What Genetic Support Foundation does

Genetic Support Foundation (GSF) is a 501c3 nonprofit organization headquartered in Olympia, Washington, founded in 2012 by Dr. Jon Wolff, MD. It provides independent genetic counseling services across prenatal, cancer, pediatric, and adult genetics specialties, delivered primarily through a HIPAA-compliant telehealth video conferencing platform that enables nationwide reach, complemented by direct partnerships with clinics, hospitals, and community health centers in the Pacific Northwest. Approximately one in three patients seen in 2024 received financial assistance, reflecting a no-cost/subsidized pricing model intended to remove economic barriers to genetic healthcare.

The organization's core technology is a secure telehealth platform that supports both patient self-referrals and provider-initiated referrals via fax and clinic partnerships. Service lines include women's health and hereditary cancer genetics, pediatric and general genetics, pregnancy and prenatal counseling, and custom resource development for clinics. GSF is also the home of the Lettercase National Center for Prenatal and Postnatal Resources, the nation's primary clearinghouse for accurate, balanced information about genetic conditions, and the Down Syndrome Pregnancy book portfolio, positioning it as a content and training authority in addition to a clinical provider.

Revenue is generated through a mix of foundation and federal grants, individual donations (including a recurring "Friends of GSF" program), and fee-for-service counseling revenue. Active grants include a five-year HRSA Healthy Tomorrows Partnership award, a three-year M.J. Murdock Charitable Trust grant funding a Development Director, NIH-funded work via a Case Western Reserve University subaward, and multiple regional and tribal-health focused grants. Leadership includes Executive Director Katie Stoll, MS, CGC, Development Director Dr. Stephanie Meredith, and a board of genetic counselors, physicians, and PhD scientists.

Name

Genetic Support Foundation

Legal name

Genetic Support Foundation

Website

https://geneticsupportfoundation.org

Company type

Private

Founded year

2012

Operating status

Operating

Headcount range

11–50 employees

Short description

Genetic Support Foundation is a 501c3 nonprofit that delivers independent, lab-unaffiliated genetic counseling via telehealth nationwide, plus prenatal, cancer, and pediatric services with no-cost and subsidized options for underserved patients.

Ownership category

akta.pro rank

Product category

Genetic Counseling and Prenatal/Postnatal Education Services

NAICS

Other Individual and Family Services (624190), Educational Support Services (61171), Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Health Services (8000), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Genetic Counseling & Prenatal Testing Telehealth (carrier screening, NIPT counseling) (HLALAHAK)

akta.pro secondary industries

Disability Services & Independent Living Support (BPAGACAG), Special Education, Disability Support & Inclusive Education Nonprofits (BPAGADAH)

Keywords

• Genetic counseling services
• Telehealth genetic consultations
• Prenatal genetic testing
• Cancer genetic risk assessment
• Patient genetic education

Headquarters

HQ city

Olympia

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Philanthropy: GSF is a charitable nonprofit 501c3 organization that relies on tax-deductible donations from supporters. Monthly recurring 'Friends of GSF' donor program mentioned.
2. Grant Funding: GSF receives grant funding from multiple sources including HRSA Healthy Tomorrows Partnership for Children Program ($150,609 award with 67% federal/non-federal funding), Nisqually Charitable Funds, M.J. Murdock Charitable Trust, Catherine Holmes Wilkins Charitable Foundation, The Glaser Foundation, Gibbs Family Foundation, Pacific Hospital Preservation & Development Authority, Marie Lamfrom Charitable Foundation, Case Western Reserve University Bioethics department, and Trisomy 13 and 18 Collaborative.
3. Genetic Counseling Services: Provides genetic counseling services with no-cost and subsidized options available based on financial need. Services covered include prenatal, cancer, pediatric, and general genetics counseling via telehealth.

Pricing tiers

Go-to-market motion2 records

Distribution channels3 records

Marketing channels5 records

Core offering

Genetic Support Foundation provides independent, nonprofit genetic counseling services delivered primarily via secure HIPAA-compliant telehealth video conferencing. Services span prenatal, hereditary cancer, pediatric, and general adult genetics specialties, with no-cost and subsidized options based on financial need. The organization also operates the Lettercase National Center for Prenatal and Postnatal Resources, offering balanced educational materials and provider training on genetic conditions.

Product overview

Genetic Support Foundation is a nonprofit organization offering a portfolio of genetic counseling services primarily delivered via telehealth. The core offering is Genetic Counseling, supplemented by the Lettercase National Center for Prenatal and Postnatal Resources brand. Services span multiple specialty areas including prenatal, cancer, pediatric, and general genetics, delivered through secure video conferencing. The organization also provides provider and patient resources, custom resource development, clinic partnership services, and consulting to healthcare organizations. GSF emphasizes its nonprofit, unbiased approach to genetic counseling without financial ties to commercial testing laboratories.

Differentiator

Problem solved

Functional benefit

Brands

• Lettercase National Center for Prenatal and Postnatal Resources: The nation's clearinghouse and comprehensive training center for sharing accurate, balanced, and up-to-date information about genetic conditions. Provides expectant parents and providers with resources needed at the moment of diagnosis.
• Down Syndrome Pregnancy

Products and services

• Genetic Counseling Genetic Support Foundation's core offering — telehealth appointments with certified genetic counselors (MS, CGC) for patients navigating genetic testing, hereditary cancer risks, prenatal testing, and other genetic health concerns, with no-cost and subsidized options available based on financial need.
• Telehealth Genetic Counseling Nationwide delivery of GSF's genetic counseling through secure, HIPAA-compliant video conferencing, allowing patients to self-refer or be referred by providers for multiple genetic health indications.
• Prenatal Genetic Counseling & Testing Genetic counseling services supporting pregnant individuals navigating NIPT, amniocentesis, CVS, carrier screening, and decision-making about prenatal genetic testing options.
• Cancer Genetics Counseling Genetic counseling for individuals with a family or personal history of cancer to assess inherited cancer risks and guide screening and medical management decisions.
• Pediatrics & Genetics Counseling Genetic counseling services helping parents and families understand the role of genetics in their child's health, development, and diagnosis of genetic conditions.
• Women's Health Genetic Services Comprehensive women's health genetic services spanning prenatal genetic counseling, hereditary breast and gynecological cancer risk screening, and support resources for new and expectant mothers.
• Clinic Partnership Services Partnership services for clinics, hospitals, and community health centers that provide independent, nonprofit genetic counseling via telehealth, including case reviews for genetic testing requests and consulting.
• Consulting Services Consulting services to help healthcare organizations improve the delivery of genetic counseling services using evidence-based solutions.
• Personal Genetic Resource (PGR) Tool A digital tool for patients who have undergone hereditary cancer genetic testing, enabling them to stay informed about advances in the understanding of their gene changes, including variant reclassifications, research developments, and clinical trials.
• Lettercase National Center for Prenatal and Postnatal Resources The nation's clearinghouse and comprehensive training center for sharing accurate, balanced, and up-to-date information about genetic conditions, providing expectant parents and providers with resources needed at the moment of diagnosis, including provider training programs and advocacy organization materials.

Quantifiable outcome

• 55% increase in patients served (2023 vs 2022)
• +2 more outcomes

Named customers3 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered core, major and supporting.

• Lettercase National Center for Prenatal and Postnatal ResourcescoreStrategic or Co-development Partner · 1 October 2024GSF is the new home of Lettercase National Center for Prenatal and Postnatal Resources, the nation's clearinghouse and comprehensive training center for accurate, balanced information about genetic conditions. This partnership expands GSF's educational resources and outreach capabilities.
• Support Organization for Trisomy (SOFT)majorStrategic or Co-development PartnerNetwork of families and professionals dedicated to supporting families involved with Trisomy 18, 13 and related chromosomal disorders. GSF is sub-awardee supporting P2P curriculum development and training.
• Courageous Parent NetworkmajorStrategic or Co-development PartnerGSF collaborates with Courageous Parent Network to perform literature review and qualitative interviews to assess family information needs and barriers to accessing trisomy 13 and 18 resources.
• Washington State Department of HealthsupportingStrategic or Co-development PartnerPartnership to produce educational videos on prenatal genetic testing in English, Spanish, and Swedish.
• Nisqually Indian TribesupportingStrategic or Co-development PartnerPartnership with tribal health and community organizations to ensure more equitable access to genetics-informed healthcare for the Nisqually community.

Scale indicators7 records

Recent moves7 records

Expansion highlights6 records

Broad incumbents

• Invitae: Invitae (now part of Labcorp) is a large genetic testing company with broad hereditary cancer, reproductive, and pediatric testing offerings — competing for the same provider referrals and patient populations GSF targets.
• GeneDx: GeneDx is a clinical genomics company specializing in rare disease, pediatric, and hereditary cancer testing — a broad lab incumbent overlapping with GSF's pediatric and cancer genetics service lines.
• Natera: Natera is a leading genetic testing company specializing in reproductive health (NIPT, carrier screening), oncology, and organ transplantation — a broad incumbent in the prenatal and cancer genetics spaces where GSF provides counseling.
• Myriad Genetics: Myriad Genetics is a major genetic testing laboratory offering hereditary cancer, prenatal, and women's health tests, often bundling counseling support — a broad incumbent in the same clinical indications GSF serves.
• Color Health: Color Health combines large-scale genetic testing with integrated telehealth genetic counseling, serving employers, health systems, and public health programs — overlapping with GSF's hereditary cancer and population-health services but operating as a venture-backed, broader incumbent.

Direct peers

• Genetic Alliance: Genetic Alliance is a nonprofit health advocacy organization focused on transforming health through genetics — closely aligned with GSF's nonprofit mission, patient advocacy, and educational resource development for genetic conditions.
• Genome Medical: Genome Medical provides nationwide telehealth genetic counseling and clinical genomics services, competing with GSF for provider referrals and serving overlapping patient populations in prenatal, hereditary cancer, and pediatric genetics.
• InformedDNA: InformedDNA is one of the largest U.S. telehealth genetic counseling providers, offering independent counseling to health plans, providers, and patients nationwide — directly comparable to GSF's core telehealth genetic counseling offering across prenatal, cancer, and pediatric indications.

Others

• National Organization for Rare Disorders (NORD): NORD is a nonprofit patient advocacy organization supporting individuals with rare genetic disorders — comparable to GSF's Lettercase-based work for families navigating rare genetic diagnoses such as Trisomy 13 and 18.
• March of Dimes: March of Dimes is a national nonprofit focused on maternal and infant health, including prenatal genetic screening education — thematically comparable to GSF's prenatal genetic counseling and patient education mission.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xx.com/geneticsupport
• Facebookfacebook.com/geneticsupportfoundation
• LinkedInlinkedin.com/company/genetic-support-foundation

Revenue estimate

Valuation estimate

Number of profiles

Profiles8 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Genetic Support Foundation