Parkinson's Foundation

What Parkinson's Foundation does

The Parkinson's Foundation is a 501(c)(3) nonprofit organization founded in 1957 in Miami, Florida, and formed in its current form through the 2016 merger of the National Parkinson Foundation and the Parkinson's Disease Foundation (EIN 13-1866796). The Foundation serves the estimated 1 million people in the U.S. living with Parkinson's disease (projected to reach 1.2 million by 2030), their care partners, and the healthcare professionals treating them. Its mission operates across three pillars: advancing research, improving care, and providing community support.

The Foundation's core technology and product platform centers on PD GENEration — a national initiative offering free genetic testing for seven Parkinson's-related mutations and genetic counseling, now operating across 23 clinical sites with over 30,000 genetically tested patients in its database. This database underpins the PD Trial Navigator program, which matches genetically eligible patients to clinical trials (e.g., identifying 2,000+ participants for Neuron23's NEULARK trial). Adjacent technology-enabled assets include the PD Library of educational resources, the PD Conversations online community, a free Helpline (1-800-4PD-INFO), an AI chat tool launched in March 2026 for the 'Find Real Answers' campaign, and fitness-data integrations (Apple Health, Google Fit, Garmin, Strava, Fitbit) for fundraising campaigns. The Global Care Network comprises 40+ designated Centers of Excellence at major academic medical centers providing multidisciplinary Parkinson's care.

The Foundation operates a diversified nonprofit revenue model with four primary streams: individual donations and tribute gifts, institutional grants (e.g., Robert W. Woodruff Foundation, Pat Simone Charitable Foundation — $800,000 in 2023), corporate sponsorships (Abbott, Neuron23, NuStep), and programmatic community grants outflow. Go-to-market is community-led and event-driven, anchored by the Moving Day walk series, Parkinson's Revolution indoor cycling events, the annual April Awareness Month campaign with PSAs and national media tours reaching 22+ outlets, and grassroots local chapters across the U.S. All services are provided at no cost to end users.

Name

Parkinson's Foundation

Legal name

Parkinson's Foundation

Website

https://parkinson.org

Company type

Private

Founded year

1957

Operating status

Operating

Headcount range

101–250 employees

Short description

The Parkinson's Foundation is a 501(c)(3) nonprofit founded in 1957 serving the estimated 1 million U.S. individuals living with Parkinson's disease through free genetic testing (PD GENEration), clinical trial matching, a 40+ Center of Excellence network, and community support programs funded by donations and grants.

Ownership category

akta.pro rank

Product category

Disease-Focused Nonprofit Health Services

NAICS

Voluntary Health Organizations (813212)

SIC

Services-Social Services (8300)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industries

Health & Medical Research Grantmaking Foundations (BPAGAKAL), Global Health Research, Clinical Trials & Product Development Partnerships (PDPs) (HLAJAOAM), Parkinson’s & Movement-Disorder Personal Care Support (HSABABAJ)

Keywords

• Parkinson's research
• Genetic testing services
• Disease education resources
• Clinical care programs
• Community health support

Headquarters

HQ city

Miami

HQ country

United States

HQ region

North America

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Others

Revenue model

1. Donations and Charitable Contributions: The Foundation relies on individual donations, tribute gifts, and monthly giving programs from supporters. Donations fund research, care programs, and educational initiatives.
2. Grants and Foundation Funding: Funding from institutional foundations like the Robert W. Woodruff Foundation supports specific programs such as PD GENEration expansion and health disparity initiatives.
3. Corporate Sponsorships: Corporate partners sponsor events and programs. The Foundation offers various sponsorship levels for Moving Day and other fundraising events.
4. Community Grants: The Foundation awards community grants to support health, wellness, and educational programs for Parkinson's disease communities, particularly targeting underserved populations.

Pricing tiers

Go-to-market motion3 records

Distribution channels6 records

Marketing channels12 records

Core offering

The Parkinson's Foundation provides free nationwide genetic testing and counseling for Parkinson's patients through the PD GENEration initiative, clinical trial matching via the PD Trial Navigator, a free Helpline, and an extensive library of educational resources (PD Library, Neuro Talk, Substantial Matters podcast, CareMAP). It operates a Global Care Network of designated Centers of Excellence at major academic medical centers delivering multidisciplinary Parkinson's care, supports patients and caregivers through community chapters, support groups, and the Aware in Care hospital safety program, and funds research grants, community grants, and policy advocacy.

Product overview

The Parkinson's Foundation offers a comprehensive suite of digital and in-person programs centered on three pillars: advancing research, improving care, and providing support for people with Parkinson's disease. The core digital offerings include PD GENEration (genetic testing and counseling initiative), PD Trial Navigator (clinical trial matching), and the PD Library (educational resource repository). The Foundation operates a multi-platform content strategy including Neuro Talk videos, Substantial Matters podcast, and CareMAP bilingual videos. Support services include a Helpline, online community (PD Conversations), and Aware in Care hospital education program. The Foundation also runs fundraising event programs (Moving Day, Parkinson's Revolution), awards innovation grants, and maintains a Global Care Network of designated Centers of Excellence. The organization has launched AI-powered tools including an AI chat tool for the 'Find Real Answers' campaign and offers telehealth services through the NeuroSphere Virtual Clinic for deep brain stimulation programming.

Differentiator

Problem solved

Functional benefit

Products and services

• PD GENEration: Mapping the Future of Parkinson's Disease A national initiative offering free genetic testing and counseling for people with Parkinson's disease. Screens for seven Parkinson's-related genetic mutations and connects participants with relevant clinical trials through the PD Trial Navigator. Available in-person at Centers of Excellence and via telehealth, in English and Spanish.
• PD Trial Navigator A clinical trial matching program that leverages the PD GENEration database of 30,000+ genetically tested patients to identify and prescreen eligible participants for Parkinson's clinical trials, and connects them with research opportunities such as the Neuron23 NEULARK trial.
• Moving Day A national fundraising walk/event program that brings together the Parkinson's community to raise awareness and funds for research, care, and resources. Held in communities across the United States.
• Parkinson's Revolution An indoor cycling event program hosted in cities across the country to raise awareness and funding for Parkinson's disease research and patient support.
• PD Library A comprehensive online and mail-order resource library offering free fact sheets, books, audiobooks, videos, and educational materials about Parkinson's disease for patients, caregivers, and healthcare professionals in English and Spanish.
• Neuro Talk Video Series A video series featuring expert discussions on Parkinson's disease topics including diagnosis, symptoms, treatment options, research, and myths, presented by the Foundation's Chief Scientific Officer and other experts.
• Substantial Matters Podcast A podcast series covering the life and science of Parkinson's disease, with episodes in both English and Spanish featuring expert interviews and discussions on PD-related topics.
• Parkinson's Foundation Helpline A free information and support helpline (1-800-4PD-INFO / 1-800-473-4636) staffed by PD Information Specialists, providing personalized support, resource referrals, and information in English and Spanish Monday-Friday 9am-7pm ET.
• Aware in Care A hospital education program that provides tools and resources to help ensure people with Parkinson's receive proper medication and care during hospitalizations, addressing the fact that 75% of PD patients do not receive their medications while in the hospital.
• Hospital Safety Guide A resource guide designed to help people with Parkinson's navigate hospitalization safely, ensuring they receive proper medication timing and care while in the hospital.
• Global Care Network / Centers of Excellence A network of 40+ designated Centers of Excellence and healthcare locations providing multidisciplinary, expert Parkinson's care, with designations given to medical centers demonstrating exemplary care, research leadership, and community outreach.
• Community Grants Program A grant program providing $1 million in 2026 to support health, wellness, and educational programs for Parkinson's disease communities, with a focus on expanding access and services for underserved populations.
• Paul Oreffice Innovations in Care Awards Award program providing grants (nearly $600,000 through three inaugural awards) to fund innovative clinical care practices for people with Parkinson's disease, supporting exploration of care models involving telehealth apps, peer mentorship programs, and AI technologies.
• CareMAP A bilingual video series providing practical guidance for caregivers on helping people with Parkinson's disease with daily activities, including bathing, dressing, eating, medication management, and fall prevention.
• PD Conversations An online community forum where people with Parkinson's and their care partners can connect, share experiences, ask questions, and provide mutual support through discussion groups including Newly Diagnosed and Caregiving forums.

Quantifiable outcome

• 98% of Parkinson's patients reported telehealth improved access to healthcare services, with 88% overall satisfaction rate
• +3 more outcomes

Named customers6 records

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration5 records

AI capability3 records

Feature3 records

Partnerships

Twelve partnerships are on record, tiered flagship, minor and core.

• WHO FoundationflagshipStrategic or Co-development Partner · 9 June 2026The Parkinson's Foundation partnered with the WHO Foundation to improve access to medicines for Parkinson's disease in Africa, addressing global treatment gaps for neurological disorders. The initiative is informed by findings from the inaugural World Summit on Parkinson's Disease and aims to confront socio-economic barriers impeding neurological care in low- and middle-income countries.
• Neuron23flagshipStrategic or Co-development Partner · 26 May 2026Partnership through the PD Trial Navigator program to identify genetically eligible participants for Neuron23's NEULARK clinical trial. The Foundation leverages its database of 30,000+ genetically tested patients combined with Neuron23's precision medicine tools to prescreen and match participants targeting the overactive LRRK2 pathway.
• accessiBeminorStrategic or Co-development Partner · 20 May 2026Parkinson's Foundation participates in accessiBe's Inclusive Product Advisory Board, contributing expertise to shape product decisions and industry research on digital accessibility. The board brings together disability advocates and accessibility professionals to improve digital content accessibility.
• National Alliance for Hispanic HealthcoreGTM or Marketing Partner · 6 April 2026Collaboration during Parkinson's Awareness Month 2026 to promote awareness and reliable information access in Hispanic communities. Joint initiatives include an AI chat tool, helplines, PSA campaign, and interactive quiz available in English and Spanish.
• National Institute for Fitness and Sport (NIFS)minorGTM or Marketing Partner · 26 February 2026Co-host of Pump It 2026 on April 9, a nationwide movement-based event for Parkinson's Disease Awareness Month with a goal of reaching 50 million steps. The event features Hoop It for Parkinson's at NIFS in Indianapolis.
• NuStepminorGTM or Marketing Partner · 26 February 2026Co-host partner for Pump It 2026, a nationwide movement event for Parkinson's Awareness Month. NuStep provides fitness equipment and support for the event.
• Assured Home NursingminorChannel Partner/ Reseller/ Distributor · 8 February 2026Home care provider recognized as a Parkinson's Foundation Community Partner in Care, enabling the agency to offer specialized, personalized in-home care services for individuals affected by Parkinson's Disease, including support with physical challenges, therapy adherence, and daily living assistance.
• AbbottcoreStrategic or Co-development Partner · 11 December 2025Collaboration on a survey finding that 98% of 41 people living with Parkinson's who underwent remote audio-visual deep brain stimulation tele-programming reported that telehealth improved their access to healthcare services. The survey evaluated the NeuroSphere Virtual Clinic which enables remote programming of neurostimulation systems.
• Morehouse School of MedicinecoreStrategic or Co-development Partner · 6 June 2023Collaboration with Morehouse School of Medicine to expand genetic testing and research for Black and African American individuals with Parkinson's disease in Georgia. Morehouse provides clinical expertise and community outreach to underserved populations through the PD GENEration initiative.
• Veterans Affairs (VA)coreStrategic or Co-development PartnerPartnership to improve the health, well-being, and quality of life of veterans living with Parkinson's disease. The VA and Parkinson's Foundation collaborate on webinars and resources addressing the impact PD has on Veterans' mental health.
• AARPcoreGTM or Marketing PartnerPartnership with AARP Family Caregiving to provide tools, information, and resources for care partners of people living with Parkinson's. The collaboration includes a webinar series, digital and print resources for care partners, and AARP's participation in the Parkinson's Foundation Care Partner Summit.
• The Michael J. Fox FoundationcoreStrategic or Co-development PartnerCollaborative relationship in the Parkinson's research community. The Michael J. Fox Foundation produces reports on Parkinson's economic burden (2024: $82.2 billion cost to U.S.), with both foundations working toward shared goals of advancing research and improving patient care.

Scale indicators10 records

Recent moves9 records

Expansion highlights7 records

Direct peers

• The Michael J. Fox Foundation for Parkinson's Research: The largest U.S. nonprofit funder of Parkinson's research and a direct competitor for PD-specific donations, research grants, brand attention, and policy influence. Overlaps on patient education, research funding, and advocacy.
• American Parkinson Disease Association: U.S. Parkinson's-specific nonprofit providing patient services, information, and research funding. Competes for the same donor and patient populations, and operates a comparable Information & Referral helpline and chapter-based service model.
• Davis Phinney Foundation: Parkinson's-focused nonprofit centered on living well with PD, providing educational programs, tools, and community resources. Direct overlap in patient education, events, and the Parkinson's wellness/lifestyle segment.
• ALS Association: Disease-specific nonprofit comparable in structure (research funding, care services, advocacy, chapters, walks) and revenue model. Closely aligned as a fellow neurodegenerative-disease voluntary health organization competing for similar donor dollars.
• National Multiple Sclerosis Society: Disease-specific nonprofit with a comparable operating model: research funding, Centers of Excellence-like care network, helpline, chapters, walks, advocacy, and federal policy engagement. Direct parallel in structure and donor economics.
• Muscular Dystrophy Association: Disease-specific nonprofit funding research, care (Care Centers network), and community services. Highly comparable operating model and competition for similar charitable dollars in the neuromuscular disease space.

Regional players

• Parkinson's UK: The leading Parkinson's charity in the United Kingdom, providing research funding, information, and support services. Highly comparable mission and service portfolio, but UK geographic focus limits direct competition in the U.S.

Emerging players

• Brian Grant Foundation: Parkinson's-focused nonprofit emphasizing exercise, nutrition, and wellness for people with PD. Smaller scale than the Parkinson's Foundation, with overlap in education, community programs, and lifestyle-oriented support.

Broad incumbents

• Alzheimer's Association: The largest U.S. neurodegenerative-disease nonprofit, operating a comparable model of research grants, care consultation, chapters, walks, and policy advocacy. Larger and broader, with overlap on care navigation, helpline, and federal advocacy.
• American Cancer Society: Large disease-specific voluntary health organization with analogous programs (research grants, patient support, helpline, fundraising events, advocacy). Useful benchmark for scale, governance, and multi-channel patient engagement in the nonprofit health vertical.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat6 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/parkinsondotorg
• YouTubeyoutube.com/channel/UCZYwe6WjTuyLWkYjLH_MQPA
• Facebookfacebook.com/parkinsondotorg
• LinkedInlinkedin.com/company/parkinsondotorg
• Instagraminstagram.com/parkinsondotorg
• TikToktiktok.com/@parkinsondotorg

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles9 records

Subsidiaries3 records

Funding overview

Funding rounds2 records

Investors2 records

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M&A

Investments89 records

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Frequently asked questions about Parkinson's Foundation