Neuroendocrine Cancer Awareness Network

What Neuroendocrine Cancer Awareness Network does

Neuroendocrine Cancer Awareness Network (NCAN) is a 501(c)(3) nonprofit patient advocacy organization founded in 2000 and headquartered in Fort Mill, South Carolina. It provides education, peer support, and resources to patients diagnosed with neuroendocrine tumors (NETs), their caregivers, and the healthcare professionals who treat them. Core offerings include a toll-free patient hotline (1-866-850-9555) staffed 365 days a year by patients or caregivers, free worldwide mailings of patient information packets, a nationwide network of 50+ peer-led support group chapters across more than 20 US states, the Whipple Warriors post-surgical support program, ACCME-accredited CME/CEU education for physicians and nurses through the NETCare Pro Education program, and the NETs Get Real monthly podcast and NETsTalk blog.

NCAN's revenue model rests on three streams: individual tax-deductible donations (online, text-to-give, mail, securities, planned giving), merchandise sales through the Zebra Store e-commerce platform (priced $2.50–$112.85 with $5 flat-rate US shipping), and pharma-sponsored educational content delivered through support group speaker programs (Lexicon Pharmaceuticals, AAA, Entrinsic Bioscience). The technology stack is a standard nonprofit configuration: WooCommerce for e-commerce, Constant Contact for email, Feathr for donation processing, and YouTube for video and podcast distribution. The organization holds a formal endorsement of the NCCN Guidelines for Treatment of Neuroendocrine Cancer and maintains resource partnerships with NANETS, PanCAN, and international peer organizations including Australia's Unicorn Foundation. Leadership comprises Founder Maryann Wahmann, President Robert Wahmann, and Board Member Ronda Ayala (Whipple Warriors co-founder); the organization operates with 1–10 staff and no parent company or institutional funding.

Name

Neuroendocrine Cancer Awareness Network

Legal name

Neuroendocrine Cancer Awareness Network Inc.

Website

https://netcancerawareness.org

Company type

Private

Founded year

2000

Operating status

Operating

Headcount range

1–10 employees

Short description

NCAN is a 501(c)(3) nonprofit that provides education, peer support groups, a patient hotline, and ACCME-accredited medical education for the neuroendocrine cancer (NET) community across the United States.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Cancer Support Services

NAICS

Health Care and Social Assistance (62), Individual and Family Services (6241), Social Assistance (624), Educational Support Services (61171)

SIC

Services-Health Services (8000), Services-Misc Health & Allied Services, Nec (8090), Services-Educational Services (8200)

akta.pro primary industry

Non-Communicable Disease Prevention & Chronic Disease Programs (BPAIAJAI)

Keywords

• Neuroendocrine cancer awareness
• Cancer patient support groups
• Cancer education resources
• Patient advocacy nonprofit
• Net cancer community support

Headquarters

HQ city

Fort Mill

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Supply Chain, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Fundraising: NCAN receives tax-deductible donations from individuals through online donation forms, text-to-give (text NCANHELPS to 44-321), phone donations, checks, company matching gift programs, securities gifts, and planned gifts. Donations support patient conferences, support group leadership programs, patient hotline, research programs, community awareness, and medical professional education.
2. Merchandise Sales (Zebra Store): The Zebra Store sells branded merchandise including awareness bracelets, ribbons, apparel, ornaments, jewelry, keychains, car decals, backpacks, and art. All purchases support the NET Cancer community and fund NCAN programs. Products are sold directly through the e-commerce website with $5 flat rate shipping to continental US.
3. Educational Programs: NCAN provides CME programs for physicians and CEUs for nurses through the NETCare Pro Education program, planned in accordance with ACCME accreditation requirements through joint providership with participating universities.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels7 records

Core offering

NCAN is a 501(c)(3) nonprofit patient advocacy organization that provides education, peer support, and resources for individuals affected by neuroendocrine (NET) cancer. Its core offerings include a toll-free patient hotline staffed 365 days/year, a nationwide network of chapter-based support groups, free mailed information packets, the Whipple Warriors support community, ACCME-accredited CME/CEU education for healthcare professionals, and a curated Zebra Store selling awareness merchandise to fund programs.

Product overview

The Neuroendocrine Cancer Awareness Network (NCAN) is a nonprofit patient advocacy organization (not a technology product company) offering a comprehensive ecosystem of support services for NET cancer patients, caregivers, and healthcare professionals. The core offerings include the Zebra Store e-commerce platform (selling awareness merchandise including jewelry, apparel, accessories, and home décor), a peer-support patient hotline staffed by patients and caregivers, free information packets, chapter-based support groups across the US, the Whipple Warriors program for post-surgery patients, NETCare Pro Education for healthcare professionals, the NETs Get Real podcast, NETsTalk blog, patient conferences, the Eugene Woltering Patient Scholarship, and educational resources including NCCN guidelines endorsement, health insurance appeal guides, medical tracking forms, and a cancer glossary. The Zebra Store operates as a WooCommerce-based e-commerce platform with $5 flat rate shipping to continental US. The organization uses Feathr for donation processing, Constant Contact for email communications, and YouTube for video/podcast content distribution.

Differentiator

Problem solved

Functional benefit

Brands

• Whipple Warriors: A dedicated community for Whipple patients and survivors, partnered with NCAN to provide support, education, and advocacy for those undergoing or recovering from Whipple surgery.

Products and services

• Zebra Store (E-commerce Merchandise Platform)

Quantifiable outcome

• Mailed out several thousand free information packets worldwide to patients and caregivers
• +1 more outcomes

Named customers3 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered core and minor.

• Whipple WarriorscoreStrategic or Co-development Partner · 1 May 2010Whipple Warriors is the world's largest community for Whipple surgery patients and survivors, co-founded by Ronda Ayala R.N. in May 2010. The organization educates, advocates for, and supports Whipple patients worldwide before, during, and after surgery. NCAN sponsors WhippleWarriors.com, and Ronda Ayala serves on NCAN's Board of Directors. NCAN's life-saving education helped founder navigate her diagnosis, and the partnership continues to empower patients with strength, knowledge, and hope.
• National Comprehensive Cancer Network (NCCN)coreStrategic or Co-development PartnerNCAN is proud to endorse and sponsor the NCCN Guidelines for the Treatment of Neuroendocrine Cancer. Provides downloadable patient guide for NET treatment protocols.
• Pancreatic Cancer Action Network (PanCAN)minorOthersListed as a neuroendocrine and pancreatic cancer resource partner with cross-referral relationship for patient support.
• Lexicon PharmaceuticalsminorOthersLexicon sponsors educational presentations including 'Carcinoid Syndrome Briefing' and 'Dietary Tips for NET Patients' through NCAN's support group speaker program.
• AAA (Advanced Accelerator Applications)minorOthersAAA sponsors 'Gallium68 Scan and PRRT Briefing' presentations through NCAN's support group speaker program for patient education.
• Entrinsic BioscienceminorOthersEntrinsic sponsors 'The Right Amino Acids at the Right Time: Managing Diarrhea in NETs' presentation through NCAN's support group speaker program.
• North American Neuroendocrine Tumor Society (NANETS)minorOthersListed as a medical professional resource for healthcare providers specializing in neuroendocrine tumors.
• Unicorn Foundation (Australia)minorOthersInternational NET patient organization listed as resource partner for patient support and information.

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• CancerCare: CancerCare is a national nonprofit providing free, professional support services (counseling, education, financial assistance) to anyone affected by cancer. It is comparable in patient support, education, and counseling mission, but covers all cancer types rather than specializing in NETs.
• Cancer Support Community: Cancer Support Community is a global nonprofit network of cancer support centers and online resources. It is comparable in delivering peer-led support groups, educational content, and patient navigation services, but operates at much greater scale and broader disease scope than NCAN's NET specialization.
• National Comprehensive Cancer Network (NCCN): NCCN is the alliance of leading US cancer centers that publishes the clinical guidelines NCAN endorses and sponsors. It is comparable as the authoritative clinical-content reference underlying NET treatment in the US, but operates at institutional scale (31 cancer centers) versus NCAN's patient-advocacy scale.
• American Cancer Society: The American Cancer Society is the largest US cancer nonprofit, funding research, patient support, and awareness across all cancer types. It is comparable in patient-support and awareness mission, but at vastly greater scale and broader scope; ACS does not provide the rare-disease specialization NCAN offers for NETs.
• Pancreatic Cancer Action Network (PanCAN): PanCAN is a much larger US-based pancreatic cancer advocacy nonprofit that already partners with NCAN on cross-referral for pancreatic neuroendocrine tumor patients. It is comparable in patient-advocacy mission and pancreatic-NET crossover, but operates at a far larger scale and broader pancreatic-cancer focus.

Others

• Inspire: Inspire operates one of the largest online patient community platforms, hosting condition-specific support communities including for NET cancer patients. It is comparable as an enabling infrastructure for the peer-support and education function NCAN provides, but is a technology platform rather than a disease-specific advocacy nonprofit.

Regional players

• Unicorn Foundation: The Unicorn Foundation is Australia's primary NET patient advocacy organization. NCAN already lists it as an international resource partner. It is comparable in disease focus, patient support model, and educational programming, but serves an Australian geographic base.
• NET Patient Foundation: NET Patient Foundation is the UK's leading NET patient advocacy organization, operating a parallel mission of patient support, awareness, and healthcare-professional education. It is highly comparable to NCAN in service mix and disease focus, but is regional in scope (UK) rather than US-based.

Direct peers

• Healing NET Foundation: The Healing NET Foundation is another NET-specific patient advocacy nonprofit that funds research, supports patients, and educates the medical community. It directly overlaps with NCAN in disease focus, patient population served, and core programmatic mix (education, awareness, research funding), making it the most direct US-based peer.
• Carcinoid Cancer Foundation: The Carcinoid Cancer Foundation is one of the longest-running patient advocacy organizations specifically focused on neuroendocrine tumors (formerly called carcinoid cancers). It is directly comparable to NCAN in mission (NET awareness, education, and patient support), disease focus, and target audience, and likely draws on overlapping medical advisory networks and pharma sponsors.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat3 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/@neuroendocrinecancerawaren6842/featured
• Facebookfacebook.com/groups/48640349661
• LinkedInlinkedin.com/company/neuroendocrine-cancer-awareness-network-inc

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Neuroendocrine Cancer Awareness Network