Epilepsy Foundation of Virginia

What Epilepsy Foundation of Virginia does

The Epilepsy Foundation of Virginia (EFVA) is a 501(c)(3) nonprofit voluntary health organization founded in 1978 and headquartered at the UVA Medical Center in Charlottesville, Virginia. EFVA is the Virginia affiliate of the national Epilepsy Foundation of America and serves an estimated 84,800 Virginians living with epilepsy, with broader awareness outreach reaching 3.7 million people according to its 2024-2025 annual report. Its mission is delivered through support groups, direct financial assistance ($300 annually per recipient), the Elizabeth Hart Dalton Memorial Scholarship ($2,500 to two Virginia students), seizure first aid training, children and teen programming, and the EpiEdu virtual education series.

EFVA operates no proprietary technology product; its digital infrastructure is limited to a Squarespace-hosted website for donations and program registration, Mailchimp newsletters, Microsoft Teams-hosted support groups, and YouTube educational content. The core operating model is community-led and event-driven, anchored by the annual Tour de Midnight cycling event, a 5K race, paint nights, and recurring individual giving and corporate sponsorship. Revenue is entirely donation-based, sourced from individual recurring monthly gifts ($5 to $500), corporate and foundation grants from pharmaceutical and healthcare partners (Jazz Pharmaceuticals, SK Life Science, Neurelis, UCB, Catalyst Pharmaceuticals, UVA Health, INOVA, Bon Secours, Sentara), event proceeds, and local business partnerships such as the Ocelot Brewing Company fundraiser that raised $4,030. EFVA reports a Charity Navigator Four-Star Rating and GuideStar Platinum Transparency Seal, with a stated 1% allocation to fundraising and management, and program spending split across 7% public education, 70% professional education, and 22% client services.

Name

Epilepsy Foundation of Virginia

Legal name

Epilepsy Foundation of Virginia

Website

https://epilepsyva.com

Company type

Private

Founded year

1978

Operating status

Operating

Headcount range

11–50 employees

Short description

The Epilepsy Foundation of Virginia is a 501(c)(3) nonprofit affiliate of the Epilepsy Foundation of America, delivering support groups, education, financial assistance, and advocacy programs to an estimated 84,800 Virginians living with epilepsy across the state.

Ownership category

akta.pro rank

Headquarters

HQ city

Charlottesville

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Individual Donations: Tax-deductible donations from individuals supporting the organization's mission to promote epilepsy awareness and provide assistance to those with the disorder in Virginia.
2. Recurring Monthly Donations: Monthly subscription-style donations ranging from $5 to $500 per month, providing predictable recurring revenue support.
3. Event-Based Fundraising: Revenue generated from fundraising events including the annual Tour de Midnight cycling event, 5K races, and paint nights. The Ocelot Brewing Company fundraiser generated $4,030.
4. Corporate and Foundation Grants: Support from pharmaceutical companies (Jazz Pharmaceuticals, SK Life Science, Neurelis, UCB, Catalyst Pharmaceuticals), healthcare systems (UVA Health, INOVA, Bon Secours), and other corporate donors at various giving levels from Rhodium ($20,000+) to Palladium (up to $99).
5. Program Service Fees: Revenue allocation breakdown shows 7% public education, 70% professional education, and 22% client services, indicating a mix of educational programming and direct client assistance as core activities.

Pricing tiers

Go-to-market motion2 records

Distribution channels4 records

Marketing channels8 records

Core offering

The Epilepsy Foundation of Virginia (EFVA) is a 501(c)(3) nonprofit organization that provides educational programs, support groups, direct financial assistance, scholarships, and seizure first aid training for Virginians living with epilepsy and seizure disorders. The foundation operates the EpiEdu virtual education series, multiple regional support groups, youth-focused programs, and the annual Tour de Midnight fundraising event, funded through individual donations, corporate sponsorships, and foundation grants.

Product overview

The Epilepsy Foundation of Virginia (EFVA) is a 501(c)(3) non-profit organization established in 1978 that provides a portfolio of educational, support, and financial assistance programs for Virginians affected by epilepsy. The organization operates multiple service lines including EpiEdu (virtual education series), seizure first aid training, support groups, children and teens programs, the Elizabeth Hart Dalton Memorial Scholarship, direct financial assistance, the annual Tour de Midnight fundraising event, and downloadable educational resources. These programs are funded through donations and serve the estimated 84,800 Virginians with epilepsy.

Differentiator

Problem solved

Functional benefit

Products and services

• EpiEdu Virtual Education Series Virtual educational panel discussions on epilepsy-related topics such as back to school, teenagers and epilepsy, women and epilepsy, relationships and epilepsy, and police/legal barriers, designed for people with epilepsy, families, and caregivers in Virginia.
• Seizure First Aid Training Training programs for bus drivers, police officers, school staff, and community members on seizure recognition and first aid response. EFVA trained over 200 Arlington Public Schools bus drivers in Northern Virginia.
• Epilepsy Support Groups Multiple regional support groups including the Inova Epilepsy Support Group (1st Tuesday monthly, online via Microsoft Teams), Central Virginia Epilepsy Support Group (2nd Monday), Virginia Epilepsy Support Group (4th Wednesday), and the SHARE Support Group (twice monthly, hybrid). Designed for people with epilepsy, families, and caregivers in Virginia.
• Children and Teens Programs Programs designed for children and teens aged 6-17 living with epilepsy, including virtual Paint Nights, the Teens Speak Up! advocacy program, Memory Courses, and school training sessions. Aimed at supporting social development, school integration, and self-advocacy.
• Elizabeth Hart Dalton Memorial Scholarship Annual college scholarship awarding $2,500 each to two Virginia-based students managing epilepsy or seizure disorders. Open to Virginia residents pursuing higher education.
• Direct Financial Assistance Annual $300 direct financial assistance provided once per year to individuals with epilepsy in Virginia to help with epilepsy-related costs.
• Tour de Midnight Cycling Event Annual cycling event and primary fundraising initiative for EFVA, supported by pledge teams, sponsors, and corporate partners including Midnight Brewery.
• Online Educational Booklets Downloadable PDF booklets covering anti-epilepsy drugs, caregiving, driving, epilepsy and employment, memory tips, safety, school nurse manual, seizure tracker, student resources, and seizure service dog training. Available free to the public.
• Epilepsy Heroes Day Annual recognition and community-building event celebrating individuals with epilepsy, families, caregivers, and partners in Virginia.

Quantifiable outcome

• 3.7 million Virginians reached with epilepsy awareness and education messaging
• +4 more outcomes

Named customers5 records

Segments5 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Six partnerships are on record, tiered core and minor.

• Ocelot Brewing CompanycoreGTM or Marketing PartnerOcelot Brewing Company hosts fundraising events for EFVA, with a recent fundraiser raising $4,030. The partnership includes monthly donation matching programs and community events to support Virginians with epilepsy.
• Sigma Gamma Rho Sorority (Mu Omega Sigma Chapter)minorGTM or Marketing PartnerThe Mu Omega Sigma chapter of Sigma Gamma Rho Sorority fundraised $770 for EFVA during their Annual Epilepsy Walk, engaging with the INOVA epilepsy team and a Teens Speak Up! representative.
• Epilepsy Foundation of AmericacoreStrategic or Co-development PartnerEFVA is the Virginia affiliate of the Epilepsy Foundation of America, leveraging national resources, research, and programs while providing local services. Programs like Teens Speak Up! are coordinated nationally.
• UVA HealthcoreGTM or Marketing PartnerGold level donor ($5,000-$9,999) and partner organization. The foundation's headquarters is located at UVA Medical Center.
• INOVAcoreGTM or Marketing PartnerGold level donor ($5,000-$9,999) and host of the Inova Epilepsy Support Group. INOVA Neuroscience and Spine Institute provides meeting space for monthly support group gatherings.
• Midnight BreweryminorGTM or Marketing PartnerRuthenium level donor ($1,000-$4,999) and local partner supporting the Tour de Midnight event.

Scale indicators6 records

Recent moves6 records

Expansion highlights5 records

Market position

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/EpilepsyVA
• Facebookfacebook.com/epilepsyfoundationofva
• Instagraminstagram.com/epilepsy.va

Revenue estimate

Valuation estimate

Number of profiles

Profiles6 records

Funding overview

Funding rounds1 record

Investors1 record

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Epilepsy Foundation of Virginia