Illinois Lyme Association

Name

Illinois Lyme Association

Legal name

Illinois Lyme Association

Website

https://illymeassociation.org

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Nonprofit Disease Education and Advocacy

NAICS

Environment, Conservation and Wildlife Organizations (813312)

SIC

Services-Membership Organizations (8600), Services-Educational Services (8200)

akta.pro primary industry

Tick-Borne & Vector-Borne Diseases (HLAKAGAL)

akta.pro secondary industry

Vector-Borne Disease Surveillance & Control (HLAJABAG)

Keywords

• Lyme disease education
• Tickborne disease awareness
• Patient advocacy services
• Medical CME conferences
• Nonprofit health education

Headquarters

HQ city

Aledo

HQ country

United States

HQ region

North America

Offices2 records

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Marketing or Sales, Operations, Others

Revenue model

1. Donations: The organization is a registered 501(c)(3) nonprofit that accepts tax-deductible donations at various levels ($25, $50, $100, $500, $1,000 and custom amounts) on a one-time, weekly, monthly, quarterly, or annual basis. Donations support tick removal kits, educational talks, and general operations.
2. Conference Sponsorships and Exhibitor Booths: Revenue generated from medical conference sponsorships at various tiers (Diamond $10,000, Platinum $5,000, Gold $2,500, Silver $1,500, Bronze $750), meal sponsorships, and exhibitor booth fees ($1,000 for-profit, $500 nonprofit).
3. Exhibitor Booth Fees: For-profit exhibitors pay $1,000 for booth with table, 2 chairs, sponsored newsletter, and name recognition. Nonprofit exhibitors pay $500.
4. ILA Store: Online merchandise store selling educational materials, tick prevention items, and promotional products.
5. Mental Health Grants: Grant funding from Illinois counties (Knox, Mercer, Henry) through the State's Mental Health 708 Grant program to provide mental health education on Lyme and tickborne diseases.

Pricing tiers

Go-to-market motion2 records

Distribution channels5 records

Marketing channels9 records

Core offering

Illinois Lyme Association is a 501(c)(3) nonprofit that provides statewide Lyme and tickborne disease education, advocacy, patient support, and CME-accredited healthcare provider training. It operates an annual medical conference, distributes educational materials and trail signs statewide, runs a merchandise store, manages an Illinois Lyme Awareness License Plate program, and supports patient support groups across Illinois.

Product overview

Illinois Lyme Association operates a nonprofit educational platform offering multiple interconnected programs and resources focused on Lyme disease and tick-borne illness awareness, prevention, and support. The core offerings include the annual Foundations in Tickborne Diseases Medical Conference (featuring ILADS Vector-borne Illness Fundamentals curriculum with CME credits), comprehensive educational resources covering Lyme overview, tick basics, mental health, and hunter safety, printable factsheets in multiple languages, educational videos on permethrin application and tick testing, the TREE™ prevention program, patient support groups and advocacy services, the Be Tick Aware trail sign program developed with IDPH and IDNR, an online store, and the Target250 survey campaign. The organization also provides an online store for merchandise and tick removal kits, and manages an Illinois license plate program for awareness fundraising.

Differentiator

Problem solved

Functional benefit

Products and services

• Foundations in Tickborne Diseases Medical Conference A one-day CME-accredited medical conference providing clinical education for physicians, physician associates, nurses, pharmacists, social workers, and paramedics on Lyme and tickborne diseases, including pathophysiology, coinfections, psychiatric manifestations, and pediatric Lyme.
• ILA Store Online storefront selling merchandise including tick removal kits, Lyme awareness items, and promotional materials to support the nonprofit's mission and generate program revenue.
• ILA License Plate Program Illinois Lyme Awareness License Plate program allowing Illinois residents to purchase specialty license plates to raise statewide awareness and support the organization.
• TREE™ Tick Prevention Program Tickborne disease education and awareness program focused on tick prevention resources and evaluation across Illinois communities.
• Be Tick Aware Trail Signs and Posters Educational park trail signs and laminated posters developed in collaboration with the Illinois Department of Public Health (IDPH) and Illinois Department of Natural Resources (IDNR) to raise tick prevention awareness at parks and recreational areas statewide.

Quantifiable outcome

• Target250 survey with 250+ responses revealing that 86.5% were told symptoms weren't real, 69% developed mental health symptoms, and 32% spent $10,000+/year on treatment.
• +3 more outcomes

Named customers3 records

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature2 records

Partnerships

Six partnerships are on record, tiered core and minor.

• Illinois Department of Public Health (IDPH)coreStrategic or Co-development PartnerJoint initiative to develop 'Be Tick Aware' park trail signs and laminated posters. IDPH provides tick surveillance data and interactive tick maps. ILA participated in IDPH's 2026 Illinois Vectorborne Disease Conference.
• Illinois Department of Natural Resources (IDNR)coreStrategic or Co-development PartnerCollaboration with IDNR for 'Be Tick Aware' park trail signs and laminated posters for Illinois parks and recreational areas.
• Illinois Natural History Survey (INHS) - University of Illinois Urbana-ChampaigncoreStrategic or Co-development PartnerINHS Medical Entomology Lab provides free tick identification and surveillance program for Illinois residents. INHS provides tick/disease data factsheets and collaborates on statewide tick surveillance. Dr. Holly Tuten serves as vector ecologist.
• ILADS (International Lyme and Associated Diseases Society)coreStrategic or Co-development PartnerILA's medical conference features ILADS Vector-borne Illness Fundamentals curriculum. ILADS is a nonprofit international medical society dedicated to improving diagnosis and treatment of Lyme disease.
• Knox, Mercer, and Henry County Health DepartmentsminorChannel Partner/ Reseller/ DistributorCounty health departments awarded mental health grants through the State's Mental Health 708 Grant program to fund Lyme and tickborne disease mental health education programs.
• CDC (Centers for Disease Control and Prevention)minorStrategic or Co-development PartnerSusanna Visser, DrPH, MS serves as special guest speaker at ILA's 2026 networking reception. CDC's DVBD division coordinates vectorborne disease policy and research.

Scale indicators9 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• American Lyme Disease Foundation: Long-standing national nonprofit focused on Lyme disease education, prevention, and research funding. Comparable peer mission around public education and provider awareness, with national reach that overlaps with ILA's provider-education content.
• International Lyme and Associated Diseases Society (ILADS): International nonprofit medical society focused on improving diagnosis and treatment of Lyme and associated diseases. ILADS provides the Vector-borne Illness Fundamentals curriculum used in ILA's medical conference, making it both a peer and an active content partner.
• Bay Area Lyme Foundation: Nonprofit focused on Lyme disease research funding and education, with roots in a specific US region (Northern California) but national scope. Comparable peer model combining research grants, provider education, and public awareness campaigns.
• LymeDisease.org: National patient advocacy nonprofit (formerly CALDA) operating the largest Lyme patient registry and pushing for improved diagnostics and treatment access. Comparable mission around Lyme awareness, advocacy, and patient data collection (analogous to ILA's Target250).
• Project Lyme: Nonprofit dedicated to Lyme disease awareness, prevention, and patient support through education and fundraising events. Operates a comparable model of awareness campaigns, patient resources, and event-driven fundraising similar to ILA's golf outing.
• Global Lyme Alliance: National nonprofit dedicated to Lyme disease education, awareness, and research funding. Comparable as a peer nonprofit working at the intersection of Lyme patient advocacy, provider education, and research support, but with national rather than state scope.

Broad incumbents

• Centers for Disease Control and Prevention (CDC): Federal public health agency whose Division of Vector-Borne Diseases sets national Lyme policy and surveillance standards. CDC speakers appear at ILA's conference and the agency publishes the underlying case-count data ILA cites, making it a broader incumbent shaping ILA's operating environment.
• Johns Hopkins Lyme Disease Research Center: Academic research center within Johns Hopkins focused on Lyme and tick-borne disease research and clinical care. Comparable in working at the Lyme medical/research/education intersection, with substantially broader clinical and research capabilities than ILA.

Regional players

• Colorado Tick-Borne Disease Awareness Association: State-level nonprofit dedicated to tick-borne disease awareness, prevention, and support in Colorado. Closest structural peer to ILA in terms of single-state scope, community outreach, and patient support focus, but operating in a different geography.
• Lyme Connection: Regional nonprofit providing Lyme disease support groups, education, and advocacy primarily in the Northeastern US. Comparable peer in patient support and education programming, though focused on a high-incidence region different from Illinois.

Market position

Strengths5 records

Weaknesses4 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/@illinoislymeassociation7730/videos
• Facebookfacebook.com/illinoislymeassociation
• LinkedInlinkedin.com/company/illinois-lyme-association

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Illinois Lyme Association