Rocky Mountain Down Syndrome Association

Name

Rocky Mountain Down Syndrome Association

Legal name

Rocky Mountain Down Syndrome Association

Website

https://rmdsa.org

Company type

Private

Founded year

1981

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Disability support services nonprofit

NAICS

Other Individual and Family Services (624190), Voluntary Health Organizations (813212), Services for the Elderly and Persons with Disabilities (624120)

SIC

Services-Social Services (8300), Services-Educational Services (8200), Services-Health Services (8000)

akta.pro primary industry

Rare Disease & Special Needs Support Organizations (BPAGACAM)

akta.pro secondary industries

Family Advocacy, Parent Training & Support Services (EDAJAKAK), Service Coordination / Case Management (IDEA Part C) (EDACAFAK), Interagency Coordination & Case Management (VR, DD, Medicaid Waivers) (EDAKANAM), Down Syndrome & Intellectual/Developmental Disabilities (IDD) Childcare (HSAAAIAC)

Keywords

• Disability support services
• Nonprofit family support
• Adult education programs
• Special education advocacy
• Community support groups

Headquarters

HQ city

Aurora

HQ country

United States

HQ region

North America

Offices5 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Others

Revenue model

1. Individual Donations and Fundraising: Primary revenue stream includes individual donations, monthly giving program (The Extra Mile Club), and general fundraising. Donors contribute through the website, events, and vehicle donations.
2. Program Fees - Higher Visions for Education: Adult education program Higher Visions charges $250/quarter for in-person classes at University of Denver, Colorado College, and Colorado State University campuses. Virtual campus classes cost $200/quarter. Partial scholarships available.
3. Special Events: Revenue from signature events including Step Up for Down Syndrome Walks (three locations annually), Tee Up for Down Syndrome Golf Tournament, and other community events. Corporate sponsorships support these events.

Pricing tiers

Go-to-market motion2 records

Distribution channels4 records

Marketing channels10 records

Core offering

RMDSA is a 501(c)(3) nonprofit that delivers lifelong support for individuals with Down syndrome and their families across Colorado, organized around nine life stages from prenatal diagnosis through older adulthood. Its core services include the First Call new-parent mentor matching program, Family Support Services, the Higher Visions for Education adult continuing-education program (in-person at three Colorado university campuses and a Virtual Campus), free IEP consultations, K-12 educator support, medical-outreach training, hospital-based family support, a statewide network of 24+ community groups including the bilingual Chromosoma group, and signature fundraising events such as the Step Up for Down Syndrome Walks and the Tee Up for Down Syndrome Golf Tournament.\n\nMost direct family services are provided free of charge; revenue comes from individual donations, corporate sponsorships, event registration, and quarterly tuition for Higher Visions for Education ($250/quarter in-person, $200/quarter virtual, with partial scholarships available).

Product overview

Rocky Mountain Down Syndrome Association (RMDSA) is a nonprofit organization (founded 1981) offering a comprehensive suite of support services and programs for individuals with Down syndrome and their families across Colorado. The organization does not offer a technology product; instead, it provides direct service programs including the First Call Program for new parents, Family Support Services, Higher Visions for Education (adult education at multiple university campuses), IEP Consultations, K-12 Educator Support, Medical Outreach training, Hospital Support, Community Groups Network (24+ groups statewide), Spanish-language support (Chromosoma), Workshops & Webinars, Sexuality Trainings, annual events (Step Up for Down Syndrome Walk and Tee Up for Golf Tournament), and a Resource Hub connecting families to external services. Programs serve individuals from prenatal diagnosis through older adulthood across the Rocky Mountain region.

Differentiator

Problem solved

Functional benefit

Brands

• Higher Visions for Education: Continuing education program for adults with Down syndrome designed to enrich independent living and social skills, offered at University of Denver, Colorado State University, Colorado College, and virtually
• Step Up for Down Syndrome Walk
• First Call Program
• Chromosoma
• The Extra Mile Club
• Young Professionals Board (YPB)

Products and services

• First Call Program Compassionate connection program that matches new and expecting parents with trained volunteer parents who have a child with Down syndrome, providing emotional support, personal insight, and information about community resources immediately after diagnosis.
• Family Support Services Comprehensive family support offering parent-to-parent connections, early intervention guidance, educational workshops, community events, and lifelong networking for families affected by Down syndrome across all nine life stages.
• Higher Visions for Education (HVE) Continuing-education program for adults (18+) with Down syndrome designed to enrich independent living and social skills through interactive techniques covering safety, health, decision-making, self-advocacy, and community involvement; offered at University of Denver, Colorado College, Colorado State University, and a Virtual Campus.
• IEP Consultations Free IEP support and advocacy service delivered by experienced special-education consultants who guide families through the IEP process, help identify meaningful goals, and attend meetings to ensure children's educational needs are met.
• Educator Support Services Consultations, customized trainings, and assistance organizing guest speakers for school or district-wide professional development to equip teachers with tools and knowledge for creating inclusive classrooms for students with Down syndrome.
• Medical Outreach Program Training and resources for medical professionals on delivering Down syndrome diagnoses and supporting patients with Down syndrome throughout their healthcare journey.
• New Parent Packet Free information packet provided to new parents containing literature about Down syndrome and resources to support families from prenatal diagnosis through early childhood.
• Western Slope Programs Regional support programs and community groups serving families on Colorado's Western Slope, including the Step Up Walk in Grand Junction, holiday parties, baby showers, and ongoing community gatherings.
• Community Groups Network Network of 24+ community groups across Colorado including location-based groups (Aurora Families, Boulder/Longmont, Brighton/Thornton Little Steppers, Grand Junction, etc.), demographic groups (D.A.D.S., grandparents, teens, self-advocates), and the bilingual Chromosoma support group for Spanish-speaking families.
• Workshops & Webinars Customized training sessions for employers, schools, medical offices, and government departments on supporting individuals with Down syndrome and promoting inclusive practices.
• Sexuality Trainings Specialized trainings on puberty preparation, healthy relationships, and personal boundaries for individuals with Down syndrome and their families, delivered by two certified Sexuality and Disability Educators.
• Hospital Support Support services for families during hospitalization including hospital visits, peer support, resources, and meal support during extended hospital stays.
• Prenatal Support Services Support and resources for expectant parents receiving a prenatal Down syndrome diagnosis, including compassionate guidance, accurate information, and connections to parent volunteers.
• Resource Hub Comprehensive online directory linking families to resources including Down syndrome associations, government programs, education services, employment resources, medical providers, legal services, recreation programs, and independent living support.
• Older Adult Support Resources and guidance for families navigating aging-related challenges for individuals with Down syndrome, including healthcare, independent living options, social engagement, and long-term planning.
• Step Up for Down Syndrome Walks Annual community walk events held in Pueblo, Grand Junction, and Denver that bring together families, friends, educators, and supporters to celebrate individuals with Down syndrome and raise funds for RMDSA's statewide programs.
• Tee Up for Down Syndrome Golf Tournament Annual golf tournament held at Arrowhead Golf Club in Littleton, Colorado to raise funds for RMDSA programs and resources supporting individuals with Down syndrome and their families.

Quantifiable outcome

• 9,518 people reached annually
• +4 more outcomes

Named customers4 records

Segments6 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered core and minor.

• ChromosomacoreOthersRMDSA's bilingual family support group created by and for Spanish-speaking families raising children with Down syndrome. Chromosoma provides a welcoming space to share experiences, find encouragement, and build lasting friendships while accessing valuable resources in Spanish. This partnership strengthens RMDSA's outreach to Hispanic/Latino communities across Colorado.
• Case Management Agencies (Colorado)coreOthersPartnership with Colorado's Case Management Agencies including Developmental Pathways (Arapahoe/Douglas/Elbert), Rocky Mountain Human Services (Denver/Adams), The Resource Exchange (El Paso/Park/Pueblo/Teller), and 12+ other agencies across the state to help families navigate services and support systems for individuals with Down syndrome.
• Global Down Syndrome FoundationcoreStrategic or Co-development PartnerCollaboration with Global Down Syndrome Foundation on prenatal testing resources and medical care guidelines. RMDSA is a Benefactor of the Global Medical Care Guidelines for Adults with Down Syndrome, providing authoritative medical guidance to families and healthcare providers.
• Global Adult Down Syndrome GuidelinescoreStrategic or Co-development PartnerRMDSA is a Benefactor of the Global Medical Care Guidelines for Adults with Down Syndrome, an authoritative resource for healthcare providers treating adults with Down syndrome.
• National Down Syndrome OrganizationsminorStrategic or Co-development PartnerPartnership with national organizations including National Down Syndrome Society (NDSS), National Down Syndrome Congress, National Association for Down Syndrome, National Down Syndrome Adoption Network, and Linda Crnic Institute for Down Syndrome for resource sharing and advocacy coordination.
• Colorado Healthcare and Education PartnerscoreOthersRelationships with Anna & John J. Sie Center for Down Syndrome (Children's Colorado), GraySpeak Therapy (speech therapy), Pat Winders PT (physical therapy), and medical providers across Colorado for referrals and coordinated care.
• University Campuses (DU, CC, CSU)coreStrategic or Co-development PartnerPartnerships with University of Denver, Colorado College, and Colorado State University to host Higher Visions for Education adult education classes, providing campus facilities and academic environment for adult learners with Down syndrome.
• Walmart Spark GoodminorGTM or Marketing PartnerWalmart's charitable giving program allowing shoppers to round up purchases to benefit RMDSA. Provides ongoing micro-donation revenue stream through customer participation.

Scale indicators10 records

Recent moves8 records

Expansion highlights5 records

Direct peers

• GiGi's Playhouse: National network of Down Syndrome Achievement Centers offering free educational, therapeutic, and career-development programs for individuals with Down syndrome and their families. Directly comparable to RMDSA in mission, life-stage program design, and community-group model, but operating at national scale.
• Global Down Syndrome Foundation: Research, medical, and advocacy organization focused on Down syndrome, including the Linda Crnic Institute and the Sie Center. Directly comparable to RMDSA on Down syndrome medical-care guidelines and family support resources, but with a stronger research and clinical-care focus.
• Parent to Parent USA: National network of state-based Parent to Parent programs providing peer support, information, and referrals for families of children with disabilities. Comparable to RMDSA's parent-mentor and family-support model, though focused on all disabilities rather than Down syndrome only.

Broad incumbents

• Easterseals: National nonprofit providing disability services including early intervention, inclusive education support, therapy, and family support across a network of affiliates. Overlaps with RMDSA on early intervention, K-12 support, and family services, but serves all disabilities rather than Down syndrome specifically.
• Best Buddies International: Nonprofit creating one-to-one friendships, integrated employment, and leadership development for people with intellectual and developmental disabilities, including Down syndrome. Comparable on adult-life-stage programming (employment, self-advocacy) overlapping with RMDSA's Higher Visions curriculum.
• The Arc: National organization on intellectual and developmental disabilities with state and local chapters providing advocacy, family support, case management, and inclusive education resources. Comparable to RMDSA on IEP advocacy and family-support services, though focused on IDD broadly rather than Down syndrome specifically.
• National Down Syndrome Society (NDSS): National advocacy and direct-service organization serving the Down syndrome community across the U.S. Comparable to RMDSA's mission and programming breadth, but operates at national scope with policy and federal-advocacy capabilities that a regional affiliate cannot match.
• National Down Syndrome Congress (NDSC): National membership organization providing programming, resources, and an annual convention for the Down syndrome community. Comparable mission and family-support resources, but broader geographic remit and a more event-driven delivery model than RMDSA.

Regional players

• Special Olympics Colorado: Colorado affiliate of Special Olympics providing year-round sports training and competition for individuals with intellectual disabilities, including many with Down syndrome. Comparable as a regional Colorado-based disability-services nonprofit with strong community-group and event infrastructure.

Emerging players

• Down Syndrome Diagnosis Network (DSDN): National organization supporting parents receiving a prenatal or postnatal Down syndrome diagnosis through online communities and peer-connection programs. Comparable to RMDSA's First Call and prenatal support programs, but operates purely digitally rather than in-person.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xfacebook.com/rmdsa21
• YouTubeyoutube.com/channel/rmdsa
• Facebookfacebook.com/rmdsa21
• LinkedInlinkedin.com/company/rocky-mountain-down-syndrome-association
• Instagraminstagram.com/rmdsa

Revenue estimate

Valuation estimate

Number of profiles

Profiles6 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Rocky Mountain Down Syndrome Association