PCOS Challenge
PCOS Challenge is a 501(c)(3) patient advocacy nonprofit serving nearly 60,000 members with Polycystic Ovary Syndrome through community support, multimedia education, grant programs, research coordination, and federal policy advocacy.
- Company typePrivate
- Founded2008
- HeadquartersAtlanta, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
What PCOS Challenge does
PCOS Challenge, Inc. (also operating as PCOS Challenge: The National Polycystic Ovary Syndrome Association) is a 501(c)(3) nonprofit patient advocacy organization founded in 2008 by Sasha Ottey and headquartered in Atlanta, Georgia. The organization supports women with Polycystic Ovary Syndrome through a multi-platform ecosystem centered on the PCOSChallenge.com Online Support Network, which serves nearly 60,000 members. Core programming includes an award-winning cable television series, a radio show hosted by the founder, a quarterly magazine, and an email newsletter, complemented by the PCOS Awareness Symposium (the largest global event series dedicated to PCOS), the annual PCOS Advocacy Day on Capitol Hill, the Bolt for PCOS 5K Run/Walk, and two grant programs (Family Building Grant offering a free IVF cycle, and Confidence Grant up to $500 for hair and skin treatments).
The organization does not develop proprietary software; its technology footprint is limited to a community platform on PCOSChallenge.com and a medication management mobile application delivered through a partnership with Medisafe. PCOS Challenge additionally coordinates patient recruitment for multiple academic and industry research studies, including the UCSF-led PCOS MUSE Study, the REBALANCE Study, the Early Origins of PCOS Study, and the SUPER Study, and has contributed to the WHO's first-ever global infertility guideline. Its GTM is community-led and event-driven: nearly two-thirds of the annual budget comes from individual donors (including the HOPE for PCOS monthly giving program), with supplementary revenue from event registration, multi-tier corporate sponsorships (Platinum through Bronze), grants, and magazine/advertising. Segments served include women with PCOS and their supporters (primary), clinicians and researchers, and healthcare industry partners such as fertility clinics, biopharmaceutical firms, and consumer health brands.
PCOS Challenge firmographics
Firmographics- Name
- PCOS Challenge
- Legal name
- PCOS Challenge, Inc.
- Website
- https://pcoschallenge.org
- Company type
- Private
- Founded year
- 2008
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- PCOS Challenge is a 501(c)(3) patient advocacy nonprofit serving nearly 60,000 members with Polycystic Ovary Syndrome through community support, multimedia education, grant programs, research coordination, and federal policy advocacy.
- Ownership category
- akta.pro rank
Where PCOS Challenge is headquartered
LocationHeadquarters
- HQ city
- Atlanta
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
PCOS Challenge business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D
Revenue model
- Individual Donations: Nearly two-thirds of the organization's annual budget comes from individual donors. Donors can give online, by mail, or through monthly giving program (HOPE for PCOS).
- Event Registration Fees: Registration fees for PCOS Awareness Symposium events - $75 for patient sessions (includes lunch and refreshments), $100 for healthcare provider sessions, with late/day-of registration at $100.
- Grants: Funding from institutional grant programs and healthcare industry partners to support research, education, and advocacy programs.
- Sponsorships and Advertising: Sponsorship opportunities for PCOS Awareness Weekend events including the Gala, Symposium, and 5K Run/Walk, as well as exhibitor booth rentals and advertising in PCOS Magazine.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| One time/ perpetual license | One time | Patient/Supporter In-Person Sessions |
| One time/ perpetual license | One time | Healthcare Provider Sessions |
| One time/ perpetual license | One time | Late/Day-of Registration |
| Subscription | Monthly | Virtual Sessions |
| Other | One time | Family Building Grant |
| Other | One time | Confidence Grant |
Go-to-market motion3 records
Distribution channels5 records
Marketing channels10 records
PCOS Challenge product offering
Product offeringCore offering
PCOS Challenge is a 501(c)(3) nonprofit patient advocacy organization that supports women with Polycystic Ovary Syndrome through a multi-channel program of education, awareness, support, research, and advocacy. Its core offerings include the PCOSChallenge.com online support network, a national award-winning television series, a radio show, a quarterly magazine, the PCOS Awareness Symposium (the largest global event series dedicated to PCOS), annual PCOS Advocacy Day on Capitol Hill, two grant programs (Family Building Grant providing free IVF cycles and Confidence Grant up to $500 for hair and skin treatments), and research coordination including multiple active clinical studies.
Product overview
PCOS Challenge: The National Polycystic Ovary Syndrome Association is a 501(c)(3) nonprofit patient advocacy organization serving nearly 60,000 members. The organization operates a multi-platform support and education ecosystem consisting of: the PCOSChallenge.com Online Support Network (core community platform), PCOS Challenge Television and Radio Shows (award-winning multimedia programming), PCOS Challenge Magazine and Newsletter (publications), the PCOS Awareness Symposium (the largest global event series dedicated to PCOS), PCOS Advocacy Day (annual federal advocacy event), and two grant programs (Family Building Grant offering free IVF cycles and Confidence Grant up to $500 for hair/skin treatments). The organization also conducts research coordination including the REBALANCE Study, PCOS MUSE Study, Early Origins of PCOS Study, and SUPER Study, and offers a mobile app through partnership with Medisafe for medication management.
Differentiator
Problem solved
Functional benefit
Products and services
- PCOSChallenge.com Online Support Network The primary online support community platform where women with PCOS can connect, share experiences, and access resources. Serves nearly 60,000 members.
- PCOS Challenge Television Show National cable television series featuring interviews with PCOS experts, patient stories, and educational content about PCOS diagnosis, treatment, and support options.
- PCOS Challenge Radio Show Radio show hosted by Sasha Ottey featuring interviews with PCOS experts, New York Times best-selling authors, and real-life stories from women with PCOS.
- PCOS Challenge Magazine Quarterly publication covering PCOS topics including advocacy, nutrition, treatment options, patient stories, and research updates for women with PCOS and healthcare providers.
- PCOS Challenge Family Building Grant Grant program for individuals with PCOS struggling with infertility, which includes a free IVF cycle. Part of PCOS Challenge's support offerings for reproductive health.
- PCOS Confidence Grant Grant program to help individuals with hair and skin issues related to PCOS, providing up to $500 to assist with the cost of related hair and skin treatments.
- PCOS Awareness Symposium The largest series of events globally dedicated to Polycystic Ovary Syndrome. Symposia bring together clinicians, researchers, women with PCOS and their supporters for education, experience sharing, and latest updates about the condition.
- PCOS Challenge Mobile App Mobile application delivered in partnership with Medisafe, providing medication management and support resources to PCOS Challenge members.
- PCOS Advocacy Day Annual advocacy event where patients share their stories and meet elected officials and staff in the U.S. Congress to advocate for increased PCOS research and improved care.
Quantifiable outcome
- Led reestablishment of Bipartisan Congressional PCOS Caucus
- +4 more outcomes
Companies that use PCOS Challenge
Customer profileNamed customers3 records
Segments3 records
Ideal customer profiles3 records
PCOS Challenge technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration1 record
Feature2 records
PCOS Challenge partnerships and signals
Strategic signalPartnerships
15 partnerships are on record, tiered flagship, platinum, gold, silver, bronze, core and minor.
- Androgen Excess and PCOS SocietyflagshipLong-standing strategic partnership for PCOS Awareness Symposium events. The Androgen Excess and PCOS Society, the leading group of researchers advancing understanding of PCOS, partners with PCOS Challenge as the presenting organization for the largest global PCOS event series.
- The IVF Center: Fertility CAREplatinumPlatinum sponsor for PCOS Awareness Symposium 2021 in Philadelphia. One of the most comprehensive fertility centers in the southeast with success rates consistently beating national averages.
- CCRM FertilitygoldGold sponsor. One of the nation's top leaders in fertility care and research for over 30 years, operating 11 state-of-the-art IVF laboratories and 26 locations across the U.S. and Canada.
- Spruce BiosciencesgoldGold sponsor. Late-stage biopharmaceutical company developing novel therapies for rare endocrine disorders, including a rare form of PCOS with primary adrenal androgen excess.
- TheralogixgoldGold sponsor. Provides high-quality, independently tested and research-based nutritional supplements like Ovasitol® for PCOS patients.
- UAB Department of PediatricsgoldGold sponsor. Dedicated to improving child health, discovering new knowledge, and training next-generation pediatric providers.
- Reproductive Medicine Associates of Connecticut (RMACT)silverSilver sponsor. Fertility practice with scientific and medical approach to help patients succeed in building families.
- HomeLightbronzeBronze sponsor. Real estate platform company supporting PCOS community events.
- Allara HealthbronzeBronze sponsor. Virtual care platform providing personalized PCOS treatment with medical providers and registered dietitians.
- Omega Phi Alpha National Service SororitycoreOngoing partnership for Bolt for PCOS 5K Run/Walk events. Omega Phi Alpha is a national service sorority that helps organize the largest PCOS awareness fundraising event in the U.S.
- MedisafecorePartnership to deliver a world-class mobile medication management app to PCOS Challenge members free with complete privacy.
- Macy'sminorPartnership for Shop for a Cause charity shopping event to raise funds and awareness.
- Thomas Jefferson UniversitycoreLong-standing partnership for PCOS Awareness Symposium events in Philadelphia, addressing critical PCOS healthcare gaps.
- Emory Reproductive CentercorePartnership to help hundreds of women with PCOS during PCOS Awareness Month.
- UCLA HealthcorePartnership to address critical PCOS healthcare gaps impacting millions of women.
Scale indicators8 records
Recent moves6 records
Expansion highlights5 records
PCOS Challenge competitors and assessment
Company assessmentBroad incumbents
- RESOLVE: The National Infertility Association: Long-established U.S. nonprofit focused on infertility advocacy, support, and public policy. Closest structural analog to PCOS Challenge at a larger scale and broader condition scope.
- National Women's Health Network: U.S. nonprofit advocating for women's health policy, education, and consumer protection. Comparable advocacy-and-education nonprofit structure serving overlapping patient communities.
- HealthyWomen: U.S.-based nonprofit providing women's health education and policy advocacy. Overlaps with PCOS Challenge on education, awareness, and policy engagement for women affected by chronic conditions.
- March of Dimes: Major U.S. nonprofit addressing maternal and infant health through research, advocacy, and education. Comparable operational model (donor-funded, policy-focused, coalition-driven) but at vastly larger scale and broader mission.
Regional players
- Verity (PCOS UK): UK-based PCOS charity providing information, support networks, and awareness campaigns. Operates the same patient-advocacy nonprofit model as PCOS Challenge but is geographically focused on the United Kingdom.
Direct peers
- PCOS Awareness Association (PCOSAA): U.S.-based nonprofit advocacy organization also serving the PCOS patient community with awareness events, support resources, and education. Most directly comparable peer in mission, scope, and donor-funded nonprofit model.
- PCOS Diva: PCOS-focused lifestyle, diet, and community media brand offering books, podcasts, and online programs to women with PCOS. Overlaps with PCOS Challenge's magazine, radio, and educational content offerings targeting the same persona.
Emerging players
- Allara Health: Virtual care platform offering personalized PCOS treatment with medical providers and registered dietitians. Was a bronze sponsor of PCOS Challenge, illustrating the emerging overlap between advocacy and direct telehealth PCOS care.
Others
- Spruce Biosciences: Late-stage biopharmaceutical company developing therapies for rare endocrine disorders including a rare form of PCOS. Gold sponsor and direct industry partner of PCOS Challenge, illustrating the pharma-adjacent ecosystem around PCOS advocacy.
- CCRM Fertility: One of the largest U.S. fertility networks and a gold sponsor of PCOS Challenge. Comparable only as a partner/enabler in the PCOS patient funnel rather than a direct competitor.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks6 records
Key highlights7 records
Customer concentration
PCOS Challenge social profiles
Digital presencePCOS Challenge financial estimates
Financial estimateRevenue estimate
Valuation estimate
PCOS Challenge leadership team
Management profileNumber of profiles
Profiles1 record
PCOS Challenge funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
PCOS Challenge M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about PCOS Challenge
What does PCOS Challenge do?
PCOS Challenge is a 501(c)(3) nonprofit patient advocacy organization that supports women with Polycystic Ovary Syndrome through a multi-channel program of education, awareness, support, research, and advocacy. Its core offerings include the PCOSChallenge.com online support network, a national award-winning television series, a radio show, a quarterly magazine, the PCOS Awareness Symposium (the largest global event series dedicated to PCOS), annual PCOS Advocacy Day on Capitol Hill, two grant programs (Family Building Grant providing free IVF cycles and Confidence Grant up to $500 for hair and skin treatments), and research coordination including multiple active clinical studies.
Is PCOS Challenge a public or private company?
PCOS Challenge is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was PCOS Challenge founded?
PCOS Challenge was founded in 2008. It employs 1 to 10 people.
Where is PCOS Challenge based?
PCOS Challenge is headquartered in Atlanta, United States, in the North America region.
How does PCOS Challenge make money?
Four revenue lines are on record. Individual Donations are the primary driver. The others are event Registration Fees, grants and sponsorships and Advertising.
Who are PCOS Challenge's main competitors?
Broad incumbents on record are RESOLVE: The National Infertility Association, National Women's Health Network, HealthyWomen and March of Dimes. Verity (PCOS UK) is listed as a regional player. Direct peers are PCOS Awareness Association (PCOSAA) and PCOS Diva. Allara Health is listed as an emerging player. Others are Spruce Biosciences and CCRM Fertility.
Does PCOS Challenge have an API?
No public API is recorded for PCOS Challenge.