Ourbrainbank For Glioblastoma

Name

Ourbrainbank For Glioblastoma

Legal name

OurBrainBank, Inc.

Website

https://ourbrainbank.org

Company type

Private

Founded year

2016

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Nonprofit Patient Advocacy and Research

NAICS

Voluntary Health Organizations (813212)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

Keywords

• Glioblastoma patient support
• Cancer research nonprofit
• Patient advocacy services
• Symptom tracking app
• Health data collection

Headquarters

HQ city

New York

HQ country

United States

HQ region

North America

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales

Revenue model

1. Donations and Fundraising: OurBrainBank operates as a registered 501(c)(3) nonprofit organization (US #82-2307232) and registered UK charity (#1184699). The organization relies on individual donations, fundraising campaigns, and grant funding to support operations and research initiatives. Supporters can make donations through the website, Facebook fundraisers, and GiveLively platform.
2. Merchandise Sales: The OurBrainBank Shop sells branded merchandise including t-shirts, tote bags, hats, mugs, and notebooks. All sales proceeds benefit the work of OurBrainBank in advancing research for glioblastoma and supporting people living with GBM.
3. Event-Based Fundraising: Community fundraising events including benefit concerts, climbing expeditions (e.g., Mt. Kilimanjaro climb), and hosted events in locations like Telluride, Colorado. These events raise funds for specific projects including The Harvard Project clinical research trial.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels8 records

Core offering

OurBrainBank is a patient-led nonprofit organization that provides free support services, advocacy, and patient-powered research for the glioblastoma (GBM) community. Its core offerings include a smartphone-based symptom tracking app for GBM patients, a real-world data collection platform aggregating patient-reported outcomes, the OurStoryBank community storytelling initiative, the GBM Voices educational webinar series, and the GBM Bill of Rights advocacy framework.

Product overview

OurBrainBank is a patient-led nonprofit organization working to move glioblastoma from terminal to treatable through patient-powered data collection and advocacy. The core offering consists of a smartphone-based symptom tracking app for GBM patients, combined with a broader data collection platform that aggregates real-world patient experiences through surveys. Supporting offerings include GBM Voices (educational webinar series), OurStoryBank (community story-sharing), the GBM Bill of Rights advocacy framework, and research initiatives like the DANO-GBM digital assessment and nationwide GBM Disparities Survey. The organization operates in both the US (501(c)(3) nonprofit) and UK (Registered Charity 1184699).

Differentiator

Problem solved

Functional benefit

Brands

• OurStoryBank: An initiative at OurBrainBank that showcases diverse stories from the GBM community, sharing experiences of living with GBM, caring for someone, or losing a loved one to the disease.
• OurDataBank

Products and services

• OurBrainBank Smartphone App Smartphone-based symptom assessment and tracking tool for glioblastoma patients, enabling monitoring of daily symptoms, treatment side-effects, fatigue, and sleep issues, with memory and concentration games.
• GBM Data Collection Platform (OurDataBank) Patient and caregiver-led research and data collection platform that aggregates real-world GBM patient experiences, survey responses, and clinical outcomes to drive systemic change in care.
• GBM Voices Educational Webinar Series Educational webinar series featuring neuro-oncology experts and lived experiences, providing practical information and empowering patients and care partners throughout the glioblastoma journey.
• OurStoryBank Story-sharing initiative that showcases diverse experiences from the GBM community through patient and caregiver submissions, packaged into social media posts.
• GBM Bill of Rights Advocacy document outlining rights for GBM patients regarding second opinions, specialist access, tumor testing, and genomic testing.
• DANO-GBM (Digital Assessment for Neuro-Oncology) Digital assessment for neuro-oncology program focused on patient-reported outcomes and quality of life measurements.
• GBM Disparities Survey Nationwide survey research project conducted with Harvard Medical School, Duke University, Columbia University Irving Medical Center, and Dana-Farber Cancer Institute to identify health disparities in GBM treatment.
• OurBrainBank Shop Online merchandise store selling t-shirts, tote bags, hats, and other items with proceeds supporting GBM research and patient support.

Quantifiable outcome

• 500+ patients and caregivers participated in 2024 national GBM Disparities Survey
• +2 more outcomes

Named customers5 records

Segments4 records

Ideal customer profiles4 records

Technology focussed Yes

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Eleven partnerships are on record, tiered core and minor.

• The Brain Tumour Charity (UK)coreStrategic or Co-development PartnerListed as a partner organization, collaborating on GBM awareness and advocacy efforts. Both organizations work toward improving outcomes for brain tumor patients.
• National Brain Tumor Society (NBTS)coreStrategic or Co-development PartnerActive collaboration including participation in Head to the Hill advocacy events, Cancer Moonshot forums, and shared advocacy goals for GBM patients. NBTS and OurBrainBank work together on quality of life research initiatives.
• Stache StrongminorOthersListed as a partner organization supporting GBM awareness and research initiatives.
• Brain Donor ProjectminorOthersPartner organization working to advance brain tumor research through tissue donation programs.
• The Brain Tumor ProjectminorOthersPartner organization supporting GBM advocacy and awareness initiatives.
• Musella Foundation for Brain Tumor Research & InformationminorOthersListed as a partner organization working on brain tumor research and information sharing.
• Harvard Medical SchoolcoreStrategic or Co-development PartnerResearch collaboration on nationwide GBM survey examining loneliness and emotional isolation among patients and caregivers. Harvard researchers co-authored findings presented at ASCO 2026.
• Duke UniversitycoreStrategic or Co-development PartnerAcademic research partner led by Dr. Quinn Ostrum on GBM Disparities Survey and treatment access research. Collaboration includes survey development and data analysis.
• Columbia University Irving Medical CentercoreStrategic or Co-development PartnerResearch collaboration with Dr. Fabio Iwamoto on GBM disparities and patient care research. Part of multi-institutional effort to identify and address treatment inequities.
• Dana-Farber Cancer InstitutecoreStrategic or Co-development PartnerAcademic partner led by Dr. Lakshmi Nayak in GBM disparities research. Collaboration on nationwide survey and ongoing quality of life studies.
• Brain Tumor NetworkminorOthersNavigation partner providing free patient navigation services. Navigators help patients understand what to expect, ask about clinical trials, and get second opinions.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• National Brain Tumor Society: National US nonprofit dedicated to brain tumor research, advocacy, and policy. Directly comparable as a brain tumor patient-advocacy and research nonprofit; OurBrainBank already collaborates with NBTS on Head to the Hill and Cancer Moonshot forums.
• Glioblastoma Foundation: US nonprofit specifically focused on glioblastoma research and patient support. The most directly comparable GBM-only peer in patient advocacy and research funding.
• American Brain Tumor Association: Long-standing US nonprofit providing brain tumor patient support, research funding, and information resources. Closely aligned with OurBrainBank's patient-support and research mission.
• Stache Strong: GBM-focused nonprofit funding research and supporting patients. Closely aligned with OurBrainBank's GBM-specific disease focus; an existing partner organization.
• Brain Tumor Network: Nonprofit providing free, personalized brain tumor patient navigation and clinical trial matching services. Directly comparable to OurBrainBank's GBM patient-navigation offering; an existing support partner.
• Musella Foundation for Brain Tumor Research & Information: Patient-focused nonprofit running VirtualTrials.com and funding brain tumor research. Overlaps directly with OurBrainBank on GBM patient information and research support; an existing partner organization.
• Voices Against Brain Cancer: Nonprofit supporting brain cancer research, awareness, and patient advocacy. Comparable community-driven fundraising and GBM awareness mission to OurBrainBank.
• The Brain Tumour Charity: UK-based brain tumor charity funding research and providing support services. Directly comparable in mission and patient-advocacy focus; an existing OurBrainBank partner in the UK market.
• Head for the Cure Foundation: US nonprofit raising funds for brain tumor research and awareness through community events. Comparable in fundraising-model and awareness-campaign approach to OurBrainBank's Mt. Kilimanjaro and event-driven fundraising.

Broad incumbents

• Livestrong Foundation: Large, established cancer-focused nonprofit providing patient navigation, advocacy, and fundraising platforms. Broader cancer mandate but overlapping patient-navigation and advocacy value proposition that OurBrainBank offers in a GBM-specific niche.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat6 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xtwitter.com/ourbrainbank
• YouTubeyoutube.com/c/ourbrainbankforglioblastoma
• Facebookfacebook.com/OurBrainBank
• LinkedInlinkedin.com/company/ourbrainbank
• Instagraminstagram.com/ourbrainbankforglioblastoma
• TikToktiktok.com/@ourbrainbankglioblastoma

Revenue estimate

Valuation estimate

Number of profiles

Profiles8 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Ourbrainbank For Glioblastoma