associazione pazienti italiani di colangiocarcinoma-apic

What associazione pazienti italiani di colangiocarcinoma-apic does

APIC (Associazione Pazienti Italiani di Colangiocarcinoma) is an Italian non-profit patient association founded in 2019 and headquartered in Italy, dedicated exclusively to cholangiocarcinoma, a rare cancer of the biliary tract. The organization supports patients, families, and caregivers with disease-specific information, guidance on specialized treatment centers, updates on evolving therapies and clinical trials, a structured psychological support program (including individual counseling and webinars), and educational content such as the 'Pillole di Ricerca' research summaries and patient guides on navigating consultations. APIC also funds research — for example, a study by Prof. Brandi's group on anti-Trop-2 therapy patient stratification — and runs prevention initiatives such as the 'In ricordo di Caterina' campaign, which offers partial reimbursement for biliary ultrasound to support early diagnosis.

The organization does not develop proprietary technology products. Its technology footprint is a WordPress-based website (apicinfo.it) serving as the primary information hub, supported by standard social media channels (Facebook, Instagram, YouTube) and email newsletters. APIC's strategic reach is amplified through membership in three Italian federations — F.A.V.O. (Federazione Italiana delle Associazioni di Volontariato in Oncologia), Ropi (Rete Oncologica Pazienti Italia), and Uniamo (Federazione Italiana Malattie Rare) — and through structured collaboration with the San Raffaele Comprehensive Cancer Center for periodic patient-clinician dialogue. The association organizes an annual National Meeting (4th edition held in Verona on 21 February 2026).

APIC's revenue model is donation-based, with no paid products or services. Funding comes from voluntary public donations, Italy's 5x1000 tax designation program (Tax Code CF 91414730373), unconditional (non-promotional) financial contributions from pharmaceutical companies AstraZeneca and Incyte disclosed on the website footer, and periodic fundraising campaigns such as the annual Easter sweets sale conducted with confectionery partner Vestri. All services are provided free of charge to patients and families throughout Italy, with no revenue, headcount, or financial figures publicly disclosed.

Name

associazione pazienti italiani di colangiocarcinoma-apic

Legal name

APIC - Associazione Pazienti Italiani di Colangiocarcinoma

Website

https://apicinfo.it

Company type

Private

Founded year

2019

Operating status

Operating

Short description

APIC is an Italian non-profit patient association founded in 2019 that supports cholangiocarcinoma (bile duct cancer) patients, caregivers, and families nationwide with disease education, psychological support, treatment-center guidance, and research funding, financed by donations, 5x1000 tax designations, and pharmaceutical contributions.

Ownership category

akta.pro rank

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and 5x1000 Tax Designation: APIC raises funds through voluntary donations from the public and receives support through Italy's 5x1000 tax designation program (Tax Code: CF 91414730373). Donors can direct a portion of their income tax to support the association's mission.
2. Fundraising Campaigns: APIC conducts periodic fundraising campaigns such as the Easter sweets sale ('La Pasqua è più buona con APIC') with support from partner company Vestri, and the 'barattolini della solidarietà' campaign. Proceeds fund research.
3. Pharmaceutical Company Unconditional Contributions: APIC receives unconditional (non-promotional) financial contributions from pharmaceutical companies AstraZeneca and Incyte, which fund the website and organizational activities. These contributions are disclosed on the website footer.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels8 records

Core offering

APIC is an Italian non-profit patient association dedicated to cholangiocarcinoma (bile duct cancer) patients and their families. The organization provides free information resources, psychological support, awareness and prevention campaigns, advocacy at national and European levels, and funds research into the disease. It connects patients with specialized hospital centers and serves as the sole Italian association focused exclusively on this rare cancer.

Product overview

APIC is a non-profit patient advocacy association for cholangiocarcinoma (bile duct cancer) in Italy. The organization provides informational resources, patient support services, emotional assistance, caregiver support, news about the disease, event organization, and advocacy activities. It does not offer commercial technology products or software services.

Differentiator

Problem solved

Functional benefit

Products and services

• Psychological Support Program
• Annual National Meeting (Incontri Nazionali)
• Prevention Campaign with Biliary Ultrasound Reimbursement
• Research Funding Program

Quantifiable outcome

• Partial reimbursement for biliary ultrasound for prevention and early diagnosis of cholangiocarcinoma (campaign 'In ricordo di Caterina')
• +1 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered core and minor.

• F.A.V.O. (Federazione Italiana delle Associazioni di Volontariato in Oncologia)coreStrategic or Co-development PartnerAPIC is an associated member of F.A.V.O., the Italian Federation of Oncology Volunteer Associations. This membership connects APIC to the broader Italian oncology voluntary sector and provides a platform for collaboration on cancer patient advocacy at the national level.
• Ropi (Rete Oncologica Pazienti Italia)coreStrategic or Co-development PartnerAPIC is an associated member of Ropi, the Italian Oncology Patient Network. This membership provides APIC with a network of oncology patient organizations across Italy and enables collaborative advocacy initiatives.
• Uniamo (Federazione Italiana Malattie Rare)coreStrategic or Co-development PartnerAPIC is an associated member of Uniamo, the Italian Rare Diseases Federation. Since cholangiocarcinoma is classified as a rare disease, this membership allows APIC to participate in rare disease advocacy initiatives and connect with the broader rare disease community in Italy.
• Comprehensive Cancer Center - Ospedale San RaffaelecoreStrategic or Co-development PartnerAPIC collaborates with the San Raffaele Comprehensive Cancer Center through periodic meetings where patient associations and hospital professionals engage in structured dialogue. The collaboration aims to bring patient experiences to the attention of healthcare providers, discuss organizational issues such as appointment scheduling and waiting times, and participate in oncology awareness and prevention days organized by the center.
• Prof. Brandi Research GroupminorStrategic or Co-development PartnerAPIC has funded a research study by Professor Brandi's group aimed at more precisely defining which patients may benefit from anti-Trop-2 therapies for cholangiocarcinoma. This work is currently in the publication phase.

Scale indicators2 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Cholangiocarcinoma Foundation: US-based patient advocacy organization exclusively dedicated to cholangiocarcinoma. Directly comparable mission—patient support, research funding, awareness—and the closest disease-specific peer worldwide.
• The Bili Project Foundation: US non-profit focused on bile duct cancer awareness, research funding, and patient advocacy. Directly comparable in disease focus (cholangiocarcinoma/biliary tract cancer) and advocacy model.

Regional players

• AMMF – The Cholangiocarcinoma Charity: UK cholangiocarcinoma patient charity with the same rare disease focus as APIC. Comparable in mission and disease scope, but primarily serves a different (UK) geography.
• Salute Donna Onlus: Italian non-profit patient association focused on cancer (women's cancers). Comparable in structure, country, and patient-advocacy mission, but serves a broader oncology segment rather than cholangiocarcinoma specifically.
• EuropaColon Italia: Italian affiliate of EuropaColon focused on gastrointestinal cancers including biliary tract cancers. Comparable as an Italian GI-cancer patient advocacy non-profit with overlapping disease territory.

Others

• F.A.V.O. – Federazione Italiana delle Associazioni di Volontariato in Oncologia: Italian Federation of Oncology Volunteer Associations, of which APIC is a member. Comparable as a peer organization within the same national federation ecosystem and as a similar Italian non-profit oncology structure.
• UNIAMO – Federazione Italiana Malattie Rare: Italian Rare Diseases Federation that APIC belongs to. Comparable as a national rare-disease umbrella organization operating with similar non-profit and federation models in the same country.
• ROPI – Rete Oncologica Pazienti Italia: Italian Oncology Patient Network and fellow member organization of which APIC is associated. Comparable Italian non-profit patient advocacy peer within the same oncology ecosystem.

Market position

Strengths5 records

Weaknesses4 records

Competitive moat3 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@a.p.i.c
• Facebookfacebook.com/AssociazionePazientiItalianiColangiocarcinoma/?locale=it_IT
• Instagraminstagram.com/apicinfo.it

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about associazione pazienti italiani di colangiocarcinoma-apic