The Headache & Migraine Policy Forum

What The Headache & Migraine Policy Forum does

The Headache & Migraine Policy Forum (HMPF) is a Washington, DC-based non-profit policy advocacy organization whose stated mission is to advance public policies and practices that promote accelerated innovation and improved access to treatments for persons living with headache disorders and migraine disease. The organization operates through annual advocacy events, policy publications, and direct patient enablement tools. Its core offerings include the Migraine at Work employer program, a state-by-state Consumer Complaint Guide for patients facing insurance denials, an Advocacy Toolkit, and recurring policy papers such as the Economic Burden of Migraine report and Women's Headache Health Through Life Stages. The organization's primary technical surface consists of Squarespace-hosted websites and PDF-based resources rather than software products.

The business model is non-commercial: HMPF does not sell products or services, pricing is zero across all resources, and revenue is derived from grants, donations, and corporate sponsorships (Amgen is documented as a founding sponsor of the Migraine at Work project). The Forum mobilizes approximately 200 patient and clinician advocates from all 50 states each year for the annual Headache on the Hill fly-in, and co-hosts the annual Capitol Hill Policy Forum with the Alliance for Headache Disorders Advocacy (AHDA). Key legislative initiatives include the HEADACHE Act (H.R. 5536), led by Congresswoman Lori Trahan, and engagement on the Improving Seniors' Timely Access to Care Act and WPSI Well-Woman Visit frameworks. The organization is led by Executive Director Lindsay Videnieks and operates with a headcount of 1-10 employees from its headquarters at 2020 K Street NW, Suite 505, Washington, DC.

HMPF's go-to-market combines event-driven federal advocacy (Headache on the Hill, Capitol Hill Policy Forum) with a community-led model that engages patients, providers, and policymakers through self-serve online resources and partner-network distribution (Alliance for Patient Access, American Migraine Foundation, Migraine Meanderings, Miles for Migraine). The organization targets three principal segments: patients with migraine and headache disorders (primary), healthcare providers and clinicians, and federal/state policymakers. Its value proposition centers on being the only organization specifically focused on policy advocacy at the intersection of headache/migraine and public policy, combining direct Capitol Hill engagement with research on insurance barriers and patient-facing tooling.

Name

The Headache & Migraine Policy Forum

Legal name

The Headache & Migraine Policy Forum

Website

https://headachemigraineforum.org

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

The Headache & Migraine Policy Forum is a Washington, DC-based non-profit that advocates for federal and state policies improving access to headache and migraine treatments, serving patients, clinicians, and legislators through annual Capitol Hill events, policy papers, and patient-facing tools like the Consumer Complaint Guide and Migraine at Work program.

Ownership category

akta.pro rank

Product category

Healthcare Policy Advocacy

NAICS

Social Advocacy Organizations (8133), Research and Development in the Social Sciences and Humanities (541720)

SIC

Services-Social Services (8300)

akta.pro primary industry

Headache & Migraine Medicine (HLAKAIAE)

akta.pro secondary industry

Public Health Strategy, Policy & Legislation (HLAJAMAA)

Keywords

• Healthcare policy advocacy
• Patient advocacy
• Migraine research
• Policy reform
• Healthcare access

Headquarters

HQ city

Washington

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Marketing or Sales, Operations, Others

Revenue model

1. Advocacy and Policy Influence Services: As a non-profit policy forum, the organization likely operates through grants, donations, and partnerships with healthcare advocacy foundations to fund policy research, advocacy campaigns, and educational events on migraine and headache disorder treatment access.

Go-to-market motion2 records

Distribution channels4 records

Marketing channels8 records

Core offering

The Headache & Migraine Policy Forum is a nonprofit policy advocacy organization that advances public policies and practices to improve access to treatments for persons living with headache disorders and migraine disease. It mobilizes patient advocates, conducts policy research and surveys, and engages federal and state legislators to address insurance barriers such as step therapy and prior authorization. Core activities include hosting annual Headache on the Hill advocacy days and Capitol Hill Policy Forums, publishing policy papers, and providing resources like the Consumer Complaint Guide and Advocacy Toolkit.

Product overview

The Headache & Migraine Policy Forum is a policy advocacy organization, not a technology product company. Its offerings consist of advocacy resources, educational materials, policy papers, and programs focused on advancing public policies for headache and migraine patients. Key offerings include the Migraine at Work initiative, a Consumer Complaint Guide for patients, an Advocacy Toolkit, and various policy papers including reports on economic burden and women's headache health. The organization hosts annual Capitol Hill Policy Forums and coordinates with partners like the Alliance for Headache Disorders Advocacy.

Differentiator

Problem solved

Functional benefit

Brands

• Migraine at Work: A project of The Headache & Migraine Policy Forum to support employers and employees with tools to build happier, healthier and more productive workplaces for people with migraine.

Products and services

• Migraine at Work A project of The Headache & Migraine Policy Forum that provides tools and resources to support employers and employees in managing migraine disease in the workplace. Amgen is a founding sponsor.
• Consumer Complaint Guide A step-by-step guide helping patients understand their rights and providing instructions for filing complaints with insurers and regulators when appeals fail or coverage decisions are unfair.
• Advocacy Toolkit Resources for advocates to raise awareness and work together toward improving access to preventive treatments for migraine.
• Policy Papers and Research Reports Research reports and policy discussion documents including The Price of Pain (Economic Burden of Migraine), Women's Headache Health Through Life Stages, and Migraine Disease Across Life Stages.

Quantifiable outcome

• Over 200 patients from all 50 states engaged in annual advocacy
• +2 more outcomes

Named customers3 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered core and minor.

• Migraine MeanderingscoreStrategic or Co-development Partner · 19 August 2024Collaboration on survey research including migraine therapies insurance delays/denials surveys, devices for migraine surveys, and combination treatments surveys. Jointly hosts webinars on patient experience data.
• Alliance for Headache Disorders Advocacy (AHDA)coreStrategic or Co-development Partner · 19 March 2024Co-host of annual Headache on the Hill advocacy day and Capitol Hill Policy Forum events. Partnership has been active since at least 2018, with the 2024 forum being the eighth annual collaborative event. Jointly organizes policy panel discussions on topics including step therapy barriers and headache care access.
• Miles for MigraineminorGTM or Marketing Partner · 25 July 2019Collaborative sponsorship of run/walk events to raise awareness and funds for migraine advocacy, including events in multiple cities from 2019-2020.
• American Migraine FoundationminorGTM or Marketing PartnerListed as partner resource provider, distributing educational materials on chronic migraine risk, medications, preventive treatment, and patient support resources.
• Alliance for Patient AccessminorGTM or Marketing PartnerListed as partner resource provider, distributing headache, migraine, and mental health care educational materials.

Scale indicators6 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Miles for Migraine: Patient advocacy organization running awareness and fundraising events for migraine. HMPF is a listed partner through co-sponsored run/walk events, with overlapping patient-advocate communities.
• American Migraine Foundation: Patient-education and research arm of the national migraine community, listed as an HMPF partner. Both organizations target the same patient/provider audience and frequently co-distribute educational resources on migraine access and treatment.
• CHAMP (Coalition For Headache And Migraine Patients): Coalition of headache and migraine patient organizations focused on access, education, and advocacy. Comparable to HMPF in mission and stakeholder reach, with overlapping patient-advocate mobilization tactics.
• National Headache Foundation: Long-standing patient advocacy and education organization for headache disorders. Overlaps HMPF on patient education, awareness, and provider engagement in the headache/migraine policy space.
• Alliance for Headache Disorders Advocacy: Direct peer as co-host of annual Headache on the Hill and Capitol Hill Policy Forum. Both organizations mobilize patients and clinicians for federal headache/migraine policy advocacy, sharing the same legislative targets and core event IP.
• Migraine Meanderings: Patient-led migraine advocacy community collaborating with HMPF on survey research and webinars. Operates in the same patient-advocate mobilization niche and shares data on payer blocking and treatment access.

Broad incumbents

• American Academy of Neurology: Large professional society for neurologists whose membership includes headache specialists featured in HMPF panels. Overlaps HMPF on workforce (headache specialist shortage) and access policy, but operates at much greater scale across all neurology.
• Alliance for Patient Access: Broader patient access advocacy organization spanning multiple therapeutic areas. HMPF is a listed partner resource provider; both engage in policy advocacy around step therapy, prior authorization, and treatment access.
• National Patient Advocate Foundation: National nonprofit focused on health policy and patient access across conditions. Operates in similar federal advocacy and payer-reform space as HMPF but across a much broader disease portfolio.
• Society for Women's Health Research: Policy and research organization focused on women's health. HMPF's 2025/2026 Capitol Hill forum on women's headache health across life stages aligns with SWHR's agenda, creating overlapping policy expertise on sex-based differences in headache care.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/headachepolicy

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about The Headache & Migraine Policy Forum