcome

• 26 million women reached with education and awareness
• +1 more outcomes

Named customers2 records

Segments3 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration7 records

Partnerships

Eleven partnerships are on record, tiered minor, flagship and core.

• The Campion FundminorStrategic or Co-development Partner · 1 January 2021Partnered with the Fibroid Foundation to host Fibroid Summit 2021.
• Always (Procter & Gamble)flagshipGTM or Marketing PartnerSponsored collaboration focused on heavy menstrual bleeding awareness and education. The partnership includes educational resources on the connection between fibroids and heavy menstrual bleeding, with the Fibroid Foundation maintaining editorial independence.
• HologiccoreGTM or Marketing PartnerCorporate partner supporting the Fibroid Foundation's mission and programs.
• MedtroniccoreGTM or Marketing PartnerCorporate partner supporting the Fibroid Foundation's mission and programs.
• BayercoreGTM or Marketing PartnerCorporate partner and presenting sponsor for menopause programming, including sponsorship of the Menopause & Fibroids educational content.
• Omnia EducationcoreGTM or Marketing PartnerCorporate partner supporting the Fibroid Foundation's mission and programs.
• Myovant SciencescoreGTM or Marketing PartnerSponsored The Workplace Reset conversation and weekly reports on menstrual health in the workplace. The initiative aims to empower employees and employers with strategies for equitable workplaces.
• PCORI (Patient-Centered Outcomes Research Institute)flagshipStrategic or Co-development PartnerPCORI Engagement Award (EASCS-44660) funded the Comparative Effectiveness of Fibroid Treatments event. PCORI supports patient-centered outcomes research.
• Mayo ClinicflagshipStrategic or Co-development PartnerResearch partner in the COEQUaL (Collaboration for Equity in Uterine Leiomyomas) study, a specialized research center focused on health disparities in uterine fibroids.
• University of Mississippi Medical CenterflagshipStrategic or Co-development PartnerResearch partner in the COEQUaL study focused on health disparities in uterine fibroids among racial and ethnic groups.
• University of FloridaflagshipStrategic or Co-development PartnerResearch partner in the COEQUaL study focused on health disparities in uterine fibroids among racial and ethnic groups.

Scale indicators4 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• Center for Reproductive Rights: Global reproductive-health legal advocacy nonprofit. Comparable federal and legislative advocacy channel for women's reproductive health, though focused on legal rights rather than clinical education.
• National Menopause Foundation: Patient-facing nonprofit advancing menopause education, research, and policy. Directly comparable as a small-condition-specific women's health advocacy nonprofit with educational content and chapter-style community engagement.
• Every Mother Counts: Nonprofit dedicated to maternal and reproductive health equity through advocacy, education, and grants. Comparable founder-led advocacy model, corporate partnerships, and federal-policy engagement on women's health.
• HealthyWomen: Established nonprofit providing women's health education and policy advocacy. Comparable focus on patient education, mid-life women's health (menopause, fibroids), and partnerships with pharma/device sponsors.
• PCOS Challenge: The National Polycystic Ovary Syndrome Association: National nonprofit serving women with polycystic ovary syndrome through advocacy, education, and research. Highly comparable operating model: small team, community chapters, corporate partners, and congressional engagement on women's health.
• Society for Women's Health Research: Research-focused advocacy organization advancing women's health through science and policy. Closely comparable on the research/clinical-trials partnership axis, including federal engagement and provider-network outreach.
• National Women's Health Network: Independent nonprofit advocating for women's health policy and evidence-based care. Comparable advocacy stance, federal-policy engagement, and patient-centered research orientation, with broader women's health scope than the Fibroid Foundation.
• Black Women's Health Imperative: National nonprofit advancing health equity and advocacy for Black women across reproductive and chronic conditions. Closely comparable mission, advocacy/community model, and donor-base overlap with the Fibroid Foundation's health-disparities focus.
• Endometriosis Foundation of America: Patient-advocacy nonprofit focused on endometriosis, offering education, research funding, and community support. Same disease-niche advocacy structure, summit model, and pharma sponsorship pattern as the Fibroid Foundation.

Broad incumbents

• March of Dimes: Established large-scale maternal and infant health nonprofit with research, advocacy, and corporate partnerships. Comparable maternal-health advocacy scope and federal-policy influence, but at significantly larger scale than the Fibroid Foundation.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• Facebookfacebook.com/fibroidfoundation
• Instagraminstagram.com/fibroidfoundation

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Fibroid Foundation