PatientsLikeMe
PatientsLikeMe is a digital health platform connecting 850,000+ patients across 2,800+ conditions through community features, validated health tracking, and real-world data licensed to pharmaceutical and healthcare partners.
- Company typePrivate
- Founded2005
- HeadquartersBoston, United States
- Headcount11–50
- GTM typeB2B and B2C
- OfferingSoftware
What PatientsLikeMe does
PatientsLikeMe is a digital health platform that combines a large-scale patient community with health data tracking and real-world data analytics. Founded in 2005 by brothers Jamie and Ben Heywood following their brother Stephen's ALS diagnosis in 1998, the company operates a free-to-member platform serving patients with chronic, rare, and complex health conditions, along with caregivers and authorized healthcare professionals. Members use validated clinical outcome measures (including ALSFRS-R, MSRS, PDRS, FVC, PFRS, DailyMe, and MonthlyMe) to track symptoms, treatments, and outcomes over time, while connecting with peers across more than 2,800 conditions in a community of over 850,000 members.
The platform's underlying technology integrates patient-reported outcome tracking with peer community features and AI-driven health assistance. In November 2024, the company launched Ella, an AI-powered health assistant focused on women's wellness that processes text-based health queries to deliver personalized guidance. Recent technology integrations include a strategic partnership with SEQSTER (announced September 2024) to incorporate real-time electronic health record data, and a partnership with Ubie (announced November 2024) to embed AI-powered symptom checking into the patient journey. The platform maintains SOC 2 Type II accreditation covering security, availability, processing integrity, confidentiality, and privacy controls through 2026.
PatientsLikeMe generates revenue primarily through data licensing, providing de-identified, aggregated patient-reported outcomes and real-world evidence to biopharmaceutical companies, medical device firms, hospital systems, insurance companies, and regulatory bodies including the FDA. A secondary revenue stream comes from managed patient communities operated on behalf of nonprofit and healthcare organizations. Membership remains free for individual users, though the company's user agreement reserves the right to introduce paid services in the future. The company also operates WomenLikeMe, a sub-brand focused on women's health conditions. To date, PatientsLikeMe has raised over $150 million across multiple funding rounds, with the most recent being a $26 million round in February 2021 led by Alta Partners and Optum Ventures.
PatientsLikeMe firmographics
Firmographics- Name
- PatientsLikeMe
- Legal name
- PatientsLikeMe LLC
- Website
- https://patientslikeme.com
- Company type
- Private
- Founded year
- 2005
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- PatientsLikeMe is a digital health platform connecting 850,000+ patients across 2,800+ conditions through community features, validated health tracking, and real-world data licensed to pharmaceutical and healthcare partners.
- Ownership category
- akta.pro rank
PatientsLikeMe industry classification
Industry- Product category
- Digital Health Platform
- SIC
- Services-Health Services (8000), Services-Prepackaged Software (7372)
- akta.pro primary industry
- Patient Education, Content & Personalized Journey Orchestration (HLACAEAE)
- akta.pro secondary industry
- Healthcare Master Data Management (MDM) & Patient/Provider Identity Data (HLACAIAB)
Keywords
Where PatientsLikeMe is headquartered
LocationHeadquarters
- HQ city
- Boston
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
PatientsLikeMe business model
Business model- GTM type
- B2B and B2C
- Offering type
- Software
- Cost components
- Technology or R&D, Personnel, Operations, Marketing or Sales, Infrastructure
Revenue model
- Data Licensing to Pharmaceutical and Healthcare Partners: PatientsLikeMe generates revenue by providing de-identified, aggregated patient data and health outcomes to pharmaceutical companies, medical device companies, hospitals, insurance companies, and research institutions. The data helps partners understand patient experiences, inform drug development, and improve treatment options. Members' identifying information is removed before sharing, and partners are contractually forbidden from attempting re-identification.
- Managed Patient Communities: PatientsLikeMe hosts tailored communities for nonprofit organizations and health management programs. These managed communities provide partner organizations with access to engaged patient populations for research, patient support, and health education initiatives.
- Optional Future Fee-Based Services: Currently membership is free, but the company reserves the right to charge for membership and/or provide additional optional services for a fee in the future.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Freemium | Others | Free membership with full platform access |
Go-to-market motion1 record
Distribution channels3 records
Marketing channels6 records
PatientsLikeMe product offering
Product offeringCore offering
PatientsLikeMe operates a personalized health network that combines an integrated patient community, health management tools, and a real-world data platform. Patients track symptoms, treatments, and outcomes using validated clinical measures, connect with peers across 2,800+ conditions, and contribute de-identified data that is licensed to pharmaceutical and healthcare partners. The platform is free for individual members, while revenue is generated through data licensing and managed community services for industry partners.
Product overview
PatientsLikeMe operates as a unified digital health platform centered around its core patient community and health management platform. The flagship platform connects patients with over 2,800 conditions, enabling health tracking, peer support, and data-driven insights. Ella AI Health Assistant (launched November 2024) is an AI-powered add-on module providing conversational women's wellness guidance. WomenLikeMe serves as a sub-brand focused on women's health. The ecosystem also includes managed communities for partner organizations and research collaboration tools.
Differentiator
Problem solved
Functional benefit
Products and services
- PatientsLikeMe Platform A digital health management and community platform enabling patients with chronic, rare, or complex conditions to track health data, share treatment experiences, connect with peers managing similar conditions, and contribute to research. Used by 850,000+ members across 2,800+ conditions.
- Ella AI Health Assistant An AI-powered conversational assistant specifically designed for women's wellness, providing personalized health guidance, symptom analysis, and wellness recommendations through natural language interactions for women navigating their health journeys.
- WomenLikeMe A companion sub-brand platform to PatientsLikeMe focused specifically on women's health conditions and wellness, operated by PatientsLikeMe LLC.
Quantifiable outcome
- 850,000+ members managing over 2,800 health conditions
- +2 more outcomes
Companies that use PatientsLikeMe
Customer profileSegments4 records
Ideal customer profiles4 records
PatientsLikeMe technology and API
TechnologyTechnology focussed Yes
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
AI capability3 records
Feature4 records
PatientsLikeMe partnerships and signals
Strategic signalPartnerships
Three partnerships are on record, tiered core.
- UbiecorePartnership to improve patient journeys with AI-powered symptom checking. The collaboration enhances patient awareness, education, and support from pre-diagnosis through treatment by integrating Ubie's AI symptom checker with PatientsLikeMe's patient community and health data platform.
- SEQSTERcoreStrategic partnership to power a connected patient health hub with real-time electronic health record (EHR) data. The integration allows PatientsLikeMe members to aggregate their complete health information from multiple sources, providing a more comprehensive view of their health journey for better decision-making and research contributions.
- Biopharmaceutical and Healthcare Industry Partners (80+)corePatientsLikeMe has partnered with over 80 biopharmaceutical and healthcare industry innovators including pharmaceutical companies, hospital systems, value-based care providers, insurance companies, and regulatory bodies (including FDA) to advance research, manage patient communities, and improve health outcomes.
Scale indicators5 records
Recent moves6 records
Expansion highlights6 records
PatientsLikeMe competitors and assessment
Company assessmentDirect peers
- Patients Know Best: Patients Know Best is a patient-controlled personal health record platform that integrates EHR data and supports research, comparable to PatientsLikeMe's patient empowerment and data aggregation approach.
- Inspire: Inspire hosts online health communities and partners with life sciences companies for patient engagement and real-world evidence, closely matching PatientsLikeMe's patient community + pharma data licensing model.
- HealthUnlocked: HealthUnlocked runs a large network of patient communities and offers insights and research services to healthcare organizations, directly competing with PatientsLikeMe in the patient community and health data space.
- MyHealthTeams: MyHealthTeams operates condition-specific social networks for people living with chronic conditions, directly comparable to PatientsLikeMe's community-and-data platform. Both monetize through data and partnerships with life sciences companies.
- Evidation Health: Evidation aggregates consented health data from individuals and partners with life sciences companies on real-world evidence, sharing PatientsLikeMe's patient-centric data monetization model.
Emerging players
- Medisafe: Medisafe offers a digital patient engagement platform for medication adherence and chronic condition management, comparable to PatientsLikeMe's patient engagement and self-tracking capabilities.
- Clarify Health: Clarify provides real-world data and analytics to life sciences and providers, partially overlapping with PatientsLikeMe's data licensing value proposition while focusing more on claims and clinical data.
- Savvy Cooperative: Savvy is a patient-owned cooperative that connects life sciences companies with patients for insights and co-creation, competing with PatientsLikeMe's patient insights and research offerings.
Broad incumbents
- IQVIA: IQVIA is a global leader in real-world evidence and clinical research, competing for the same pharma data and research budgets that PatientsLikeMe sells into via its data licensing business.
- WebMD: WebMD is a leading consumer health information and engagement platform that monetizes via advertising and pharma partnerships, overlapping with PatientsLikeMe's patient engagement and education use cases at much larger scale.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks6 records
Key highlights6 records
Customer concentration
PatientsLikeMe social profiles
Digital presencePatientsLikeMe compliance and trust
Trust signalCompliance1 record
PatientsLikeMe financial estimates
Financial estimateRevenue estimate
Valuation estimate
PatientsLikeMe leadership team
Management profileNumber of profiles
Profiles6 records
PatientsLikeMe funding detail
Funding detailFunding overview
Funding rounds6 records
Investors10 records
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
PatientsLikeMe M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about PatientsLikeMe
What does PatientsLikeMe do?
PatientsLikeMe operates a personalized health network that combines an integrated patient community, health management tools, and a real-world data platform. Patients track symptoms, treatments, and outcomes using validated clinical measures, connect with peers across 2,800+ conditions, and contribute de-identified data that is licensed to pharmaceutical and healthcare partners. The platform is free for individual members, while revenue is generated through data licensing and managed community services for industry partners.
Is PatientsLikeMe a public or private company?
PatientsLikeMe is a private company. It is classified as venture growth investor backed and is currently operating.
When was PatientsLikeMe founded?
PatientsLikeMe was founded in 2005. It employs 11 to 50 people.
Where is PatientsLikeMe based?
PatientsLikeMe is headquartered in Boston, United States, in the North America region.
How does PatientsLikeMe make money?
Three revenue lines are on record. Data Licensing to Pharmaceutical and Healthcare Partners are the primary driver. The others are managed Patient Communities and optional Future Fee-Based Services.
Who are PatientsLikeMe's main competitors?
Direct peers on record are Patients Know Best, Inspire, HealthUnlocked, MyHealthTeams and Evidation Health. Emerging players are Medisafe, Clarify Health and Savvy Cooperative. Broad incumbents are IQVIA and WebMD.
Does PatientsLikeMe have an API?
No public API is recorded for PatientsLikeMe.
What industry is PatientsLikeMe in?
PatientsLikeMe's product category is Digital Health Platform. Its primary akta.pro industry code is HLACAEAE, Patient Education, Content & Personalized Journey Orchestration, with a secondary code of HLACAIAB, Healthcare Master Data Management (MDM) & Patient/Provider Identity Data. Its SIC code is 8000.