Festus Fajemilo Foundation

What Festus Fajemilo Foundation does

Festus Fajemilo Foundation (FFF) is a Nigeria-based non-profit organization dedicated to promoting the rights and inclusion of persons with disabilities, particularly those with Spina Bifida, Hydrocephalus, and other disabilities. Founded approximately 19 years ago and registered with the Corporate Affairs Commission (CAC), FFF has built a portfolio of programs spanning direct medical intervention, inclusive education, vocational skills acquisition, and policy advocacy. Core programs include the Sunlight Life Inclusion Foundation (SLIF) for skills acquisition, the Emergency Medical and Surgical Intervention for Empowerment and Rehabilitation (EMSER) project, the Save-A-Life Initiative, the Rural Inclusive Education (RIRE) Project, and the Cooperative Teaching Manual training model. The organization operates through 11 clinic partnerships with hospitals including LUTH and SOBI, and has directly impacted over 3,000 lives.

FFF's business model is grant-funded non-profit: it does not generate commercial revenue from beneficiaries but secures restricted and unrestricted grants from international donors and foundations. Funding partners include the Liliane Foundation, Shine UK, the UK Department of Health and Social Care (DHSC), the Open Society Foundation (OSF), the Disability Rights Fund, and the Wales Africa Hub (£14,526 disclosed in 2022). Its go-to-market is relationship-driven: programmatic proposals to institutional funders, supplemented by community-level outreach and government engagement. Revenue mechanics depend on competitive grant cycles, with FFF's 19-year track record and multi-funder portfolio providing diversification.

The organization has contributed to national policy development, including the National Inclusive Education Standard Operating Procedures, signaling institutional positioning beyond direct service delivery. Headcount is 1-10 employees, indicating a lean operational structure that leverages partner clinics and international funding networks rather than scaling internal staff. The 2026 FFF @ 20 anniversary celebration marks the organization's maturation milestone.

Name

Festus Fajemilo Foundation

Legal name

Festus Fajemilo Foundation

Website

https://fesfaj-foundation.org

Company type

Private

Founded year

2006

Operating status

Operating

Headcount range

1–10 employees

Short description

Festus Fajemilo Foundation is a Nigeria-based non-profit promoting rights and inclusion for persons with Spina Bifida, Hydrocephalus, and other disabilities through medical intervention, inclusive education, and vocational training programs, serving over 3,000 beneficiaries across 11 clinic partnerships.

Ownership category

akta.pro rank

Headquarters

HQ city

Lagos

HQ country

Nigeria

HQ region

Africa

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: Individual and corporate donations used exclusively for programs supporting persons with disabilities. The foundation accepts contributions through its website with preset amounts (₦5,000, ₦10,000, ₦25,000, ₦50,000, ₦100k) and custom amounts.
2. Foundation and Trust Grants: Funding from international charitable foundations including Liliane Foundation, Gay & Keith Talbot Trust, Disability Rights Fund, and Open Society Foundations supporting specific project implementation.
3. Government and Institutional Grants: Funding from government bodies such as UK Department of Health & Social Care (DHSC), SightSavers, and governmentMDA partnerships for specific health and education initiatives.

Pricing tiers

Go-to-market motion3 records

Distribution channels6 records

Marketing channels9 records

Core offering

Festus Fajemilo Foundation (FFF) is a disability-focused non-profit that delivers healthcare, education, advocacy, and economic empowerment services for persons with Spina Bifida, Hydrocephalus, and other disabilities in Nigeria. Its offering spans life-saving neurosurgical procedure funding (SALI), clinical continence management across 11 public hospitals (SLIF), vocational training for caregivers (EMSER), psychosocial disability support (RIRE), inclusive education programs, and awareness campaigns. Services are delivered free of charge to beneficiaries and funded through grants and donations.

Product overview

Festus Fajemilo Foundation offers a portfolio of interconnected programmes addressing the holistic needs of persons with Spina Bifida, Hydrocephalus, and other disabilities in Nigeria. The core offerings include life-saving surgical interventions through SALI, continence management via the SLIF Project, economic empowerment through EMSER, mental health support via RIRE, and inclusive education initiatives. The Foundation operates from a community-based rehabilitation framework delivering services across healthcare, education, livelihood, social inclusion, and empowerment domains. Major programmes include Save-A-Life Initiative (SALI) for surgery funding, SLIF for continence management across 9 teaching hospitals, EMSER for vocational training, RIRE for psychosocial support, EDISOP for social protection advocacy, and Inclusive Education working with 44 schools in Lagos State.

Differentiator

Problem solved

Functional benefit

Brands

• SLIF (Saving Lives! Improving Futures): Flagship continence management project for children with Spina Bifida, training health workers and establishing continence clinics across Nigeria
• SALI (Save-A-Life Initiative)
• EMSER (Empowerment for Self-Reliance)
• RIRE (Readdress Inclusion Rights & Empowerment)
• EDISOP (Expanding Disability-Inclusive Social Protection)
• Go Folic Campaign

Products and services

• Save-A-Life Initiative (SALI) Funds life-saving neurosurgical procedures (brain and spinal repair surgeries) for children with Spina Bifida and Hydrocephalus in Nigeria, removing financial barriers to critical treatment.
• SLIF — Saving Lives! Improving Futures (Continence Management) Flagship continence management programme training health workers and establishing clinics across Nigeria, providing Clean Intermittent Catheterisation kits, bowel management, urodynamic monitoring, and Oxybutynin to children with Spina Bifida.
• EMSER — Empowerment for Self-Reliance 30-month initiative equipping parents and caregivers of children with disabilities with vocational skills, work tools, and economic empowerment to reduce donor dependency.
• RIRE — Readdress Inclusion Rights & Empowerment Mental health and psychosocial support project addressing challenges faced by People with Psychosocial Disabilities (PSD), building advocacy networks and promoting inclusion post-COVID-19.
• EDISOP — Expanding Disability-Inclusive Social Protection Advocacy project ensuring persons with disabilities are included in social protection programmes and COVID-19 recovery interventions in Lagos State.
• National Summit on Inclusive Education Two-day national summit convening stakeholders to advance access to education for persons with disabilities and facilitate development of National Inclusive Education Standard Operating Procedures (NIESOP).
• Medical Support Programme Facilitating surgeries, consultations, and continence management for persons living with Spina Bifida and Hydrocephalus across Nigeria through hospital referrals and partner networks.
• Inclusive Education Programme Advocating for equitable schooling, accessible classrooms, and cooperative teaching across Nigerian schools, working with 44 public inclusive schools in Lagos State.
• Support Groups Community networks providing emotional support, peer counselling, and belonging for families affected by Spina Bifida and Hydrocephalus at hospital locations (LASUTH Ikeja and OAUTHC Ile-Ife).
• COVID-19 E-Learning Accessibility Intervention Rapid-response project making Lagos State's COVID-19 e-learning accessible to children with disabilities through sign language interpretation, adapted infographics, and instructor training.
• Child Empowerment Programme Empowering youngsters with disabilities in Badagry Area and across Lagos through skills development, peer support, and family sensitisation.
• Awareness & Advocacy Campaigns National campaigns, summits, and SBH Day events championing legislative change and breaking stigma around disability, including World SBH Day, the Stride for Inclusion Walk, and the National Summit on Inclusive Education.

Quantifiable outcome

• 3,000+ lives impacted since 2006
• +4 more outcomes

Named customers3 records

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

17 partnerships are on record, tiered core and supporting.

• Shine UKcoreStrategic or Co-development Partner · 1 January 2017Primary strategic partner for the SLIF (Saving Lives! Improving Futures) Continence Management Project. Shine UK provides technical expertise, funding coordination, and international best practices for Spina Bifida and Hydrocephalus care. Partnership has established 11 continence clinics across Nigeria and trained 120+ healthcare workers.
• Hydrocephalus AssociationcoreStrategic or Co-development PartnerInternational partner collaborating on support group activities and advocacy for persons with Hydrocephalus. Supports FFF's mission to improve care and awareness for the condition.
• SHINE Charity UKcoreStrategic or Co-development PartnerUK-based charity providing ongoing support for Save-A-Life Initiative (SALI), securing funding from Gay & Keith Talbot Trust UK for neurosurgical procedures for children with Spina Bifida and Hydrocephalus.
• TLMN NetworksupportingStrategic or Co-development PartnerPartnership network contributing to disability inclusion initiatives and awareness campaigns in Nigeria.
• FSBH InternationalsupportingStrategic or Co-development PartnerInternational Federation for Spina Bifida and Hydrocephalus provides global expertise, standards, and collaborative opportunities for FFF's programs and advocacy work.
• Global Health PartnershipssupportingImplementation/ SI/ Consulting PartnerUK-based organization managing DHSC grant for SLIF Project expansion, providing programmatic oversight and implementation support.
• The Leprosy Mission NigeriasupportingStrategic or Co-development PartnerLong-term partnership since 2009 for child development programs, channeling Liliane Foundation Netherlands funding to support children with disabilities in Badagry and across Lagos State.
• Daughters of Charity NigeriasupportingStrategic or Co-development PartnerCatholic charitable organization collaborating on COVID-19 E-Learning intervention, Inclusive Education initiatives, and Cooperative Teaching Manual development.
• Joint National Association of Persons with Disabilities (JONAPWD) - Lagos ChaptersupportingStrategic or Co-development PartnerDisability advocacy organization collaborating on COVID-19 E-Learning accessibility intervention and inclusive education programs in Lagos State.
• Federal Ministry of EducationsupportingStrategic or Co-development PartnerGovernment partner for National Summit on Access to Education for Persons with Disabilities, working to develop National Inclusive Education Standard Operating Procedures (NIESOP).
• National Commission for Persons with Disabilities (NCPWD)supportingStrategic or Co-development PartnerGovernment commission collaborating on National Summit to advance disability-inclusive education policy and implementation frameworks.
• Pan African Network for Persons with Psychosocial Disabilities (PANPPD)supportingStrategic or Co-development PartnerCo-implementation partner for RIRE Project, providing continental expertise on psychosocial disability rights and supporting advocacy networks across Africa.
• International Disability Alliance (IDA)supportingStrategic or Co-development PartnerGlobal network of disability organizations serving as alliance partner for RIRE Project and funding NOLB project, ensuring international disability rights standards are incorporated.
• Lagos State Ministry of EducationsupportingStrategic or Co-development PartnerGovernment partner for COVID-19 E-Learning accessibility intervention, Inclusive Education programs, and Cooperative Teaching Manual presentation.
• Pro-Optics LtdsupportingStrategic or Co-development PartnerPartnership providing free comprehensive eye screening and glasses for children with disabilities through FFF programs.
• The Irede FoundationsupportingStrategic or Co-development PartnerPartner organization for United for Inclusive Education (UIE) project, collaborating on School Based Management Committee training.
• Human Development InitiativesupportingStrategic or Co-development PartnerPartner organization for United for Inclusive Education (UIE) project under Disability Rights Fund funding.

Scale indicators12 records

Recent moves6 records

Expansion highlights12 records

Broad incumbents

• Sightsavers: Large international disability-inclusion NGO working across health, education, and social inclusion; an FFF partner on inclusive-education advocacy and a broad incumbent in the disability-development sector.

Direct peers

• Shine UK: UK-based charity specializing in Spina Bifida and Hydrocephalus, including continence management; a current strategic partner of FFF and the originator of the SLIF clinical model being deployed across Nigeria.
• Hydrocephalus Association: US-based patient-advocacy organization focused on Hydrocephalus; current FFF partner and a clear functional peer in support-group programming, education, and family outreach.
• Spina Bifida Association: The largest US-based voluntary health organization for Spina Bifida; comparable mission scope in awareness, clinical resources, and advocacy for persons with SBH and their families.
• International Federation for Spina Bifida and Hydrocephalus (IF): Global umbrella body for SBH organizations; an FFF partner whose network of national member associations represents the most direct category peers worldwide, including in low- and middle-income countries.
• SHINE Charity UK: UK charity funding neurosurgical and continence care for SBH; co-funds FFF's Save-A-Life Initiative through the Gay & Keith Talbot Trust, making it a directly comparable peer in the SBH funding and clinical-support space.

Emerging players

• Liliane Foundation: Dutch foundation funding child development and empowerment for children with disabilities in low-income countries; an FFF funder of EMSER and child empowerment, operating as a peer in disability-focused development funding.
• Disability Rights Fund: International grantmaker funding disability-rights advocacy in low- and middle-income countries; FFF funder for EDISOP and Inclusive Education work, and a comparable peer in disability-focused grantmaking and capacity building.

Regional players

• Joint National Association of Persons with Disabilities (JONAPWD): Nigerian umbrella body of disability advocacy organizations; FFF partner on inclusive-education projects in Lagos and a direct peer in Nigerian disability rights representation.
• The Leprosy Mission Nigeria: Nigerian disability-focused NGO and long-term FFF partner since 2009; comparable mission in supporting persons with disabilities in Nigeria, including channeling Liliane Foundation funding into local programs.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/festus-fajemilo-foundation

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Festus Fajemilo Foundation