EB Clinet

Name

EB Clinet

Legal name

DEBRA Austria - Schmetterlingskinder (Hilfe bei Epidermolysis bullosa)

Website

https://eb-clinet.org

Company type

Private

Founded year

2011

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Revenue model

1. Free Services: EB Clinet provides information and services free of charge to healthcare professionals. The platform is operated by DEBRA Austria as a non-profit initiative for the EB community.

Pricing tiers

Go-to-market motion1 record

Distribution channels2 records

Marketing channels6 records

Core offering

EB Clinet operates an international clinical network platform that connects healthcare professionals working with Epidermolysis Bullosa (EB) patients across 55+ countries. The network delivers evidence-based Clinical Practice Guidelines covering areas such as wound care, pain management, nutrition, and psychosocial care, and provides specialized professional forums (Nursing, Mental Health, Nutrition), online seminars, and a searchable contacts directory of 115+ EB specialists worldwide. All resources and services are provided free of charge as a non-profit initiative operated by DEBRA Austria.

Product overview

EB Clinet is a clinical network platform for Epidermolysis Bullosa, initiated in 2011 by the Academy of the EB House Austria and operated by DEBRA Austria. The core offering consists of Clinical Practice Guidelines (CPGs) covering 16+ clinical areas including wound care, pain management, nutrition, psychosocial care, and disease-specific complications. The platform provides professional community resources through specialized forums for nurses, mental health professionals, and nutrition specialists, along with an online seminar series. Additional resources include a clinical contacts network (115+ contacts in 55 countries), diagnostic tools, educational videos, literature publications, and organized professional events and congresses.

Differentiator

Problem solved

Functional benefit

Products and services

• Clinical Practice Guidelines (CPGs) Evidence-based clinical practice guidelines providing recommendations for the clinical care of EB patients, covering areas such as wound care, pain management, nutrition, psychosocial care, and disease-specific complications. Funded by various DEBRA organizations and available for download as PDFs.
• EB Clinet Online Seminars Web-based informative events for healthcare professionals working in the field of EB, providing expert insights and the latest perspectives on EB treatment and care.
• EB Clinet Clinical Contacts Network A network connecting healthcare professionals working with EB, comprising more than 115 clinical contacts in 55 countries worldwide, enabling collaboration and information exchange.
• Forum for EB Mental Health Professionals A global community platform for mental health professionals working in the field of EB, providing virtual meetings twice yearly for exchange of information, experiences, and discussion of clinical practices and psychological research. Led by Dr Jodie Fellows (UK) and Dr Gudrun Salamon (AT) until spring 2027.
• EB Professionals Nutrition Forum A collaborative space for dietitians, nutrition professionals, and EB health professionals to connect, exchange experiences, ask questions, and build a professional network focused on EB nutrition.
• Nursing Forum for EB Care An accessible platform supporting nurses caring for people living with EB, enabling exchange of questions, knowledge, and experiences among EB care professionals.
• Clinical Diagnostic Matrix A novel EB diagnostic system developed to improve clinical diagnostic accuracy, particularly in resource-poor settings.
• EB Clinet Events and Training Professional training events including the EB Clinet Conference 2024 in Vienna, the upcoming EB2026 International Congress, EADV Congress 2026 in Vienna, and the 55th ESDR Annual Meeting 2026 in Heidelberg.

Segments1 record

Ideal customer profiles1 record

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Four partnerships are on record, tiered core and minor.

• DEBRA AustriacoreStrategic or Co-development Partner · 1 January 2011DEBRA Austria is the parent organization that operates EB Clinet. The network was initiated in 2011 by the Academy of EB House Austria, which is part of DEBRA Austria. DEBRA Austria is a non-profit organization dedicated to supporting people living with Epidermolysis Bullosa.
• EB House AustriacoreStrategic or Co-development PartnerEB House Austria is a specialized clinic for EB patients and the origin of the EB Clinet network. The Academy of EB House Austria initiated EB Clinet in 2011. EB House Austria is located in Salzburg and serves as the specialized care center for EB.
• ERN-SkincoreStrategic or Co-development PartnerEuropean Reference Network for rare, complex and undiagnosed skin diseases. ERN-Skin comprises 56 centers of expertise from 18 countries and focuses on eight thematic groups including Epidermolysis Bullosa. EB Clinet works in coordination with ERN-Skin to improve medical care for rare disease patients.
• DEBRA InternationalminorStrategic or Co-development PartnerDEBRA International promotes the development of guidelines for clinical practice and supports the global EB community. EB Clinet provides resources and links to DEBRA International materials.

Scale indicators2 records

Recent moves6 records

Expansion highlights4 records

Broad incumbents

• National Organization for Rare Disorders (NORD): U.S. rare-disease umbrella providing physician directories, patient resources, and advocacy. Comparable model of professional/patient information aggregation for rare conditions, but with broader disease coverage and U.S. focus.
• American Academy of Dermatology (AAD): Largest U.S. dermatology professional society, publishing clinical guidelines and hosting meetings for dermatologists. Comparable as a dermatologist-facing professional society, with EB content as a small subset.
• European Academy of Dermatology and Venereology (EADV): Large professional dermatology society that EB Clinet engages with and references (EADV Congress 2026 listed as a partner event). Comparable as a dermatology professional body, but EB-specialty expertise is only a small slice of its scope.
• EURORDIS – Rare Diseases Europe: European alliance of rare disease patient organizations. Comparable as an advocacy and information-sharing platform for rare diseases, but operates at a pan-disease policy level rather than EB-specific clinical depth.
• British Association of Dermatologists (BAD): U.K. professional dermatology association publishing clinical guidelines for skin diseases including EB. Comparable as a dermatology professional society with guideline-publication capability, but covering all skin diseases.
• Orphanet: European reference portal for rare diseases including EB, providing encyclopedic resources and an expert directory. Comparable as a rare-disease knowledge and contact hub, but covers6,000+ diseases rather than specializing in EB.

Direct peers

• EB Research Partnership (EBRP): U.S.-based nonprofit funding EB research and supporting clinical advancement. Comparable as an EB-specific nonprofit, but oriented toward research funding rather than clinician networking, making it a complementary rather than direct competitor.
• DEBRA International: Global umbrella organization for national DEBRA groups representing EB patients. It is the closest comparable organization, as it similarly serves the EB community, promotes clinical practice guideline development, and operates across multiple countries — often overlapping with EB Clinet's stakeholder base.
• DEBRA Chile: National DEBRA chapter producing Spanish-language EB management materials and referenced as a content partner on EB Clinet. Comparable as an EB-specific nonprofit, but operating regionally rather than globally.
• European Reference Network for Rare Skin Diseases (ERN-Skin): Formal EU-funded network of 56 rare skin disease centers across 18 countries. Highly comparable as a clinical networking structure for rare skin disease — including a dedicated EB thematic group — and a partner to EB Clinet.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Facebookfacebook.com/schmetterlingskinder
• LinkedInlinkedin.com/company/eb-clinet

Revenue estimate

Valuation estimate

Number of profiles

Profiles7 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about EB Clinet