The Jett Foundation

What The Jett Foundation does

The Jett Foundation is a 501(c)(3) nonprofit organization, founded in 2001 and headquartered in Norwell, Massachusetts, that delivers direct service programs and educational resources to individuals and families affected by Duchenne muscular dystrophy (DMD). Its core offerings comprise Camp Promise (a free week-long residential camp and year-round program for children, teens, and adults with neuromuscular disorders), the Jett Giving Fund (grants for accessible vehicles, emergencies, and equipment), Family Workshops held in multiple U.S. cities, Community Webinars, Family Support Groups, and dedicated female carrier programming via a Carrier Specialist. The organization supplements these with disease-specific educational resources including emergency care guides, a Health Insurance Flight Plan, welcome packets for newly diagnosed families, and a podcast, Beyond the Diagnosis: Duchenne Perspectives.

The foundation operates no proprietary technology platform; its underlying 'product' is the orchestration of in-person programs, virtual education, and direct financial grants to families. Distribution is hybrid: residential camp locations across Pennsylvania, Arizona, Colorado, and Ohio; traveling family workshops reaching cities such as New Orleans, Dallas, Denver, Minneapolis, Columbia MO, Billings MT, and Irvine CA; and digital channels (webinars, podcast, social media) for national and international reach. Jett's Place, a first-of-its-kind wellness and retreat sanctuary, is currently in capital campaign phase with over $5 million raised toward a $10.7 million goal.

The revenue model is nonprofit fundraising: individual donations, corporate and foundation grants, corporate sponsorships from pharmaceutical/biotech companies (Sarepta, NS Pharma, Edgewise, Entrada, ITF Therapeutics), and signature events including the Jett Golf Classic and the 25th Anniversary Silver Soirée. Major disclosed gifts include $1M anchor sponsorships from The Emilson Family and ITF Therapeutics for Jett's Place, a prior $1M gift from Rob & Karen Hale, and a $500K gift from Cure Dale's Duchenne. All programs are delivered free of charge to beneficiaries.

Name

The Jett Foundation

Legal name

Jett Foundation, Inc.

Website

https://jettfoundation.org

Company type

Private

Founded year

2001

Operating status

Operating

Headcount range

11–50 employees

Short description

The Jett Foundation is a 501(c)(3) nonprofit, founded in 2001 and headquartered in Norwell, Massachusetts, that delivers free programs, financial grants, education, and community support to individuals and families affected by Duchenne muscular dystrophy across the United States.

Ownership category

akta.pro rank

Product category

Nonprofit Patient Advocacy Services

NAICS

Other Individual and Family Services (624190), Grantmaking and Giving Services (81321), Recreational and Vacation Camps (except Campgrounds) (721214)

SIC

Services-Social Services (8300), Hotels, Rooming Houses, Camps & Other Lodging Places (7000)

akta.pro primary industry

Financial Assistance & Benefits Navigation Services (BPAGAEAK)

akta.pro secondary industries

Youth Mental Health, Counseling & Wellbeing (Education-Linked) Nonprofits (BPAGADAK), Family & Recreation Campgrounds (Amenities/Activities Focus) (THAMAJAJ)

Keywords

• Duchenne muscular dystrophy support
• Patient advocacy services
• Neuromuscular disorder programs
• Nonprofit patient assistance
• Disease education resources

Headquarters

HQ city

Plymouth

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: The organization accepts donations from individuals, corporations, and foundations to support its programs serving the Duchenne muscular dystrophy community. Donations fund Camp Promise, Jett Giving Fund, and operational costs.
2. Fundraising Events: Annual signature events including the Jett Golf Classic and Silver Soirée generate revenue through sponsorships, ticket sales, and auction proceeds.
3. Corporate Sponsorships: Pharmaceutical and biotech companies partner with Jett Foundation through sponsorships. The Jett's Place campaign has $1,000,000 anchor sponsors The Emilson Family and ITF Therapeutics.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

The Jett Foundation delivers free programs and services to individuals and families affected by Duchenne muscular dystrophy, including Camp Promise (a free week-long overnight camp for kids, teens, and adults with neuromuscular disorders), the Jett Giving Fund (financial assistance for accessible vehicles, emergencies, and equipment), Family Workshops (national educational gatherings with clinicians and researchers), Community Webinars, Family Support Groups, and Emergency Resources. The organization is also developing Jett's Place, a planned sanctuary for the Duchenne community. All programs are offered free of charge to beneficiaries.

Product overview

The Jett Foundation operates as a nonprofit organization offering a portfolio of programs and services for the Duchenne muscular dystrophy community. The core offerings include Camp Promise (recreational camp program), Jett Giving Fund (financial assistance for vehicles, equipment, and emergencies), Family Workshops (national educational gatherings), Community Webinars (virtual education), Family Support Groups, and Emergency Resources (medical guidance). The Foundation is also developing Jett's Place, a wellness sanctuary. Additionally, it provides resources including welcome packets, health insurance guidance, educational materials, and hosts athletic fundraising events. The organization does not offer a technology product platform but rather delivers direct service programs and educational resources.

Differentiator

Problem solved

Functional benefit

Brands

• Camp Promise: A free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.
• Jett Giving Fund
• Jett's Place
• Beyond the Diagnosis: Duchenne Perspectives

Products and services

• Camp Promise

Quantifiable outcome

• Free camp experience for kids, teens, and adults with neuromuscular disorders
• +1 more outcomes

Named customers2 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered core and minor.

• NS PharmacoreStrategic or Co-development PartnerPartnership to serve the Duchenne community, sharing educational resources about exon skipping therapies and ongoing support for families.
• Sarepta TherapeuticscoreStrategic or Co-development PartnerOngoing partnership including sharing community letters about ELEVIDYS gene therapy, clinical trials, and FDA updates related to Duchenne treatments.
• Edgewise TherapeuticscoreStrategic or Co-development PartnerRenewed support for Jett programs in 2024, sharing updates about EDG-5506/sevasemten clinical development for Becker and Duchenne muscular dystrophy.
• Entrada TherapeuticscoreStrategic or Co-development PartnerPartnership including award of third annual DREAMS Grant to Jett Foundation, supporting Duchenne community programs.
• Suneel's Light FoundationminorStrategic or Co-development PartnerPartnership to support Upstate New York families caring for loved ones with Duchenne muscular dystrophy.

Scale indicators8 records

Recent moves4 records

Expansion highlights5 records

Others

• Christopher & Dana Reeve Foundation: Disability-focused nonprofit and current Jett partner (Quality of Life Grant for Camp Promise). Operates an adjacent disability-services and family-support mission with overlapping funder relationships.

Broad incumbents

• National Organization for Rare Disorders: Umbrella advocacy organization for all rare diseases including Duchenne; competes for awareness-day visibility, policy influence, and corporate sponsorships across the rare-disease nonprofit landscape.
• Muscular Dystrophy Association: Large, established umbrella organization covering all muscular dystrophies, including Duchenne, with research funding, MDA Summer Camp, and clinical care networks — overlapping with Jett's camp and family support programs at greater scale.
• Easterseals: National disability services nonprofit offering camps, family support, and community programs for people with disabilities; a broader incumbent in the same family-and-camp service category as Jett.

Direct peers

• Parent Project Muscular Dystrophy: The largest U.S. nonprofit specifically focused on Duchenne muscular dystrophy, offering family support, advocacy, research funding, and community education — overlapping directly with Jett's DMD-only mission and program mix.
• Charley's Fund: DMD-focused nonprofit historically funding translational research and family support; comparable in mission and donor profile to Jett Foundation.
• Suneel's Light Foundation: DMD-focused nonprofit supporting Upstate New York families, listed as a Jett partner. Operates in an adjacent geographic niche with overlapping family-support and fundraising missions.
• Coalition Duchenne: International DMD nonprofit combining research funding, awareness expeditions, and community education; competes with Jett in the global Duchenne advocacy and family-engagement space.
• Cure Duchenne: Disease-specific nonprofit funding DMD research and supporting affected families through education and community programs; competes with Jett for the same donor base, sponsors, and patient families.

Emerging players

• Camp Sunshine: Retreat-based nonprofit offering free camp experiences for children with serious illnesses and their families; directly comparable to Camp Promise's overnight-residential, recreation-focused service model.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xtwitter.com/JettFoundation
• YouTubeyoutube.com/channel/UCiHc_k0T8JRWlTY9R9tRpWg
• Facebookfacebook.com/jettfoundation
• LinkedInlinkedin.com/company/jettfoundation
• Instagraminstagram.com/jettfoundation

Revenue estimate

Valuation estimate

Number of profiles

Profiles17 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about The Jett Foundation