European Neuroendocrine Tumor Society e.V. (ENETS)

Name

European Neuroendocrine Tumor Society e.V. (ENETS)

Legal name

European Neuroendocrine Tumor Society e.V.

Website

https://enets.org

Company type

Private

Founded year

2004

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Medical Professional Society Services

NAICS

Management, Scientific, and Technical Consulting Services (5416), Professional, Scientific, and Technical Services (54), Educational Support Services (611710)

SIC

Services-Health Services (8000), Services-Educational Services (8200), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Electronic Data Capture (EDC) Platforms (HLACAOAA)

Keywords

• Medical society services
• Clinical guidelines publishing
• Medical education programs
• Healthcare professional networking
• Tumor research collaboration

Headquarters

HQ city

Berlin

HQ country

Germany

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Annual Membership Fees: ENETS generates revenue through annual membership fees invoiced in September for the following calendar year, payable by 1 January. Regular annual membership is €80; reduced annual membership for medical students, trainees, nurses, patient advocacy representatives and retired ENETS members is €40.
2. Conference Fees: ENETS holds annual conferences attracting over 1,500 delegates. Reduced conference fees are offered as a membership benefit. Revenue generated through delegate registration fees for in-person and virtual attendance at annual ENETS conferences.
3. Donations and Charitable Contributions: ENETS accepts donations to support its charitable mission. The by-laws state that the Society may raise public and private funds and donations within its networking purposes. On dissolution, assets transfer to Deutsche Krebshilfe e.V.
4. Journal of Neuroendocrinology Access: ENETS members receive free online access to The Journal of Neuroendocrinology (JNE). The journal generates revenue through institutional subscriptions and publishing fees, with ENETS benefiting from its official journal relationship.

Pricing tiers

Distribution channels6 records

Marketing channels9 records

Core offering

ENETS is a non-profit professional medical society that advances the diagnosis, treatment, and research of neuroendocrine tumors (NETs) through clinical guidelines, multidisciplinary education programs, the ENETS European NET Database for multi-centre clinical research, accreditation of Centers of Excellence, certification of specialists via the EBNENM programme, an annual conference, webinars, podcasts, and grants and awards for researchers.

Product overview

ENETS operates as a professional medical society offering a portfolio of interconnected products and services centred on improving neuroendocrine tumour (NET) care. The core offerings include the European NET Database for multi-centre clinical data collection and research collaboration, the Centers of Excellence (CoE) Programme for accrediting specialist NET centres, and comprehensive education programmes including the EBNENM certification, Webinar Series, and Podcasts. Supporting infrastructure includes myENETS (member portal), the Annual Conference, grants and awards programme, and clinical guidelines published in the Journal of Neuroendocrinology. The society also provides the PatSat Survey for patient feedback collection and the NextGEN Programme for young investigators. These offerings work together to advance research, education, and clinical care standards in neuroendocrine neoplasms across Europe and beyond.

Differentiator

Problem solved

Functional benefit

Products and services

• ENETS European NET Database A structured, multi-centre platform for retrospective and prospective collection of high-quality clinical data on neuroendocrine neoplasms (gastroenteropancreatic, thoracic, head and neck, urogenital), enabling collaborative research across participating ENETS Centres of Excellence and nationally accredited centres.
• ENETS Centers of Excellence (CoE) Accreditation Programme Accreditation programme highlighting specialist NET centres worldwide committed to providing high-quality, patient-centered care for neuroendocrine tumour patients, involving a two-step assessment process by the ENETS Certification Commission and independent auditor DQS.
• EBNENM (European Board in Neuroendocrine Neoplasia Medicine) Certification

Quantifiable outcome

• Journal of Neuroendocrinology Impact Factor increased from 4.1 to 5.0, achieving Q1 rankings in both Endocrinology & Metabolism and Neurosciences
• +2 more outcomes

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration4 records

Feature4 records

Partnerships

Six partnerships are on record, tiered minor and core.

• Ipsen BiopharmaceuticalsminorStrategic or Co-development Partner · 27 January 2025Ipsen Biopharmaceuticals presented the multi-national PRESTO study at ENETS with simultaneous publication in Advances in Therapy. The study of 90 nurses found 97.8% preferred the redesigned Somatuline Depot syringe over the octreotide syringe. ENETS collaborated on the study which was conducted by ENETS member centres.
• KKS (Koordinationszentrum für Klinische Studien, Philipps-Universität Marburg)coreTechnology or IntegrationENETS collaborates with KKS, an academic database provider within the Faculty of Medicine at Philipps-Universität Marburg, Germany. KKS is contractually responsible for the technical setup, programming, maintenance, data protection, and compliance of the ENETS European NET Database. KKS also supports Level II database studies when external support is required. The ENETS Database migrated from MACRO to REDCap with KKS's technical support as of 1 March 2026.
• DQS GmbH (Deutsche Gesellschaft zur Zertifizierung von Managementsystemen)coreStrategic or Co-development PartnerDQS is ENETS' independent certification partner for the ENETS Centers of Excellence accreditation programme. DQS conducts the certification audits with at least one DQS auditor participating in each on-site audit alongside an ENETS expert auditor. DQS is responsible for issuing official CoE certificates upon successful completion of the certification process.
• UEMS (European Union of Medical Specialists)coreStrategic or Co-development PartnerENETS collaborated with UEMS to develop the EBNENM (European Board in Neuroendocrine Neoplasia Medicine) programme, which sets a European standard for education, training and certification in NEN medicine. The cooperation was formalised through a Memorandum of Understanding (MoU) between ENETS and UEMS. UEMS provides European recognition and accreditation framework for the EBNENM certification programme.
• ERN EURACANminorStrategic or Co-development PartnerERN EURACAN-accredited NEN referral centres are eligible to participate in the ENETS European NET Database alongside ENETS CoEs and nationally accredited NEN centres. This partnership enables harmonisation of expertise across European Reference Networks.
• NETRF (Neuroendocrine Tumor Research Foundation)minorStrategic or Co-development PartnerThree ENETS members (Lynnette Fernandez-Cuesta from IARC-WHO, Mauro Cives from University of Bari, and Thomas Walter from Cancer Research Center of Lyon) were among the recipients of NETRF's latest research grants round, totalling USD 2.8 million. NETRF has invested nearly USD 43 million overall in neuroendocrine cancer research. The collaboration strengthens international NET research networks.

Scale indicators8 records

Recent moves8 records

Expansion highlights6 records

Direct peers

• European Organisation for Research and Treatment of Cancer (EORTC): EORTC is a Europe-based clinical cancer research organization conducting multi-centre trials and developing guidelines similar to ENETS' database and standards-of-care work. It is directly comparable in research-infrastructure and guideline-development activities for NET-relevant disease areas.
• International Neuroendocrine Cancer Alliance (INCA): INCA is the global umbrella alliance of patient advocacy and medical societies for neuroendocrine cancer, including a longstanding partnership with ENETS on unmet needs meetings and global NET awareness. It complements ENETS' professional/scientific mission with patient-advocacy and policy coordination.
• Neuroendocrine Tumor Research Foundation (NETRF): NETRF is the largest dedicated funder of NET research, having invested nearly $43 million in neuroendocrine cancer science, including grants to ENETS members. It is the closest funding/research complement to ENETS' scientific programme and operates in the same NET-specific domain.
• European Reference Network EURACAN: ERN EURACAN is the European Reference Network for rare adult solid tumours that includes accredited NEN referral centers eligible to participate in the ENETS Database. It overlaps directly with ENETS on NEN referral pathways and clinical network accreditation across Europe.
• North American Neuroendocrine Tumor Society (NANETS): NANETS is the North American counterpart to ENETS, operating as a professional medical society for neuroendocrine tumor clinicians and researchers with its own guidelines, annual conference, and database initiatives. It is the most direct competitor to ENETS in the rare-disease NET specialty and uses a similar society-led model.

Broad incumbents

• American Society of Clinical Oncology (ASCO): ASCO is the largest global oncology professional society with broad clinical, educational, and guideline-development activities. It operates a society model highly comparable to ENETS but covers all oncology subspecialties rather than specializing in NETs.
• Endocrine Society: The Endocrine Society is a major international endocrinology professional society with peer-reviewed journals, annual meetings, and clinical practice guidelines. It serves a similar scientific-clinical membership base to ENETS in the endocrinology/NEN overlap.
• European Society for Medical Oncology (ESMO): ESMO is the leading European professional oncology society with hundreds of thousands of members and a broader scope than ENETS. It is comparable in operating model (guidelines, conferences, journals, certification) but addresses NETs as part of a much wider oncology portfolio.
• European Society of Endocrinology (ESE): ESE is the leading European endocrinology society with comparable congress, journal, and certification activities. It overlaps with ENETS in endocrinology-related NEN content and member segments, operating in the same European professional-society model.

Others

• Union of European Medical Specialists (UEMS): UEMS is the European certification and accreditation body for medical specialties and a direct strategic partner of ENETS in co-developing the EBNENM European Board certification. Its role as an enabling accreditation body makes it comparable in certification, though not a direct competitive society.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat6 records

Key risks6 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/european-neuroendocrine-tumor-society-ev

Revenue estimate

Valuation estimate

Number of profiles

Profiles11 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about European Neuroendocrine Tumor Society e.V. (ENETS)