fondation aide a recherche sclerose (arsep)

What fondation aide a recherche sclerose (arsep) does

France Sclérose en Plaques (legal name: Fondation Aide A Recherche Sclérose En Plaques, ARSEP) is a French nonprofit foundation founded in 1970 and headquartered in Ivry-sur-Seine. It operates as a recognized charitable foundation (association loi 1901 / fondation reconnue d'utilité publique) dedicated to multiple sclerosis, funding medical and scientific research, supporting patients and caregivers, and running public awareness campaigns. The foundation reports cumulative allocation of over €30 million to research and over 900 funded projects across more than 50 years of operation, supported by a base of 95,000+ donors and Don en Confiance certification held since 2010.

Its core services span four areas: (1) research funding and dissemination of scientific advances; (2) patient and caregiver accompaniment, including a phone helpline, workshops, support groups, information days, and a Patient Partner program; (3) educational resources on MS symptoms, treatments, diagnosis, and disease progression; and (4) public awareness campaigns and fundraising events such as Grand Défi Solidaire, 24h du Mans à vélo, and Course du Cerveau. Underlying infrastructure consists of a content-rich website, dedicated donor portal (don.arsep.org), social media presence across Facebook, Instagram, LinkedIn, YouTube, and X, and recurring newsletter and webinar channels.

The foundation is entirely donation-funded, with no commercial products. Revenue streams include individual donations (one-time and recurring at €50/€100/€150/€250 tiers, eligible for 66% French tax reduction), IFI (wealth tax) donations, planned giving through legacies, life insurance and funeral donations, and corporate partnerships. It is presided over by Brigitte Taittinger-Jouyet, operates exclusively in France, and in 2025 rebranded its public-facing identity to France Sclérose en Plaques while retaining the ARSEP legal name.

Name

fondation aide a recherche sclerose (arsep)

Legal name

Fondation Aide A Recherche Sclérose En Plaques (ARSEP)

Website

https://arsep.org

Company type

Private

Founded year

1970

Operating status

Operating

Short description

France Sclérose en Plaques (ARSEP) is a French nonprofit foundation founded in 1970 that funds multiple sclerosis research, supports patients and caregivers, and runs public awareness campaigns across France via a 95,000+ donor base.

Ownership category

akta.pro rank

Product category

Nonprofit Health Foundation / Disease Research Foundation

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211)

SIC

Services-Social Services (8300), Services-Health Services (8000)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industry

Health & Medical Research Grantmaking Foundations (BPAGAKAL)

Keywords

• Multiple sclerosis research
• Patient support services
• Nonprofit health foundation
• Medical research funding
• Patient caregiver accompagnement

Headquarters

HQ city

Ivry-sur-seine

HQ country

France

HQ region

Europe

Markets served

GTM type

B2C

Offering type

Services

Cost components

Others, Operations, Marketing or Sales, Personnel

Revenue model

1. Individual Donations: One-time and recurring donations from individual supporters. Donors can give fixed amounts (50€, 100€, 150€, 250€) or set up monthly giving. All donations are eligible for 66% tax reduction in France, making the actual cost to donors significantly lower.
2. IFI Donations (Don IFI): Tax-deductible donations under the Impôt sur la Fortune Immobilière (IFI) framework, allowing wealthy individuals to make tax-advantaged contributions.
3. Legacies, Life Insurance & Donations: End-of-life giving options including legacies (legs), life insurance policies (assurance-vie), and funeral donations (don obsèques), providing long-term planned giving revenue.
4. Corporate Partnerships: Companies can become enterprise partners (devenir entreprise partenaire), providing corporate sponsorship and partnership revenue.

Distribution channels4 records

Marketing channels6 records

Core offering

France Sclérose en Plaques (ARSEP) is a French nonprofit foundation that funds multiple sclerosis research (over 900 projects, more than €30 million allocated over 50+ years) and delivers direct patient and caregiver support through phone helplines, workshops, support groups, information days, administrative rights guidance, and educational resources on MS symptoms, treatments, and disease management. The foundation also runs awareness campaigns, fundraising sporting and cultural events, and a Patient Partner Program that enables patient participation in MS research and healthcare decision-making.

Product overview

France Sclérose en Plaques (Arsep Foundation) operates as a foundation and association dedicated to supporting people with multiple sclerosis. The organization offers a unified portfolio of services including comprehensive MS education resources, direct patient and caregiver support through phone helplines, workshops, and support groups, substantial funding for medical research (900+ projects, 30+ million euros), public awareness campaigns and sporting/cultural events, and a patient partner program enabling patient involvement in research. These services work together to inform, support, and advocate for the MS community while advancing scientific understanding of the disease.

Differentiator

Problem solved

Functional benefit

Products and services

• Medical and Scientific Research Funding Financial support for innovative and collaborative multiple sclerosis research projects; the foundation has funded over 900 projects and more than €30 million of MS research, advancing understanding and treatment of the disease for medical researchers and scientists.
• Patient and Caregiver Support Services Personalized accompaniment services covering patient support, caregiver assistance, work-related guidance, administrative rights support, and local support groups and workshops for people with MS and their families.
• Phone Helpline Service (Permanences téléphoniques) Telephone support service providing guidance and information to multiple sclerosis patients and their families across France.
• Workshops and Support Groups (Ateliers / Groupes de parole) Organized workshops and peer exchange groups that enable MS patients to share experiences and learn coping strategies in person across France.
• Information Days (Journées d'information) Educational events and open days providing opportunities for MS patients and families to learn about the disease and interact with healthcare professionals.
• Information Resources on Multiple Sclerosis Comprehensive educational resources covering MS definition, symptoms, treatments, diagnosis, causes, and disease progression, disseminated via the website and brochures to inform and support patients and their families.
• Awareness Campaigns and Fundraising Events Public awareness initiatives including sporting events such as Grand Défi Solidaire and 24h du Mans à vélo, cultural events, and awareness campaigns (including World MS Day) to break misconceptions and amplify patient voices.
• Patient Partner Program (Devenir patient partenaire) Program that enables patients with multiple sclerosis to become active participants in MS research and healthcare decision-making processes.

Segments4 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

One partnership is on record.

• Don en ConfiancecoreOthersIndependent certification organization that controls and monitors the proper use of donations. France Sclérose en Plaques has been recognized as trustworthy since 2010, providing donors with confidence in the organization's financial transparency and accountability.

Scale indicators4 records

Recent moves5 records

Expansion highlights5 records

Direct peers

• National Multiple Sclerosis Society: Largest U.S. MS-focused nonprofit funding research and providing patient services. Directly comparable disease-specific funding-and-support model, though at a much larger scale and geographic footprint.
• Multiple Sclerosis International Federation (MSIF): Global MS umbrella linking national MS societies and coordinating international research initiatives. Comparable as a global MS convening and research-funding body; differs in geographic scope and federation model.
• AFM-Téléthon: Leading French disease-specific research foundation (focused on neuromuscular diseases) using donations, events, and telethons to fund research. Closest French analog in structure, fundraising DNA, and research-grantmaking mission.
• Ligue Nationale contre le Cancer: Major French disease-specific nonprofit funding cancer research and supporting patients/caregivers. Comparable as a French health foundation combining research grants, patient services, and nationwide events.
• Fondation pour la Recherche Médicale (FRM): French nonprofit foundation funding medical research broadly across diseases. Comparable as a French research-grantmaking foundation reliant on donations, legacies, and donor trust certifications.
• Fondation de France: Largest French grantmaking foundation distributing funds to nonprofit projects including health. Comparable as a French donation-funded grantmaker; differs in broad multi-cause mandate rather than single-disease focus.

Regional players

• MS Canada (formerly MS Society of Canada): Canadian MS research funder and patient-services nonprofit. Directly comparable disease-specific model; differs as a non-French geographic peer with similar dual research-plus-support mission.
• Multiple Sclerosis Trust (UK): UK charity funding MS research and providing information/support services to patients. Comparable mission and service mix; differs by UK geography and smaller research-grantmaking scale.

Emerging players

• Arthritis Foundation: U.S. chronic-disease foundation funding research and patient support. Comparable structure (research funding + patient services + community events), with partial thematic overlap on autoimmune and chronic conditions related to MS.

Broad incumbents

• France Assos Santé: French national federation representing patient associations in policy advocacy. Comparable as a French nonprofit health ecosystem player; differs as an advocacy umbrella rather than a direct research funder.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks7 records

Key highlights7 records

Customer concentration

• Xx.com/france_sep
• YouTubeyoutube.com/@FranceScleroseEnPlaques
• Facebookfacebook.com/FranceScleroseEnPlaques
• LinkedInlinkedin.com/company/francescleroseenplaques
• Instagraminstagram.com/francescleroseenplaques

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about fondation aide a recherche sclerose (arsep)