Cure HHT Canada
Cure HHT Canada is a Vancouver-based registered Canadian charity that delivers education, advocacy, genetic-testing navigation, and research funding for individuals and families affected by hereditary hemorrhagic telangiectasia, partnering with five HHT Centers of Excellence across Canada.
- Company typePrivate
- Founded2026
- HeadquartersVancouver, Canada
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Cure HHT Canada does
Cure HHT Canada is a registered Canadian charity (CRA Business No. 720915149 RC0001) headquartered in Vancouver, BC, that provides education, support, advocacy, and research funding for individuals and families affected by hereditary hemorrhagic telangiectasia (HHT), a rare genetic vascular disorder affecting approximately 1 in 5,000 people worldwide. The organization was launched in 2026 as a standalone national entity built in collaboration with the international Cure HHT organization, formalizing relationships with five HHT Centers of Excellence (Edmonton, Vancouver, Winnipeg, Toronto, Montreal) and two certified genetic testing laboratories (Impact Genetics and the Hospital for Sick Children's Molecular Genetics Laboratory). Its primary audiences are undiagnosed or diagnosed HHT patients and their families, alongside Canadian clinicians seeking specialized training, with the latter addressed through clinician scholarships and curated webinar content featuring experts including Dr. Marie Faughnan and Dr. Krings.
The organization's product surface is digital and educational rather than commercial. Core offerings include the Epistaxis Severity Score (ESS) online tool (a six-question 0-10 scoring instrument hosted at hhtess.com that helps clinicians monitor HHT nosebleed severity), the HHT Outcomes Registry (a patient-consented data repository feeding into the $131,000 Dartmouth Geisel School of Medicine-backed North American HHT Database), downloadable HHT brochures, and a recurring webinar and virtual-conference program (e.g., 2021/2023 Virtual Patient Conferences, Eastern Canada HHT Patient Conference, 2026 Brain AVMs webinar series). Distribution is purely self-serve via curehhtcanada.com (English/French), supplemented by YouTube, Facebook, LinkedIn, and email/newsletter channels — no commercial channels, no APIs, and no native mobile app.
Revenue mechanics are entirely philanthropic. Cure HHT Canada accepts donations through the Classy.org platform and e-Transfers to [email protected]; funds are directed toward Canadian HHT education, awareness, research, conference support, and clinician scholarships, plus global research collaborations through Cure HHT. No pricing models, commercial contracts, or enterprise revenue exist, and the organization is structurally exempt from revenue concentration but correspondingly dependent on donor sentiment, charitable giving cycles, and grant availability. Leadership is a volunteer board (President Jane Wace; Vice President Donald Hutchinson; Secretary Izabela Veljkovic; Member-at-Large Kris Li; Medical Advisory Board Dr. Marie E. Faughnan) supported by Cure HHT shared services.
Cure HHT Canada firmographics
Firmographics- Name
- Cure HHT Canada
- Legal name
- Cure HHT Canada
- Website
- https://curehhtcanada.com
- Company type
- Private
- Founded year
- 2026
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Cure HHT Canada is a Vancouver-based registered Canadian charity that delivers education, advocacy, genetic-testing navigation, and research funding for individuals and families affected by hereditary hemorrhagic telangiectasia, partnering with five HHT Centers of Excellence across Canada.
- Ownership category
- akta.pro rank
Cure HHT Canada industry classification
Industry- Product category
- Patient Advocacy and Rare Disease Support
- NAICS
- Voluntary Health Organizations (813212), Other Individual and Family Services (624190)
- SIC
- Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
Keywords
Where Cure HHT Canada is headquartered
LocationHeadquarters
- HQ city
- Vancouver
- HQ country
- Canada
- HQ region
- North America
Offices1 record
Markets served
Cure HHT Canada business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Charitable Donations: Cure HHT Canada operates as a registered Canadian charity (CRA Registered Charity Business No. 720915149 RC0001). The organization raises funds through donations via their website (Classy.org platform) and e-Transfers to [email protected]. Donations support HHT research, education, awareness, and care improvement in Canada.
- Donor-Specified Contributions: Canadian donations are directed to fund local education, awareness, research, and global HHT research initiatives. The organization also sponsors young Canadian scholars, supports Canadian conferences and education sessions, and funds HHT Centers of Excellence certification expansion.
Go-to-market motion2 records
Distribution channels3 records
Marketing channels8 records
Cure HHT Canada product offering
Product offeringCore offering
Cure HHT Canada is a registered Canadian charity that supports individuals and families affected by hereditary hemorrhagic telangiectasia (HHT) through patient education, awareness campaigns, webinars and conferences, downloadable resources (including the HHT Brochure and the Epistaxis Severity Score tool), and funding for HHT research such as the HHT Outcomes Registry. It connects patients with five Canadian HHT Centers of Excellence and works in collaboration with Cure HHT.
Product overview
Cure HHT Canada is a charity organization that serves as a hub for HHT awareness and education across Canada. The organization offers several digital and educational products including the Epistaxis Severity Score (ESS) online tool for evaluating nosebleed severity, the HHT Outcomes Registry for patient data collection and research, downloadable educational brochures, and webinar/conference programs. These products work together to support HHT diagnosis, treatment monitoring, patient education, and research advancement for the Canadian HHT community.
Differentiator
Problem solved
Functional benefit
Products and services
- Epistaxis Severity Score (ESS) Tool An online tool that evaluates the current severity of HHT patient nosebleeds by computing a 0-10 score from six simple questions, helping healthcare providers assess patient response to treatment. Targeted at HHT patients and their clinicians.
- HHT Outcomes Registry A research registry that gathers detailed clinical, radiographic, genetic, and treatment information on consenting HHT patients across North America to advance research and enable connection with therapeutic trials. Aimed at HHT patients and the research community.
- HHT Brochure A printable downloadable PDF brochure that provides critical information about HHT, including resources for testing and treatment. Targeted at newly diagnosed patients, families, and the broader HHT community.
- HHT Webinar Series An ongoing educational webinar series covering HHT topics including brain AVMs imaging and management, GI bleeding, nosebleeds, pediatric care, pregnancy, and emerging therapies, presented by HHT medical experts. Aimed at patients, families, and clinicians.
- Virtual Patient Conference A multi-speaker virtual conference in which HHT medical professionals and scientists deliver educational lectures to HHT patients and families. Held in 2021 and 2023, with in-person Eastern Canada HHT Patient Conferences also organized in Toronto.
Quantifiable outcome
- HHT affects 1 in 5000 people; estimated 80% remain undiagnosed - organization's work focuses on improving diagnosis rates through awareness
- +2 more outcomes
Companies that use Cure HHT Canada
Customer profileNamed customers1 record
Segments2 records
Ideal customer profiles2 records
Cure HHT Canada technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature1 record
Cure HHT Canada partnerships and signals
Strategic signalPartnerships
Nine partnerships are on record, tiered core and major.
- Cure HHT (Parent Organization)coreCure HHT Canada was launched in partnership with Cure HHT, the leading international HHT advocacy organization with over 30 years of experience. Cure HHT worked closely with Cure HHT Canada's board over the past year to support the organization's growth and readiness. Cure HHT Canada now serves as the national voice for the Canadian HHT community while collaborating on the shared mission of improving lives and accelerating progress for everyone affected by HHT.
- Edmonton HHT Centre (University of Alberta)coreOne of five HHT Centers of Excellence across Canada. Located at University of Alberta, 105C Clinical Sciences Building, 11350-83 Ave, Edmonton, AB T6G 2B7. Directors: Dr. Dilini Vethanayagam, Dr. Richard Owen.
- Vancouver HHT Centre (St. Paul's Hospital)coreOne of five HHT Centers of Excellence across Canada. Led by Dr. Amin Javer (Sinus Centre) and Dr. Scott Apperley (Respirologist). Located at St. Paul's Hospital, 1081 Burrard Street, Vancouver, BC V6Z 1Y6.
- Winnipeg HHT Centre (Grace Hospital)coreOne of five HHT Centers of Excellence across Canada. Located at Grace Hospital AMC, 300 Booth Drive, Winnipeg, MB R3J 3M7. Director: Dr. Els Maria De Gussem.
- Toronto HHT Centre (St. Michael's Hospital)coreOne of five HHT Centers of Excellence across Canada and the only HHT clinic in Canada at one time. Located at 30 Bond St., Room 6049, Toronto, ON M5B 1W8. Director: Dr. Marie Faughnan. This is a key center for genetic testing, screening, and treatment of HHT patients across Canada.
- Montreal HHT Centre (CHUM)coreOne of five HHT Centers of Excellence across Canada. Located at CHUM, 264 René-Lévesque East, 2nd floor, Montreal, QC H2X 1P1. Director: Dr. Andreanne Gauthier.
- BioInformatics Service Center at Dartmouth's Geisel School of MedicinemajorAwarded a $131,000 grant for the development of a North American HHT Database. The database gathers de-identified clinical, radiographic, genetic, and treatment information on HHT patients evaluated at HHT Centers of Excellence. This registry supports pharmaceutical investment in HHT drug development.
- Impact Genetics Inc.coreCertified genetic testing center for HHT serving all of Canada (excluding Ontario). Located at 115 Midair Court, Brampton, Ontario L6T 5V1. Provides genetic testing for HHT diagnosis and family screening.
- The Hospital for Sick Children - Molecular Genetics LaboratorycoreCertified genetic testing center for HHT serving Ontario. Located at 555 University Ave., Roy C. Hill Wing Rm. 3-421, Toronto, ON M5G 1X8. Provides genetic testing for HHT diagnosis in Ontario.
Scale indicators7 records
Recent moves6 records
Expansion highlights7 records
Cure HHT Canada competitors and assessment
Company assessmentMarket position
Strengths5 records
Weaknesses4 records
Competitive moat5 records
Key risks7 records
Key highlights7 records
Customer concentration
Cure HHT Canada social profiles
Digital presenceCure HHT Canada compliance and trust
Trust signalCompliance1 record
Cure HHT Canada financial estimates
Financial estimateRevenue estimate
Valuation estimate
Cure HHT Canada leadership team
Management profileNumber of profiles
Profiles5 records
Cure HHT Canada funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Cure HHT Canada M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Cure HHT Canada
What does Cure HHT Canada do?
Cure HHT Canada is a registered Canadian charity that supports individuals and families affected by hereditary hemorrhagic telangiectasia (HHT) through patient education, awareness campaigns, webinars and conferences, downloadable resources (including the HHT Brochure and the Epistaxis Severity Score tool), and funding for HHT research such as the HHT Outcomes Registry. It connects patients with five Canadian HHT Centers of Excellence and works in collaboration with Cure HHT.
Is Cure HHT Canada a public or private company?
Cure HHT Canada is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Cure HHT Canada founded?
Cure HHT Canada was founded in 2026. It employs 1 to 10 people.
Where is Cure HHT Canada based?
Cure HHT Canada is headquartered in Vancouver, Canada, in the North America region.
How does Cure HHT Canada make money?
Two revenue lines are on record. Charitable Donations are the primary driver. The others are donor-Specified Contributions.
Does Cure HHT Canada have an API?
No public API is recorded for Cure HHT Canada.
What industry is Cure HHT Canada in?
Cure HHT Canada's product category is Patient Advocacy and Rare Disease Support. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 813212 and its SIC code is 8300.