Hersenletsel

What Hersenletsel does

Patiëntenvereniging Hersenletsel.nl is a Dutch non-profit patient association (ANBI status, KvK 61051632) founded in 2014 and headquartered at Den Heuvel 62, Velp, Netherlands. The organization supports people with non-congenital brain injury (niet-aangeboren hersenletsel, NAH) — including stroke, traumatic brain injury, and brain tumor survivors — and their relatives across the Netherlands. Its functional remit covers three pillars: peer support (lotgenotencontact) via regional chapters, brain cafés, aphasia cafés, youth weekends, and an online forum; information provision through the NAH Bibliotheek, podcasts, the quarterly Hersenletsel Magazine, blogs, and scientific content; and advocacy (belangenbehartiging) at the national policy level, including representation in networks such as EENnacoma and Vereniging Doelgroepnetwerk LBS alongside Radboudumc, Vilans, and the Hersenstichting.

The association's product surface includes a mobile application called 'On-line' (iOS and Android) targeting people with aphasia — an online writing program offered with free and paid subscription tiers — along with the Mantelzorg Keuzehulp, a structured caregiver decision-support tool. Distribution is multi-channel: a Dutch-language website (hersenletsel.nl), webshop selling identification cards and information materials, an app-store footprint, social media (Facebook, LinkedIn), newsletters, and hundreds of in-person regional activities annually. The organization also recruits members for Delphi studies, embedding patient-reported outcomes into Dutch clinical research.

Revenue is small-scale and diversified across member-paid annual subscriptions (€32.50/calendar year, inclusive of four magazine issues), donations routed through Geef.nl (one-time and recurring, tax-deductible under ANBI), and webshop merchandise sales. With 1-10 employees and a volunteer-driven regional chapter network, the organization operates as a typical small-Dutch patiëntenvereniging without disclosed financials, and is led by Director Monique Lindhout and policy worker Michiel Lindhout. The addressable population is substantial — approximately 42,000 stroke patients and 50,000 head trauma patients per year in the Netherlands — but the association shows no clear evidence of material share-gain or scaling beyond a steady-state operational posture.

Name

Hersenletsel

Legal name

Patiëntenvereniging Hersenletsel.nl

Website

https://hersenletsel.nl

Company type

Private

Founded year

2014

Operating status

Operating

Headcount range

1–10 employees

Short description

Hersenletsel.nl is a Dutch non-profit patient association (ANBI) serving people with non-congenital brain injury (NAH) and their relatives through peer-support regional chapters, an aphasia mobile app, caregiver decision tools, advocacy, and educational content across the Netherlands.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Support Services

NAICS

Other Individual and Family Services (624190)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Condition-specific Digital Therapeutics (DTx) (HLACANAA)

akta.pro secondary industry

DTx/SaMD Evidence, Outcomes & Real-World Data (RWE) Platforms (HLACANAM)

Keywords

• Patient association services
• Peer support groups
• Brain injury advocacy
• Aphasia therapy apps
• Caregiver support tools

Headquarters

HQ city

Velp

HQ country

Netherlands

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership subscriptions: Members pay an annual fee of €32.50 per calendar year, receiving the Hersenletsel Magazine (4x per year), newsletter, member discounts in the webshop, and access to regional activities.
2. Donations and gifts: The association accepts one-time and recurring donations through Geef.nl. As an ANBI (charitable institution), donations are tax-deductible.
3. Webshop sales: The webshop sells information materials, aids, and identification cards (hersenletselkaartjes / afasiekaartjes). Members receive discounts.
4. Magazine sales (non-members): Non-members can purchase individual issues of the Hersenletsel Magazine through the webshop.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels8 records

Core offering

Hersenletsel is a Dutch patient association (patiëntenvereniging) that supports people with non-congenital brain injury (NAH - niet-aangeboren hersenletsel) and their relatives through peer contact (lotgenotencontact), information provision, and advocacy (belangenbehartiging). It sells an annual membership (€32.50/year) that includes a quarterly Hersenletsel Magazine, newsletter, regional peer support activities, and member discounts in the webshop. It also developed the On-line mobile app for people with aphasia, available on iOS and Android.

Product overview

Hersenletsel.nl is a Dutch patient association for people with non-congenital brain injury (NAH) and their relatives. The organization offers a comprehensive suite of support services including the On-line mobile app for aphasia patients, an NAH Library with articles and podcasts, the Hersenletsel Magazine quarterly publication, a webshop for merchandise and information cards, a forum for peer connections, and the Mantelzorg Keuzehulp (caregiver decision support tool). The association also organizes lotgenotencontact (peer contact) activities through regional groups across the Netherlands, including brain cafés, discussion groups, and creative meetings.

Differentiator

Problem solved

Functional benefit

Brands

• On-line: An online writing program for people with aphasia, available on Android and iOS.
• Hersenletsel Magazine
• Hersentumor Vereniging

Products and services

• Annual Membership Annual membership subscription priced at €32.50 per calendar year, providing members with the quarterly Hersenletsel Magazine (4 issues per year), newsletter, member discounts on webshop products, and access to regional peer support activities. Targeted at NAH patients and their relatives in the Netherlands.
• On-line mobile app

Quantifiable outcome

• 42,000 new stroke patients per year in the Netherlands, of which Hersenletsel.nl serves as the primary patient advocacy and support organization.

Named customers1 record

Segments2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature1 record

Partnerships

Nine partnerships are on record, tiered core and minor.

• Vereniging Doelgroepnetwerk LBScoreStrategic or Co-development Partner · 1 January 2023Hersenletsel.nl is represented in the board of this association, which brings together specialized care centers for prolonged disorders of consciousness (LBS) in Dutch long-term care.
• EENnacoma (Expertisenetwerk Ernstig Niet-aangeboren hersenletsel na coma)coreStrategic or Co-development Partner · 1 January 2019A collaboration network of specialized nursing homes and a rehabilitation center focused on severe acquired brain injury and prolonged disorders of consciousness (LBS). Hersenletsel.nl participates in this network, contributing patient perspective to knowledge development and care improvement.
• Patiëntenfederatie NederlandcoreStrategic or Co-development PartnerHersenletsel.nl is listed as a key partner on its website alongside Patiëntenfederatie Nederland, indicating a close collaborative relationship in patient advocacy and representation at the national level.
• Hersenletsel-uitleg.nlminorStrategic or Co-development PartnerA partner website providing supplementary information about brain injury. Listed as an important partner on Hersenletsel.nl.
• Radboudumc (EENnacoma partnership)coreStrategic or Co-development PartnerRadboudumc's department of Primary Care leads the EENnacoma network. Jan Lavrijsen, senior researcher at Radboudumc, collaborates closely with Hersenletsel.nl on knowledge development for severe brain injury and LBS.
• VilansminorStrategic or Co-development PartnerVilans collaborated with EENnacoma on the 'Ketenontwikkeling voor mensen met LBS' project, which included developing the LBS Wegwijzer (guide). Hersenletsel.nl participated in this project.
• Flow ReizenminorChannel Partner/ Reseller/ DistributorFlow Reizen organizes adapted group holidays for people with non-congenital brain injury, epilepsy, autism, or mild intellectual disabilities, with trained guides. Hersenletsel.nl recommends this partner to its members.
• Vakantiehuis SandraminorChannel Partner/ Reseller/ DistributorAn adapted vacation home with specialized equipment (adjustable bed, care toilet, shower stretcher) recommended for NAH patients. Hersenletsel.nl refers members to this accommodation partner.
• Geef.nlcoreChannel Partner/ Reseller/ DistributorGeef.nl is the donation platform through which individuals can make one-time or recurring donations to Hersenletsel.nl. Donations via this platform are processed with options for iDEAL, SEPA, credit card, PayPal, and debit card.

Scale indicators2 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Epilepsie Vereniging Nederland: Dutch patient association for epilepsy and their relatives, offering peer support, information, advocacy, and regional activities. Strong structural parallel to Hersenletsel.nl as a condition-specific membership organization for a neurological condition.
• MS Vereniging Nederland: Dutch patient association for people with multiple sclerosis, providing peer contact, information, advocacy, and regional activities. Highly comparable organizational model to Hersenletsel.nl serving another chronic neurological condition population.
• Stichting Breinlijn: Helpline and information service for people with non-congenital brain injury (NAH) and their relatives in the Netherlands. Direct overlap with Hersenletsel.nl's information provision and caregiver support mission for the same patient population.

Others

• Hersentumor Vereniging: Dutch association for brain tumor patients managed under Hersenletsel.nl. Directly related sub-brand, offering the closest possible comparability on patient population subset and service delivery model.

Broad incumbents

• Hersenstichting: Dutch Brain Foundation funding neuroscience research, prevention, and patient support. Comparable as a major Dutch brain-focused non-profit operating in the same neurological space and serving as a funder/partner to Hersenletsel.nl.
• Alzheimer Nederland: Largest Dutch patient organization for dementia and Alzheimer's, offering peer support, helpline, advocacy, and fundraising. Comparable as a neurological/cognitive condition patient association with similar membership, regional chapters, and advocacy functions.
• Patiëntenfederatie Nederland: Umbrella organization representing 200+ Dutch patient associations and coordinating collective advocacy. Listed as a core partner of Hersenletsel.nl, comparable as a member-supported patient advocacy body operating in the same regulatory and funding environment.

Emerging players

• Stroke Association UK: UK charity supporting stroke survivors with peer support, information, and research funding. Closest international peer in a different geography, addressing the largest single cause of acquired brain injury also served by Hersenletsel.nl.
• Headway UK: UK brain injury association providing information, support services, and advocacy for people with acquired brain injury. Direct functional peer in another national market, comparable services and organizational structure though regional player from a Dutch perspective.
• Brain Injury Association of America: US national brain injury advocacy organization providing information, referrals, and policy advocacy. Comparable mission and member services for the same condition population in a different national context.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• LinkedInlinkedin.com/company/patientenvereniging-hersenletsel-nl

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Hersenletsel