Eesti Seljaajusonga ja Vesipeahaigete Selts

Name

Eesti Seljaajusonga ja Vesipeahaigete Selts

Legal name

MTÜ Seljaajusonga ja Vesipeahaigete Selts

Website

https://kelluke.ee

Company type

Private

Founded year

1991

Operating status

Operating

Ownership category

akta.pro rank

Product category

Disability Support Services

NAICS

Other Individual and Family Services (624190), Voluntary Health Organizations (813212)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

Keywords

• Disability support services
• Spina bifida advocacy
• Hydrocephalus care
• Rehabilitation services
• Peer counseling

Headquarters

HQ city

Tallinn

HQ country

Estonia

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Others

Revenue model

1. Membership dues: Members pay a membership fee (annual dues). The organization also collects voluntary donations via bank transfer (Swedbank accounts provided on the website) with reference 'Toetaja [year]'.
2. Donations and sponsorships: The organization receives financial support from individual donors and corporate sponsors. A list of supporters (both individuals and companies) is published on its website. Corporate sponsors include Johnson & Johnson, B.BRAUN, AS Tampe, Zone Media OÜ, and others.
3. Project-based funding (EU and government grants): The organization receives project funding from EU structural funds (ESF), Kodanikuühiskonna Sihtkapital (KÜSK), Eesti-Šveitsi koostööprogrammi Vabaühenduste Fond, and other government or foundation sources. These fund specific projects such as rehabilitation services, doctoral programmes, training, and youth support activities.
4. Kelluke Fund (Rahvuskultuurkapitali Fond sub-fund): A named sub-fund under the Estonian National Culture Capital (Eesti Rahvuskultuurkapital) provides a €1,000 scholarship annually for young people with disabilities to support education in arts and sports. This is a philanthropy/re-grant mechanism rather than revenue for the association itself.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels5 records

Core offering

This is a non-profit membership organization that supports people with spina bifida and hydrocephalus and their families in Estonia. Its core offerings are multidisciplinary rehabilitation services, experience-based peer counseling for parents, children's camps (including hippotherapy), family events, educational seminars, and folic acid prevention awareness. The association is funded through membership dues, donations, corporate sponsorships, and EU/government project grants.

Product overview

Eesti Seljaajusonga ja Vesipeahaigete Selts (Kelluke) is a non-profit membership organization providing a comprehensive range of support services for individuals with spina bifida and hydrocephalus, their families, and caregivers. The organization's service portfolio centers on its SpBH Rehabilitatsiooniteenus, which offers multidisciplinary rehabilitation care including medical specialists, therapy services, and orthotics. Complementary services include kogemusnõustamine (experience-based peer counseling) connecting parents with trained volunteers, children's camps featuring therapeutic activities like hippotherapy, and family-oriented events. The organization also conducts foolhape ennetustöö (folic acid awareness campaigns), organizes info- ja teabepäevad (educational seminars and conferences), and produces publications and information materials. The society operates primarily in Estonia with membership exceeding 250 individuals and is affiliated with the International Federation for Spina Bifida and Hydrocephalus.

Differentiator

Problem solved

Functional benefit

Products and services

• SpBH Rehabilitatsiooniteenus (Spina Bifida and Hydrocephalus Rehabilitation Service) Multidisciplinary rehabilitation service for individuals with spina bifida and hydrocephalus, providing physician consultations, speech therapy, special education support, physiotherapy, social work, and orthotics.
• Kogemusnõustamine (Experience-Based Counseling) Peer counseling service that connects parents of children with disabilities with trained volunteers who have faced similar challenges, providing emotional support and practical guidance.
• Lastelaagrid (Children's Camps) Summer and winter camps organized for children and youth with spina bifida and hydrocephalus, often held at locations such as Maria talu (Maria Farm), featuring hippotherapy and social activities to build independence and self-confidence.
• Kogupere üritused (Family Events) Family-oriented events and gatherings that provide positive experiences, peer connection, and new opportunities for families affected by spina bifida and hydrocephalus.
• Info- ja teabepäevad (Information and Education Days) Educational events, conferences, and training sessions organized for parents, educators, and healthcare professionals on topics related to spina bifida and hydrocephalus.
• Foolhape ennetustöö (Folic Acid Prevention Campaign) Public awareness and prevention initiative promoting the importance of folic acid supplementation (400 micrograms daily) in reducing the incidence of neural tube defects such as spina bifida.
• Publikatsioonid ja infomaterjalid (Publications and Information Materials) Educational publications and informational materials about spina bifida and hydrocephalus (including brochures such as the Hydrocephalus 2023 information leaflet) distributed to members and the broader public.
• Membership Program Annual membership program open to people with spina bifida and hydrocephalus, their relatives, medical professionals, and volunteer assistants; members receive information about disability services, assistive devices, rehabilitation, social assistance, and access to events, meetings, and training. Annual membership dues apply.

Quantifiable outcome

• Approximately 1 in 1,000 babies in Estonia is born with spina bifida. Folic acid supplementation (400 micrograms daily) can reduce neural tube defects by up to 75%.
• +1 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered core and minor.

• International Federation for Spina Bifida and Hydrocephalus (IF)coreStrategic or Co-development PartnerThe Estonian Spina Bifida and Hydrocephalus Association (Kelluke) is a member of the International Federation for Spina Bifida and Hydrocephalus, the global umbrella organization for these conditions. This membership provides international connections, best practice sharing, and alignment with global advocacy standards.
• Eesti Puuetega Inimeste Koda (EPIKoda) – Estonian Chamber of Disabled PeoplecoreStrategic or Co-development PartnerEPIKoda is the primary umbrella organization for disability organizations in Estonia. The association works with EPIKoda on advocacy, shares its announcements, co-organizes events such as patient education seminars and the annual Unity Concert (Ühtekuuluvus kontsert) for International Day of Persons with Disabilities. EPIKoda also provides free counseling services for work capacity assessment and disability recognition.
• SA Tallinna Lastehaigla (Tallinn Children's Hospital)coreStrategic or Co-development PartnerThe association was founded by Dr. Ann Paal, a pediatric surgeon at Tallinn Children's Hospital, who remains the association's chairperson. The hospital serves as the primary medical care setting for members. The association's headquarters is co-located with EPIKoda at Toompuiestee 10, Tallinn. Rehabilitation services (SpBH rehabilitation) are coordinated through this partnership.
• Kodanikuühiskonna Sihtkapital (KÜSK) – Civil Society FoundationcoreOthersKÜSK administers the annual 'Development Leap' (Arenguhüpe) grant round for non-profit organizations, with maximum support of €25,000 per project. The association has accessed these funds for organizational development activities.
• SA InnoveminorOthersSA Innove administers EU structural funds that have supported the association's projects, including the childcare project (lapsehoiu projekt) and the 'Iseseisvalt tööellu' employment preparation project (2012–2013) under ESF measure 1.3.1.
• OÜ Semolen KoolitusminorImplementation/ SI/ Consulting PartnerPartnered with the association on the childcare project for members, providing training for caregivers who are association members themselves to offer childcare services to families of children with disabilities.
• Finnish Institute for Health and Welfare (THL)minorStrategic or Co-development PartnerAlong with the Finnish Ministry of Social Affairs and Health and the Nordic Welfare Centre, THL organized the 2025 Nordic Presidency event 'Right to live independently and be included' in Helsinki. The association shared this opportunity with its members, including financial support for travel and accommodation.
• ERASMUS+ ProgrammeminorOthersThe association participates in the ERASMUS+ programme, which provides international exchange and training opportunities for its members and staff, particularly young people with disabilities.

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Shine (UK Spina Bifida and Hydrocephalus charity): UK-registered charity (formerly ASBAH) supporting people with spina bifida and hydrocephalus through information, advocacy, and direct services. Most directly comparable peer — same condition focus, similar service mix (advice, peer support, events), and a national member-based operating model.
• Spina Bifida Association (USA): The leading US national nonprofit for spina bifida, providing clinical information resources, advocacy, and community-building for affected individuals and families. Directly comparable mission and constituency, with a larger scale and a research/clinical resource orientation.
• Cerebral Palsy Foundation: US-based nonprofit focused on a specific congenital disability population, offering research, family support, and advocacy. Comparable as a single-condition disability nonprofit with an integrated service portfolio targeting affected individuals, families, and medical professionals.

Regional players

• Eesti Invaspordi Liit (Estonian Parasport Association): Estonian umbrella for parasport that engages persons with disabilities including those with spina bifida/hydrocephalus. Operates in the same Estonian disability ecosystem with overlapping membership pools and is a listed supporter/partner of Kelluke.
• Eesti Puuetega Inimeste Koda (EPIKoda): Estonian Chamber of Disabled People — the national umbrella disability organization in Estonia. Co-located with Kelluke at Toompuiestee 10; serves as a comparable Estonian disability-sector NGO, though its scope spans all disability types rather than focusing on a single condition.

Others

• Nordic Welfare Centre: Intergovernmental Nordic institution that organizes cross-Nordic disability and inclusion policy events (including the 2025 Nordic Presidency event co-organized with THL and the Finnish Ministry of Social Affairs). Functions as an enabling partner that hosts and amplifies disability-organization initiatives.
• SA Tallinna Lastehaigla (Tallinn Children's Hospital): The founding institutional partner of Kelluke; site where Dr. Ann Paal practices pediatric surgery. Not a peer in the competitive sense but a key ecosystem enabler that drives patient referrals and clinical-program credibility.

Broad incumbents

• International Federation for Spina Bifida and Hydrocephalus (IF): Global umbrella organization of which Kelluke is a member. Operates at a broader, multi-country level coordinating advocacy and best-practice sharing across national spina bifida/hydrocephalus associations worldwide.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

Revenue estimate

Valuation estimate

Number of profiles

Profiles6 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Eesti Seljaajusonga ja Vesipeahaigete Selts