isong - international society of nurses in genetics

What isong - international society of nurses in genetics does

ISONG (International Society of Nurses in Genetics), founded in 1996, is a nonprofit professional society incorporated in Maryland and administered from Lansing, Michigan. It is the self-described global specialty membership organization for nurses in genomics and precision health, with a stated 2030 Plan to position itself as the global leader in genomics nursing. Its mission is to advance the nurse's role in precision health through excellence in genomics education, practice, and research, serving licensed professional nurses with specialty training in genetics as well as allied health professionals.

ISONG's core products include a members-only portal, an annual World Congress (the 2026 edition scheduled for Miami, Florida, November 5-7, 2026), a monthly newsletter, special interest groups (e.g., the Hereditary Cancer Genetics Case Conference SIG), webinars, and three grant programs covering research, clinical practice, and education projects. It co-publishes authoritative practice content with the American Nurses Association, including the Genetics/Genomics Nursing: Scope and Standards of Practice (3rd Edition), and operates a Genomics Education Resources Repository. Its technology stack is built on the Wild Apricot membership platform, which underpins membership management, event registration, and website operations.

ISONG's business model is a community-led, membership-based nonprofit with four recurring revenue streams: membership dues from nurses and allied health professionals, event and webinar registration fees, donations through the "Build the Helix" campaign, and industry partnerships/sponsorships (notably the 2026 World Congress). Pricing is not publicly disclosed. The organization has 1-10 employees, a Board of Directors governance structure, no parent company, no subsidiaries, and operates globally through regional chapters, committees, SIGs, and its annual Congress.

Name

isong - international society of nurses in genetics

Legal name

International Society of Nurses in Genetics, Inc.

Website

https://isong.org

Company type

Private

Founded year

1996

Operating status

Operating

Headcount range

1–10 employees

Short description

ISONG is a global nonprofit professional society founded in 1996 that serves nurses and allied health professionals in genetics and genomics through membership, education, an annual World Congress, grants, and co-published scope-and-standards documents with ANA.

Ownership category

akta.pro rank

Headquarters

HQ city

Okemos

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Others, Marketing or Sales, Technology or R&D

Revenue model

1. Membership Dues: Annual membership fees from nurses and allied health professionals in genomics. Members receive access to resources, grants, networking, credentialing, and professional development.
2. Event Registrations: Registration fees for World Congress annual meetings and webinars. The 2026 World Congress will be held in Miami, Florida (November 5-7, 2026).
3. Donations and Sponsorships: The Build the Helix campaign accepts donations from members, universities, corporate sponsors, and others to fund competitive member grants and ISONG initiatives.
4. Industry Partnerships and Sponsorships: Corporate sponsorship opportunities for the 2026 ISONG World Congress in Miami, Florida.

Go-to-market motion1 record

Distribution channels2 records

Marketing channels8 records

Core offering

ISONG is a global nursing specialty organization that advances the nurse's role in precision health through genomics education, practice, and research. It delivers this through an annual membership offering that bundles access to the World Congress, grant programs, a monthly newsletter, webinars, special interest groups, the Genomics Education Resources Repository, and the Scope and Standards of Practice publication co-developed with ANA.

Product overview

ISONG operates as a professional membership organization offering a web-based membership portal for its global community of genetics and genomics nurses. The portfolio includes annual World Congress conferences, competitive grant programs for research, clinical practice, and education projects, a monthly newsletter, a genomics education resources repository, professional standards publications developed with ANA, special interest groups for peer learning, and webinar educational offerings. These offerings are delivered through their Wild Apricot-powered website and membership platform, supporting the society's mission to advance genomics education, practice, and research for nurses worldwide.

Differentiator

Problem solved

Functional benefit

Products and services

• ISONG Membership Annual membership for nurses and allied health professionals in genomics and precision health, providing access to resources, grants, networking, credentialing, the member directory, and professional development benefits.
• ISONG World Congress Annual international congress for genomics and precision health nursing professionals, featuring presentations, networking, and industry partnerships. The 2026 World Congress is scheduled for Miami, Florida (November 5-7, 2026).
• Research Grant Program Competitive grants awarded to ISONG members to support original research in genomics nursing, covering project costs and dissemination.
• Clinical Practice Grant Program Grant awards for clinical practice innovation in genomics nursing, including partnership awards such as the Duquesne University/ISONG Clinical Practice Award.
• Education Project Awards Grants supporting educational innovations in genomics nursing curriculum and teaching strategies.
• ISONG Newsletter Monthly newsletter featuring member spotlights, clinical practice updates, and research findings in genomics nursing.
• Genomics Education Resources Repository Repository of education resources, curriculum materials, and teaching strategies for genetics and genomics content across nursing programs.
• Genetics/Genomics Nursing: Scope and Standards of Practice (3rd Edition) Comprehensive scope and standards document developed jointly by ISONG and ANA, providing 16 standards for evaluating genetics/genomics nursing practice outcomes.
• Special Interest Groups Topic-focused member communities such as the Hereditary Cancer Genetics Case Conference SIG that enable peer learning and expertise sharing across the genomics nursing community.
• Webinars On-demand and live webinars covering genomics topics including the Pharmacogenomics in Clinical Practice Webinar Series.

Segments2 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Two partnerships are on record, tiered minor and core.

• University of Miami School of Nursing and Health StudiesminorStrategic or Co-development PartnerUniversity of Miami School of Nursing and Health Studies is listed as a sponsor/supporter of ISONG. The partnership supports ISONG's mission to advance genomics nursing education, practice, and research globally.
• Wild ApricotcoreTechnology or IntegrationWild Apricot provides the membership and website platform for ISONG. It acts as a data processor under its own Data Processing Agreement. This is ISONG's core technology infrastructure for membership management, event registration, and website operations.

Scale indicators2 records

Recent moves5 records

Expansion highlights5 records

Broad incumbents

• American Nurses Association (ANA): The largest U.S. professional nursing association. ANA is a direct comparator because ISONG co-publishes its Scope and Standards of Practice with ANA, and both serve as credentialing and standards bodies for the nursing profession, though ANA's scope is far broader than ISONG's genetics specialty.
• American Association of Colleges of Nursing (AACN): National voice for U.S. nursing schools and academic nursing. AACN is comparable as the institutional counterpart to ISONG's education programs — both shape nursing curricula and standards, with AACN setting the academic framework into which ISONG's genomics education resources integrate.
• American Society of Human Genetics (ASHG): Primary professional society for human genetics researchers and clinicians. ASHG is comparable as the broader genetics professional home that ISONG members also participate in; ASHG operates an annual meeting, advocacy, and education portfolio that overlaps with ISONG's genomics education mission.
• American Academy of Nursing (AAN): Invited-only nursing leadership organization. AAN is comparable as a high-prestige nursing professional society that publishes position statements, runs policy advocacy, and convenes leaders — a broader-scale version of the credentialing and advocacy functions ISONG serves for genetics nurses.

Direct peers

• National League for Nursing (NLN): U.S. nursing education association. NLN is comparable to ISONG because both invest heavily in nursing education content, faculty resources, and curriculum standards — ISONG's Genomics Education Resources Repository mirrors NLN's faculty development mission in the genetics sub-specialty.
• National Society of Genetic Counselors (NSGC): Professional society for genetic counselors. NSGC is directly comparable to ISONG because both serve as the principal professional home for a genetics-focused clinical specialty, operate annual conferences, publish practice resources, and advocate for workforce integration of genomics into mainstream care.
• Oncology Nursing Society (ONS): Specialty nursing society for oncology nurses, a major consumer of genetic/genomic knowledge. ONS is highly comparable because it operates with the same membership-society model — dues, annual congress, grants, CE, and practice standards — and increasingly incorporates genomics into its content.
• Sigma (formerly Sigma Theta Tau International): Global nursing honor society and professional organization. Sigma is comparable because it is a membership-driven nursing organization running events, grants, publications, and credentialing — the same operating model ISONG uses at a smaller, specialty-focused scale.
• International Society of Nurses in Cancer Care (ISNCC): International nursing society dedicated to oncology. ISNCC is comparable because it operates a very similar model to ISONG — global specialty nursing society, annual conference, member grants, and education resources — and both sit at the intersection of nursing practice and a genetics-adjacent clinical specialty.

Regional players

• International Genetic Federation (IGF): International umbrella body focused on genetics policy and awareness. IGF is comparable as a global, non-U.S.-centric organization in the genetics professional ecosystem, and represents the kind of international policy platform ISONG aspires to engage with through its 2030 Plan.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/ISONG_news
• Facebookfacebook.com/ISONGnews
• LinkedInlinkedin.com/company/isong-international-society-of-nurses-in-genetics
• Instagraminstagram.com/geneticsnurse

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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