National Lymphedema Network

What National Lymphedema Network does

The National Lymphedema Network (NLN) is a 501(c)(3) nonprofit organization founded in 1988 and headquartered in Point Pleasant, New Jersey. It is the first and longest-established U.S.-based organization dedicated to lymphedema advocacy, education, and support. NLN serves two primary constituencies: patients and caregivers living with lymphedema and related lymphatic conditions, and healthcare professionals — particularly certified lymphedema therapists (CLTs), physical therapists, and physicians — who treat them. Its core offerings include the Lymphedema Therapy Directory (a national provider lookup), the NLN Store (compression garments and supplies), continuing education programs, position papers, the LymphLink publication, and an annual Summit.

The underlying platform is a standard content-managed website (lymphnet.org) rather than proprietary technology. Distribution is omnichannel across the website, email newsletters, social media (Facebook, LinkedIn, Instagram, YouTube), virtual learning events, and in-person conferences. NLN operates with a small staff of 1–10 employees and supplements capacity through expert clinicians, ambassadors, and community partners.

NLN's business model is multi-stream nonprofit funding: membership dues (patient and clinician tiers), NLN Store sales, event registration fees, corporate sponsorships from medical compression and device manufacturers, and charitable donations. Go-to-market is community-led, driven by educational content, the Therapy Directory, the annual Summit, and advocacy programs. Corporate sponsors including Haddenham, Sigvaris, Tactile Medical, Thuasne, and Lohmann & Rauscher support educational programs and awareness efforts.

Name

National Lymphedema Network

Legal name

National Lymphedema Network

Website

https://lymphnet.org

Company type

Private

Founded year

1988

Operating status

Operating

Headcount range

1–10 employees

Short description

The National Lymphedema Network is a 501(c)(3) nonprofit founded in 1988 that provides education, advocacy, and support resources to patients with lymphedema and to certified clinicians, operating a membership-based platform with a therapist directory, continuing education, an annual Summit, and corporate medical-device sponsorships.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Healthcare Education Services

NAICS

Social Assistance (624), Social Advocacy Organizations (8133), Religious, Grantmaking, Civic, Professional, and Similar Organizations (813)

SIC

Services-Membership Organizations (8600), Services-Social Services (8300)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industries

Health & Support Communities (BPAMABAL), Lymphedema & Edema Therapy In-Home (HSABADAI)

Keywords

• Lymphedema education resources
• Patient advocacy services
• Healthcare professional training
• Lymphatic health awareness
• Medical compression therapy

Headquarters

HQ city

Nyack

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership Dues: Annual membership fees for patients, caregivers, and healthcare professionals that provide access to exclusive resources, forums, events, and professional development opportunities.
2. NLN Store Sales: Sales of lymphedema-related products, educational materials, and resources through the NLN Store.
3. Event Registration: Revenue from educational events including the annual Summit, networking meetings, virtual learning opportunities, and specialty programs.
4. Sponsorships: Corporate sponsorships from medical device companies and healthcare organizations in the lymphedema space.
5. Donations: Charitable contributions from individuals and organizations supporting lymphedema awareness and education.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels8 records

Core offering

The National Lymphedema Network is a 501(c)(3) nonprofit organization that delivers education, advocacy, and community support resources for people affected by lymphedema and related lymphatic conditions. It operates a website platform connecting patients, caregivers, healthcare professionals, and advocates, and offers a therapy directory, an online store for compression products and educational materials, membership tiers for patients and clinicians, continuing education programs, and the annual NLN Summit conference.

Product overview

The National Lymphedema Network is a nonprofit organization offering a comprehensive digital platform centered on education, advocacy, and support for the lymphatic health community. The core NLN Website Platform serves as the central hub connecting patients, caregivers, clinicians, and advocates. Key offerings include the Lymphedema Therapy Directory for finding treatment providers, the NLN Store for compression products and supplies, and the Bookstore for educational publications. For healthcare professionals, the organization provides Continuing Education programs, Position Papers on clinical best practices, LymphLink publications, and specialty programs like the CLT Scholarship and NLN Start Strong. The NLN hosts an annual Summit and maintains a Community Video Library alongside a Jobs Board for the field. Membership tiers for patients and clinicians unlock exclusive resources, forums, and professional development opportunities. The organization also runs Lymphedema Awareness Day initiatives and sponsors community partners and expert clinicians.

Differentiator

Problem solved

Functional benefit

Products and services

• Lymphedema Therapy Directory Online directory tool that helps patients find qualified lymphedema therapists and treatment providers in their area. Used by individuals with lymphedema seeking care.
• NLN Store Online storefront selling lymphedema-related products, compression garments, supplies, and educational materials for patients and clinicians.
• Patient Membership Annual membership tier for patients and advocates that provides exclusive resources, access to community forums, events, and educational materials.
• Clinician Membership Annual membership tier for healthcare professionals that provides continuing education, clinical resources, expert clinician directory access, and professional development benefits.
• Continuing Education Programs Professional development offerings for healthcare providers including CE credits, specialty courses, and clinical training programs for clinicians treating lymphedema.
• NLN Summit (Annual Conference)
• NLN CLT Scholarship Scholarship program supporting Certified Lymphedema Therapists (CLTs) in their professional certification, development, and specialty training.
• Position Papers
• Garment Program Program providing access to compression garments and supplies for qualifying patients and clinicians in the lymphedema community.
• Corporate Sponsorship Program Sponsorship opportunities for medical device companies and healthcare organizations supporting NLN's educational programs, awareness initiatives, and Summit events.

Named customers3 records

Segments2 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Six partnerships are on record, tiered minor.

• HaddenhamminorOthersMedical device company specializing in compression therapy products for lymphedema and venous conditions. Appears as a sponsor supporting NLN's educational programs and awareness efforts.
• SigvarisminorOthersGlobal manufacturer of medical compression garments. Supports NLN through sponsorship to expand education and connect the lymphatic community with resources.
• LymphapressminorOthersManufacturer of pneumatic compression devices for lymphedema management. Provides sponsorship support for NLN programs and community resources.
• Tactile MedicalminorOthersMedical device company offering home therapy products for lymphedema. Sponsors NLN to support awareness and patient education initiatives.
• ThuasneminorOthersInternational medical device company providing compression and orthopaedic products. Supports NLN as a corporate sponsor.
• Lohmann & RauscherminorOthersMedical supplies company offering products for compression therapy and wound care. Sponsors NLN's educational mission and community programs.

Scale indicators1 record

Recent moves5 records

Expansion highlights5 records

Broad incumbents

• Susan G. Komen: A major cancer-focused nonprofit that funds survivorship and related-condition research, including lymphedema secondary to breast cancer treatment, making it a partial overlap and broader benchmark for disease-specific nonprofit scale and fundraising.
• American Cancer Society: A leading U.S. health nonprofit whose mission overlaps with NLN through cancer-treatment-related lymphedema support, survivorship education, and clinician resources — a broader incumbent in adjacent space.
• American Physical Therapy Association: APTA is the U.S. professional association for physical therapists, many of whom are certified lymphedema therapists — comparable as a clinician membership organization offering CE, advocacy, and specialty resources.

Direct peers

• National Psoriasis Foundation: NPF is a disease-specific patient advocacy nonprofit with membership programs, clinician education, annual conferences, and corporate sponsorships from pharmaceutical and device companies — a structural analog to NLN.
• Lymphatic Education & Research Network: LE&RN is a direct peer — a U.S. nonprofit focused on lymphatic disease education, research, and advocacy, serving overlapping patient and clinician audiences with similar mission and programs.
• National Organization for Rare Disorders: NORD is a disease-focused nonprofit supporting patients with rare conditions, including lymphatic diseases. Comparable as a chronic/rare disease advocacy and education organization serving patients, caregivers, and clinicians.
• Wound, Ostomy and Continence Nurses Society: WOCN is a clinical professional society offering CE, position papers, and conferences for nurses treating chronic conditions including lymphedema — a structural analog on the clinician-education side.

Emerging players

• PatientsLikeMe: A patient community and outcomes platform serving people with chronic conditions including lymphedema — comparable as a digital health support community, though broader in scope.
• Healthline: Healthline is a large digital health information publisher covering lymphedema and other chronic conditions — comparable as a patient education resource and a partial substitute for NLN's content library.

Others

• Tactile Medical: A commercial sponsor of NLN and manufacturer of at-home lymphedema therapy devices. Comparable as a stakeholder in the lymphedema care ecosystem and a potential partner rather than direct competitor.

Market position

Strengths1 record

Weaknesses1 record

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@lymphnet
• Facebookfacebook.com/NationalLymphedemaNetwork
• LinkedInlinkedin.com/company/nationallymphedemanetwork
• Instagraminstagram.com/the_nln
• Xx.com/lymphnet

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about National Lymphedema Network