Patient Voice Initiative Incorporated

What Patient Voice Initiative Incorporated does

Patient Voice Initiative Incorporated (PVI) is an Australian nonprofit organization, registered as an incorporated association in New South Wales (PO Box 2214, Woolooware NSW 2230), that helps patients, carers, and patient advocacy groups understand and participate in Australian healthcare reimbursement and health technology assessment (HTA) processes — specifically the Pharmaceutical Benefits Scheme (PBS), Medicare Benefits Schedule (MBS), Pharmaceutical Benefits Advisory Committee (PBAC), and Medical Services Advisory Committee (MSAC). It is not a technology company in the conventional sense; its underlying platform is a content-and-community operation built around a main website, a dedicated Patient Voice Hub (patientvoicehub.org), a podcast distributed on Spotify, Apple Podcasts, and Google Podcasts, an email newsletter, and active Facebook and LinkedIn presences. Core offerings include a Resource Library of downloadable tip sheets and guides, an A-to-Z glossary of 165+ HTA terms, PBAC and MSAC-specific consumer comment resources, the open-access 'Patient Involvement in Health Technology Assessment' eBook (second edition, 120+ authors), and bespoke research reports such as the 2018 'Recommendations to Improve the Patient Voice in HTA' report and the 2023 'Enhancing Patient Engagement' report co-produced with CaPPRe.

PVI's business model is nonprofit sponsorship- and grant-funded, with the organization acknowledging healthcare-sector sponsors on its website and conducting paid or sponsored workshops and training sessions for patient groups. All consumer-facing resources — guides, tip sheets, glossary, podcast episodes, and hub tools — are provided free of charge, making the GTM motion community-led and content-driven rather than transactional. Primary user segments are individual patients/health consumers (primary), patient advocacy organizations and disease-specific groups (primary), and carers and family members (secondary); workshops have been delivered to organizations including Crohn's & Colitis Australia, and PVI supports Australian Genomics' 'Involve Australia' community-led genomics initiative.

The operating model is lightweight: no headcount is disclosed, no app exists, no API or SDK is offered, and there are no patents, certifications, or funding rounds on record. Strategic positioning centers on being the only dedicated Australian resource focused specifically on patient participation in PBAC/MSAC processes, with adjacent expansion into genomic research community involvement via the Australian Genomics partnership. Active copyright extends to 2026, and the organization continues to publish new content and research outputs.

Name

Patient Voice Initiative Incorporated

Legal name

Patient Voice Initiative Incorporated

Website

https://patientvoiceinitiative.org

Company type

Private

Founded year

2015

Operating status

Operating

Headcount range

1–10 employees

Short description

Australian nonprofit that helps patients, carers, and patient advocacy groups understand and participate in PBAC, MSAC, PBS, and MBS health technology assessment processes through free online guides, workshops, a podcast, and an HTA glossary.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Other Individual and Family Services (624190)

SIC

Services-Health Services (8000)

akta.pro primary industry

Patient Education, Content & Personalized Journey Orchestration (HLACAEAE)

akta.pro secondary industry

Patient Feedback, Surveys, Reputation & Experience Measurement (VoC) (HLACAEAH)

Keywords

• Patient advocacy
• Health technology assessment
• Patient engagement
• Consumer participation
• Healthcare reimbursement

Headquarters

HQ city

Woolooware

HQ country

Australia

HQ region

Oceania

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Sponsorships and Grants: The organization operates with sponsors and receives support to fund its educational initiatives and advocacy work. Sponsors are acknowledged on the organization's website.
2. Workshop and Training Services: The organization conducts workshops and training sessions for patient groups, carers, and healthcare consumers on how to participate effectively in PBAC and MSAC consultations.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels6 records

Core offering

Patient Voice Initiative provides free educational resources, guides, tip sheets, a glossary of health technology assessment terms, a podcast, and workshops that help Australian patients, carers, and patient groups understand and participate in PBAC and MSAC consultation processes for medicines and treatments reimbursement decisions. The organization also publishes research reports and an open-access eBook to strengthen patient involvement in health technology assessment.

Product overview

Patient Voice Initiative Incorporated operates a primarily educational and informational platform focused on patient advocacy and healthcare decision-making participation in Australia. The core offering consists of the Patient Voice Hub portal, The Patient Voice Podcast, and a comprehensive Resource Library containing tip sheets, guides, and educational materials. These resources are designed to help patients, carers, and patient groups understand and participate in processes for PBS (Pharmaceutical Benefits Scheme) and Medicare listing decisions through the Pharmaceutical Benefits Advisory Committee (PBAC) and Medical Services Advisory Committee (MSAC). The organization also publishes research reports including the Patient Involvement in Health Technology eBook and periodic research reports on patient engagement. The products work together to provide a comprehensive suite of educational resources, practical guides, and community-building tools for patient advocacy.

Differentiator

Problem solved

Functional benefit

Products and services

• Patient Voice Hub Online portal that provides quick guidance on how to give input for PBS and Medicare listing decisions, designed to help patients and health consumers participate in healthcare decision-making processes.
• The Patient Voice Podcast Podcast series exploring real experiences of health and healthcare through the people who most depend on it, aiming to help build better care for all Australians.
• Resource Library Downloadable collection of tip sheets, guides, and educational materials organized for patients, carers, and patient groups to help them understand and participate in healthcare decision-making.
• A to Z Glossary of HTA Terms Comprehensive glossary of health technology assessment terms and healthcare jargon from A to Z, helping patients and carers understand the language used in healthcare decision-making processes.
• PBAC Consumer Comment Resources Guides, tip sheets, and dos-and-don'ts for submitting consumer comments to the Pharmaceutical Benefits Advisory Committee, including guidance on how to make a difference in PBS listing decisions.
• MSAC Input Resources Resources and guides to help patients provide input about what is funded on the Medicare Benefits Schedule, including information about the Medical Services Advisory Committee process.
• Patient Involvement in Health Technology eBook Open access book with 120+ authors covering concepts, methods, and examples of how patient participation and research improves processes for healthcare funding decisions, including coverage of HTA, patient preferences research, and international perspectives.
• PVI-CaPPRe Enhancing Patient Engagement Report 2023 Research report conducted in partnership with CaPPRe (Community and Patient Preference Research) to understand the needs and preferences of patient communities when interacting with biopharmaceutical companies.
• Recommendations to Improve the Patient Voice in HTA Report (2018) Report containing recommendations for PBAC, MSAC and PLAC based on needs expressed at PVI workshops in 2016, including examples of how other HTA bodies meet these needs.
• Workshops and Training Sessions for Patient Groups In-person and virtual workshops and training sessions delivered to patient groups and healthcare organizations on how to engage with PBAC and MSAC processes.

Quantifiable outcome

• Provides resources and guidance that helps patient groups like Crohn's & Colitis Australia improve how they collect patient feedback for PBAC submissions
• +1 more outcomes

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Four partnerships are on record, tiered core and minor.

• Australian GenomicscoreStrategic or Co-development Partner · 1 January 2024PVI supports Involve Australia, a community-led project coordinated by Australian Genomics. This initiative aims to give the public a stronger voice in genomic research and standardize community involvement practices in genomic research across Australia. PVI provides a platform to share guidelines and resources for community involvement.
• CaPPRe (Community and Patient Preference Research)coreStrategic or Co-development Partner · 1 January 2023PVI partnered with CaPPRe to conduct the 'Enhancing Patient Engagement in Australia Report 2023'. This research partnership studied the needs and preferences of patient organizations and patient advocates when interacting with biopharmaceutical companies. The collaboration aims to improve patient engagement practices across the healthcare industry.
• HTAi (Health Technology Assessment international)minorOthersPVI provides links to and resources from HTAi's Patient and Citizen Involvement Interest Group (PCIG), an international group that advocates for patient involvement in HTA and provides tools to help patients and carers get involved. PVI also shares HTAi's glossary and guidance documents for patient groups.
• Crohn's & Colitis AustraliaminorStrategic or Co-development PartnerCrohn's & Colitis Australia has participated in PVI workshops and provided feedback on the value of PVI's training for patient advocacy. Workshop participants from the organization reported that the training helped them understand how to better advocate for medication access.

Scale indicators2 records

Recent moves6 records

Expansion highlights6 records

Market position

Competitive moat4 records

Key highlights5 records

Customer concentration

• Facebookfacebook.com/patientvoiceinitiative
• LinkedInlinkedin.com/company/patient-voice-initiative

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Patient Voice Initiative Incorporated