Parkinson's Foundation
The Parkinson's Foundation is a 501(c)(3) nonprofit founded in 1957 serving the estimated 1 million U.S. individuals living with Parkinson's disease through free genetic testing (PD GENEration), clinical trial matching, a 40+ Center of Excellence network, and community support programs funded by donations and grants.
- Company typePrivate
- Founded1957
- HeadquartersMiami, United States
- Headcount101–250
- GTM typeB2C
- OfferingServices
What Parkinson's Foundation does
The Parkinson's Foundation is a 501(c)(3) nonprofit organization founded in 1957 in Miami, Florida, and formed in its current form through the 2016 merger of the National Parkinson Foundation and the Parkinson's Disease Foundation (EIN 13-1866796). The Foundation serves the estimated 1 million people in the U.S. living with Parkinson's disease (projected to reach 1.2 million by 2030), their care partners, and the healthcare professionals treating them. Its mission operates across three pillars: advancing research, improving care, and providing community support.
The Foundation's core technology and product platform centers on PD GENEration — a national initiative offering free genetic testing for seven Parkinson's-related mutations and genetic counseling, now operating across 23 clinical sites with over 30,000 genetically tested patients in its database. This database underpins the PD Trial Navigator program, which matches genetically eligible patients to clinical trials (e.g., identifying 2,000+ participants for Neuron23's NEULARK trial). Adjacent technology-enabled assets include the PD Library of educational resources, the PD Conversations online community, a free Helpline (1-800-4PD-INFO), an AI chat tool launched in March 2026 for the 'Find Real Answers' campaign, and fitness-data integrations (Apple Health, Google Fit, Garmin, Strava, Fitbit) for fundraising campaigns. The Global Care Network comprises 40+ designated Centers of Excellence at major academic medical centers providing multidisciplinary Parkinson's care.
The Foundation operates a diversified nonprofit revenue model with four primary streams: individual donations and tribute gifts, institutional grants (e.g., Robert W. Woodruff Foundation, Pat Simone Charitable Foundation — $800,000 in 2023), corporate sponsorships (Abbott, Neuron23, NuStep), and programmatic community grants outflow. Go-to-market is community-led and event-driven, anchored by the Moving Day walk series, Parkinson's Revolution indoor cycling events, the annual April Awareness Month campaign with PSAs and national media tours reaching 22+ outlets, and grassroots local chapters across the U.S. All services are provided at no cost to end users.
Parkinson's Foundation firmographics
Firmographics- Name
- Parkinson's Foundation
- Legal name
- Parkinson's Foundation
- Website
- https://parkinson.org
- Company type
- Private
- Founded year
- 1957
- Operating status
- Operating
- Headcount range
- 101–250 employees
- Short description
- The Parkinson's Foundation is a 501(c)(3) nonprofit founded in 1957 serving the estimated 1 million U.S. individuals living with Parkinson's disease through free genetic testing (PD GENEration), clinical trial matching, a 40+ Center of Excellence network, and community support programs funded by donations and grants.
- Ownership category
- akta.pro rank
Parkinson's Foundation industry classification
Industry- Product category
- Disease-Focused Nonprofit Health Services
- NAICS
- Voluntary Health Organizations (813212)
- SIC
- Services-Social Services (8300)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
- akta.pro secondary industries
- Health & Medical Research Grantmaking Foundations (BPAGAKAL), Global Health Research, Clinical Trials & Product Development Partnerships (PDPs) (HLAJAOAM), Parkinson’s & Movement-Disorder Personal Care Support (HSABABAJ)
Keywords
Where Parkinson's Foundation is headquartered
LocationHeadquarters
- HQ city
- Miami
- HQ country
- United States
- HQ region
- North America
Offices2 records
Markets served
Parkinson's Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Others
Revenue model
- Donations and Charitable Contributions: The Foundation relies on individual donations, tribute gifts, and monthly giving programs from supporters. Donations fund research, care programs, and educational initiatives.
- Grants and Foundation Funding: Funding from institutional foundations like the Robert W. Woodruff Foundation supports specific programs such as PD GENEration expansion and health disparity initiatives.
- Corporate Sponsorships: Corporate partners sponsor events and programs. The Foundation offers various sponsorship levels for Moving Day and other fundraising events.
- Community Grants: The Foundation awards community grants to support health, wellness, and educational programs for Parkinson's disease communities, particularly targeting underserved populations.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Freemium | Pay-as-you-go | Free genetic testing and counseling for people with Parkinson's disease |
Go-to-market motion3 records
Distribution channels6 records
Marketing channels12 records
Parkinson's Foundation product offering
Product offeringCore offering
The Parkinson's Foundation provides free nationwide genetic testing and counseling for Parkinson's patients through the PD GENEration initiative, clinical trial matching via the PD Trial Navigator, a free Helpline, and an extensive library of educational resources (PD Library, Neuro Talk, Substantial Matters podcast, CareMAP). It operates a Global Care Network of designated Centers of Excellence at major academic medical centers delivering multidisciplinary Parkinson's care, supports patients and caregivers through community chapters, support groups, and the Aware in Care hospital safety program, and funds research grants, community grants, and policy advocacy.
Product overview
The Parkinson's Foundation offers a comprehensive suite of digital and in-person programs centered on three pillars: advancing research, improving care, and providing support for people with Parkinson's disease. The core digital offerings include PD GENEration (genetic testing and counseling initiative), PD Trial Navigator (clinical trial matching), and the PD Library (educational resource repository). The Foundation operates a multi-platform content strategy including Neuro Talk videos, Substantial Matters podcast, and CareMAP bilingual videos. Support services include a Helpline, online community (PD Conversations), and Aware in Care hospital education program. The Foundation also runs fundraising event programs (Moving Day, Parkinson's Revolution), awards innovation grants, and maintains a Global Care Network of designated Centers of Excellence. The organization has launched AI-powered tools including an AI chat tool for the 'Find Real Answers' campaign and offers telehealth services through the NeuroSphere Virtual Clinic for deep brain stimulation programming.
Differentiator
Problem solved
Functional benefit
Products and services
- PD GENEration: Mapping the Future of Parkinson's Disease A national initiative offering free genetic testing and counseling for people with Parkinson's disease. Screens for seven Parkinson's-related genetic mutations and connects participants with relevant clinical trials through the PD Trial Navigator. Available in-person at Centers of Excellence and via telehealth, in English and Spanish.
- PD Trial Navigator A clinical trial matching program that leverages the PD GENEration database of 30,000+ genetically tested patients to identify and prescreen eligible participants for Parkinson's clinical trials, and connects them with research opportunities such as the Neuron23 NEULARK trial.
- Moving Day A national fundraising walk/event program that brings together the Parkinson's community to raise awareness and funds for research, care, and resources. Held in communities across the United States.
- Parkinson's Revolution An indoor cycling event program hosted in cities across the country to raise awareness and funding for Parkinson's disease research and patient support.
- PD Library A comprehensive online and mail-order resource library offering free fact sheets, books, audiobooks, videos, and educational materials about Parkinson's disease for patients, caregivers, and healthcare professionals in English and Spanish.
- Neuro Talk Video Series A video series featuring expert discussions on Parkinson's disease topics including diagnosis, symptoms, treatment options, research, and myths, presented by the Foundation's Chief Scientific Officer and other experts.
- Substantial Matters Podcast A podcast series covering the life and science of Parkinson's disease, with episodes in both English and Spanish featuring expert interviews and discussions on PD-related topics.
- Parkinson's Foundation Helpline A free information and support helpline (1-800-4PD-INFO / 1-800-473-4636) staffed by PD Information Specialists, providing personalized support, resource referrals, and information in English and Spanish Monday-Friday 9am-7pm ET.
- Aware in Care A hospital education program that provides tools and resources to help ensure people with Parkinson's receive proper medication and care during hospitalizations, addressing the fact that 75% of PD patients do not receive their medications while in the hospital.
- Hospital Safety Guide A resource guide designed to help people with Parkinson's navigate hospitalization safely, ensuring they receive proper medication timing and care while in the hospital.
- Global Care Network / Centers of Excellence A network of 40+ designated Centers of Excellence and healthcare locations providing multidisciplinary, expert Parkinson's care, with designations given to medical centers demonstrating exemplary care, research leadership, and community outreach.
- Community Grants Program A grant program providing $1 million in 2026 to support health, wellness, and educational programs for Parkinson's disease communities, with a focus on expanding access and services for underserved populations.
- Paul Oreffice Innovations in Care Awards Award program providing grants (nearly $600,000 through three inaugural awards) to fund innovative clinical care practices for people with Parkinson's disease, supporting exploration of care models involving telehealth apps, peer mentorship programs, and AI technologies.
- CareMAP A bilingual video series providing practical guidance for caregivers on helping people with Parkinson's disease with daily activities, including bathing, dressing, eating, medication management, and fall prevention.
- PD Conversations An online community forum where people with Parkinson's and their care partners can connect, share experiences, ask questions, and provide mutual support through discussion groups including Newly Diagnosed and Caregiving forums.
Quantifiable outcome
- 98% of Parkinson's patients reported telehealth improved access to healthcare services, with 88% overall satisfaction rate
- +3 more outcomes
Companies that use Parkinson's Foundation
Customer profileNamed customers6 records
Segments5 records
Ideal customer profiles4 records
Parkinson's Foundation technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration5 records
AI capability3 records
Feature3 records
Parkinson's Foundation partnerships and signals
Strategic signalPartnerships
Twelve partnerships are on record, tiered flagship, minor and core.
- WHO FoundationflagshipThe Parkinson's Foundation partnered with the WHO Foundation to improve access to medicines for Parkinson's disease in Africa, addressing global treatment gaps for neurological disorders. The initiative is informed by findings from the inaugural World Summit on Parkinson's Disease and aims to confront socio-economic barriers impeding neurological care in low- and middle-income countries.
- Neuron23flagshipPartnership through the PD Trial Navigator program to identify genetically eligible participants for Neuron23's NEULARK clinical trial. The Foundation leverages its database of 30,000+ genetically tested patients combined with Neuron23's precision medicine tools to prescreen and match participants targeting the overactive LRRK2 pathway.
- accessiBeminorParkinson's Foundation participates in accessiBe's Inclusive Product Advisory Board, contributing expertise to shape product decisions and industry research on digital accessibility. The board brings together disability advocates and accessibility professionals to improve digital content accessibility.
- National Alliance for Hispanic HealthcoreCollaboration during Parkinson's Awareness Month 2026 to promote awareness and reliable information access in Hispanic communities. Joint initiatives include an AI chat tool, helplines, PSA campaign, and interactive quiz available in English and Spanish.
- National Institute for Fitness and Sport (NIFS)minorCo-host of Pump It 2026 on April 9, a nationwide movement-based event for Parkinson's Disease Awareness Month with a goal of reaching 50 million steps. The event features Hoop It for Parkinson's at NIFS in Indianapolis.
- NuStepminorCo-host partner for Pump It 2026, a nationwide movement event for Parkinson's Awareness Month. NuStep provides fitness equipment and support for the event.
- Assured Home NursingminorHome care provider recognized as a Parkinson's Foundation Community Partner in Care, enabling the agency to offer specialized, personalized in-home care services for individuals affected by Parkinson's Disease, including support with physical challenges, therapy adherence, and daily living assistance.
- AbbottcoreCollaboration on a survey finding that 98% of 41 people living with Parkinson's who underwent remote audio-visual deep brain stimulation tele-programming reported that telehealth improved their access to healthcare services. The survey evaluated the NeuroSphere Virtual Clinic which enables remote programming of neurostimulation systems.
- Morehouse School of MedicinecoreCollaboration with Morehouse School of Medicine to expand genetic testing and research for Black and African American individuals with Parkinson's disease in Georgia. Morehouse provides clinical expertise and community outreach to underserved populations through the PD GENEration initiative.
- Veterans Affairs (VA)corePartnership to improve the health, well-being, and quality of life of veterans living with Parkinson's disease. The VA and Parkinson's Foundation collaborate on webinars and resources addressing the impact PD has on Veterans' mental health.
- AARPcorePartnership with AARP Family Caregiving to provide tools, information, and resources for care partners of people living with Parkinson's. The collaboration includes a webinar series, digital and print resources for care partners, and AARP's participation in the Parkinson's Foundation Care Partner Summit.
- The Michael J. Fox FoundationcoreCollaborative relationship in the Parkinson's research community. The Michael J. Fox Foundation produces reports on Parkinson's economic burden (2024: $82.2 billion cost to U.S.), with both foundations working toward shared goals of advancing research and improving patient care.
Scale indicators10 records
Recent moves9 records
Expansion highlights7 records
Parkinson's Foundation competitors and assessment
Company assessmentDirect peers
- The Michael J. Fox Foundation for Parkinson's Research: The largest U.S. nonprofit funder of Parkinson's research and a direct competitor for PD-specific donations, research grants, brand attention, and policy influence. Overlaps on patient education, research funding, and advocacy.
- American Parkinson Disease Association: U.S. Parkinson's-specific nonprofit providing patient services, information, and research funding. Competes for the same donor and patient populations, and operates a comparable Information & Referral helpline and chapter-based service model.
- Davis Phinney Foundation: Parkinson's-focused nonprofit centered on living well with PD, providing educational programs, tools, and community resources. Direct overlap in patient education, events, and the Parkinson's wellness/lifestyle segment.
- ALS Association: Disease-specific nonprofit comparable in structure (research funding, care services, advocacy, chapters, walks) and revenue model. Closely aligned as a fellow neurodegenerative-disease voluntary health organization competing for similar donor dollars.
- National Multiple Sclerosis Society: Disease-specific nonprofit with a comparable operating model: research funding, Centers of Excellence-like care network, helpline, chapters, walks, advocacy, and federal policy engagement. Direct parallel in structure and donor economics.
- Muscular Dystrophy Association: Disease-specific nonprofit funding research, care (Care Centers network), and community services. Highly comparable operating model and competition for similar charitable dollars in the neuromuscular disease space.
Regional players
- Parkinson's UK: The leading Parkinson's charity in the United Kingdom, providing research funding, information, and support services. Highly comparable mission and service portfolio, but UK geographic focus limits direct competition in the U.S.
Emerging players
- Brian Grant Foundation: Parkinson's-focused nonprofit emphasizing exercise, nutrition, and wellness for people with PD. Smaller scale than the Parkinson's Foundation, with overlap in education, community programs, and lifestyle-oriented support.
Broad incumbents
- Alzheimer's Association: The largest U.S. neurodegenerative-disease nonprofit, operating a comparable model of research grants, care consultation, chapters, walks, and policy advocacy. Larger and broader, with overlap on care navigation, helpline, and federal advocacy.
- American Cancer Society: Large disease-specific voluntary health organization with analogous programs (research grants, patient support, helpline, fundraising events, advocacy). Useful benchmark for scale, governance, and multi-channel patient engagement in the nonprofit health vertical.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat6 records
Key risks6 records
Key highlights7 records
Customer concentration
Parkinson's Foundation social profiles
Digital presenceParkinson's Foundation compliance and trust
Trust signalCompliance3 records
Parkinson's Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
Parkinson's Foundation leadership team
Management profileNumber of profiles
Profiles9 records
Parkinson's Foundation subsidiaries and ownership
Company hierarchySubsidiaries3 records
Parkinson's Foundation funding detail
Funding detailFunding overview
Funding rounds2 records
Investors2 records
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Parkinson's Foundation M&A and investment
M&A and investmentM&A
Investments89 records
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Frequently asked questions about Parkinson's Foundation
What does Parkinson's Foundation do?
The Parkinson's Foundation provides free nationwide genetic testing and counseling for Parkinson's patients through the PD GENEration initiative, clinical trial matching via the PD Trial Navigator, a free Helpline, and an extensive library of educational resources (PD Library, Neuro Talk, Substantial Matters podcast, CareMAP). It operates a Global Care Network of designated Centers of Excellence at major academic medical centers delivering multidisciplinary Parkinson's care, supports patients and caregivers through community chapters, support groups, and the Aware in Care hospital safety program, and funds research grants, community grants, and policy advocacy.
Is Parkinson's Foundation a public or private company?
Parkinson's Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Parkinson's Foundation founded?
Parkinson's Foundation was founded in 1957. It employs 101 to 250 people.
Where is Parkinson's Foundation based?
Parkinson's Foundation is headquartered in Miami, United States, in the North America region.
How does Parkinson's Foundation make money?
Four revenue lines are on record. Donations and Charitable Contributions are the primary driver. The others are grants and Foundation Funding, corporate Sponsorships and community Grants.
Who are Parkinson's Foundation's main competitors?
Direct peers on record are The Michael J. Fox Foundation for Parkinson's Research, American Parkinson Disease Association, Davis Phinney Foundation, ALS Association, National Multiple Sclerosis Society and Muscular Dystrophy Association. Parkinson's UK is listed as a regional player. Brian Grant Foundation is listed as an emerging player. Broad incumbents are Alzheimer's Association and American Cancer Society.
Does Parkinson's Foundation have an API?
No public API is recorded for Parkinson's Foundation.
What industry is Parkinson's Foundation in?
Parkinson's Foundation's product category is Disease-Focused Nonprofit Health Services. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of BPAGAKAL, Health & Medical Research Grantmaking Foundations. Its NAICS code is 813212 and its SIC code is 8300.