MS Vereniging

What MS Vereniging does

MS Vereniging Nederland is a Dutch non-profit patient advocacy association headquartered in Den Dolder, serving approximately 8,000 members who have Multiple Sclerosis, NMOSD, MOGAD, or are relatives of people with these conditions. The organization delivers a portfolio of support services including a telephone helpline (MS-telefoon), professional and experiential coaching (MS-coaches), a dietitian-staffed nutrition line, peer education (MS-voorlichters), and sexual health consultations. Its service portfolio is delivered through a small paid national staff, several hundred volunteers, 19 regional working groups, a quarterly member magazine (MenSen), webinars, in-person MS cafés, and a member portal (Mijn MS Vereniging).

The organization's business model is a non-profit membership model anchored on €30 annual subscriptions (€15 for members up to age 35 receiving a digital magazine), supplemented by tax-deductible donations, legacy bequests, in-memory donations, and earmarked research subsidies of up to €50,000 per year for scientific MS research. It is ANBI-registered (Algemeen Nut Beogende Instelling) and governed by an unpaid Board appointed by the General Members' Assembly. Revenue is not publicly disclosed.

MS Vereniging co-founded the MS.nl information platform with Nationaal MS Fonds and Stichting MS Research, and is a member of international federations including the European Multiple Sclerosis Platform (EMSP, 40 societies across 35 countries) and MS International Federation (MSIF), as well as domestic coalitions Patiëntenfederatie Nederland and Ieder(in). It maintains partnerships with MS-specialized healthcare providers through MS Zorg Nederland and individual MS centers, and operates a crisis support pathway via Stichting 113 Zelfmoordpreventie. There is no proprietary technology platform; the digital estate consists of a content website and member portal.

Name

MS Vereniging

Legal name

MS Vereniging Nederland

Website

https://msvereniging.nl

Company type

Private

Operating status

Operating

Short description

MS Vereniging Nederland is a Dutch non-profit patient association serving approximately 8,000 members with MS, NMOSD, or MOGAD through advocacy, helplines, coaching, peer education, regional MS cafés, and member services across 19 Dutch regions.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Voluntary Health Organizations (813212), Individual and Family Services (6241)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

Keywords

• Patient advocacy services
• Multiple sclerosis support
• Healthcare helpline services
• Member association services
• Patient education programs

Headquarters

HQ city

Den Dolder

HQ country

Netherlands

HQ region

Europe

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Membership subscriptions: Members pay an annual subscription fee (€30 per year; €15 for people aged up to 35 years receiving a digital version of the MenSen magazine). This provides the organization with a recurring revenue base and covers costs of member services.
2. Donations and patron support: Donors contribute financially to support the association's mission. MS Vereniging is recognized as an ANBI (Algemeen Nut Beogende Instelling), making donations tax-deductible. The organization receives one-time donations, periodic gifts, and legacy bequests.
3. Scientific research subsidy (earmarked bequests): Through bequests and legacies specifically designated for scientific research, the organization is able to annually submit a subsidy request for up to €50,000 to fund scientific MS research.
4. In-memory donations and fundraising boxes: The organization accepts in-memory donations and provides a cardboard donation box for use at funerals, wakes, birthdays, and other events to collect donations.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels12 records

Core offering

MS Vereniging Nederland is a non-profit patient advocacy association supporting approximately 8,000 members with multiple sclerosis, NMOSD, and MOGAD in the Netherlands. It delivers direct support services through telephone helplines (MS-telefoon, nutrition line, sexuality consultations), professional coaching, peer education, a quarterly member magazine (MenSen), webinars, regional meetings across 19 Dutch regions, and a member portal. Beyond direct services, the association advocates for MS patients with government, healthcare providers, and insurers, and funds scientific MS research through earmarked bequests.

Product overview

MS Vereniging Nederland is a patient advocacy organization (not a technology company) offering a unified service portfolio of support and information services for people with MS. The core services include: the MS-telefoon (telephone helpline) as the primary contact point; MS-coaches providing professional coaching; MS-voedingslijn for nutrition advice; MS-voorlichters for education; and MS-spreekuur seksualiteit for sexual health. Supporting these direct services are MenSen Magazine (quarterly member publication), webinars (online educational content), regional activities organized through 19 regional groups, the MS-panel for research participation, and the Mijn MS Vereniging member portal. The organization also provides educational materials including brochures, conversation cards, and MS-themed games. A partnership with 113 suicide prevention extends crisis support capabilities. These services work together to provide comprehensive support for people with MS and their loved ones through information, peer support, professional guidance, and community connection.

Differentiator

Problem solved

Functional benefit

Products and services

• MS-telefoon Telephone helpline service where people with MS can ask questions about living with MS, share stories, or talk with staff who are experienced experts with personal connection to MS. Available weekdays 10:30–14:00 at 088-374 8585.
• MS-coaches Professional coaching service combining experiential expertise with professional coaching skills. Coaches help with questions about work, reintegration, legislation, acceptance, and meaning, offering both offline coaching trajectories and online consultations for people with MS and their relatives.
• MS-voedingslijn Nutrition hotline staffed by Linda Boot, a dietitian with personal MS experience, who answers questions about nutrition and MS for members.
• MS-voorlichters Trained peer educators who provide presentations about MS at schools, healthcare professional settings, employers, and families of people with MS. They use the MS Experience Toolkit to help others understand MS symptoms.
• MS-spreekuur seksualiteit & intimiteit Consultation service for questions about sexuality and intimacy related to MS, staffed by professional sexual health consultants who provide callbacks within a week.
• MenSen Magazine Quarterly member magazine sent to members free of charge, containing articles about advocacy for people with MS, medical-scientific research, and member experiences. Digital version available through the member portal.
• Regional Activities 19 regional groups across the Netherlands organizing MS-cafés, coffee mornings, contact meetings, partner groups, youth groups (18-35 years), and themed meetings to provide in-person peer support and community connection.
• Webinars Online webinar series covering topics like fatigue, mobility, sexuality, work with MS, and differences between MS/NMOSD/MOGAD. Recordings are available for viewing.
• MS-panel Online panel of people with MS who provide their opinions on topics relevant to MS through questionnaires, helping to improve advocacy and service delivery with experiential data.
• Mijn MS Vereniging Member-only online portal where members can access digital newsletters, download MenSen magazine archives, and manage their membership.
• Folders and Materials Various downloadable and orderable materials including brochures (MS en dan, MS en werk), conversation cards, MS games (PIT!, MS kaartspel), and MS lifehacks booklets for members and the public.

Quantifiable outcome

• Up to €50,000 per year can be granted for scientific MS research from earmarked bequests.
• +1 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

17 partnerships are on record, tiered core and minor.

• Patiëntenfederatie NederlandcoreStrategic or Co-development PartnerMS Vereniging Nederland is a member of Patiëntenfederatie Nederland, which represents over 200 patient and consumer organizations. The federation strengthens the position of patients in healthcare and provides platforms such as patientenfederatie.nl and ZorgkaartNederland.nl. MS Vereniging uses this membership for non-MS-specific advocacy.
• Ieder(in)coreStrategic or Co-development PartnerIeder(in) is a network for people with disabilities or chronic diseases, advocating for a society where everyone can participate fully. MS Vereniging is a member for non-MS-specific advocacy representation.
• European Multiple Sclerosis Platform (EMSP)coreStrategic or Co-development PartnerEMSP is committed to a world without MS, working on a three-pillar approach: campaigning through advocacy and awareness-raising; collecting and sharing knowledge and expertise; and encouraging research and data collection. MS Vereniging is a member representing the Netherlands in EMSP's network of 40 member societies across 35 European countries.
• MS International Federation (MSIF)coreStrategic or Co-development PartnerMSIF is the global movement of MS organizations, by and for people affected by MS. It networks, learns from members, and enables global collaborations to improve quality of life and end MS forever. MS Vereniging is a member of MSIF.
• Nationaal MS FondscoreStrategic or Co-development PartnerNationaal MS Fonds focuses on MS education, coaching, and research at the national level. It shares the same dream as MS Vereniging: a better life for people with MS. The two organizations are co-founders of MS.nl.
• Stichting MS ResearchcoreStrategic or Co-development PartnerStichting MS Research funds and stimulates scientific research into the cause of and solution for MS, provides MS education, and promotes optimal care. It is a co-founder of MS.nl alongside MS Vereniging and Nationaal MS Fonds.
• MS.nlcoreStrategic or Co-development PartnerMS.nl is an online platform with reliable information about MS, co-created by MS Vereniging Nederland, Nationaal MS Fonds, and Stichting MS Research.
• ToiletalliantieminorStrategic or Co-development PartnerMS Vereniging is affiliated with the Toiletalliantie, which jointly campaigns for sufficient public and accessible toilets. This is particularly relevant for people with MS who experience bladder and bowel problems.
• MS Zorg NederlandcoreStrategic or Co-development PartnerMS Zorg Nederland is a network of MS-specialized healthcare providers. MS Vereniging collaborates with MS Zorg Nederland on care quality and patient advocacy.
• Stichting 113 (113 Zelfmoordpreventie)coreStrategic or Co-development PartnerMS Vereniging has partnered with Stichting 113 Zelfmoordpreventie to support people with MS who may be experiencing suicidal thoughts. MS-telefoon staff can quickly refer callers to 113. Members also have access to online therapy via 113.
• MS-centra (MS care centers)coreStrategic or Co-development PartnerMS Vereniging collaborates with MS centers across the Netherlands including ErasMS (Erasmus MC Rotterdam), Academisch MS Centrum Amsterdam, Academisch MS Centrum Noord-Nederland, Academisch MS Centrum Zuyd, and many others. These centers provide specialized MS care and serve as referral points.
• ColoplastminorGTM or Marketing PartnerColoplast offers member benefits including a personalized toilet pass, a free welcome package on bladder and bowel problems, and exclusive DarM & blaaS support for members of MS Vereniging.
• StorytelminorGTM or Marketing PartnerStorytel offers audiobooks to members of MS Vereniging as a member benefit.
• OrthicaminorGTM or Marketing PartnerOrthica offers dietary supplements to members at preferential conditions.
• Fletcher HotelsminorGTM or Marketing PartnerExclusive member benefit: Night Away for 2 persons at a Fletcher Hotel for €35 (reduced from €89.90) for members of MS Vereniging.
• MS on WavesminorGTM or Marketing PartnerMS on Waves organizes unforgettable sailing experiences for people with MS in the Netherlands. Members receive €10 discount on one-day 'Unlimited Sailing Days'.
• 113 ZelfmoordpreventieminorGTM or Marketing PartnerMember benefit providing access to suicide prevention services offered by 113 Zelfmoordpreventie.

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Nationaal MS Fonds: Dutch MS organization focused on education, coaching, and research funding. Co-founder of MS.nl alongside MS Vereniging, directly comparable in disease-specific mandate and member-facing services.
• Stichting MS Research: Dutch foundation that funds and stimulates scientific MS research and promotes optimal care. Co-founder of MS.nl with MS Vereniging; comparable in disease-specific focus and donor-funded research model.
• MS Society UK: UK national MS charity with overlapping service portfolio (helpline, peer support, research funding, advocacy). Directly comparable in mission, programs, and member-driven advocacy model.
• Multiple Sclerosis Society of Canada: Canadian national MS charity offering information, support services, and research funding. Closely comparable to MS Vereniging in country-level disease advocacy and service model.
• ALS Nederland: Dutch disease-specific nonprofit for ALS/MND. Closely comparable operating model — small team, volunteer-driven, member-funded advocacy, peer support, and research subsidization in a neuro-degenerative disease context.
• Diabetesvereniging Nederland: Dutch patient association for people with diabetes. Comparable in disease-specific Dutch advocacy, membership-based funding, and direct service delivery to a chronic-condition population.

Broad incumbents

• MS International Federation (MSIF): Global umbrella of MS organizations that MS Vereniging is a member of. Operates at international scale with overlapping mission of advocacy, knowledge sharing, and research collaboration.
• European Multiple Sclerosis Platform (EMSP): European umbrella of 40 MS societies across 35 countries. MS Vereniging is a member. Comparable advocacy, awareness, and research-coordination mission at pan-European level.
• National Multiple Sclerosis Society (US): Largest MS advocacy and research organization globally. Comparable model of research funding, member services, advocacy, and community programs, scaled to the US market.
• Patiëntenfederatie Nederland: Dutch federation of 200+ patient and consumer organizations. MS Vereniging is a member; provides broader platforms for non-disease-specific patient advocacy in the Netherlands.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/c/MSVerenigingNederland
• Facebookfacebook.com/MSVerenigingNL
• LinkedInlinkedin.com/company/ms-vereniging-nederland
• Instagraminstagram.com/msverenigingnl

Revenue estimate

Valuation estimate

Number of profiles

Profiles10 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about MS Vereniging