Elu dementsusega

What Elu dementsusega does

MTÜ Elu Dementsusega is an Estonian non-profit association (MTÜ, registration number 80403143) founded in 2016 in Tallinn to protect and support the interests of people with dementia and their relatives. It operates as Estonia's leading independent strategic partner to the government and to international bodies such as Alzheimer Europe (full member since October 2022) and Alzheimer's Disease International on dementia advocacy, awareness, and community support. Its service portfolio centers on the kogemuskohvik (experience/memory café) model, hosted primarily at Maiasmoka Kohvik in Tallinn, supplemented by the "Tark lähedane" information platform, "Huvikaitse" advocacy work, "Jaga oma kogemust" experience-sharing platform, public awareness campaigns, and recurring "Annetamistalgud" donation drives. Membership comprises people with dementia, their relatives, and field specialists; board members publicly identified include Chris Ellermaa, Seidi Soini-Lillipuu, Sirli Peepson, and founding member Dr Ülla Linnamäe.

The organization does not develop or commercialize technology products. Its go-to-market is community-led and event-driven: in-person kogemuskohvik events, participation in forums such as the Paide Opinion Festival, earned media engagement, and social channels (Facebook, website eludementsusega.ee) drive awareness and member acquisition. Distribution is direct and domestic, with occasional partnerships extending reach into new Estonian municipalities (Viimsi, Rae, Keila) via Tallinn University's ELU program and into adjacent networks through the Dementia Competence Centre and the Estonian Chamber of People with Disabilities.

The business model is that of a membership-funded non-profit. Revenue is not disclosed but is generated from individual donations routed through the "Ma armastan aidata" platform and direct bank transfer, recurring membership fees, and periodic donation campaigns such as "Annetamistalgud". All services are provided free of charge; there is no commercial pricing, no enterprise sales motion, and no parent company or equity ownership. The organization's strategic positioning is shaped by Estonia's status as one of the few EU countries without a dedicated national dementia strategy and by a projected doubling of Estonia's dementia population by 2050.

Name

Elu dementsusega

Legal name

MTÜ Elu Dementsusega

Website

https://eludementsusega.ee

Company type

Private

Founded year

2016

Operating status

Operating

Short description

MTÜ Elu Dementsusega is an Estonian non-profit association founded in 2016 that advocates for people with dementia and their families through community kogemuskohvik events, policy engagement, and awareness campaigns.

Ownership category

akta.pro rank

Product category

Dementia Patient Advocacy Services

NAICS

Services for the Elderly and Persons with Disabilities (624120)

SIC

Services-Social Services (8300)

akta.pro primary industry

Elder Services & Aging Support (BPAGAEAF)

akta.pro secondary industry

Dementia/Alzheimer’s Care Management & Behavioral Support (HLADALAF)

Keywords

• Dementia advocacy services
• Patient support organizations
• Community health support
• Caregiver peer support
• Nonprofit health advocacy

Headquarters

HQ city

Tallinn

HQ country

Estonia

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations: The organization is funded primarily through donations from individuals and supporters. Donation campaigns include 'Annetamistalgud' (donation drives) where funds support the operation of kogemuskohvikud (experience cafés). Donations can be made via the 'Ma armastan aidata' platform and direct bank transfer (EE422200221064538148).
2. Membership fees: The organization is an MTÜ (non-profit association) with members who pay membership fees. Members include people with dementia, their relatives, and field specialists.

Go-to-market motion3 records

Distribution channels3 records

Marketing channels5 records

Core offering

MTÜ Elu Dementsusega is a non-profit patient organization that advocates for and supports people with dementia and their families in Estonia. Its core offerings include community-based experience cafés (kogemuskohvikud) for peer support and information exchange, policy advocacy (huvikaitse) targeting Estonian and EU-level decision-makers, awareness campaigns through media engagement, and an information platform (Tark lähedane) providing practical guidance to relatives and caregivers.

Product overview

MTÜ Elu Dementsusega is a non-profit patient organization that serves as Estonia's leading advocacy organization for people with dementia and their relatives. The organization operates a portfolio of services including: Kogemuskohvik (Experience Cafes) - community meeting places for sharing experiences and knowledge; Huvikaitse (Advocacy) - policy influencing and lobbying activities; Tark lähedane (Smart Relative) - an information platform providing practical guidance; Teavitustöö (Awareness Work) - media campaigns and public education; and Annetamiskampaaniad (Donation Campaigns) - fundraising initiatives. Founded in 2016, the organization connects people with dementia, their families, and specialists to ensure no one faces dementia alone. It represents Estonia in international organizations including Alzheimer Europe and Alzheimer's Disease International.

Differentiator

Problem solved

Functional benefit

Products and services

• MTÜ Elu Dementsusega Membership (Non-profit Association)
• Kogemuskohvik (Experience Café / Memory Café)

Quantifiable outcome

• 37–64% projected increase in dementia cases across Europe by 2050, emphasizing the growing need for advocacy and support services
• +2 more outcomes

Named customers4 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Six partnerships are on record, tiered core, minor and moderate.

• Alzheimer EuropecoreStrategic or Co-development Partner · 18 October 2022MTÜ Elu Dementsusega became a full member of Alzheimer Europe on October 18, 2022. The organization had been an associate member since 2018. Full membership grants voting and decision-making rights in Alzheimer Europe's activities and work. Alzheimer Europe is the umbrella organization for 41 national Alzheimer associations across 37 European countries.
• European Dementia Carers Working Group (EDCWG) / Alzheimer EuropecoreStrategic or Co-development Partner · 1 January 2022The European Dementia Carers Working Group (EDCWG) was established under Alzheimer Europe in 2022. MTÜ Elu Dementsusega member Chris Ellermaa represents Estonia in this working group, which has 14 members from different EU member states. The group advocates for dementia caregivers' interests at the EU level and contributes to Alzheimer's Europe's research and policy work.
• Alzheimer's Disease International (ADI)coreStrategic or Co-development PartnerMTÜ Elu Dementsusega is affiliated with Alzheimer's Disease International (ADI), which represents 105 Alzheimer's associations worldwide and collaborates with the World Health Organization (WHO). ADI provides global resources, research, and policy frameworks that MTÜ Elu Dementsusega draws upon for its advocacy work in Estonia.
• Tallinna Ülikool / Tallinn University (ELU project)minorStrategic or Co-development PartnerTallinn University students from the ELU (Interdisciplinary Innovation) course collaborated with MTÜ Elu Dementsusega to organize three kogemuskohvikud (memory cafés) in Viimsi, Rae Municipality, and Keila. Students from journalism, psychology, social work, special education, youth work, health management, and advertising/PR participated in the project.
• Eesti Puuetega Inimeste Koda / Estonian Chamber of People with DisabilitiesmoderateStrategic or Co-development PartnerMTÜ Elu Dementsusega collaborates with the Estonian Chamber of People with Disabilities on issues including the Patient End-of-Life Declaration (PET) legislation, patient rights, and advocacy for people with disabilities including dementia. Tuuli Seinberg from EPIKoda has spoken at MTÜ Elu Dementsusega's kogemuskohvik events.
• Dementsuse Kompetentsikeskus (DKK) / Dementia Competence CentremoderateStrategic or Co-development PartnerThe Dementia Competence Centre provides expert consultation to nursing homes and collaborates with MTÜ Elu Dementsusega on advocacy and awareness. DKK's leader Piret Purdelo-Tomingas has been a guest speaker at the organization's kogemuskohvik events.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• Alzheimer Europe: European umbrella organization for 41 national dementia associations. Comparable as a higher-level advocacy and policy body that MTÜ Elu Dementsusega belongs to as a full member.
• Alzheimer's Disease International (ADI): Global umbrella federation of 105 Alzheimer associations worldwide. Comparable as the international coordinating body for national dementia advocacy organizations.

Direct peers

• Dementia Alliance International (DAI): Global advocacy organization led by people living with dementia, focused on rights, policy, and peer support. Comparable as a dementia-led advocacy and community support organization.
• Demenzliga (Germany): German non-profit association advocating for people with dementia and their families through awareness and policy work. Comparable as a member-based national dementia advocacy organization.
• Alzheimer's Association (US): The largest US voluntary health organization dedicated to Alzheimer's care, support, and research, with national advocacy and a network of local chapters. Comparable as a national dementia advocacy and support organization.
• Alzheimer's Society (UK): UK's leading dementia charity providing advocacy, information, and support services for people with dementia and their families. Most comparable peer given the shared national advocacy + community service model.
• Alzheimer Forschung Initiative (Germany): Germany's leading dementia-focused non-profit combining advocacy, awareness, and research funding. Comparable as a national dementia advocacy organization with similar funding model reliant on donations.

Regional players

• Demensförbundet (Sweden): Swedish national association for people with dementia and their families, providing advocacy and peer support. Comparable Nordic peer with similar member-based structure and advocacy mandate.
• Muistiliitto (Alzheimer Society of Finland): Finnish national dementia association offering peer support, advocacy, and memory-related community services. Highly comparable in mission, Nordic regional context, and member-based operating model.

Others

• Carers UK: UK national charity advocating for unpaid carers, including those caring for people with dementia. Comparable in providing support, advocacy, and information for family caregivers of elderly and disabled individuals.

Market position

Strengths4 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/eludementsusega
• Facebookfacebook.com/eludementsusega

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Elu dementsusega