The Endometriosis Coalition

What The Endometriosis Coalition does

The Endometriosis Coalition is a Philadelphia-based 501(c)(3) nonprofit that provides endometriosis education, patient support, advocacy, awareness events, and research-funding initiatives. It primarily serves women and girls living with or affected by endometriosis, while its work also engages medical professionals, policymakers, and researchers. The organization was founded by Jenneh Rishe, a registered nurse whose delayed diagnosis and subsequent thoracic endometriosis diagnosis shaped its patient-centered mission.

Operationally, it operates a website-based education and community resource hub with downloadable guidance for OB-GYN conversations, surgical consultations, pelvic-floor physical therapy, and related topics. Its service surface includes monthly Zoom support groups facilitated by a licensed psychotherapist, in-person and virtual events, documentary screenings, specialist roundtables, and Capitol Hill advocacy. The disclosed technology is limited to website content and community facilitation; no mobile app, proprietary model, or disclosed data asset is identified.

The business model is donation-led, supplemented by direct-to-consumer branded merchandise sold through an owned online store. Products include apparel, accessories, and drinkware priced from $20 to $45, while donation amounts are voluntary and not publicly disclosed. Community-led distribution combines educational content, recurring support groups, events, policy advocacy, and online commerce; revenue, donor, participant, and conversion data are not publicly disclosed.

Name

The Endometriosis Coalition

Legal name

The Endometriosis Coalition

Website

https://theendo.co

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

The Endometriosis Coalition is a Philadelphia-based nonprofit providing endometriosis education, virtual and in-person support, advocacy, and awareness resources to patients, affected communities, medical professionals, and policymakers through its website, support groups, community events, documentary screenings, and policy initiatives.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Chronic Disease Awareness

NAICS

Voluntary Health Organizations (813212), Social Advocacy Organizations (8133), Religious, Grantmaking, Civic, Professional, and Similar Organizations (813)

SIC

Services-Membership Organizations (8600), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industries

Patient Advocacy, Navigation & Access to Care (BPAGACAH), Rare Disease & Special Needs Support Organizations (BPAGACAM)

Keywords

• Patient advocacy services
• Endometriosis disease awareness
• Chronic illness education
• Nonprofit healthcare support
• Patient support groups

Headquarters

HQ city

Philadelphia

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Supply Chain, Others

Revenue model

1. Donations and Charitable Contributions: Tax-deductible donations from individuals supporting endometriosis awareness, education, and research funding missions.
2. Merchandise Sales: Sale of branded merchandise including apparel (t-shirts, hoodies, sweatshirts), accessories (beanies, hats), and drinkware (mugs). Products priced at $20-$45 range.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels5 records

Core offering

The Endometriosis Coalition is a 501(c)(3) nonprofit that provides endometriosis patient education, monthly virtual patient support groups, downloadable resources for navigating medical appointments, awareness events including documentary screenings, and policy advocacy aimed at increasing research funding and improving healthcare access for patients. The organization also sells branded merchandise (apparel and accessories) through its online shop to fund and amplify its awareness mission.

Product overview

The Endometriosis Coalition is a 501(c)(3) non-profit organization that operates as a single unified advocacy and education platform. The organization's offerings include merchandise (branded apparel and accessories sold through its online shop) and core services consisting of virtual patient support groups, educational resources for navigating healthcare, and awareness/education events including documentary screenings and Capitol Hill advocacy. The merchandise shop and core services operate as part of a single integrated mission to raise awareness, promote reliable education, and increase research funding for endometriosis.

Differentiator

Problem solved

Functional benefit

Products and services

• The Endo Co Unisex White T-Shirt
• The Endo Co Unisex Black Hoodie 50% cotton and 50% polyester unisex black hoodie with air-jet spun yarn, double-lined hood with matching drawcord, and front pouch pocket, priced at $45.00, sold through the organization's online shop to support endometriosis awareness.
• The Endo Co Unisex Black Sweatshirt Pre-shrunk classic fit unisex black sweatshirt made with 50% cotton and 50% polyester air-jet spun yarn for reduced pilling, priced at $40.00, sold through the organization's online shop to support endometriosis awareness.
• The Endo Co Black Cuffed Beanie 100% Turbo Acrylic hypoallergenic unisex black cuffed beanie that is hand washable, priced at $22.50, sold through the organization's online shop to support endometriosis awareness.
• The Endo Co Mug with Color Inside Ceramic mug with a colorful rim, handle, and inside with white print area, dishwasher and microwave safe, priced at $20.00, sold through the organization's online shop to support endometriosis awareness.
• The Endo Co Black Corduroy Hat 100% cotton corduroy black hat with soft unstructured crown, cotton twill sweatband and taping, adjustable buckle, priced at $30.00, sold through the organization's online shop to support endometriosis awareness.
• Virtual Patient Support Group Monthly virtual support group meeting via Zoom on the last Thursday of each month for endometriosis patients, facilitated by licensed psychotherapist Amanda Dahlin, covering topics such as acceptance, mindfulness, and distress tolerance. Access requires email sign-up for meeting codes.
• Educational Resources Library Downloadable resources to help endometriosis patients communicate with medical teams, including FAQs on pelvic floor physical therapy, prompts for discussing endometriosis with OBGYNs, questions for surgical consultations, and book recommendations.
• Awareness and Education Events In-person and virtual awareness events including documentary screenings (such as Below The Belt), round table discussions featuring medical experts and policymakers, and Capitol Hill advocacy events aimed at raising endometriosis awareness.

Quantifiable outcome

• Monthly virtual patient support groups facilitated for endometriosis community
• +2 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Seven partnerships are on record, tiered core and minor.

• Dr. Iris Orbuch / Iris Wings Sanctuary For Endometriosis Surgery & WellnesscoreStrategic or Co-development PartnerDr. Iris Kerin Orbuch is a fellowship trained endometriosis excision surgeon and founder of Iris Wings Sanctuary in Los Angeles. She serves as Physician Advisor to The Endometriosis Coalition and author of 'Beating Endo'. She has served as chair of AAGL (American Association of Gynecologic Laparoscopy) and is an active member of SWHR's Endometriosis Education & Research working group.
• Dr. Gaby Moawad / Center For Endometriosis and Advanced Pelvic SurgerycoreStrategic or Co-development PartnerDr. Gaby Moawad is a board-certified gynecological surgeon and founder of The Center For Endometriosis and Advanced Pelvic Surgery in Washington DC. He serves as Physician Advisor to The Endometriosis Coalition, specializing in laparoscopic and robotic techniques. He serves as Director of Robotic Gynecologic Surgery and Associate Professor at George Washington University.
• Center for Endometriosis CarecoreStrategic or Co-development PartnerListed as a Proud Partner. Heather Guidone, BCPA, serves as Program Director of the Center for Endometriosis Care and also serves as Advocacy Advisor to The Endometriosis Coalition. The Center provides expertise in endometriosis care and treatment.
• Society For Women's Health Research (SWHR)coreStrategic or Co-development PartnerThe Endometriosis Coalition is a member of SWHR's Endometriosis Working Group. SWHR's Endometriosis Education Working Group includes interdisciplinary experts including clinicians, researchers, policy thought leaders, and patient advocates. The partnership includes advocacy initiatives and Capitol Hill engagement.
• Below The Belt Documentary / EndoWhat?coreGTM or Marketing PartnerThe Endometriosis Coalition is part of the Below The Belt documentary's Social Impact Team. Below The Belt is a documentary about endometriosis by Director Shannon Cohn with Executive Producers Hillary Rodham Clinton, Rosario Dawson, Corinne Foxx, and Mae Whitman. The film aims to ignite changes in US healthcare policy. The organization hosted screenings including one at Capitol Hill.
• National Institutes of Health (NIH)minorOthersFounder Jenneh Rishe served as Expert Evaluation Panelist for the NIH RADx Tech ACT ENDO Challenge in 2024, which offered up to $3 million in prizes to accelerate development of non-invasive technologies to improve endometriosis diagnosis.
• Department of Defense (DOD) Peer-Reviewed Medical Research ProgramminorOthersThe Endo Co team members serve as consumer advocates helping evaluate research applications to determine how DOD-congressional appropriations for endometriosis research should be dispersed.

Scale indicators6 records

Recent moves4 records

Expansion highlights5 records

Emerging players

• Endo Black, Inc. 501(c)(3) advocacy organization focused on the Black endometriosis experience. Sibling nonprofit with a narrower equity-focused mission that competes for the same donor and volunteer pool in the endometriosis advocacy space.
• PCOS Challenge: The National Polycystic Ovary Syndrome Association: Largest patient-support and advocacy organization for polycystic ovary syndrome, a related but distinct women's health condition. Operates a closely analogous patient-advocacy, awareness, and Capitol Hill engagement model and competes for overlapping donor mindshare in women's health.
• Center for Endometriosis Care: Atlanta-based clinical and patient-resource center, with whom the Endometriosis Coalition has a formal 'Proud Partner' relationship. Comparable in mission but operates primarily as a clinical-and-advocacy hybrid rather than a pure patient-advocacy nonprofit.

Broad incumbents

• HealthyWomen: National independent nonprofit providing women with health information and education across conditions. Operates in the overlapping patient-education and women's-health-awareness space and represents a larger, more institutionalized alternative to the coalition's educational programming.
• National Women's Health Network: Washington DC-based advocacy organization focused on women's health policy, including federal research funding, FDA policy, and insurance coverage. Overlaps with the coalition's policy advocacy work and competes for the same federal-level advocacy and donor audiences.
• Society for Women's Health Research (SWHR): National nonprofit dedicated to advancing women's health research and policy. The Endometriosis Coalition is a member of SWHR's Endometriosis Working Group; SWHR is a broader incumbent operating in the same federal policy and research-funding space.

Direct peers

• Nancy's Nook Endometriosis Education: Large, evidence-based endometriosis education community and Facebook group with curated specialist directories. Overlaps with the coalition's patient-education and specialist-finding mission and competes for the same patient audience.
• Endometriosis Foundation of America: Founded by Dr. Tamer Seckin, the Endometriosis Foundation of America is a leading nonprofit dedicated to endometriosis awareness, research funding, and excision-surgery education. It is the most prominent direct competitor in the same disease-specific advocacy and education niche.
• Worldwide EndoMarch: Patient-led, annual international endometriosis march and advocacy organization with chapters in multiple countries. Operates in the same awareness, education, and Capitol Hill advocacy space as the Endometriosis Coalition.
• Endo What?: School nurse and documentary maker Shannon Cohn's patient-advocacy organization behind the original Endo What? documentary and social impact campaign. Closely comparable to the Endometriosis Coalition in mission and grassroots-advocacy positioning.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• LinkedInlinkedin.com/company/theendoco

Revenue estimate

Valuation estimate

Number of profiles

Profiles8 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about The Endometriosis Coalition