Hope Charities, Inc.
Hope Charities, Inc. is a US 501(c)(3) nonprofit that provides financial assistance, education, advocacy, and emotional support for individuals and families living with bleeding disorders such as hemophilia A and B and von Willebrand disease.
- Company typePrivate
- Founded2009
- HeadquartersBaton Rouge, United States
- Headcount—
- GTM typeB2C
- OfferingServices
What Hope Charities, Inc. does
Hope Charities, Inc., operating as Hope for Hemophilia, is a US 501(c)(3) nonprofit organization founded in 2009 and headquartered in Baton Rouge, Louisiana. The organization provides direct financial assistance, educational programming, emotional support, and policy advocacy for individuals and families living with bleeding disorders—principally hemophilia A and B, von Willebrand disease, and other factor deficiencies—across the United States. Its service portfolio includes recurring monthly patient aid (with eligibility up to 250% of federal poverty level), multiple annual conferences (Hope Conference, Emerging Therapies, Prophy, Women's Health, Joint Health), monthly Hope Sessions webinars, the Unmuted podcast, and the Hope Factor magazine, as well as the Hope on the Hill federal advocacy fly-in. Since founding, the organization reports having distributed over $4.07 million in individual grants to patients and families, with $363,050 disbursed in Q1 2025 across 344 assistance requests.
The organization is funded through a hybrid nonprofit revenue model combining individual donations (including a $25/month "25 for 25" recurring campaign), corporate sponsorships from major pharmaceutical companies (Genentech, Pfizer, Sanofi, Novo Nordisk, CSL, Roche/Genentech, Kedrion), recurring Advocate Sponsorships from specialty pharmacies (Santaros Rx, Paragon Healthcare, Superior Biologics, AcariaHealth, Ethical Factor Rx), and program grants. Approximately 70% of revenue is attributed to private donations, corporate donations, and events per referenced third-party reporting. Distribution to patients occurs through a community-led go-to-market model leveraging the website, SMS, email, Facebook, YouTube, the Unmuted podcast, and referrals via Hemophilia Treatment Centers and hematologists.
Hope Charities is led by President and CEO Jonathan James and is governed by a Board of Directors. The organization maintains a multi-stakeholder policy advocacy program addressing PBM reform, copay accumulator bans, alternative funding program restrictions, and patient choice in specialty pharmacy selection, in coordination with NBDF, HFA, PUTT, and legislative consultant Care and Cure Partners. It also partners with Microhealth on the PULSE Pilot to integrate digital menstrual bleeding tracking into bleeding disorders care.
Hope Charities, Inc. firmographics
Firmographics- Name
- Hope Charities, Inc.
- Legal name
- Hope Charities, Inc.
- Website
- https://hopeforhemophilia.org
- Company type
- Private
- Founded year
- 2009
- Operating status
- Operating
- Short description
- Hope Charities, Inc. is a US 501(c)(3) nonprofit that provides financial assistance, education, advocacy, and emotional support for individuals and families living with bleeding disorders such as hemophilia A and B and von Willebrand disease.
- Ownership category
- akta.pro rank
Hope Charities, Inc. industry classification
Industry- Product category
- Patient Assistance and Rare Disease Nonprofit Services
- NAICS
- Individual and Family Services (6241), Voluntary Health Organizations (813212)
- SIC
- Services-Social Services (8300), Services-Health Services (8000)
- akta.pro primary industry
- Rare Disease & Special Needs Support Organizations (BPAGACAM)
- akta.pro secondary industries
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA), Public Charities & Grantmaking Intermediaries (BPAGAKAE)
Keywords
Where Hope Charities, Inc. is headquartered
LocationHeadquarters
- HQ city
- Baton Rouge
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
Hope Charities, Inc. business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Individual Donations: Hope Charities generates revenue through individual donations, including campaigns like '$25 for 25' which encourages supporters to give $25 per month. Individual donations go 100% directly to patient aid.
- Corporate Sponsorships: Pharmaceutical companies including Genentech, Pfizer, Sanofi, and Novo Nordisk provide sponsorship support for various programs, events, and educational content. Sponsors fund specific initiatives like Hope Sessions, the women's podcast, and conferences.
- Program Grants: Hope Charities receives grants and funding support for specific programs and advocacy initiatives, including government and foundation funding for rare disease and bleeding disorder programs.
Go-to-market motion1 record
Distribution channels4 records
Marketing channels8 records
Hope Charities, Inc. product offering
Product offeringCore offering
Hope Charities provides direct financial assistance grants to patients in medical crisis, educational programs through multiple annual conferences and monthly webinars, advocacy on healthcare policy issues including PBM reform and copay accumulator bans, and emotional support resources for individuals and families living with bleeding disorders and rare chronic illnesses across the United States.
Product overview
Hope Charities, Inc. (operates as Hope for Hemophilia) is a 501(c)(3) nonprofit organization that provides support services for individuals and families affected by bleeding disorders. Rather than a software product company, it offers a portfolio of patient assistance programs and community education initiatives including financial assistance grants, advocacy programs, educational conferences (Hope Conference, Prophy Conference, Women's Health Conference, Joint Health Conference, Emerging Therapies, von Willebrand Disease Conference), monthly Hope Sessions webinars, the Hope Factor Magazine publication, the Unmuted Podcast, Hope on the Hill advocacy fly-in, and the Hope for Her Future women's initiative. The organization also operates an SMS text messaging service and accepts applications for assistance through online forms.
Differentiator
Problem solved
Functional benefit
Products and services
- Patient Financial Assistance Program Direct financial assistance grants covering housing, utilities, and living expenses for individuals and families with bleeding disorders during medical crises. Eligibility is based on type of need, amount of assistance requested, and state of crisis, with no discrimination based on age, race, sexual orientation, gender, or religion. Applications accepted online.
- HOPE Conference Annual educational conference bringing together the bleeding disorders community for education, networking, and support.
- Emerging Therapies Conference Educational conference focused on emerging therapies for the bleeding disorders community.
- Women's Health Conference Two-day virtual conference supporting, educating, and empowering women in the bleeding disorders community, featuring expert speakers, peer connection, and health advocacy tools.
- Joint Health Conference Educational conference focused on joint health for the bleeding disorders community.
- Prophy Conference Educational conference on prophylaxis for the bleeding disorders community.
- Hope Sessions Monthly educational webinar series for the bleeding disorders community, featuring pharmaceutical-sponsored educational content and patient programming.
- Hope on the Hill Advocacy Fly-In Annual advocacy fly-in bringing the bleeding disorders community to Congressional offices to advocate for PBM reform, copay accumulator bans, and patient access to medications.
- Hope for Her Future Women's Initiative Women's initiative advocating for better care and providing essential education for females in the bleeding disorders community, including women's podcast episodes sponsored by Genentech.
- Unmuted Podcast Podcast series featuring honest conversations about bleeding disorders, rare diseases, and chronic illnesses.
- Hope Factor Magazine Published magazine featuring patient stories, resources, product guides, and educational content for the bleeding disorders community.
- Hope Classic Community Event Community fundraising event for Hope Charities supporters and the bleeding disorders community.
- Crawfish Boil Community Event Community fundraising event for Hope Charities supporters.
- Online Application Portal Online portal enabling patients to apply for financial assistance, register for events, and enroll in Hope Charities programs.
Companies that use Hope Charities, Inc.
Customer profileNamed customers3 records
Segments4 records
Ideal customer profiles3 records
Hope Charities, Inc. technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Hope Charities, Inc. partnerships and signals
Strategic signalPartnerships
16 partnerships are on record, tiered core and minor.
- GenentechcoreGenentech sponsors the women's podcast episodes focused on bleeding disorders in women, supporting Hope Charities' Hope for Her Future initiative to advocate for better care and provide essential education for females in the bleeding disorders community.
- PfizercorePfizer sponsors Hope Sessions including HYMPAVZI educational presentations, and provides support for the Emerging Therapies conference. Pfizer also sponsors advertising in Hope Factor magazine.
- SanoficoreSanofi sponsors Hope Sessions including sessions presented in Spanish and additional engaging content throughout 2025, supporting patient education initiatives.
- Novo NordiskcoreNovo Nordisk hosts two Hope Sessions in September 2025, providing educational content and support for the bleeding disorders community.
- Santaros RxminorSantaros Rx is listed as an Advocate Sponsor supporting the mission of Hope Charities year-round.
- Paragon HealthcareminorParagon Healthcare is listed as an Advocate Sponsor supporting the mission of Hope Charities year-round.
- Superior BiologicsminorSuperior Biologics is listed as an Advocate Sponsor supporting the mission of Hope Charities year-round.
- AcariaHealthminorAcariaHealth is listed as an Advocate Sponsor supporting the mission of Hope Charities year-round.
- Ethical Factor RxminorEthical Factor Rx is listed as an Advocate Sponsor supporting the mission of Hope Charities year-round.
- CSL (Including IDELVION, HEMGENIX)coreCSL sponsors Hope Charities programs including IDELVION Connect copay support and HEMGENIX updates, providing patient assistance and support for hemophilia B community.
- Kedrion (Ryplazim)minorKedrion Biopharma supports Hope Charities as a sponsor, providing updates on Ryplazim distribution for plasminogen deficiency type 1 patients.
- Roche/Genentech (Including BEQVEZ, Spark Therapeutics)coreRoche and Genentech (incorporating Spark Therapeutics) sponsor Hope Charities programs and provide updates on hemophilia A gene therapy products including BEQVEZ.
- Care and Cure PartnerscoreJames Romano of Care and Cure Partners serves as legislative consultant to Hope Charities, helping shape the organization's advocacy program and policy priorities.
- National Bleeding Disorders Foundation (NBDF)coreHope Charities collaborates and coordinates with NBDF on advocacy initiatives, with overlapping goals around patient access to care though differing organizational priorities.
- Hemophilia Federation of AmericaminorHope Charities works alongside HFA on advocacy efforts, with similar trajectories on PBM reform and copay accumulator issues.
- Pharmacists United for Truth and Transparency (PUTT)minorPUTT praised Hope Charities' advocacy efforts and Arkansas PBM reform legislation as a model for nationwide reform.
Scale indicators7 records
Recent moves6 records
Expansion highlights5 records
Hope Charities, Inc. competitors and assessment
Company assessmentBroad incumbents
- National Organization for Rare Disorders (NORD): The leading U.S. umbrella rare disease advocacy organization. NORD operates a broader portfolio across many rare conditions including bleeding disorders, providing financial assistance, advocacy, and research support — directly competing for rare disease donor mindshare.
Direct peers
- Hemophilia Federation of America (HFA): National nonprofit serving the bleeding disorders community through advocacy, education, and member support. Hope Charities and HFA coordinate on shared policy priorities and reach directly overlapping patient and pharmaceutical sponsor audiences.
- Patient Advocate Foundation: National nonprofit providing case management, financial aid, and advocacy for patients with chronic, life-threatening, and rare illnesses. Closely aligned mission with Hope Charities in patient navigation and crisis support.
- PAN Foundation: National patient assistance foundation offering financial aid for out-of-pocket costs for underinsured patients. Operates a similar disease-specific fund model that overlaps with Hope Charities' DPA program.
- Good Days: Nonprofit providing financial assistance for patients who cannot afford the medications they need, including those with rare and chronic conditions. Competes in the same charitable copay-assistance space as Hope Charities.
- HealthWell Foundation: Leading independent nonprofit copay and premium assistance foundation serving underinsured patients with chronic and rare diseases. Comparable operating model to Hope Charities' patient financial assistance programs.
- National Bleeding Disorders Foundation (NBDF): The largest U.S. advocacy organization for the bleeding disorders community. NBDF and Hope Charities explicitly collaborate on advocacy priorities (PBM reform, copay accumulators), serving overlapping patient populations and competing for the same donor and sponsor dollars.
- The Assistance Fund: Independent charitable patient assistance foundation that provides financial aid for out-of-pocket medication costs for chronic and rare disease patients. Operates a structurally similar financial-assistance model to Hope Charities' DPA program.
Emerging players
- Cooley's Anemia Foundation: Disease-specific nonprofit supporting patients with thalassemia, a related rare hematologic condition requiring high-cost chronic therapy. Comparable operating model — patient financial aid, education, and advocacy — within an adjacent rare blood disorder niche.
- Chronic Disease Coalition: Advocacy organization focused on protecting patients with chronic conditions from insurance discrimination and access barriers. Shares Hope Charities' advocacy-focused, patient-empowerment orientation across a broader disease footprint.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat4 records
Key risks5 records
Key highlights6 records
Customer concentration
Hope Charities, Inc. social profiles
Digital presenceHope Charities, Inc. financial estimates
Financial estimateRevenue estimate
Valuation estimate
Hope Charities, Inc. leadership team
Management profileNumber of profiles
Profiles1 record
Hope Charities, Inc. funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Hope Charities, Inc. M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Hope Charities, Inc.
What does Hope Charities, Inc. do?
Hope Charities provides direct financial assistance grants to patients in medical crisis, educational programs through multiple annual conferences and monthly webinars, advocacy on healthcare policy issues including PBM reform and copay accumulator bans, and emotional support resources for individuals and families living with bleeding disorders and rare chronic illnesses across the United States.
Is Hope Charities, Inc. a public or private company?
Hope Charities, Inc. is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Hope Charities, Inc. founded?
Hope Charities, Inc. was founded in 2009.
Where is Hope Charities, Inc. based?
Hope Charities, Inc. is headquartered in Baton Rouge, United States, in the North America region.
How does Hope Charities, Inc. make money?
Three revenue lines are on record. Individual Donations are the primary driver. The others are corporate Sponsorships and program Grants.
Who are Hope Charities, Inc.'s main competitors?
National Organization for Rare Disorders (NORD) is listed as a broad incumbent. Direct peers are Hemophilia Federation of America (HFA), Patient Advocate Foundation, PAN Foundation, Good Days, HealthWell Foundation, National Bleeding Disorders Foundation (NBDF) and The Assistance Fund. Emerging players are Cooley's Anemia Foundation and Chronic Disease Coalition.
Does Hope Charities, Inc. have an API?
No public API is recorded for Hope Charities, Inc..
What industry is Hope Charities, Inc. in?
Hope Charities, Inc.'s product category is Patient Assistance and Rare Disease Nonprofit Services. Its primary akta.pro industry code is BPAGACAM, Rare Disease & Special Needs Support Organizations, with a secondary code of BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 6241 and its SIC code is 8300.