SINDEFI-SEP

What SINDEFI-SEP does

SINDEFI-SEP (Association SINDEFI – SEP, SIREN 453 720 070) is a French non-profit association (loi 1901) founded in 2003 and headquartered in Créteil, Île-de-France. The organization is formally designated by the Agence Régionale de Santé d'Île-de-France as the regional neurology expertise and coordination structure, and it coordinates personalized care pathways for adults with multiple sclerosis, Parkinson's disease, neuromyelitis optica, and inflammatory peripheral neuropathies across departments 75, 77, 91, 93, and 94. Its multidisciplinary coordination team comprises coordinating nurses, clinical psychologists, a physiotherapist trained in therapeutic patient education (ETP), and a social worker, all backed by a board of senior neurologists from leading university hospitals (CHU Henri Mondor, Pitié Salpêtrière, Paris-Saclay, Rothschild).

The core technology and product surface combines human-mediated care coordination with digital resources: structured ETP workshop programs co-delivered with Patient Partners, a self-rehabilitation video and audio library, a certified professional portal ("Accès Pro") with clinical recommendations and therapeutic tools, on-demand micro-webinars ("Les Minutes de Neurologie") for healthcare professionals, and a university diploma on personalized MS care pathways delivered remotely with UPEC. Data assets include patient coordination databases held locally under GDPR compliance. SINDEFI is part of the Fédération NEURO-SEP IDF with Synapse-IDF, providing unified regional access via a single phone number.

The business model is non-commercial. Services are provided free of charge to patients, and operating revenue consists entirely of public funding from ARS Île-de-France. The go-to-market is community-led, with patients entering through neurologist/GP referrals or direct registration and reviewed weekly by the coordination team. There is no disclosed commercial revenue stream, and the model is constrained by annual public-health budgetary decisions rather than market-driven pricing.

Name

SINDEFI-SEP

Legal name

Association SINDEFI – SEP

Website

https://sindefi.org

Company type

Private

Founded year

2003

Operating status

Operating

Headcount range

1–10 employees

Short description

SINDEFI-SEP is a French non-profit association designated by ARS Île-de-France that coordinates neurological care pathways for MS, Parkinson's, NMO, and peripheral neuropathy patients across five Île-de-France departments, providing therapeutic education, multidisciplinary support, and professional training funded by the regional health agency.

Ownership category

akta.pro rank

Product category

Neurological Care Coordination Services

NAICS

Home Health Care Services (62161), Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Specialty Outpatient Facilities, Nec (8093), Services-Health Services (8000), Services-Social Services (8300)

akta.pro primary industry

Multiple Sclerosis & Neuroimmunology (HLAKAIAF)

akta.pro secondary industries

General Neurology (HLAKAIAA), Neurologic Rehabilitation Centers (Stroke/TBI/SCI/MS/Parkinson’s) (HLADAJAH), Neurorehabilitation Centers (HLAFAFAH), Neurologic Rehabilitation (Stroke, TBI, Parkinson’s, MS) (HSADAIAC)

Keywords

• Neurological care coordination
• Therapeutic patient education
• Multiple sclerosis care
• Parkinson's disease support
• Care pathway management

Headquarters

HQ city

Créteil

HQ country

France

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Public Health Funding: SINDEFI is a non-profit association (loi 1901) primarily funded by the Agence Régionale de Santé d'Ile-de-France. Services are provided free of charge to patients. The organization's legal responsibility and organization are supported by this public funding model.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

SINDEFI coordinates personalized neurological care pathways for patients with multiple sclerosis, Parkinson's disease, neuromyelitis optica, and inflammatory peripheral neuropathies across five departments of Île-de-France. Its multidisciplinary team delivers nursing consultations, psychological support, physiotherapy coordination, social work assistance, therapeutic patient education (ETP) workshops, self-rehabilitation resources, and professional training including a University Diploma.

Product overview

SINDEFI-SEP is a regional neurological care coordination network serving the Île-de-France region (departments 75, 77, 91, 93, 94) as a nonprofit association founded in 2003. Its core offering is care pathway coordination for patients with neurological diseases including multiple sclerosis (SEP), Parkinson's disease, neuromyelitis optica (NMO), and inflammatory peripheral neuropathies. The organization provides integrated services comprising patient care coordination, therapeutic patient education (ETP) workshops, self-rehabilitation guides and video programs, professional access tools, the 'Minutes de Neurologie' expert webinar service, and a university diploma program in partnership with UPEC. Services are primarily funded by the Regional Health Agency (ARS) and provided free of charge to patients.

Differentiator

Problem solved

Functional benefit

Products and services

• Coordination des parcours de santé neurologiques (Neurological care pathway coordination) Core care pathway coordination service for patients with multiple sclerosis, Parkinson's disease, NMO, and inflammatory peripheral neuropathies across Île-de-France departments 75, 77, 91, 93, and 94. Delivered by a multidisciplinary team including nurses, psychologists, physiotherapist, and social worker. Free of charge for registered patients.
• Éducation Thérapeutique du Patient (ETP) – Therapeutic Patient Education Structured educational workshops for patients with neurological diseases covering disease understanding, treatment management, fatigue, sleep, bladder disorders, self-esteem, stress management, and psychosocial skills. Co-delivered with trained Patient Partners and certified healthcare professionals. Available in-person or via video conference.
• Auto-rééducation et guides de réhabilitation (Self-rehabilitation resources) Self-rehabilitation resources including downloadable exercise guides, video programs, adapted yoga, and sports activity recommendations for neurological patients. Covers lower/upper limb strengthening, stretching, balance, trunk exercises, transfers, and wheelchair exercises.
• Les Minutes de Neurologie (Neurology Minutes) On-demand micro-webinar service providing healthcare professionals (DAC, CPTS, medico-social structures) with quick access to neurological expertise through 30-minute expert Q&A sessions during lunch hours.
• Diplôme Universitaire SEP (University Diploma: MS Care Pathway Design) University diploma program 'SEP: creation and organization of personalized health pathways' offered in partnership with Université Paris-Est Créteil (UPEC), covering comprehensive multiple sclerosis knowledge and care coordination skills for medical and paramedical professionals. 100% remote delivery.
• Accompagnement Neuropathies Périphériques Inflammatoires (Peripheral Neuropathies Support) Specialized support for patients with inflammatory peripheral neuropathies including home-based immunoglobulin perfusions, psychological support, social rights information, specialized orientation, and a dedicated ETP program developed with CHU Henri Mondor's neuromuscular reference center and AFNP.
• Accès Pro – Outils et Supports thérapeutiques (Professional Portal) Password-protected professional portal providing therapeutic tools, professional recommendations, and specialized resources for healthcare professionals managing neurological patients.

Quantifiable outcome

• Less than 10% of MS patients benefit from rehabilitation center stays annually
• +2 more outcomes

Named customers5 records

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Twelve partnerships are on record, tiered core and minor.

• Synapse-IDFcoreStrategic or Co-development PartnerSynapse-IDF (formerly SEP IDF Ouest) is the founding member of the NEURO-SEP IDF federation together with SINDEFI. Synapse-IDF covers departments 78, 92, and 95, while SINDEFI covers 75, 77, 91, 93, and 94, together providing comprehensive neurological care coordination across all of Île-de-France.
• CHU Henri Mondor (CRC-SEP)coreStrategic or Co-development PartnerCHU Henri Mondor's CRC-SEP (Centre de Ressources et de Compétences Sclérose en Plaques) is a key clinical partner. Pr Alain Creange serves as both President of SINDEFI and Neurologist at CHU Henri Mondor. The institutions collaborate on training programs and patient care.
• Université Paris-Est Créteil (UPEC)coreStrategic or Co-development PartnerPartnership with UPEC for the University Diploma 'SEP: creation and organization of personalized health pathway.' The teaching is integrated with CRC-SEP activities at CHU Henri Mondor, with SINDEFI involved in design and instruction.
• MIRCEM (Centre de Référence Ile-de-France)minorStrategic or Co-development PartnerMIRCEM (Centre de Référence Ile-de-France) is referenced as a specialized center for neuromyelitis optica (NMO), providing referral resources for NMO patients supported by SINDEFI.
• CHU Henri Mondor - Centre de Référence neuromusculairecoreStrategic or Co-development PartnerPartnership with the Neuromuscular Reference Center at CHU Henri Mondor for therapeutic patient education programs on inflammatory peripheral neuropathies. Jointly developed 7 workshops in 8 sessions for patients.
• AFNP (Association Française contre les Neuropathies Périphériques)minorGTM or Marketing PartnerAFNP is the French association for peripheral neuropathies, referenced as a useful resource for patients with inflammatory peripheral neuropathies supported by SINDEFI.
• France ParkinsonminorGTM or Marketing PartnerFrance Parkinson is a national patient association that organizes events including World Parkinson's Day. SINDEFI collaborates on events and provides referrals for Parkinson's patients.
• Hôpital Sainte Marie ParisminorStrategic or Co-development PartnerHôpital Sainte Marie Paris collaborated with SINDEFI to organize World MS Day 2026 event, providing venue and co-organizing conferences and workshops.
• Hôpital Paris Saint-JosephminorStrategic or Co-development PartnerHôpital Paris Saint-Joseph collaborated with SINDEFI on World MS Day 2026 event and provides ongoing support for patient care and professional training.
• Motiv'Park (CHU Pitié Salpêtrière)minorStrategic or Co-development PartnerMotiv'Park is a therapeutic education program from the Centre Expert Parkinson at CHU Pitié Salpêtrière. SINDEFI refers patients to this program and shares information about it on their website.
• AKTIPARK (CHU Henri Mondor)minorStrategic or Co-development PartnerAKTIPARK is a therapeutic education program from the Centre Expert Parkinson at CHU Henri Mondor. SINDEFI shares information about this program as an additional resource for Parkinson's patients.
• SFSEP (Société Française de la Sclérose en Plaques)minorGTM or Marketing PartnerSFSEP organizes the annual Patients Congress where SINDEFI participates and shares information. SINDEFI references SFSEP resources and self-rehabilitation guides.

Scale indicators4 records

Recent moves6 records

Expansion highlights4 records

Direct peers

• Synapse-IDF: Federation partner within NEURO-SEP IDF, covering the complementary Île-de-France departments (78, 92, 95) with the same regional care coordination model for MS, Parkinson's, and other neurological conditions under ARS IDF designation. The most direct functional peer given shared funding source, mandate, and operating model.
• AFNP (Association Française contre les Neuropathies Périphériques): National association supporting patients with peripheral neuropathies — the same patient segment SINDEFI serves in its inflammatory peripheral neuropathy program. AFNP is both a content/resource partner and a peer organization addressing overlapping patient populations through different delivery channels.
• Réseau SEP Auvergne-Rhône-Alpes: Regional ARS-funded MS care coordination network serving the Auvergne-Rhône-Alpes region. Operates the same model — care pathway coordination, patient education, and professional training for MS patients — under a different regional health authority, making it a structurally identical peer.
• Réseau SEP Nouvelle-Aquitaine: Regional ARS-funded MS care coordination network in Nouvelle-Aquitaine. Structurally identical peer operating under ARS NA funding with the same care coordination, ETP, and professional engagement mandate for MS patients.
• Réseau SEP PACA-Corse: Regional ARS-funded MS/neurology coordination network serving the Provence-Alpes-Côte d'Azur and Corsica regions. Same public-funded coordination model for MS and related neurological conditions, making it a directly comparable regional peer.
• Réseau SEP Bretagne: Regional ARS-funded MS care coordination network in Brittany. Operates the same regional coordination model under ARS Bretagne funding, serving the same patient profiles (MS, and often adjacent neurological conditions) with a comparable team-based, multidisciplinary approach.

Broad incumbents

• UNISEP (Notre Sclérose): National French MS patient association aggregating patient voices, advocating for MS policy, and providing patient-facing resources. Overlaps with SINDEFI on MS patient support and information but operates nationally through advocacy rather than regional care coordination.
• Fondation ARSEP: France's leading MS research and support foundation, providing national-level funding for MS research, patient information, and disease awareness. Adjacent rather than directly competitive — operates at a national scope rather than regional coordination, but addresses overlapping patient and professional audiences.
• France Parkinson: National French Parkinson's disease patient association organizing awareness events (including World Parkinson's Day) and supporting patients and families. SINDEFI is a regional care coordination complement; France Parkinson operates the national patient association layer above it.

Others

• CRC-SEP (Centres de Ressources et de Compétences Sclérose en Plaques): National network of MS expertise centers hosted within university hospitals (CHUs), providing specialized clinical consultations for MS. SINDEFI's clinical partners include CHU Henri Mondor, Pitié Salpêtrière, and Paris-Saclay CRCs — these centers handle clinical care while SINDEFI handles care coordination, making them complementary rather than directly competitive.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles5 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about SINDEFI-SEP