Sickle Cell Foundation of Georgia

What Sickle Cell Foundation of Georgia does

Sickle Cell Foundation of Georgia, Inc. (SCFG) is a 501(c)(3) nonprofit organization founded in 1971 by Drs. Nelson McGhee and Delutha H. King, Jr., and headquartered at 2391 Benjamin E. Mays Drive in Southwest Atlanta. It is the nation's oldest community-based organization dedicated to sickle cell disease and serves the state's sickle cell population of approximately 14,000 individuals, the fourth largest in the United States. SCFG delivers an integrated service portfolio across clinical care, community outreach, education, and advocacy.

The foundation's core service lines include the Sickle Cell Sanctuary Wellness Center (opened June 2024, the first and only holistic wellness center of its kind in the U.S. for sickle cell patients), Camp New Light (an American Camp Association-accredited summer camp for children ages 7-17), a CLIA-certified clinical laboratory offering $50 sickle cell testing, Community Health Workers operating across Atlanta, Savannah, Macon, and Columbus, a Mobile Health Hub, provider training programs with CME credit delivered with Morehouse School of Medicine, hospital bedside advocacy (Care Bears), mental health programming (Mind Matters), and integration into Georgia's Newborn Screening Program. The foundation operates three wholly-owned sub-brands: Sickle Cell Sanctuary, Camp New Light, and McGee Legacy Studios, the latter producing the talk show Unveiling Sickle Cell: Beyond the Pain.

SCFG's revenue model is a hybrid nonprofit construct combining individual donations (including the Adopt A Warrior monthly recurring program with tiers from $5 to $100), corporate sponsorships (Pfizer as Diamond Sponsor, plus Novo Nordisk, Vertex, and Terumo), state and federal grants (over $5 million cumulative, including a $2.2 million combined State of Georgia and federal grant in December 2023), testing and laboratory service fees ($50 per person, with Medicaid and insurance accepted), and event-driven fundraising including an Annual Black-Tie Gala, 5K Road Race/Walk, and Sickle Cell Day at the Capitol advocacy events. Distribution occurs through a CLIA-certified laboratory, a Mobile Health Hub, hospital partnerships (Grady, Emory, Children's Healthcare of Atlanta), the Morehouse School of Medicine academic alliance, health fair participation, and school-based outreach throughout Georgia.

Name

Sickle Cell Foundation of Georgia

Legal name

Sickle Cell Foundation of Georgia, Inc.

Website

https://sicklecellga.org

Company type

Private

Founded year

1971

Operating status

Operating

Headcount range

11–50 employees

Short description

Sickle Cell Foundation of Georgia is a 501(c)(3) nonprofit founded in 1971 that delivers comprehensive services to individuals and families affected by sickle cell disease across Georgia, including clinical testing, community health workers, a holistic wellness center, and a children's summer camp.

Ownership category

akta.pro rank

Product category

Nonprofit Healthcare Services

NAICS

Individual and Family Services (6241), Other Individual and Family Services (624190), Voluntary Health Organizations (813212)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Home Health Care Services (8082), Services-Health Services (8000)

akta.pro primary industry

Rare Disease & Special Needs Support Organizations (BPAGACAM)

akta.pro secondary industries

Mental Health & Crisis Support Services (BPAGAEAH), Home & Community-Based Services (HCBS) Coordination & Case Management (HSABAIAM)

Keywords

• Sickle cell education
• Genetic testing services
• Holistic wellness center
• Patient advocacy services
• Community health programs

Headquarters

HQ city

Atlanta

HQ country

United States

HQ region

North America

Offices3 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Others

Revenue model

1. Donations and Contributions: The organization relies heavily on individual donations including one-time gifts and monthly recurring contributions through the Adopt A Warrior program. Donations support patient care, genetic counseling, community education, and advocacy efforts.
2. Testing and Laboratory Services: Fees for sickle cell testing services at $50 per person. Accepts medical insurance, Medicaid, and private pay. Revenue supports laboratory operations and testing supplies.
3. Corporate Sponsorships: Sponsorships from pharmaceutical companies (Pfizer as Diamond Sponsor, Novo Nordisk, Vertex, Terumo) and other corporate partners that provide financial support for programs, events, and operations.
4. Government and Foundation Grants: Over $5 million in state and federal grants secured for education, services, and research. Landmark funding from State of Georgia and federal government.

Pricing tiers

Go-to-market motion3 records

Distribution channels5 records

Marketing channels6 records

Core offering

The Sickle Cell Foundation of Georgia is a 501(c)(3) nonprofit that provides direct services to individuals and families affected by sickle cell disease, including holistic and hematology care, CLIA-certified laboratory testing, genetic counseling, patient advocacy, provider training, mental health support, and community education throughout Georgia. Core offerings include the Sickle Cell Sanctuary Wellness Center (integrative medical and holistic therapies) and Camp New Light (a medically supervised summer camp for children with SCD).

Product overview

The Sickle Cell Foundation of Georgia is a nonprofit healthcare organization offering a comprehensive suite of services for individuals and families affected by sickle cell disease. The organization operates as a unified service portfolio rather than a technology platform. Core offerings include the Sickle Cell Sanctuary Wellness Center (Georgia's first holistic and integrative wellness center providing both traditional and holistic medical care) and Camp New Light (a medically supervised summer camp for children with sickle cell disease). These are supported by programs including SNAP enrollment assistance, Provider Training in partnership with Morehouse School of Medicine, Community Health Workers throughout Georgia, Health Fair Participation with mobile testing, Sickle Cell Testing Services in a CLIA-certified laboratory, Mind Matters mental health program, Care Bears hospital advocacy, Adopt A Warrior monthly giving program, and the Unveiling Sickle Cell: Beyond the Pain talk show and podcast for awareness and education.

Differentiator

Problem solved

Functional benefit

Brands

• Sickle Cell Sanctuary: First and only holistic wellness center in the nation offering integrative and functional medicine for sickle cell disease patients, located in Atlanta's Cascade District
• Camp New Light
• Unveiling Sickle Cell: Beyond the Pain
• Fit to Lead
• McGee Legacy Studios
• SNAP (Supplemental Nutrition Assistance Program)

Products and services

• Sickle Cell Sanctuary Wellness Center
• Camp New Light
• SNAP (Supplemental Nutrition Assistance Program) Enrollment Assistance
• Provider Training
• Community Health Workers Program
• Health Fair Participation
• Sickle Cell Testing Services
• Mind Matters
• Care Bears
• Adopt A Warrior Monthly Giving
• Unveiling Sickle Cell: Beyond the Pain

Quantifiable outcome

• Over 450 service visits provided to nearly 300 people at the Sanctuary
• +3 more outcomes

Named customers6 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

15 partnerships are on record, tiered notable, prominent, minor and core.

• Richmond County School SystemnotableStrategic or Co-development Partner · 1 October 2025Historic partnership to launch comprehensive sickle cell provider training and mental health program in Richmond County, Georgia, in collaboration with Representative Karlton Howard and Lamar Medical Center.
• Lamar Medical CenternotableStrategic or Co-development Partner · 1 October 2025Partner in the Richmond County sickle cell provider training and mental health program along with SCFG, Representative Howard, and Richmond County School System.
• Spelman College - Health Careers ProgramnotableStrategic or Co-development Partner · 25 September 2025Launch of College Ambassador Program engaging student leaders in raising awareness about sickle cell disease among peers, faculty, and campus community.
• Joint Advocacy Coalition (Pfizer THRIVE-131)notableStrategic or Co-development Partner · 15 August 2025Coalition with Sick Cells, Sickle Cell Medical Advocacy Inc., Crescent Foundation, SC RED, Sickle Cell 101, Sickle Cell Community Consortium to affirm support for drug development following trial discontinuation.
• Novo NordiskprominentGTM or Marketing Partner · 1 January 2025Sponsorship agreement announced January 2025. Novo Nordisk has made significant contributions to the sickle cell community and is committed to changing outcomes for people living with SCD.
• McKinsey & CompanyminorOthers · 18 October 2024Employees volunteered to plant flowers around the Foundation as part of McKinsey's social responsibility and environmental sustainability initiatives.
• 23andMecoreStrategic or Co-development Partner · 1 April 2023Partnership with Morehouse School of Medicine and Sickle Cell Foundation of Georgia to launch the Sickle Cell Carrier Status Awareness Program, distributing free DNA test kits and genetic counseling to Black and African American populations. This marked the first partnership between an HBCU and a genetic testing company.
• Morehouse School of Medicine - Cardiovascular Research InstitutecoreStrategic or Co-development Partner · 1 April 2023Partnership with 23andMe and Sickle Cell Foundation of Georgia for the Sickle Cell Carrier Status Awareness Program. Also provides provider training programs with CME credits.
• Grady HospitalcoreStrategic or Co-development PartnerStrategic partnership allowing identification and care coordination for children diagnosed with sickle cell disease.
• Emory HospitalcoreStrategic or Co-development PartnerStrategic healthcare partnership for sickle cell care and treatment coordination.
• Children's Healthcare of Atlanta (CHOA)coreStrategic or Co-development PartnerHealthcare partnership for pediatric sickle cell services and patient referrals.
• Georgia Department of Public HealthcoreStrategic or Co-development PartnerPartnership for Georgia's Newborn Screening Program, providing notifications to parents whose newborn test results detect abnormal hemoglobin.
• KozyminorGTM or Marketing PartnerPartnership to support sickle cell community by sending kids to Camp New Light, providing school supplies, and raising awareness through various initiatives.
• United Way of AtlantanotableGTM or Marketing PartnerCommunity partner supporting sickle cell initiatives and resource coordination.
• Sickle Cell Disease Association of AmericacoreStrategic or Co-development PartnerNational alliance partnership for advocacy, awareness, and collective action on sickle cell disease.

Scale indicators7 records

Recent moves9 records

Expansion highlights6 records

Direct peers

• Sickle Cell 101: SCD education and awareness nonprofit producing digital content for patients and families. Peer through Joint Advocacy Coalition membership; both organizations operate education-first community engagement models for the SCD population.
• Sickle Cell Disease Association of America: National umbrella organization for sickle cell community-based organizations. SCFG has a core alliance partnership with SCDAA, making it both a member affiliate and a regional peer operating overlapping advocacy, education, and patient support programs.
• Crescent Foundation: SCD-focused nonprofit providing patient support, education, and advocacy. Peer of SCFG within the Joint Advocacy Coalition, with overlapping focus on community outreach and family support for SCD patients.
• Sick Cells: National SCD advocacy nonprofit focused on elevating patient voices and policy change. SCFG partners with Sick Cells in the Joint Advocacy Coalition (Pfizer THRIVE-131), and both organizations pursue advocacy, awareness, and patient empowerment for the SCD community.
• Sickle Cell Community Consortium: Coalition of community-based SCD organizations coordinating advocacy and education nationwide. SCFG participates through the Joint Advocacy Coalition; the Consortium is a structural peer for collective SCD community action.

Others

• Children's Healthcare of Atlanta: Pediatric healthcare system in Atlanta that partners with SCFG for sickle cell referrals and care coordination. Operates overlapping SCD clinical programs but from a hospital system perspective rather than a community-based nonprofit model.
• Emory University School of Medicine: Academic medical center running major SCD clinical and research programs in Atlanta, with a strategic partnership with SCFG for care coordination. Comparable in addressing the same patient population but as a clinical/research institution rather than a community-services nonprofit.

Emerging players

• Morehouse School of Medicine: HBCU medical school that partners with SCFG on the Sickle Cell Carrier Status Awareness Program (with 23andMe) and provider training. A peer in the SCD research/training ecosystem with overlapping focus on health equity for Black patients.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/GASickleCell
• YouTubeyoutube.com/@sicklecellga
• Facebookfacebook.com/SickleCellFndofGA
• Instagraminstagram.com/sicklecellga
• TikToktiktok.com/@sicklecellga

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles10 records

Subsidiaries3 records

Funding overview

Funding rounds1 record

Investors1 record

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M&A

Investments

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Frequently asked questions about Sickle Cell Foundation of Georgia