Regroupement Québécois Des Maladies Orphelines

What Regroupement Québécois Des Maladies Orphelines does

Regroupement Québécois Des Maladies Orphelines (RQMO) is a Montreal-based nonprofit organization founded in 2010 that supports individuals and families affected by rare diseases in Quebec. The organization operates with a small team of 1–10 employees and functions as a patient-advocacy and support body within the Quebec rare-disease community, providing resources and representation for a population typically underserved by mainstream healthcare systems.

The source material does not disclose any specific products, services, technology platforms, programs, or revenue model. The RQMO website (rqmo.org) was reported as a loading/verification page with no substantive content extractable, and there is no documentation of programs, advocacy campaigns, partnerships, funding sources, management, or operational scope beyond the organizational description and Montreal domicile.

As a nonprofit, RQMO's operating model is presumed to depend on grants, donations, and possibly government or healthcare-system funding typical of Quebec patient-advocacy groups, but no financial figures, funding history, or revenue mechanics are disclosed in the available data. The organization should be characterized as a small, localized advocacy nonprofit with limited public financial transparency and no documented technology or commercial product surface.

Name

Regroupement Québécois Des Maladies Orphelines

Legal name

Regroupement Québécois Des Maladies Orphelines

Website

https://www.rqmo.org

Company type

Private

Founded year

2010

Headcount range

1–10 employees

Short description

Regroupement Québécois Des Maladies Orphelines is a Montreal-based nonprofit, founded in 2010, that supports individuals and families affected by rare diseases in Quebec. It operates with a small team of 1–10 employees and no disclosed revenue or product offerings.

Ownership category

akta.pro rank

Headquarters

HQ city

Montréal

HQ country

Canada

HQ region

North America

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations

Core offering

Regroupement Québécois Des Maladies Orphelines (RQMO) is a nonprofit organization based in Montreal, Quebec that supports individuals and families affected by rare (orphan) diseases. It functions as an advocacy and support body for the rare disease community in Quebec.

Differentiator

Problem solved

Functional benefit

Products and services

• Rare Disease Patient and Family Support Advocacy and support services for individuals and families affected by rare (orphan) diseases in Quebec.

Ideal customer profiles1 record

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Direct peers

• Canadian Organization for Rare Disorders (CORD): CORD is Canada's national alliance for patients with rare disorders, providing an umbrella advocacy platform very similar to RQMO but operating at the pan-Canadian level. It is the closest peer in mission and structure, serving overlapping patient populations and engaging the same federal policy channels.
• Orphanet: Orphanet is the global reference portal for rare diseases and orphan drugs, providing curated disease information, expert directories, and patient resources. While more of an information infrastructure provider than an advocacy group, it directly overlaps with RQMO's information-and-referral mission for Quebec rare disease families.
• ALS Society of Canada: ALS Canada is a national disease-specific patient advocacy organization serving Canadian ALS patients and families—a rare, progressive disease. It shares RQMO's structural model (nonprofit, patient support, advocacy) but is condition-specific rather than umbrella across all rare diseases, making it a relevant operational peer.
• Muscular Dystrophy Canada: Muscular Dystrophy Canada is a national nonprofit supporting Canadians affected by neuromuscular disorders, a category of rare diseases. It is highly comparable to RQMO in terms of patient advocacy model, fundraising structure, and engagement with Canadian healthcare policy.
• Cystic Fibrosis Canada: Cystic Fibrosis Canada is one of Canada's longest-established rare disease advocacy organizations, funding research and supporting patients with CF. It represents the same nonprofit disease-advocacy archetype as RQMO and serves as a model for what scaled rare disease patient advocacy looks like in Canada.

Broad incumbents

• EURORDIS – Rare Diseases Europe: EURORDIS is a broad European-level alliance representing rare disease patient organizations across 70+ countries. While geographically separate from RQMO, it operates the same advocacy-and-umbrella model at much greater scale, making it a useful benchmark for what RQMO could become through federation and coalition-building.
• National Organization for Rare Disorders (NORD): NORD is the largest US rare disease advocacy organization, serving as the established broad incumbent in the same umbrella-organization niche RQMO occupies. It is comparable in mission (support and advocacy for rare disease patients) and serves as the de facto reference model for national rare disease federations globally.

Others

• Health Charities Coalition of Canada: Health Charities Coalition of Canada is an alliance of national health charities that coordinates advocacy, policy engagement, and best-practice sharing across its members. It is comparable to RQMO as an ecosystem enabler for the Canadian health charity sector, though operating at coalition rather than direct-service level.
• Best Medicines Coalition: Best Medicines Coalition is a Canadian alliance of patient organizations focused on access to optimal drug therapy, including for rare diseases. It is thematically aligned with RQMO's advocacy for orphan drug access and operates in the same federal policy arena (CADTH, PMPRB, pCPA negotiations).

Market position

Strengths5 records

Weaknesses5 records

Competitive moat1 record

Key risks6 records

Key highlights2 records

Customer concentration

• Facebookfacebook.com/RQMOrphelines
• LinkedInlinkedin.com/company/rqmo

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Regroupement Québécois Des Maladies Orphelines