France Rein

What France Rein does

France Rein is a French non-profit patient association (association loi 1901), founded in 1972 and headquartered in Paris, that informs, supports, and represents people affected by kidney disease and their families. The federation operates through 24 regional associations covering metropolitan France and overseas territories (Guadeloupe, Martinique, Océan Indien), supported entirely by volunteers with a small paid staff of 1-10. Core activities include information dissemination (quarterly magazine Lignes de Vie, guides, brochures, webinars, podcasts, website), patient support services (caregiver support, youth programs, specialized health insurance offering via La Mutuelle Santé), screening campaigns (the annual Semaine Nationale du Rein / National Kidney Week held March 7-14), and policy advocacy (représentants des usagers sitting in healthcare establishments, leadership of the Collectif de la transplantation rénale, participation in the dialysis financing reform working group). The organization does not develop proprietary technology; its infrastructure is limited to a website, social media channels, and member-facing publications.

The business model relies on three revenue streams: annual membership subscriptions (which include the quarterly Lignes de Vie magazine), individual donations from the public, patients and families, and institutional funding from a broad roster of pharmaceutical and medical device partners (Chiesi, Amgen, Astellas, AstraZeneca, Baxter, Boehringer Ingelheim, Fresenius, GSK, Nephrocare, Novartis, Roche, Sanofi, Pfizer, Vantive) plus public funders such as Fondation de France and FNDS. Revenue figures are not publicly disclosed. Go-to-market is community-led, event-driven (annual National Kidney Week and regional screening events), and direct-to-consumer via digital engagement, with no commercial product distribution. Customer segments include kidney disease patients (insuffisants rénaux) as the primary beneficiaries, family caregivers, young patients and children, and the general public for prevention and organ donation awareness. France Rein holds agréé status as an officially recognized patient representative body in French healthcare institutions, and is embedded in coalitions with the SFNDT, SFT, AFIDTN, ANFIPA, Club des Jeunes Néphrologues, FHP Rein, and Collectif Greffe+.

Name

France Rein

Legal name

France Rein

Website

https://francerein.org

Company type

Private

Founded year

1972

Operating status

Operating

Headcount range

1–10 employees

Short description

France Rein is a French non-profit patient federation, founded in 1972 and headquartered in Paris, that informs, supports, and represents people with kidney disease and their families across 24 regional associations in metropolitan and overseas France through information, screening campaigns, advocacy, and caregiver support.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Voluntary Health Organizations (813212), Social Assistance (624)

SIC

Services-Membership Organizations (8600), Services-Social Services (8300)

akta.pro primary industry

Palliative Care, Hospice & Serious Illness Support (BPAGACAK)

Keywords

• Kidney patient advocacy
• Kidney disease support
• Patient association services
• Organ donation awareness
• Chronic kidney disease

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices6 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Membership subscriptions: Revenue from membership fees (adhérent subscriptions) which include a quarterly magazine 'Lignes de Vie' (Lines of Life).
2. Donations: Individual donations from the public, patients, families, and supporters to support the association's mission.
3. Institutional support: Support from institutional partners including government bodies, healthcare organizations, and pharmaceutical companies. The organization publishes information about legs and donations (legs et donations) as part of its funding approach.

Pricing tiers

Go-to-market motion3 records

Distribution channels3 records

Marketing channels8 records

Core offering

France Rein informs, supports, and represents people with kidney disease (chronic kidney disease, dialysis, transplant recipients) and their families across France. It delivers patient information (magazine, webinars, guides), peer and caregiver support programs, advocacy representation in healthcare bodies, and awareness campaigns, coordinated through a federation of 24 regional associations.

Product overview

France Rein is a patient advocacy organization, not a technology product company. Its offerings consist of a portfolio of non-digital services and publications: the quarterly magazine 'Lignes de Vie' serves as the primary patient information publication; webinar series provides educational content; regional associations (24 across France) deliver local support services; the annual Semaine Nationale du Rein organizes screening campaigns; and various guides, caregiver support programs, youth programs, and health insurance offerings serve specific patient needs. The organization also produces regional publications like 'LORREINFO' and 'Le Petit Dialysé' for local audiences.

Differentiator

Problem solved

Functional benefit

Products and services

• Lignes de Vie Magazine Patient magazine (Lignes de Vie) delivering information and lived-experience content for people affected by kidney disease, distributed through the association's national and regional network.
• Webinaires (educational webinars) Online educational webinar series providing accessible, expert-led information on kidney disease, treatments, and patient self-management for patients and families.
• Guides & Brochures Printed and downloadable educational guides and brochures on kidney disease, treatments, and daily living, distributed to patients and families.
• Soutien aux Aidants (caregiver support program) Support program dedicated to family caregivers (aidants) of kidney disease patients, offering emotional support, practical guidance, and peer connection.
• Séjour Jeunes Group trip/retreat program (séjour) for young kidney patients, designed to reduce isolation, build peer connection, and provide age-appropriate support.
• Le Petit Dialysé Initiative providing support and resources for children on dialysis, complementing pediatric nephrology care.
• Semaine Nationale du Rein National Kidney Week — annual public-awareness and screening campaign run with healthcare partners across France to inform the public about kidney disease and offer screenings.
• Plaidoyers (advocacy initiatives) Policy and institutional advocacy (plaidoyers) representing kidney patients in French healthcare institutions and public-policy debates.
• Federated regional associations network Federated network of 24 regional associations delivering local patient services (support groups, events, presence in healthcare institutions) across mainland and overseas France.
• La Mutuelle Santé (partner health insurance offering) Partner health insurance offering (La Mutuelle Santé) made available to members through a partnership arrangement negotiated by the association.

Quantifiable outcome

• 1576 screenings conducted in 2025 in Morbihan alone across 12 locations
• +2 more outcomes

Named customers3 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

24 partnerships are on record, tiered core, flagship and minor.

• AAIR (Association d'Aide aux Insuffisants Rénaux)coreStrategic or Co-development PartnerPatient association partner providing support to kidney patients, shown in local partner listings for Midi-Pyrénées.
• AFIDTN (Association Française des infirmier·e·s de Dialyse, Transplantation et Néphrologie)coreStrategic or Co-development PartnerNursing association partner collaborating on dialysis and nephrology topics, including Tour de France de la dialyse à domicile initiative.
• ANFIPA (Association Nationale Française des Infirmier·e·s en Pratique Avancée)coreStrategic or Co-development PartnerAdvanced practice nurses association partnering on home dialysis initiatives.
• Club des Jeunes NéphrologuescoreStrategic or Co-development PartnerYoung nephrologists club partnering on national initiatives including Tour de France de la dialyse à domicile.
• Société Francophone de Néphrologie, Dialyse et Transplantation (SFNDT)coreStrategic or Co-development PartnerLeading nephrology society, co-founder of Livre Blanc de la transplantation rénale and key partner in Collectif de la transplantation rénale.
• Société Francophone de Transplantation (SFT)coreStrategic or Co-development PartnerTransplantation society partner in Collectif de la transplantation rénale and Livre Blanc initiatives.
• ChiesiflagshipGTM or Marketing PartnerInstitutional supporter of Collectif de la transplantation rénale and various France Rein initiatives and events.
• FHP Rein (Fédération de l'hospitalisation privée Rein)coreStrategic or Co-development PartnerPrivate hospital federation for kidney care, collaboration on dialysis reform and patient care.
• MicrolifeminorGTM or Marketing PartnerMedical equipment company providing tensiometers for screening events during Semaine Nationale du Rein 2026.
• Collectif Greffe+coreStrategic or Co-development PartnerCoalition of associations working on organ donation, including France Rein, Grégory Lemarchal, and others.
• AmgenminorGTM or Marketing PartnerPharmaceutical company partner listed on France Rein partners page.
• AstellasminorGTM or Marketing PartnerPharmaceutical company partner listed on France Rein partners page.
• AstraZenecaminorGTM or Marketing PartnerPharmaceutical company partner listed on France Rein partners page.
• BaxterminorGTM or Marketing PartnerMedical products company, video partner for kidney health content including Semaine Nationale du Rein.
• Boehringer IngelheimminorGTM or Marketing PartnerPharmaceutical company partner listed on France Rein partners page.
• Fresenius Medical CareminorGTM or Marketing PartnerDialysis products and services company partner listed on France Rein partners page.
• Fresenius KabiminorGTM or Marketing PartnerPharmaceutical and medical device company partner listed on France Rein partners page.
• GSKminorGTM or Marketing PartnerPharmaceutical company partner listed on France Rein partners page.
• NephrocareminorGTM or Marketing PartnerDialysis care provider partner listed on France Rein partners page.
• NovartisminorGTM or Marketing PartnerPharmaceutical company partner listed on France Rein partners page.
• RocheminorGTM or Marketing PartnerPharmaceutical company partner listed on France Rein partners page.
• SanofiminorGTM or Marketing PartnerPharmaceutical company partner listed on France Rein partners page.
• PfizerminorGTM or Marketing PartnerPharmaceutical company partner listed on France Rein partners page.
• VantiveminorGTM or Marketing PartnerInstitutional supporter of Tour de France de la dialyse à domicile initiative.

Scale indicators5 records

Recent moves6 records

Expansion highlights5 records

Regional players

• Canadian Kidney Patient Coalition: Canadian kidney patient advocacy counterpart with analogous awareness, screening, and policy-defence activities but operating in a different national jurisdiction. Comparable patient-advocacy model outside France.

Emerging players

• AIRG-France: French association focused on inherited/genetic kidney diseases (AIRG), sharing the kidney patient-advocacy mission in France but narrower disease scope. Comparable as a fellow French kidney-focused nonprofit.

Others

• Collectif Greffe+: Coalition of French associations including France Rein, working on organ donation policy. France Rein is a co-member; the Collectif is a peer in the transplant-policy space rather than a direct patient-services competitor.

Direct peers

• Kidney Research UK: UK charity dedicated to kidney disease research, patient support, and advocacy. Directly comparable to France Rein's mission across information, support, defense, and community pillars, with analogous national federation structure.
• National Kidney Foundation: US-based patient advocacy and research organization for kidney disease, with the same mission of informing, supporting, and representing kidney patients and their families. Closely comparable model with awareness campaigns, screening events, advocacy, and education programs.
• Renaloo: French online patient association for kidney disease, providing information, community, and advocacy. Same geography and same patient population, with overlapping screening and information missions but a stronger digital focus.
• FNAIR: Former national French kidney patient federation, historically operating in parallel to France Rein and representing dialysis/renal insufficient patients. Closely comparable French predecessor or peer in the same patient-advocacy space.
• Kidney Care UK: UK patient charity supporting people with kidney disease, offering information, advocacy, and direct grants to patients in need. Highly comparable in mission and operational model to France Rein.
• European Kidney Patients' Federation (EKPF): Federation of European national kidney patient associations including France Rein. Most comparable peer at the supranational level — same disease focus, same patient-advocacy mission, and shared member organizations.
• American Kidney Fund: US nonprofit providing direct financial assistance, education, and advocacy for kidney patients. Comparable patient-first advocacy and support model, with parallel concerns around pharma funding and screening/awareness programs.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@FranceRein/videos
• Facebookfacebook.com/ReseauFranceRein
• LinkedInlinkedin.com/company/france-rein
• Instagraminstagram.com/francereinnational

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about France Rein