Svenska Parkinsonforbundet
Svenska Parkinsonforbundet is a Stockholm-based, membership-funded non-profit patient organization supporting approximately 9,000 members with Parkinson's disease, atypical parkinsonism, and their families across Sweden via 24 county and 39 local associations. Its core services include the Parkinsonlinjen support hotline, the quarterly Parkinsonjournalen magazine, an online shop, and locally organized exercise and support groups.
- Company typePrivate
- Founded1986
- HeadquartersStockholm, Sweden
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Svenska Parkinsonforbundet does
Svenska Parkinsonförbundet (Swedish Parkinson's Association) is a Sweden-based, membership-funded non-profit patient organization (ideell organisation) dedicated exclusively to improving conditions for people with Parkinson's disease, atypical parkinsonism, and their relatives. Headquartered at Drottninggatan 33 in Stockholm and registered as Organisationsnummer 857205-3380, the organization operates a federated network of 24 county associations (länsföreningar) and 39 local associations (lokalföreningar) covering all of Sweden, serving approximately 9,000 members out of an estimated 22,000 diagnosed Parkinson's patients nationwide.
Its core offerings are member services rather than technology products. These include Parkinsonlinjen, a volunteer-staffed support hotline (08-666 20 77); Parkinsonjournalen, a quarterly member magazine; Butiken, an online shop selling books, brochures, and assistive aids; the Yngre Parkinson network for working-age members; and locally organized exercise programs (including Parkinson's-adapted boxing in partnership with multiple boxing clubs), support groups, and educational events. The organization's digital footprint is limited to a content website (parkinsonforbundet.se) and social media channels; it has no proprietary software, AI/ML systems, or technology product.
Revenue is generated through recurring membership fees, charitable donations and memorial gifts (minnesgåvor) accepted via Swish, Bankgiro, and Persongiro, and modest retail income from Butiken. Specific membership-fee pricing is not publicly disclosed. The organization is governed by an elected board with Eva-Lena Jansson as Förbundsordförande (Chair) since 2021 and Jenny Lundström as Generalsekreterare, and it actively participates in Swedish healthcare-policy processes, including Läkemedelsverket's Patient and Consumer Council, Swemodis clinical guidelines, and parliamentary seminars on brain health.
Svenska Parkinsonforbundet firmographics
Firmographics- Name
- Svenska Parkinsonforbundet
- Legal name
- Svenska Parkinsonforbundet
- Website
- https://parkinsonforbundet.se
- Company type
- Private
- Founded year
- 1986
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Svenska Parkinsonforbundet is a Stockholm-based, membership-funded non-profit patient organization supporting approximately 9,000 members with Parkinson's disease, atypical parkinsonism, and their families across Sweden via 24 county and 39 local associations. Its core services include the Parkinsonlinjen support hotline, the quarterly Parkinsonjournalen magazine, an online shop, and locally organized exercise and support groups.
- Ownership category
- akta.pro rank
Svenska Parkinsonforbundet industry classification
Industry- Product category
- Patient Advocacy and Non-Profit Healthcare Support
- NAICS
- Social Advocacy Organizations (8133), Voluntary Health Organizations (813212)
- SIC
- Services-Membership Organizations (8600), Services-Social Services (8300)
- akta.pro primary industry
- Rare Disease & Special Needs Support Organizations (BPAGACAM)
Keywords
Where Svenska Parkinsonforbundet is headquartered
LocationHeadquarters
- HQ city
- Stockholm
- HQ country
- Sweden
- HQ region
- Europe
Offices1 record
Markets served
Svenska Parkinsonforbundet business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Membership Fees: The organization is funded primarily through membership fees from approximately 9,000 members. Members receive the quarterly Parkinsonjournalen magazine, access to support services, and participation in local activities.
- Donations and Gifts: The organization accepts charitable donations and memorial gifts (minnesgåvor) through its website, with accounts available via Swish, Bankgiro, and Persongiro.
- Shop Sales: The organization operates 'Butiken' (the Shop) selling books, brochures, and aids/presents for people with Parkinson's disease.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Other | Multi-year contract | Boxing training - Nyköping |
| Other | Multi-year contract | Boxing training - Eskilstuna |
Go-to-market motion1 record
Distribution channels3 records
Marketing channels8 records
Svenska Parkinsonforbundet product offering
Product offeringCore offering
Svenska Parkinsonforbundet is a Swedish non-profit patient organization providing support, information, and advocacy for people with Parkinson's disease, atypical parkinsonism, and their relatives. Its offerings include a member support hotline (Parkinsonlinjen), a quarterly magazine (Parkinsonjournalen), an online shop selling books and assistive products, a network for younger members (Yngre Parkinson), and coordination of a nationwide network of 24 county and 39 local associations delivering meetings, exercise programs, support groups, and educational events.
Product overview
Svenska Parkinsonforbundet is a non-profit patient organization (not a technology company) that provides support, information, and advocacy services for people with Parkinson's disease and their relatives. The organization offers a portfolio of services including: Parkinsonlinjen (a support hotline staffed by volunteers), Parkinsonjournalen (a quarterly member magazine), Butiken (a shop selling books and assistive products), the Yngre Parkinson network for younger members, and coordination of local/county associations that organize meetings, exercise activities, support groups, and educational events. The organization does not offer a technology product but rather member services and health information resources.
Differentiator
Problem solved
Functional benefit
Brands
- Parkinsonlinjen: Support telephone hotline for members and relatives affected by Parkinson's disease. Phone: 08-666 20 77.
Products and services
- Parkinsonlinjen A member support hotline where people with Parkinson's disease or their relatives can speak with others in similar situations. Calls are answered by volunteers bound by confidentiality. Phone: 08-666 20 77.
- Parkinsonjournalen The organization's quarterly magazine distributed to members, containing articles about Parkinson's disease, treatments, research updates, member stories, and association news. Available advertising space is offered to advertisers.
- Butiken (Shop) An online shop selling books, brochures, and assistive products/aids (presenter och hj\u00e4lpmedel) for people with Parkinson's disease.
- Yngre Parkinson A network for younger people with Parkinson's disease that organizes network meetings and provides peer support for members of working age.
- Local and County Associations The organization comprises 24 county associations (l\u00e4nsf\u00f6reningar) and 39 local associations (lokalf\u00f6reningar) across Sweden, providing local meetings, activities, support groups, exercise programs, and educational events for members and relatives.
Quantifiable outcome
- Support for approximately 9,000 members across Sweden with access to local activities, support groups, and advocacy services
- +1 more outcomes
Companies that use Svenska Parkinsonforbundet
Customer profileNamed customers3 records
Segments3 records
Ideal customer profiles3 records
Svenska Parkinsonforbundet technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Svenska Parkinsonforbundet partnerships and signals
Strategic signalPartnerships
Ten partnerships are on record, tiered core and minor.
- Nordiskt Parkinsonråd (Nordic Parkinson's Council)coreNordic cooperation between the Swedish, Danish, Finnish, Norwegian, Icelandic, and Faroese Parkinson's organizations. Annual meetings held to exchange experiences and support each other for better care for people with Parkinson's in the Nordic region. The 2023 meeting was held in Helsinki.
- Swedish Movement Disorder Society (Swemodis)coreMedical association working to improve treatment of movement disorders through education of doctors and healthcare professionals. Publishes guidelines for investigation and treatment of Parkinson's disease. Collaborates with Parkinsonförbundet on national guidelines.
- Swepar (Swedish Parkinson Research)coreScientific association with all university neurological institutions in Sweden as members, plus leading experimental research groups working on movement disorder-related science. Provides scientific foundation for Parkinson's research in Sweden.
- Läkemedelsverket (Swedish Medical Products Agency)coreParkinsonförbundet participates in Läkemedelsverket's Patient and Consumer Council, providing input on substance information, drug safety, and patient representation in regulatory matters.
- Nyköpings Boxningssällskap (Nyköping Boxing Club)minorOrganizes Parkinson's boxing training specifically adapted for people with Parkinson's disease. Provides exercise activities in partnership with local Parkinson's association.
- Eskilstuna Boxningsklubb (Eskilstuna Boxing Club)minorStarted boxing training group for people with Parkinson's and other neurological diagnoses in autumn 2023. Provides exercise activities under leadership of Eva Albäck.
- Studieförbundet Vuxenskolan SjuhäradminorCollaborative partner for arranging activities including café meetings and Parkinson's dance. Activities organized in cooperation with this study association.
- Umeå University (Rättsvetenskapliga institutionen)minorProfessor Ruth Mannelqvist from Umeå University participated in webinar about Parkinson's and work life, providing expert legal perspective on Swedish welfare systems and sick leave insurance.
- Narva BoxningsklubbminorDavid Löhr and Hans Lindahl from Narva participated in study trip to Indianapolis, USA to learn about boxing training methods for Parkinson's, which led to the establishment of Parkinson's boxing in Sweden.
- Hjärnfonden (Brain Foundation)coreInitiated the proposal for a national brain plan. Parkinsonförbundet participated in parliamentary seminar organized by Hjärnfonden to discuss brain health policy.
Scale indicators4 records
Recent moves6 records
Expansion highlights5 records
Svenska Parkinsonforbundet competitors and assessment
Company assessmentDirect peers
- Norges Parkinsonforbund: Norwegian national Parkinson's association, also part of the Nordiskt Parkinsonråd. Comparable membership-based nonprofit model, advocacy function, and chapter-based service delivery in a neighboring Nordic market.
- Parkinsonforeningen (Denmark): Danish national Parkinson's association and fellow member of the Nordiskt Parkinsonråd. Most direct functional peer given shared Nordic regulatory environment, member-supported funding model, and local chapter structure.
- Parkinson's UK: The UK's largest Parkinson's charity, providing information, support, research funding, and local groups. Directly comparable as a disease-exclusive national patient organization with membership model, advocacy function, and local association network.
- Suomen Parkinson-liitto: Finnish Parkinson's federation, also part of the Nordiskt Parkinsonråd. Closely comparable in mandate, structure, and Nordic regulatory context; serves as a natural benchmark for the Swedish organization.
- Parkinson Canada: Canadian national Parkinson's organization offering support services, research funding, and advocacy. Comparable mission, national-chapter structure, and member-supported model.
Broad incumbents
- European Parkinson's Disease Association (EPDA): European umbrella organization that the Swedish federation indirectly connects to via the Nordiskt Parkinsonråd. Comparable in advocacy and information-dissemination mission, but operates as a federation of national associations rather than direct service provider.
- Michael J. Fox Foundation for Parkinson's Research: US-based Parkinson's research-focused nonprofit. Overlaps with the Swedish federation on research advocacy but is primarily a research funder rather than a direct service or membership organization.
- American Parkinson Disease Association (APDA): US national Parkinson's organization with a similar chapter-network model and emphasis on patient support and research funding. Broader scale and longer history than the Swedish counterpart.
- Parkinson's Foundation (US): Larger US-based Parkinson's organization providing patient services, research funding, and professional education. Comparable in mission and activities but operates on a much larger geographic and financial scale.
Regional players
- Deutsche Parkinson-Vereinigung (dPV): Germany's national Parkinson's self-help organization with a membership and local-group structure similar to the Swedish federation, but operating in a different regulatory and language environment.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat4 records
Key risks5 records
Key highlights6 records
Customer concentration
Svenska Parkinsonforbundet social profiles
Digital presenceSvenska Parkinsonforbundet financial estimates
Financial estimateRevenue estimate
Valuation estimate
Svenska Parkinsonforbundet leadership team
Management profileNumber of profiles
Profiles4 records
Svenska Parkinsonforbundet funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Svenska Parkinsonforbundet M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Svenska Parkinsonforbundet
What does Svenska Parkinsonforbundet do?
Svenska Parkinsonforbundet is a Swedish non-profit patient organization providing support, information, and advocacy for people with Parkinson's disease, atypical parkinsonism, and their relatives. Its offerings include a member support hotline (Parkinsonlinjen), a quarterly magazine (Parkinsonjournalen), an online shop selling books and assistive products, a network for younger members (Yngre Parkinson), and coordination of a nationwide network of 24 county and 39 local associations delivering meetings, exercise programs, support groups, and educational events.
Is Svenska Parkinsonforbundet a public or private company?
Svenska Parkinsonforbundet is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Svenska Parkinsonforbundet founded?
Svenska Parkinsonforbundet was founded in 1986. It employs 1 to 10 people.
Where is Svenska Parkinsonforbundet based?
Svenska Parkinsonforbundet is headquartered in Stockholm, Sweden, in the Europe region.
How does Svenska Parkinsonforbundet make money?
Three revenue lines are on record. Membership Fees are the primary driver. The others are donations and Gifts and shop Sales.
Who are Svenska Parkinsonforbundet's main competitors?
Direct peers on record are Norges Parkinsonforbund, Parkinsonforeningen (Denmark), Parkinson's UK, Suomen Parkinson-liitto and Parkinson Canada. Broad incumbents are European Parkinson's Disease Association (EPDA), Michael J. Fox Foundation for Parkinson's Research, American Parkinson Disease Association (APDA) and Parkinson's Foundation (US). Deutsche Parkinson-Vereinigung (dPV) is listed as a regional player.
Does Svenska Parkinsonforbundet have an API?
No public API is recorded for Svenska Parkinsonforbundet.
What industry is Svenska Parkinsonforbundet in?
Svenska Parkinsonforbundet's product category is Patient Advocacy and Non-Profit Healthcare Support. Its primary akta.pro industry code is BPAGACAM, Rare Disease & Special Needs Support Organizations. Its NAICS code is 8133 and its SIC code is 8600.