Beyond Celiac
Beyond Celiac is a U.S. 501(c)(3) nonprofit founded in 2003 that drives celiac disease research, advocacy, and patient support through educational resources, research grants, and its venture philanthropy arm (Beyond Celiac Investments) funding pre-clinical therapeutic companies.
- Company typePrivate
- Founded2003
- HeadquartersAmbler, United States
- Headcount11–50
- GTM typeB2C
- OfferingServices
What Beyond Celiac does
Beyond Celiac is a 501(c)(3) nonprofit patient advocacy organization founded in 2003 by Alice Bast and headquartered in Ambler, Pennsylvania. The organization serves individuals with celiac disease, their families, healthcare professionals, and biotech/pharma companies developing celiac therapeutics. Its core offerings include educational resources (Getting Started Guide, Symptoms Checklist, gluten-free recipes), a clinical trials matching tool, the Celiac Straight Talk podcast, a monthly newsletter, and the Go Beyond Celiac Insights patient survey program that generates real-world data. The organization also awards research grants and runs the Beyond Celiac Coalition, a precompetitive industry coalition launched in 2022.
The organization's business model is built on three revenue streams: individual charitable donations, grants (including a 2011 FDA grant), and venture philanthropy through its wholly-owned subsidiary Beyond Celiac Investments (BCI). BCI launched the Catalyst Program in October 2025 and has since made two disclosed pre-clinical investments — in RheumaGen (December 2025, Series A-1 for an HLA gene editing celiac gene therapy program) and Tolerance Bio (June 2026, for thymus-targeted immune tolerance restoration). In March 2026, Beyond Celiac appointed Dr. Jessica J. Lee, a 14-year FDA Division Director veteran, as Chief Regulatory Officer to expand regulatory consulting services to drug developers, marking the organization's expansion into a new B2B service line.
The organization reaches patients, families, and clinicians through a multi-channel distribution model spanning direct digital delivery via beyondceliac.org, social media (Facebook, Instagram, LinkedIn, YouTube, TikTok), community events (Town Halls, Step Beyond Celiac, Evening Beyond Celiac), an ambassador program, and a dedicated healthcare provider portal. Beyond Celiac is governed by a Board of Directors with no parent company, PE ownership, or public listing, and is rated four stars by Charity Navigator and holds a Candid/GuideStar Platinum Seal of Transparency. The organization operates exclusively within the United States and has no disclosed AI/ML technology stack, with its products framed as interactive tools and survey programs rather than software platforms.
Beyond Celiac firmographics
Firmographics- Name
- Beyond Celiac
- Legal name
- Beyond Celiac
- Website
- https://beyondceliac.org
- Company type
- Private
- Founded year
- 2003
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- Beyond Celiac is a U.S. 501(c)(3) nonprofit founded in 2003 that drives celiac disease research, advocacy, and patient support through educational resources, research grants, and its venture philanthropy arm (Beyond Celiac Investments) funding pre-clinical therapeutic companies.
- Ownership category
- akta.pro rank
Beyond Celiac industry classification
Industry- Product category
- Nonprofit Health Advocacy
- NAICS
- Professional Organizations (81392)
- akta.pro primary industry
- Nutrition & Malabsorption (Celiac/Short Bowel) (HLAKAEAI)
- akta.pro secondary industry
- Corporate Deep Tech / R&D Commercialization CVC (FSANAHAL)
Keywords
Where Beyond Celiac is headquartered
LocationHeadquarters
- HQ city
- Ambler
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
Beyond Celiac business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Donations and Charitable Contributions: Beyond Celiac operates as a 501(c)(3) tax-exempt nonprofit organization. Individual donors contribute funds to support the organization's mission of accelerating celiac disease research, awareness, and patient support.
- Venture Philanthropy / Beyond Celiac Investments (BCI): Beyond Celiac Investments (BCI), the venture philanthropy arm of Beyond Celiac, raises capital to invest in companies developing celiac disease treatments. BCI invests in pre-clinical and clinical-stage programs through its Catalyst Program, targeting companies developing noninvasive treatments targeting the immune response to gluten.
- Grants: Beyond Celiac has awarded millions in grants to fund celiac disease research necessary to improving patient health. The organization also received an FDA grant to study gluten in medications.
Go-to-market motion1 record
Distribution channels3 records
Marketing channels8 records
Beyond Celiac product offering
Product offeringCore offering
Beyond Celiac is a 501(c)(3) nonprofit patient advocacy organization that accelerates diagnosis, treatment discovery, and potential cures for celiac disease. The organization operates patient education, clinical trial matching, research grant funding, and a venture philanthropy program (Beyond Celiac Investments) that funds biotech companies developing celiac disease therapeutics.
Product overview
Beyond Celiac is a nonprofit patient advocacy organization that provides a comprehensive suite of educational resources, research programs, and community tools focused on accelerating treatments and finding a cure for celiac disease. The organization's core offerings include the Getting Started Guide (a comprehensive manual for newly diagnosed individuals), the Celiac Straight Talk Podcast, a Symptoms Checklist tool for identifying potential celiac disease, an extensive Gluten-Free Recipes Collection, and a Clinical Trials Matching Tool. Beyond Celiac operates through its venture philanthropy arm, Beyond Celiac Investments (BCI), which includes the Catalyst Program funding pre-clinical celiac disease treatments, and coordinates the Beyond Celiac Coalition for precompetitive research collaboration. The organization also runs patient survey programs (Go Beyond Celiac Insights), facilitates the DAISY Clinical Study, and provides Research Grants to advance celiac disease science. The organization supports the community through a Monthly Newsletter, Town Hall events, and various educational resources including the celiac disease drug development pipeline.
Differentiator
Problem solved
Functional benefit
Products and services
- Celiac Disease Symptoms Checklist
- Celiac Disease Clinical Trials Matching Tool
- Beyond Celiac Investments (BCI)
- Beyond Celiac Catalyst Program
- Beyond Celiac Research Grants
- Beyond Celiac Coalition
- DAISY Clinical Study
- Go Beyond Celiac Insights Surveys
Quantifiable outcome
- 1 in 5 children with celiac disease isn't healing on the gluten-free diet, highlighting the urgent need for pharmaceutical treatments
- +3 more outcomes
Companies that use Beyond Celiac
Customer profileNamed customers2 records
Segments3 records
Ideal customer profiles3 records
Beyond Celiac technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Beyond Celiac partnerships and signals
Strategic signalPartnerships
Three partnerships are on record, tiered core.
- Beyond Celiac Coalition (Precompetitive Coalition)coreBeyond Celiac launched a precompetitive coalition in 2022 to accelerate clinical research. The Coalition met with the FDA in 2024 to discuss strategies for making celiac disease clinical trials more patient-centric. The Coalition serves as a recognized conduit for education, exchange of information, and partnerships between patients, scientists, researchers, medical providers, pharmaceutical, diagnostic, and biotech companies, and payers.
- National Minority Quality ForumcoreBeyond Celiac partnered with National Minority Quality Forum to target inequalities in celiac disease diagnosis and treatment, focusing on health equity in underserved populations.
- U.S. Food and Drug Administration (FDA)coreBeyond Celiac received an FDA grant to study gluten in medications. Additionally, Dr. Jessica J. Lee, former FDA Division Director of Gastroenterology (14 years), joined as Chief Regulatory Officer to help develop the FDA's 2022 guidance on celiac disease treatment and expand regulatory consulting services for drug developers.
Scale indicators5 records
Recent moves7 records
Expansion highlights5 records
Beyond Celiac competitors and assessment
Company assessmentDirect peers
- Celiac Disease Foundation: Another major U.S. nonprofit dedicated to celiac disease research, advocacy, and patient support. Directly comparable to Beyond Celiac in mission, programs (patient education, research grants, advocacy), and target audience of patients and providers.
- National Celiac Association: A patient-focused nonprofit serving the celiac and gluten-intolerant community through education, support groups, and awareness events. Directly comparable to Beyond Celiac as a community-led celiac advocacy organization.
- Melanoma Research Alliance: A disease-focused venture philanthropy organization funding melanoma research and drug development. Highly comparable to Beyond Celiac Investments (BCI) in its model of deploying philanthropic capital into pre-clinical and clinical-stage biotech programs.
- Parent Project Muscular Dystrophy: A disease-specific nonprofit that combines patient advocacy, research funding, and venture philanthropy to accelerate Duchenne muscular dystrophy therapies. Comparable to Beyond Celiac in patient-led advocacy, regulatory engagement, and venture investment in therapeutic developers.
Broad incumbents
- Cystic Fibrosis Foundation: The pioneering disease-focused venture philanthropy nonprofit that funded biotech development leading to CFTR modulator therapies. Comparable to Beyond Celiac as a model for BCI's venture philanthropy approach and patient-driven research funding.
- Crohn's & Colitis Foundation: A larger disease-focused nonprofit funding research, providing patient education, and advocating for patients with inflammatory bowel diseases. Comparable in patient advocacy, research grants, and clinical trial engagement model though focused on a different GI condition.
- National Psoriasis Foundation: A disease-specific nonprofit that funds research, advocates for patients, and engages with pharmaceutical developers. Comparable as a chronic autoimmune disease advocacy organization with research funding and patient community programs similar to Beyond Celiac's structure.
Emerging players
- Immune Tolerance Network: A research consortium focused on immune tolerance therapies across autoimmune diseases including celiac. Comparable to Beyond Celiac's regulatory and scientific mission in advancing immune tolerance as a therapeutic approach.
- American Autoimmune Related Diseases Association: A broader autoimmune disease nonprofit advocating across multiple conditions including celiac. Comparable to Beyond Celiac in patient advocacy and research funding, though operating at a multi-disease scale.
- EveryLife Foundation for Rare Diseases: A nonprofit advancing rare disease therapies through patient advocacy, regulatory engagement, and venture philanthropy. Comparable to Beyond Celiac's model of combining patient community, FDA engagement, and biotech investment to accelerate treatment development.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat5 records
Key risks5 records
Key highlights5 records
Customer concentration
Beyond Celiac social profiles
Digital presenceBeyond Celiac financial estimates
Financial estimateRevenue estimate
Valuation estimate
Beyond Celiac leadership team
Management profileNumber of profiles
Profiles4 records
Beyond Celiac subsidiaries and ownership
Company hierarchySubsidiaries1 record
Beyond Celiac funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Beyond Celiac M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Beyond Celiac
What does Beyond Celiac do?
Beyond Celiac is a 501(c)(3) nonprofit patient advocacy organization that accelerates diagnosis, treatment discovery, and potential cures for celiac disease. The organization operates patient education, clinical trial matching, research grant funding, and a venture philanthropy program (Beyond Celiac Investments) that funds biotech companies developing celiac disease therapeutics.
Is Beyond Celiac a public or private company?
Beyond Celiac is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Beyond Celiac founded?
Beyond Celiac was founded in 2003. It employs 11 to 50 people.
Where is Beyond Celiac based?
Beyond Celiac is headquartered in Ambler, United States, in the North America region.
How does Beyond Celiac make money?
Three revenue lines are on record. Donations and Charitable Contributions are the primary driver. The others are venture Philanthropy / Beyond Celiac Investments (BCI) and grants.
Who are Beyond Celiac's main competitors?
Direct peers on record are Celiac Disease Foundation, National Celiac Association, Melanoma Research Alliance and Parent Project Muscular Dystrophy. Broad incumbents are Cystic Fibrosis Foundation, Crohn's & Colitis Foundation and National Psoriasis Foundation. Emerging players are Immune Tolerance Network, American Autoimmune Related Diseases Association and EveryLife Foundation for Rare Diseases.
Does Beyond Celiac have an API?
No public API is recorded for Beyond Celiac.
What industry is Beyond Celiac in?
Beyond Celiac's product category is Nonprofit Health Advocacy. Its primary akta.pro industry code is HLAKAEAI, Nutrition & Malabsorption (Celiac/Short Bowel), with a secondary code of FSANAHAL, Corporate Deep Tech / R&D Commercialization CVC. Its NAICS code is 81392.