Endometriosis Association

What Endometriosis Association does

The Endometriosis Association is a 501(c)(3) non-profit self-help organization founded in 1980 in Milwaukee, Wisconsin, by Mary Lou Ballweg and Carolyn Keith. It is the first and oldest organization in the world dedicated to endometriosis, and currently operates a network spanning 66 countries with educational content available in 30+ languages. The Association serves women and teens affected by endometriosis, their families and loved ones, healthcare professionals, and the general public, addressing a disease conservatively estimated to affect 89 million women and girls globally with an average 10-year delay from symptom onset to diagnosis.

The Association generates revenue through a diversified non-profit model including annual memberships at $35/year, tax-deductible donations, planned giving/legacy society contributions, and e-commerce sales. The proprietary product portfolio includes four educational books ($19.99-$27.95), the seven-product EA-Select supplement line formulated specifically for endometriosis ($11.63-$38.13), and two topical pain relief products (ProSirona and Neuroquell, $19.95 each) developed in partnership with ClaireEllen Topicals. Distribution channels include the Association's own e-commerce storefront, phone and mail orders, Amazon Smile, GoodShop, and iGive round-up programs, plus free bulk brochure distribution in 30+ languages to hospitals, physicians, pharmacies, libraries, and women's centers. Commemorative Garden of Hope bricks at $150-$225 generate incremental donations.

Name

Endometriosis Association

Legal name

Endometriosis Association, Inc.

Website

https://endometriosisassn.org

Company type

Private

Founded year

1980

Operating status

Operating

Headcount range

1–10 employees

Short description

The Endometriosis Association, founded in 1980 in Milwaukee, is the first and oldest nonprofit dedicated to endometriosis, providing education, peer support, advocacy, and research funding to women, teens, families, and healthcare professionals across 66 countries.

Ownership category

akta.pro rank

Product category

Patient advocacy and chronic disease support services

NAICS

Individual and Family Services (6241), Social Assistance (624), Child and Youth Services (62411)

SIC

Services-Health Services (8000), Services-Social Services (8300)

akta.pro industry

PRIMARYBPAGACAC

Community Health, Prevention & Health Education

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYBPAGACAA

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS)

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYEDAAAHAI

Women's Health & Life-Stage Wellness Education (Fertility, Pregnancy, Menopause)

Education/Adult & Continuing Education/Health, Wellness & Lifestyle Education (Nutrition, Fitness, Mindfulness)

SECONDARYCRABAIAJ

Menstrual Pain Relief & Period Care Supplements

Consumer Products & Retail/Beauty & Personal Care/Feminine Care

Keywords

• Endometriosis support services
• Patient advocacy
• Health education resources
• Chronic disease research
• Awareness nonprofit

Headquarters

HQ city

Milwaukee

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Supply Chain, Others

Revenue model

1. Membership Dues: Annual membership starting at $35 per year, providing access to the online community, resources, discounts on supplements, and support services.
2. Donations and Charitable Contributions: Tax-deductible donations accepted via credit/debit card, mail, phone, Amazon Smile, GoodShop, and iGive programs. The Association is a 501(c)(3) charitable organization in the US and registered Canadian charity.
3. Product Sales: E-commerce sales of books, supplements, and topical products through the Association's online store. Products include EA-Select supplements ($11.63-$38.13), books ($19.99-$27.95), and topical pain relief products ($19.95).
4. Planned Giving / Legacy Society: Estate planning options for supporters who wish to deepen their commitment to the fight against endometriosis through legacy gifts.
5. Garden of Hope Brick Program: Engraved brick donations starting at $150 for 8x4 inch bricks and $225 for 8x8 inch bricks, installed in the Garden of Hope at the Association's headquarters.

Pricing tiers

Go-to-market motion2 records

Distribution channels6 records

Marketing channels7 records

Core offering

The Endometriosis Association provides peer support, advocacy, education, and research funding for women, teens, and families affected by endometriosis. It sells educational books, the proprietary EA-Select dietary supplement line, and topical pain relief products, while distributing free multilingual brochures and educational resources to individuals, healthcare providers, and community institutions.

Product overview

The Endometriosis Association operates as a nonprofit health organization offering a portfolio of educational books, dietary supplements, and topical pain relief products for individuals managing endometriosis. The core product line includes four books (The Complete Reference, The Sourcebook, the Spanish-language Libro de Consulta, and Beating Endo) that provide comprehensive medical information and self-care guidance. The EA-Select supplement line consists of seven products (Fish Oil, Multiple Vitamin Formula, Magnesium Glycinate, Buffered C-Plus, Antiox-Detox Support, Maximum Probiotic Formula, and Resveratrol) designed to support immune function, reduce inflammation, and address nutritional needs specific to endometriosis. Two topical products (NEUROQUELL and ProSirona) provide natural pain relief through topical application. Additionally, the organization provides free educational resources including brochures in 30+ languages, symptom surveys, body pain charts, and medical professional education videos.

Differentiator

Problem solved

Functional benefit

Products and services

• Endometriosis: The Complete Reference For Taking Charge of Your Health Comprehensive guide covering symptoms, diagnosis, treatment options, lifestyle changes, and emotional support for those living with endometriosis, priced at $26.00.
• The Endometriosis Sourcebook Nearly 500-page authoritative resource on endometriosis covering treatment options, coping strategies, and latest research findings, priced at $22.95.
• Endometriosis: Libro de Consulta Spanish-language comprehensive guide covering treatment options, common myths, latest research, fertility guidance, and emotional well-being for those with endometriosis, priced at $27.95.
• Beating Endo: How to Reclaim Your Life from Endometriosis Groundbreaking guide by Dr. Iris Kerin Orbuch and Amy Stein presenting a multimodal approach combining medical treatment with lifestyle strategies, priced at $19.99 (special price while supplies last).
• EA-Select Fish Oil High-quality fish oil supplement providing omega-3 fatty acids (EPA and DHA) to support immune function, inflammation regulation, and hormonal balance, priced at $23.88.
• EA-Select Multiple Vitamin Formula Specially crafted multivitamin with 30 essential nutrients including vitamins, minerals, antioxidants, and natural carotenoids, priced at $34.13.
• EA-Select Magnesium Glycinate High-bioavailability magnesium supplement combining magnesium with glycine amino acid, formulated to support muscle relaxation, hormonal balance, and smooth muscle function, priced at $11.63.
• EA-Select Buffered C-Plus Specialized vitamin C supplement combining non-acidic buffered vitamin C with Pycnogenol bioflavonoid from pine bark extract, priced at $27.38.
• EA-Select Antiox-Detox Support Supplement featuring reduced glutathione, a potent antioxidant that aids in neutralizing environmental toxins like dioxins and PCBs linked to endometriosis, priced at $34.25.
• EA-Select Maximum Probiotic Formula Premium high-potency probiotic supplement with 12 probiotic strains and 25+ billion CFUs designed to support gut health, priced at $34.13.
• EA-Select Resveratrol Potent antioxidant supplement with demonstrated anti-inflammatory and anti-proliferative effects, priced at $38.13.
• NEUROQUELL All Natural Topical Pain Relief Natural topical pain relief formula created by ClaireEllen Topicals, applied to skin for fast and effective relief, containing calendula oil derived from marigold petals, priced at $19.95.
• ProSirona Natural topical product specifically designed to reduce pelvic pain associated with endometriosis and fibromyalgia, developed by the Endometriosis Association and ClaireEllen Topicals, priced at $19.95.
• Annual Membership One-year membership program providing access to the online member community, member discounts on supplements and products, free resources, and crisis call hotline support, priced at $35/year (qualifies as a tax-deductible donation).
• Garden of Hope Brick Program Engraved brick donation program at the Association's Milwaukee headquarters, with 8x4 inch bricks supporting up to 4 lines (18 characters each) priced at $150 and 8x8 inch bricks supporting up to 6 lines priced at $225.

Quantifiable outcome

• 89 million women and girls worldwide affected by endometriosis (conservative estimate)
• +3 more outcomes

Named customers3 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature4 records

Partnerships

Eight partnerships are on record, tiered notable, core and minor.

• Gynecare WorldwidenotableStrategic or Co-development PartnerProvided an unrestricted educational grant enabling the production of video series for healthcare professionals covering endometriosis associated conditions, treatment options, and diagnosis challenges.
• The Alliance for EndometriosiscoreStrategic or Co-development PartnerCoalition including AbbVie, American College of Obstetricians and Gynecologists (ACOG), Black Women's Health Imperative (BWHI), GE Healthcare, HealthyWomen, International Pelvic Pain Society (IPPS), and the Endometriosis Association working together to improve the lives of people with endometriosis through shared research and awareness initiatives.
• Massachusetts Health Quality Partners (MHQP)notableStrategic or Co-development PartnerCollaborated with the Association on a project funded by PCORI to develop a roadmap for improving endometriosis care for Black women, addressing disparities in diagnosis and treatment.
• Vanderbilt University School of MedicinecoreStrategic or Co-development PartnerPartnered with Vanderbilt to create a dedicated research facility to address the mechanisms responsible for causing endometriosis. The Association funds and assists researchers at Vanderbilt.
• Amazon SmileminorGTM or Marketing PartnerAmazon Smile program where Amazon donates a percentage of profits to the Endometriosis Association when customers select them as their preferred charity.
• GoodShop and iGiveminorGTM or Marketing PartnerOnline shopping programs where retailers donate a portion of purchases to the Endometriosis Association when customers register the EA as their charity.
• ClaireEllen TopicalsnotableStrategic or Co-development PartnerDeveloped topical pain relief products (ProSirona and Neuroquell) in partnership with ClaireEllen Topicals for temporary relief of discomfort associated with endometriosis.
• Oxford UniversitynotableStrategic or Co-development PartnerSupported publicity and helped obtain patients and families for a genetic study conducted at Oxford University, England.

Scale indicators6 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• RESOLVE: The National Infertility Association: A nonprofit focused on supporting individuals facing infertility, a frequent comorbidity of endometriosis (30-40% of patients); comparable in advocacy, peer support, and educational mission targeting the same patient population.
• PCOS Challenge: The National Polycystic Ovary Syndrome Association: A nonprofit supporting women affected by PCOS through awareness, education, research funding, and patient advocacy; comparable as a peer women's hormonal/reproductive health nonprofit with similar support, education, and research-funding models.
• Endometriosis Foundation of America: A leading U.S.-based nonprofit dedicated to increasing disease recognition, advancing research, and providing education and support for those with endometriosis; directly comparable as a peer disease-specific nonprofit with overlapping mission, awareness campaigns, and patient-support programs.
• Endo Warriors Foundation: A grassroots patient-advocacy nonprofit for those affected by endometriosis; comparable as a peer community-led organization offering support, advocacy, and awareness within the same disease niche.

Broad incumbents

• Black Women's Health Imperative: A national nonprofit advancing health equity and well-being for Black women through education, advocacy, and research; comparable as a peer women's-health advocacy nonprofit and an Alliance for Endometriosis partner.
• Susan G. Komen: A leading disease-specific health nonprofit driving awareness, patient support, and research funding; comparable as a benchmark for scaled category-building, cause-marketing, and research-funding operations in a disease niche.
• March of Dimes: A long-established women's and maternal health nonprofit with similar awareness, education, and research-funding model but operating at far greater scale across broader reproductive and maternal health issues; relevant as a larger incumbent in the same broader space.
• HealthyWomen: A national nonprofit providing education and advocacy on women's health issues across the lifespan; relevant as a peer awareness/advocacy nonprofit and an actual Alliance for Endometriosis partner with overlapping reach.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/endoassn
• YouTubeyoutube.com/channel/UCJZvXs03eJVkHzbsSQWKd9A
• Facebookfacebook.com/EndoAssn
• Instagraminstagram.com/endometriosisasssociation
• Pinterestpinterest.com/ENDOASSN
• LinkedInlinkedin.com/company/endometriosis-association

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles8 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Endometriosis Association