Fetal Health Foundation

Name

Fetal Health Foundation

Legal name

Fetal Health Foundation

Website

https://fetalhealthfoundation.org

Company type

Private

Founded year

2006

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Patient Advocacy and Fetal Health Support Services

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211), Grantmaking and Giving Services (8132)

SIC

Services-Social Services (8300), Services-Health Services (8000)

akta.pro primary industry

Maternal, Child & Family Health Organizations (BPAGACAF)

akta.pro secondary industries

Health & Medical Research Grantmaking Foundations (BPAGAKAL), Maternal, Child & Family Health Program Funding (HLAJALAG)

Keywords

• Fetal syndrome education
• Nonprofit health advocacy
• Prenatal diagnosis resources
• Patient family support
• Treatment center directory

Headquarters

HQ city

Littleton

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Marketing or Sales, Operations, Technology or R&D, Others

Revenue model

1. Individual Donations: The foundation receives donations from individuals who support their mission to help families navigate fetal diagnoses and find treatment options.
2. Event Fundraising: Revenue generated from flagship events including The Great Candy Run 5K Run/Walk in Denver, CO, and related fundraising campaigns.
3. Hope Stewardship Circle Program: A donor recognition and giving program that provides ongoing support to the foundation's operations and research funding.
4. Connexions Magazine: Award-winning annual magazine that serves as a platform for updates around fetal research, partner improvements, and educational content, also serving as a donor engagement vehicle.

Go-to-market motion3 records

Distribution channels4 records

Marketing channels7 records

Core offering

Fetal Health Foundation is a parent-founded 501(c)(3) nonprofit that provides medically reviewed information on over 50 fetal syndromes, a searchable directory of trusted fetal treatment centers, and peer support resources to families navigating a fetal diagnosis. It also operates the "More Than Nine" podcast, the award-winning Connexions Magazine, the Hope Stewardship Circle recurring donor program, and the annual Great Candy Run 5K fundraiser to support its mission.

Product overview

The Fetal Health Foundation is a parent-founded nonprofit organization that operates primarily as an informational and support resource, not a traditional software product. Its core offerings include a comprehensive website providing medically reviewed information on 50+ fetal syndromes, a Treatment Center Locator tool, the Hope Stewardship Circle donor program, The Great Candy Run annual fundraiser, the More Than Nine Podcast content platform, Connexions Magazine, and an Annual Impact Report. These offerings work together to fulfill the foundation's mission of expanding access to vital care, raising awareness about fetal syndromes, and connecting patients and families to trusted treatment options and essential support resources.

Differentiator

Problem solved

Functional benefit

Brands

• The Great Candy Run: Flagship fundraiser for the Fetal Health Foundation - an annual 5K Run/Walk event held in Denver, CO and virtually, to raise funds and awareness for fetal health.

Products and services

• Fetal Syndrome Information Database
• Treatment Center Locator
• More Than Nine Podcast
• Connexions Magazine
• The Great Candy Run
• Family Stories and Support Resources
• Hope Stewardship Circle

Quantifiable outcome

• The foundation connects families with leading fetal treatment centers including CHOP, Children's Mercy, Stanford Children's Health, UC Davis Health, and others worldwide.
• +1 more outcomes

Named customers4 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

13 partnerships are on record, tiered core and minor.

• Children's Hospital of Philadelphia (CHOP)coreStrategic or Co-development PartnerCHOP is a leading partner in the foundation's network of fetal treatment centers. Dr. Scott Adzick, Surgeon-in-Chief at CHOP and founder of the Richard D. Wood Jr. Center for Fetal Diagnosis and Treatment, collaborates with the foundation. The center, the largest fetal therapy center of its kind, has been instrumental in advancing fetal surgery research including the Management of Myelomeningocele Study (MOMS).
• Children's Mercy Kansas CitycoreStrategic or Co-development PartnerChildren's Mercy Kansas City, specifically the Elizabeth J. Ferrell Fetal Health Center, partners with the foundation to provide fetal care. The center offers multidisciplinary teams for high-risk pregnancies including in-utero surgeries. Multiple patient stories on the foundation's site feature successful outcomes from Children's Mercy care.
• Stanford Children's HealthcoreStrategic or Co-development PartnerStanford Children's Health offers comprehensive care for complex fetal and pregnancy conditions through their Fetal and Pregnancy Health Program. They collaborate with the foundation on patient stories and educational content about multidisciplinary fetal care.
• UC Davis HealthcoreStrategic or Co-development PartnerUC Davis Health, through its Fetal Care and Treatment Center, partners with the foundation on groundbreaking research including the CuRe Trial for spina bifida treatment using stem cells. Dr. Diana Farmer leads this research, which has received significant funding from CIRM.
• Texas Children's Hospital Fetal CentercoreStrategic or Co-development PartnerTexas Children's Hospital Fetal Center, led by Dr. Michael Belfort and Dr. William Whitehead, performs fetoscopic spina bifida repairs. The foundation features patient stories from families who received care there, including Everett's family whose fetoscopic surgery was observed by medical teams from Stanford, Johns Hopkins, Barcelona, and France.
• Cincinnati Children's Hospital Medical CenterminorStrategic or Co-development PartnerCincinnati Children's is a national leader in prenatal myelomeningocele surgery and has reached milestones in fetal surgery outcomes. They partner with the foundation for patient stories and awareness.
• OHSU (Oregon Health & Science University)minorStrategic or Co-development PartnerOHSU's fetal care program has re-engaged with the foundation to expand access to advanced fetal care for families facing complex fetal diagnoses, strengthening regional support.
• Connecticut Children'sminorStrategic or Co-development PartnerConnecticut Children's partners with the foundation as part of the network of fetal care centers available to families through the organization's resources.
• Los Angeles Fetal SurgeryminorStrategic or Co-development PartnerLos Angeles Fetal Surgery, directed by Dr. Ramen Chmait, serves on the foundation's Medical Board of Directors. Dr. Chmait performs minimally-invasive fetoscopic surgery for spina bifida and is involved in FDA-supervised research.
• March of DimescoreStrategic or Co-development PartnerMarch of Dimes leads Prematurity Awareness Month, and the Fetal Health Foundation amplifies this important message by providing educational resources, community support, and advocacy tools that help parents have the healthiest pregnancy possible.
• Mozarc MedicalminorGTM or Marketing PartnerMozarc Medical's Carpediem neonatal dialysis system is featured on the foundation's news section as advancing kidney care for the smallest patients. The foundation provides coverage of innovations in neonatal care relevant to families they serve.
• Johnson & JohnsonminorGTM or Marketing PartnerJohnson & Johnson's innovation division focused on alloantibodies is featured in the foundation's partner section, representing medical technology companies advancing fetal and neonatal care.
• The Fetal InstituteminorStrategic or Co-development PartnerDr. Ruben Quintero, Founder at The Fetal Institute, works with foundation-affiliated doctors including Dr. Chmait on fetoscopic treatment research for spina bifida under FDA supervision.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• American Pregnancy Association: Nonprofit providing education and support across pregnancy topics including high-risk and complicated pregnancies. Comparable as an information-and-support-driven pregnancy health nonprofit.
• Every Mother Counts: Nonprofit focused on making pregnancy and childbirth safe for every mother, with content, advocacy, and grantmaking. Comparable mission alignment around maternal/fetal health education and community support.
• Spina Bifida Association: Condition-specific nonprofit serving individuals and families affected by spina bifida. FHF's content library features spina bifida prominently, and partner treatment centers actively treat the condition, making this a directly comparable condition-focused support organization.
• Preeclampsia Foundation: Nonprofit dedicated to maternal hypertensive disorders, providing patient education, support, and research funding. Comparable as a maternal-health-focused nonprofit using content, community, and research grants to serve diagnosed families.
• Healthy Birth Day (Count the Kicks): Nonprofit focused on stillbirth prevention through fetal movement awareness, education, and research. Directly comparable as a community-driven, parent-engagement-focused nonprofit addressing fetal health outcomes.
• Sidelines National Support Network: Support network for women experiencing complicated pregnancies and high-risk diagnoses. Directly comparable as a peer-support nonprofit serving the same target population of expectant parents facing adverse fetal diagnoses.

Emerging players

• Maternal Mental Health Leadership Alliance: Nonprofit coalition addressing maternal mental health, including the psychological impact of fetal diagnoses. Adjacent to FHF's mission given the emotional support component of its offerings.
• National Birth Defects Prevention Network: Network of public health professionals and programs focused on birth defects surveillance and prevention. Comparable in mission overlap around fetal conditions but operates as a professional/network organization rather than a family-support nonprofit.

Broad incumbents

• March of Dimes: Larger, established maternal and infant health nonprofit that addresses prematurity, birth defects, and maternal mortality. Directly comparable as a fundraising and patient-education nonprofit in the maternal/fetal health space, but operates at much greater scale across broader mission areas.

Others

• Children's Hospital of Philadelphia (CHOP) Center for Fetal Diagnosis and Treatment: Largest fetal therapy center in the world and FHF's flagship partner. Not a peer in the nonprofit-support sense but the leading clinical provider in the ecosystem FHF connects families to.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/user/FetalHope
• Facebookfacebook.com/FetalHealth
• LinkedInlinkedin.com/company/fetal-health-foundation
• Instagraminstagram.com/fetalhealthfoundation
• Xx.com/FetalHealthFndn

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Fetal Health Foundation