PHAWARE GLOBAL ASSOCIATION
Phaware global association is a 501(c)(3) nonprofit that builds digital tools, media, and educational programs — including the Heart Works mobile research app and a 600+ episode podcast — to advance pulmonary hypertension awareness, research participation, and clinician education globally across 110+ countries.
- Company typePrivate
- Founded2015
- HeadquartersBurbank, United States
- Headcount1–10
- GTM typeB2B and B2C
- OfferingServices
What PHAWARE GLOBAL ASSOCIATION does
phaware global association is a 501(c)(3) nonprofit founded in 2015 and headquartered in Burbank, California, that develops digital tools, media, and educational programs for the global pulmonary hypertension (PH) community. Its core assets are the Heart Works mobile research application (iOS, Android, Apple Watch, Amazon) — which enables remote six-minute walk testing, wearable-derived actigraphy/heart rate/oxygen saturation capture, and clinical trial matching via Antidote Match — and the 'I'm Aware That I'm Rare' podcast, which has produced over 600 episodes distributed to listeners in 110+ countries. Supplementary content includes the 'Aware I'm Rare' short film, the 'Lips Painted Blue' pediatric animated series, and free CME/CE modules on PAH for healthcare professionals delivered via a partnership with Prime Education.
The platform architecture is built around two technical differentiators: a validated remote 6MWT — under study with Stanford (DynAMITE PAH Study) and the University of Alberta (CRAVE pilot) — that aims to qualify home-based exercise testing for PH clinical trials, and an AI-powered Patient Lived Experience Portal that answers patient questions across 20+ languages using the organization's content library, with audio delivery supported by ElevenLabs through its Impact Program.
The business model is nonprofit and donation- and sponsorship-funded rather than transaction-based. Patient-facing products (app, podcast, films) are free; the only retail product line is branded merchandise sold at a flat $10 unit price (pins, ceramic pendants, PopSockets, earphones) with net proceeds directed to PH research funds. Operating cash flow depends on individual donations (including DAF Direct), grants, and corporate sponsorships from a 2026 roster of six pharmaceutical companies — Merck, Johnson & Johnson, Liquidia Technologies, Gossamer Bio, Pulmovant, and Insmed — plus on-site advertising (e.g., Yutrepia) on phaware.global. Custom primary customers are PH/PAH patients and caregivers, healthcare professionals (pulmonologists, cardiologists, NPs, PAs, pharmacists), and academic clinical researchers; the organization has 1–10 employees.
PHAWARE GLOBAL ASSOCIATION firmographics
Firmographics- Name
- PHAWARE GLOBAL ASSOCIATION
- Legal name
- phaware global association
- Website
- https://phaware.global
- Company type
- Private
- Founded year
- 2015
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Phaware global association is a 501(c)(3) nonprofit that builds digital tools, media, and educational programs — including the Heart Works mobile research app and a 600+ episode podcast — to advance pulmonary hypertension awareness, research participation, and clinician education globally across 110+ countries.
- Ownership category
- akta.pro rank
PHAWARE GLOBAL ASSOCIATION industry classification
Industry- Product category
- Rare Disease Advocacy and Patient Education
- NAICS
- Other Similar Organizations (except Business, Professional, Labor, and Political Organizations) (813990), Motion Picture and Video Industries (5121), Scientific Research and Development Services (5417)
- SIC
- Services-Misc Health & Allied Services, Nec (8090), Miscellaneous Publishing (2741)
- akta.pro primary industry
- eCOA/ePRO/eDiary & Patient-Facing Data Collection (HLACAOAB)
- akta.pro secondary industries
- Real-World Data (RWD) / Real-World Evidence (RWE) & Observational Research Platforms (HLACAOAM), Audio Learning Content (Podcasts, Audiobooks, Listening Programs) (EDAGALAM)
Keywords
Where PHAWARE GLOBAL ASSOCIATION is headquartered
LocationHeadquarters
- HQ city
- Burbank
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
PHAWARE GLOBAL ASSOCIATION business model
Business model- GTM type
- B2B and B2C
- Offering type
- Services
- Cost components
- Personnel, Technology or R&D, Operations, Marketing or Sales, Others
Revenue model
- Donations and Charitable Contributions: As a 501(c)(3) nonprofit organization, phaware receives tax-deductible donations from individuals and organizations. The organization promotes donor-advised fund (DAF) giving through DAF Direct.
- Corporate Sponsorship: Annual sponsorship support from pharmaceutical companies including Merck, Johnson & Johnson, Liquidia Technologies, Gossamer Bio, Pulmovant, and Insmed. These sponsorships support webinars, events, and general operations.
- Merchandise Sales: Online store selling branded merchandise (pins, pendants, PopSockets, earphones) at $10 per item. All net proceeds go directly to PH research funds.
- Pharmaceutical Advertising: The platform hosts sponsored content from pharmaceutical companies including Yutrepia (Liquidia Technologies) advertisements on the website.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Unit Pricing | Pay-as-you-go | Branded merchandise (pins, pendants, PopSockets, earphones) - $10 per item |
| Freemium | Pay-as-you-go | Heart Works mobile app - Free |
| Freemium | Pay-as-you-go | CME/CE educational content - Free |
Go-to-market motion2 records
Distribution channels5 records
Marketing channels8 records
PHAWARE GLOBAL ASSOCIATION product offering
Product offeringCore offering
phaware global association is a 501(c)(3) nonprofit that develops digital tools, media, and educational resources to advance pulmonary hypertension awareness and research. Its core offerings include the Heart Works mobile research app (remote six-minute walk testing, wearable data collection, clinical trial matching, and AI-powered patient education), the 'I'm Aware That I'm Rare' podcast series with 600+ episodes, CME/CE accredited medical education, branded awareness merchandise, and short film/animated content, all distributed globally to patients, caregivers, clinicians, and researchers.
Product overview
PHAWARE GLOBAL ASSOCIATION operates a unified digital health platform centered on the Heart Works mobile research application, complemented by the I'm Aware That I'm Rare podcast series (600+ episodes), educational films, animated content for children, and CME/CE programs for healthcare professionals. The organization also sells branded merchandise (trading pins, earphones, ceramic pendants, PopSockets) through its store, with all net proceeds directed to pulmonary hypertension research funds. The Heart Works app serves as the primary product, integrating wearable device data collection, clinical trial matching, and AI-powered patient education across 40+ countries.
Differentiator
Problem solved
Functional benefit
Brands
- Heart Works: A pulmonary hypertension mobile research and resource app that enables real-time health tracking, at-home six-minute walk tests, remote clinical trial participation, and connects patients with the global PH community.
- I'm Aware That I'm Rare Podcast
- Aware I'm Rare Film
Products and services
- Heart Works App A free pulmonary hypertension mobile research application for iOS and Android that enables remote patient monitoring, at-home six-minute walk testing with Apple Watch and Android wearables, clinical trial matching via Antidote Match, AI-powered patient education in 20+ languages through the Patient Lived Experience Portal, and access to the global PH community. Available in 40+ countries for PH patients.
- I'm Aware That I'm Rare Podcast A weekly podcast series devoted to raising global pulmonary hypertension awareness featuring dynamic stories from PH patients, caregivers, and medical professionals from around the world, with over 600 episodes distributed via standard podcast players and dedicated iPhone, Android, and Amazon apps. Heard in 110+ countries.
- Aware I'm Rare Film
Quantifiable outcome
- 600+ podcast episodes produced and distributed globally
- +3 more outcomes
Companies that use PHAWARE GLOBAL ASSOCIATION
Customer profileNamed customers3 records
Segments4 records
Ideal customer profiles5 records
PHAWARE GLOBAL ASSOCIATION technology and API
TechnologyTechnology focussed Yes
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration3 records
AI capability4 records
Feature4 records
PHAWARE GLOBAL ASSOCIATION partnerships and signals
Strategic signalPartnerships
Eight partnerships are on record, tiered core and minor.
- Stanford MedicinecoreAcademic partner conducting the DynAMITE PAH Study for self-administered 6MWT validation. Dr. Roham Zamanian (Stanford) serves as principal investigator and medical advisor/board member to phaware.
- University of AlbertacoreAcademic research partner for the CRAVE pilot study testing novel therapies for right heart failure in pulmonary hypertension patients. Dr. Jason Weatherald serves as principal investigator.
- PHAEuropecoreEuropean pulmonary hypertension association collaborating with phaware to advance global PH awareness and provide resources for European patients.
- PHA CanadacoreCanadian PH association partnering with phaware for the Vancouver Interviews 2026 event at their PH Community Conference in Vancouver, Canada.
- PPHNetcorePulmonary hypertension network organization collaborating as a core partner in the Heart Works ecosystem to connect patients with PH resources globally.
- Team PHenomenal HopeminorPatient advocacy organization partnering with phaware to support the global PH community through awareness initiatives.
- Pulmonary Hypertension NewsminorBionews-owned publication providing PH news content and updates within the Heart Works app platform for patient education.
- Prime EducationcoreHealthcare education company providing free accredited CME/CE activities for healthcare professionals on PAH topics including diagnosis, treatment guidelines, and management strategies.
Scale indicators4 records
Recent moves6 records
Expansion highlights6 records
PHAWARE GLOBAL ASSOCIATION competitors and assessment
Company assessmentBroad incumbents
- Pulmonary Hypertension Association (PHA): The leading US-based pulmonary hypertension patient advocacy nonprofit with the largest membership base and longest operating history. PHA is the closest comparable in mission (PH awareness, education, research support) but operates at materially larger scale and offers broader patient services beyond phaware's digital-content focus.
- National Organization for Rare Disorders (NORD): US umbrella organization for all rare diseases including PH. Comparable in nonprofit advocacy and patient-education mission, but operates at much larger scale across thousands of conditions rather than specializing in PH.
Others
- Prime Education: Healthcare education company co-developing phaware's accredited CME/CE activities. Comparable as an enabling partner in HCP education rather than a competing advocacy organization, but useful as a benchmark for monetizing PH education content at scale.
- Antidote (Antidote Match): Clinical trial matching technology provider integrated into phaware's Heart Works app. Comparable as an enabling technology for patient-recruitment workflows, though operating as a vendor/partner rather than a direct advocacy competitor.
Regional players
- Scleroderma Foundation: US patient advocacy nonprofit for scleroderma, a related rare connective-tissue disease that frequently involves pulmonary hypertension. Comparable as a rare-disease advocacy nonprofit with overlapping patient population and similar pharmaceutical-sponsorship model.
Direct peers
- PHA Europe: European umbrella pulmonary hypertension patient association and active phaware partner. Directly comparable in advocacy mission and PH-awareness content focus, serving the same patient population across Europe rather than competing for the same primary user base.
- Team PHenomenal Hope: PH patient advocacy nonprofit focused on endurance fundraising and community engagement. Comparable in PH-specific advocacy mission with overlapping digital-community and awareness activities; both compete for similar donor mindshare.
- PPHNet (Pulmonary Hypertension Network): Pediatric and adult pulmonary hypertension clinical research network and active phaware partner. Comparable in PH-specific mission but more clinically/research-oriented than patient-content-oriented, making it a complementary peer within the same disease niche.
- PHA Canada: Canadian PH patient association partnering with phaware on the Vancouver Interviews 2026 event. Directly comparable in advocacy mission and PH community engagement, primarily serving Canadian patients while co-developing content with phaware.
Emerging players
- Pulmonary Hypertension News (Bionews): Bionews-owned digital publication providing PH-specific news and patient education; a content partner that runs adjacent to phaware's podcast/app ecosystem. Comparable as a PH-information destination serving the same patient audience via different content format.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks6 records
Key highlights7 records
Customer concentration
PHAWARE GLOBAL ASSOCIATION social profiles
Digital presencePHAWARE GLOBAL ASSOCIATION financial estimates
Financial estimateRevenue estimate
Valuation estimate
PHAWARE GLOBAL ASSOCIATION leadership team
Management profileNumber of profiles
Profiles7 records
PHAWARE GLOBAL ASSOCIATION funding detail
Funding detailFunding overview
Funding rounds
Investors
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PHAWARE GLOBAL ASSOCIATION M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about PHAWARE GLOBAL ASSOCIATION
What does PHAWARE GLOBAL ASSOCIATION do?
phaware global association is a 501(c)(3) nonprofit that develops digital tools, media, and educational resources to advance pulmonary hypertension awareness and research. Its core offerings include the Heart Works mobile research app (remote six-minute walk testing, wearable data collection, clinical trial matching, and AI-powered patient education), the 'I'm Aware That I'm Rare' podcast series with 600+ episodes, CME/CE accredited medical education, branded awareness merchandise, and short film/animated content, all distributed globally to patients, caregivers, clinicians, and researchers.
Is PHAWARE GLOBAL ASSOCIATION a public or private company?
PHAWARE GLOBAL ASSOCIATION is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was PHAWARE GLOBAL ASSOCIATION founded?
PHAWARE GLOBAL ASSOCIATION was founded in 2015. It employs 1 to 10 people.
Where is PHAWARE GLOBAL ASSOCIATION based?
PHAWARE GLOBAL ASSOCIATION is headquartered in Burbank, United States, in the North America region.
How does PHAWARE GLOBAL ASSOCIATION make money?
Four revenue lines are on record. Donations and Charitable Contributions are the primary driver. The others are corporate Sponsorship, merchandise Sales and pharmaceutical Advertising.
Who are PHAWARE GLOBAL ASSOCIATION's main competitors?
Broad incumbents on record are Pulmonary Hypertension Association (PHA) and National Organization for Rare Disorders (NORD). Others are Prime Education and Antidote (Antidote Match). Scleroderma Foundation is listed as a regional player. Direct peers are PHA Europe, Team PHenomenal Hope, PPHNet (Pulmonary Hypertension Network) and PHA Canada. Pulmonary Hypertension News (Bionews) is listed as an emerging player.
Does PHAWARE GLOBAL ASSOCIATION have an API?
No public API is recorded for PHAWARE GLOBAL ASSOCIATION.
What industry is PHAWARE GLOBAL ASSOCIATION in?
PHAWARE GLOBAL ASSOCIATION's product category is Rare Disease Advocacy and Patient Education. Its primary akta.pro industry code is HLACAOAB, eCOA/ePRO/eDiary & Patient-Facing Data Collection, with a secondary code of HLACAOAM, Real-World Data (RWD) / Real-World Evidence (RWE) & Observational Research Platforms. Its NAICS code is 813990 and its SIC code is 8090.